Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2018

Vitamin d oral spray

Hello everyone I have Uctd and secondary Raynauds and my vit d has always been consistently low. The standard vit d tablets from chemist hasn't helped get...

Hello everyone I have Uctd and secondary Raynauds and my vit d has always been ...

Daisy78

•6 years ago

15 Replies

Hearing Loss

Hello everyone. Next week I'm having Hearing aids fitted. I have SLE but it seems my Secondary Sjogrens is the cause of my hearing loss. Anyone else have this...

Hello everyone. Next week I'm having Hearing aids fitted. I have SLE but it seem...

pinkandfluffy

•6 years ago

2 Replies

Whaaaaat?

In December I ordered my meds online as usual, then requested to have access to more of my records online. I didn't expect much. Today I went on to order more...

In December I ordered my meds online as usual, then requested to have access to ...

Lupiknits

•6 years ago

19 Replies

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Rheumatology in Wales

I should be grateful for your views on the following: https://www.nras.org.uk/data/files/Publications/BSR%20NRAS%20Wales%20Report%2016.pdf Especially if you...

I should be grateful for your views on the following: https://www.nras.org.uk/da...

Kevin53

•6 years ago

7 Replies

Hidden SLE?

Hi brothers; please I'asking wheather there is a hidden type of SLE without the malar rash specially

Hi brothers; please I'asking wheather there is a hidden type of SLE without the ...

Vodoo

•6 years ago

9 Replies

Hiv symptoms

Unprotected anal sex with homosexual after that i feel hot mostly on neck and back all the time generally in day time,swollen lymp nodes,sore throat,cold...

Unprotected anal sex with homosexual after that i feel hot mostly on neck and ba...

saifkk

•6 years ago

8 Replies

Lovely lupus

I have found the better you know your attacker the less intimidating it becomes. Now 59 diagnosed age40 and was still working full time 2 jobs 3 shifts single...

I have found the better you know your attacker the less intimidating it becomes....

erksomewarrior

•6 years ago

2 Replies

Not the lupus!

Well... just about a year after I was convinced I had "the lupus" I have been diagnosed with dermatomyositis. I feel *happy* that there is something actually...

Well... just about a year after I was convinced I had "the lupus" I have been di...

Dessaboo

•6 years ago

5 Replies

Ongoing post re Rituximab infusions

Hi everyone Just a quick update following my first cycle of Rituximab infusions in December. As I said on my last post the 2 infusions went pretty well and I...

Hi everyone Just a quick update following my first cycle of Rituximab infusions...

Bakbre

•6 years ago

11 Replies

Thank you paul and team

Hi all well it's exactly4 years to date since my journey and wanted to say thank you to paul and everyone on here. I remember the early days where i was so...

Hi all well it's exactly4 years to date since my journey and wanted to say thank...

avionne

•6 years ago

1 Reply

Lumps

Hi I was wondering if anyone knows the cause of sporadic scalp pain and some small lumps on my head which have appeared. Initially I thought it might be a...

Hi I was wondering if anyone knows the cause of sporadic scalp pain and some sma...

CarolMcl

•6 years ago

26 Replies

The 'lupus spectrum'?

Hi, I saw my rhuemy who said I was on the 'lupus spectrum' and prescribed hydroxychloroquine and wants to see me in 3 months. Can anyone explain what the...

Hi, I saw my rhuemy who said I was on the 'lupus spectrum' and prescribed hydrox...

faipop

•6 years ago

6 Replies

Dry hands

Recently my hands have been so dry and tried different cream but nothing seems to help. What can I do to make my hands better? Is it down to lupus? My eyes...

Recently my hands have been so dry and tried different cream but nothing seems t...

Tulipano

•6 years ago

13 Replies

Hi everyone GM here

Hi, does anyone know if its dangerous for my g.p. to suddenly stop prescribing me prednisolone( devil drug) after 4 days??? Am worried, not slept for four...

Hi, does anyone know if its dangerous for my g.p. to suddenly stop prescribing m...

Gm1982

•6 years ago

4 Replies

Seen rheumatologist and still undiagnosed

So, I saw the rheumatologist today. To be honest he talked far more than he listened and he didn’t like being asked questions. He’s unwilling to make a...

So, I saw the rheumatologist today. To be honest he talked far more than he list...

AmyG6500

•6 years ago

5 Replies

Truly Awful Weekend

Last week I felt generally more achy and as if I had a virus, with sore eyes and headaches. In the early hours of Sat morning I had an explosive diarrhoea...

Last week I felt generally more achy and as if I had a virus, with sore eyes and...

Lupiknits

•6 years ago

8 Replies

Please spare a few minutes to complete HealthUnlocked's survey

Hi everyone, You will probably have noticed a message saying "Living with Lupus? Please answer a few questions to help us develop new features & resources...

Hi everyone, You will probably have noticed a message saying "Living with Lupus?...

Paul_Howard

Partner•6 years ago

Be the first to reply

Interesting article about diagnosing lupus distinctly from other skin conditions

http://www.xinhuanet.com/english/2018-01/09/c_136883172.htm

Hidden

•6 years ago

Be the first to reply

Sweats and giddy spells

For no reason at all i will suddenly just sweat buckets for few seconds or few minutes then all gone ir i will start shivering as in cold to the core all i...

For no reason at all i will suddenly just sweat buckets for few seconds or few m...

Tinathebus

•6 years ago

3 Replies

Confused

GP phoned today to say my blood had been looked at again and despite having positive ANA Rheumatologist has stated that no more tests to be done that they...

GP phoned today to say my blood had been looked at again and despite having posi...

stuart68

•6 years ago

3 Replies

Dissiness and Lupus

Hello, I would like to ask the users of this forum, who live with Lupus, if they have experienced dizziness, of the rotating type coming almost to fainting. I...

Hello, I would like to ask the users of this forum, who live with Lupus, if they...

Lapelos

•6 years ago

7 Replies

Worried sis

Hi guys...i took my sister for her blood work today and abdominal altrasound...Dr said he now have a cyst in her kidney....about 8 mm...but he said not to...

Hi guys...i took my sister for her blood work today and abdominal altrasound......

Hidden

•6 years ago

3 Replies

Constant breathlessness & Sweating

I've had Lupus for 23yrs i & everythin else that goes with Lupus. However since April 2017 i'm breathless & sweat pouring out me hair clothes everything's...

I've had Lupus for 23yrs i & everythin else that goes with Lupus. However since ...

Dgall

•6 years ago

1 Reply

Discoid lupus

I have been suffering with this over 16 years. I have lost all my hair and I am taking Hydroxychloroquine. now I’m suffering with my joints my knees .how can l...

I have been suffering with this over 16 years. I have lost all my hair and I am ...

Maggie000

•6 years ago

6 Replies

Eye sight

Today I had an optician appointment as I felt my vision had decreased and I was right. Two new pairs of glasses one for distance and one for reading and quite...

Today I had an optician appointment as I felt my vision had decreased and I was ...

Tinkerjack1912

•6 years ago

5 Replies

Connective tissue disease/Lupus? Still no diagnosis

Hi, anyone who will listen and help me make sense of what is happening to me. Struggling! Here is my story so far.. Last year after other medical issues (have...

Hi, anyone who will listen and help me make sense of what is happening to me. S...

Benne09

•6 years ago

26 Replies

Flu

Really suffering from flu and chest infection which is bringing on a flare any tips anyone

Really suffering from flu and chest infection which is bringing on a flare any t...

dianeee

•6 years ago

1 Reply

Transplant lungs

Am waiting after loads of tests to see if I’m eligible fir lung transplant have emphysema as well as lupus and many other illnesses is there any one else out...

Am waiting after loads of tests to see if I’m eligible fir lung transplant have ...

dawnbeaven

•6 years ago

3 Replies

Fitbit and health risks.

Okay so I have been googling and researching health risks posed with ‘fitbits’ So they give off radiation due to being a smart watch. Does this radiation pose...

Okay so I have been googling and researching health risks posed with ‘fitbits’ ...

imzi

•6 years ago

4 Replies

Hla B27 ankylosing spondylitis

Hi does anybody know much about this?? I have lupus and aps and now being checked for this as I have SI joint pain and previously had sacroilitis on X-ray with...

Hi does anybody know much about this?? I have lupus and aps and now being checke...

Sara_A

•6 years ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2018

Vitamin d oral spray

Hearing Loss

Whaaaaat?

Rheumatology in Wales

Hidden SLE?

Hiv symptoms

Lovely lupus

Not the lupus!

Ongoing post re Rituximab infusions

Thank you paul and team

Lumps

The 'lupus spectrum'?

Dry hands

Hi everyone GM here

Seen rheumatologist and still undiagnosed

Truly Awful Weekend

Please spare a few minutes to complete HealthUnlocked's survey

Interesting article about diagnosing lupus distinctly from other skin conditions

Sweats and giddy spells

Confused

Dissiness and Lupus

Worried sis

Constant breathlessness & Sweating

Discoid lupus

Eye sight

Connective tissue disease/Lupus? Still no diagnosis

Flu

Transplant lungs

Fitbit and health risks.

Hla B27 ankylosing spondylitis

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