Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2018

Jo1 antibodies and ANA

Hello everyone just wondered if it’s possible to have lupus without testing positive for J01 antibodies.tested positive ANA hep 2 cytoplasmic cells and got all...

Hello everyone just wondered if it’s possible to have lupus without testing posi...

Domi1041

•6 years ago

7 Replies

New to lupus

Hi my friends, my name is Julie and it's so nice to have y'all.

Lupusdown

•6 years ago

9 Replies

First Post

Hello. This is my first post...I have been diagnosed with Lupus. I am also pregnant which has made me feel even worse. Hope I can get the support I need from...

Hello. This is my first post...I have been diagnosed with Lupus. I am also pregn...

RahanaBi98

•6 years ago

13 Replies

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Life Insurance

Hi all Just wondered if anyone else in remission for Lupus has managed to get covered for life insurance? I have tried the usual routes and cannot get cover...

Hi all Just wondered if anyone else in remission for Lupus has managed to get co...

Heights69

•6 years ago

5 Replies

Bad bloods but feel well- ish?

So my most recent bloods showed a high result for both my liver function and esr. Both were over 100! My GP phoned my specialist and he wants to see me...

So my most recent bloods showed a high result for both my liver function and esr...

Penguintaz

•6 years ago

5 Replies

So many appointments, question about cancellation policies

Hi guys, Since being diagnosed with MCTD I've been scheduled for appointment after appointment and now just got a letter saying I've got to have an ECG at the...

Hi guys, Since being diagnosed with MCTD I've been scheduled for appointment af...

AmyJ3

•6 years ago

3 Replies

Sjogren????

I constantly have dry hands and eyes. But recently I wake up in the morning with very dry mouth and my tongue is stuck on the top of my mouth. I am worried...

I constantly have dry hands and eyes. But recently I wake up in the morning wit...

Tulipano

•6 years ago

3 Replies

Urine

Hi, I have noticed that my urine has a very strong smell. Any idea what could be? I don't have pain when I urinate. But I am not feeling too well. I don't...

Hi, I have noticed that my urine has a very strong smell. Any idea what could b...

Tulipano

•6 years ago

8 Replies

Lupus and pregnancy

Hi, I m new here. I have been diagnosed with Lupus in June 2016 a few weeks after having my fourth miscarriage. So far, I m only prescribed Hydroxycloroquine...

Hi, I m new here. I have been diagnosed with Lupus in June 2016 a few weeks afte...

Lulucy

•6 years ago

7 Replies

I Think I May Have Lupus? I'd be so grateful for some advice!

Hello all! This is my first post and I'm glad I found this forum as it looks like everyone is so kind and helpful. I've been sick for over 10 years with so...

Hello all! This is my first post and I'm glad I found this forum as it looks lik...

Hidden

•6 years ago

5 Replies

Dentist

Looks like I’m going to have to give in and get a dentist appointment. I would like to get my teeth cleaned anyways as I have some plaque on it. I need to go...

Looks like I’m going to have to give in and get a dentist appointment. I would ...

LouLamb

•6 years ago

11 Replies

Hi all!

Hi all. I have been unwell for approx 10 yrs now and after a gp visit the other day ending up with me being rushed to hospital due to a resting Heart rate of...

Hi all. I have been unwell for approx 10 yrs now and after a gp visit the other ...

mkh102

•6 years ago

1 Reply

Desperately need advice - stuck in a rut with CNS Lupus

Hi A few months ago I had a lumbar puncture and sensory tests done as I have we been diagnosed with CNS Lupus with possible high chord lesion. My symptoms are...

Hi A few months ago I had a lumbar puncture and sensory tests done as I have we ...

ange726

•6 years ago

7 Replies

Here we go again

Hi I’ve had a good run since coming out of hospital in September (due to we think methatrexate possibly causing a fistula due to my lowered immune system) but...

Hi I’ve had a good run since coming out of hospital in September (due to we thin...

Ianrussell69

•6 years ago

4 Replies

A little about me

Hi I am new to this . I found out January 2017 I have lupus . I am 35 year old mom of 2 kids . It Has been a real struggle working full time and not Having the...

Hi I am new to this . I found out January 2017 I have lupus . I am 35 year old m...

Cintronc1

•6 years ago

5 Replies

Are these symptoms lupus?

Hello, I'm Suzanne, 43 years old. I have narcolepsy with cataplexy, I've also been recently diagnosed with fibromyalgia in November 2017 after going back and...

Hello, I'm Suzanne, 43 years old. I have narcolepsy with cataplexy, I've also be...

mumsyme

•6 years ago

15 Replies

Mottled Skin= Livedo reticularis undiagnosed

hey, Excuse my ugly feet! I’M SOOOOO COLD!!! I wrote a post like this a while back but it’s getting worse, This is what my legs & toes looked like before...

hey, Excuse my ugly feet! I’M SOOOOO COLD!!! I wrote a post like this a whi...

LauraMk30

•6 years ago

12 Replies

Disability benefits climbdown

I thought about this when I read it this morning in another newspaper but someone has just posted it over on the PMRGCA forum and I decided to strike while the...

I thought about this when I read it this morning in another newspaper but someon...

PMRpro

•6 years ago

3 Replies

All is not lost

Hey, I posted an update earlier on my Oral/maxillofacial Appointment. I was told it would be 4-6 months for surgery. Just had a letter through the post -...

Hey, I posted an update earlier on my Oral/maxillofacial Appointment. I was t...

LauraMk30

•6 years ago

5 Replies

Has anyone been on venlafaxine?

Hi, I was at my gp for my sleeping issues (not being able to sleep or getting up during the night) She thinks it might be down to the hydrocortisone as I...

Hi, I was at my gp for my sleeping issues (not being able to sleep or getting u...

imzi

•6 years ago

17 Replies

Anyone take LEVOTHYROXINE for thyroid problems?

My numbers were too high, and the doc wants me to take levothyroxine. I've never been on a prescription before, so I'm wondering what others have to say about...

My numbers were too high, and the doc wants me to take levothyroxine. I've never...

Biloxi

•6 years ago

13 Replies

Better news

As your all know I have just completed a 14 month apprenticeship in October . Today I received my certificates . It was a long 14 months but I did it . I have...

As your all know I have just completed a 14 month apprenticeship in October . To...

LouLamb

•6 years ago

45 Replies

Anyone been told they 'tested positive as a carrier for Lupus'

My little sister was asked at her Rheumy appointment if she was having any more children and when she said no the consultant told her that it was probably a...

My little sister was asked at her Rheumy appointment if she was having any more ...

Lorska1

•6 years ago

7 Replies

lupus and confusion

hello evryone...I m worried about my sicknees..I m now taking 4mg steriods.is it lower dose?? is it safe to take one day after??I m really worried about this...

hello evryone...I m worried about my sicknees..I m now taking 4mg steriods.is it...

ava97

•6 years ago

5 Replies

Chills - hot and cold flashes?

Anyone have Lupus SLE with hot cold flashes- one day feels as though they have the flu and sinus infection and another day feels like they are normal?? Jen

Anyone have Lupus SLE with hot cold flashes- one day feels as though they have t...

jennyall12

•6 years ago

2 Replies

where can I find hydrocobalamin abm

where can I find hydroxocobalamin ABM?

lynnduncan

•6 years ago

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Ziki virus

Hi I wanted to go on Caribbean cruise last year but because of my low immune system from lupus I was advised not to.. Anyone got any thoughts on this or got...

Hi I wanted to go on Caribbean cruise last year but because of my low immune sys...

englishrose67

•6 years ago

3 Replies

Itchy tender scalp

Hi for last few weeks I've found my scalp has been really itchy as well as tender to touch. I don't know what the cause is unless its because I used a box hair...

Hi for last few weeks I've found my scalp has been really itchy as well as tende...

englishrose67

•6 years ago

4 Replies

Ouch! Painful feet and legs - any ideas? Is this part of lupus or something else?

More frequently I am experiencing severe burning pain in my feet and lower legs. I have neuropathy in my feet and my Raynauds symptoms have been worse in the...

More frequently I am experiencing severe burning pain in my feet and lower legs....

flap7

•6 years ago

14 Replies

Gp appointment

Went to the doctors tonight to see if she could do anything for me from my list, as next hospital appointment is end of March. I must say sitting here writing...

Went to the doctors tonight to see if she could do anything for me from my list,...

LouLamb

•6 years ago

40 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2018

Jo1 antibodies and ANA

New to lupus

First Post

Life Insurance

Bad bloods but feel well- ish?

So many appointments, question about cancellation policies

Sjogren????

Urine

Lupus and pregnancy

I Think I May Have Lupus? I'd be so grateful for some advice!

Dentist

Hi all!

Desperately need advice - stuck in a rut with CNS Lupus

Here we go again

A little about me

Are these symptoms lupus?

Mottled Skin= Livedo reticularis undiagnosed

Disability benefits climbdown

All is not lost

Has anyone been on venlafaxine?

Anyone take LEVOTHYROXINE for thyroid problems?

Better news

Anyone been told they 'tested positive as a carrier for Lupus'

lupus and confusion

Chills - hot and cold flashes?

where can I find hydrocobalamin abm

Ziki virus

Itchy tender scalp

Ouch! Painful feet and legs - any ideas? Is this part of lupus or something else?

Gp appointment

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