Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,728 members • 28,088 posts

All posts for January 2018

flares

suddenly feling sick and there is breath problem.also have a cough and cold.right chest upper side pain don't know why.??scars in hand visible.fatigue...

suddenly feling sick and there is breath problem.also have a cough and cold.righ...

ava97

•6 years ago

10 Replies

Join the charity Lupus UK / Don't forget to renew your membership

Just a reminder that membership subscriptions for the charity Lupus UK are due, please renew. If your not already a member please join them...

Just a reminder that membership subscriptions for the charity Lupus UK are due,...

fabwheelie

•6 years ago

1 Reply

Anemia rash?

Hi my dr put me on iron tablets at Christmas and still on them a few weeks ago i noticed i have little pin prick spots on my arms back and legs is this a side...

Hi my dr put me on iron tablets at Christmas and still on them a few weeks ago i...

heartgirlx4

•6 years ago

1 Reply

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Lupus

What to do for mouth sores related to lupus

Berm

•6 years ago

23 Replies

Could it be lupus

My 10 year old daughter has ITP (an autoimmune bleeding disorder) and I'm concerned that another autoimmune condition is going on too. She has had pain in her...

My 10 year old daughter has ITP (an autoimmune bleeding disorder) and I'm concer...

grasshopper2000

•6 years ago

6 Replies

Update on SLE + Erythromelagia

Just an update after the burning feet and legs post and helpful replies. Today's appointment with my consultant has been interesting. I left with a confirmed...

Just an update after the burning feet and legs post and helpful replies. Today's...

flap7

•6 years ago

9 Replies

Lupus skin rash

I have a reoccurring undiagnosed rash which burns like hell. A noticeable spike during the 2 weeks before my period. My rash is not limited to just my nose...

I have a reoccurring undiagnosed rash which burns like hell. A noticeable spike...

Lisalou19

•6 years ago

8 Replies

Kidney biopsy

Hello Just saw my consultant at addenbrookes hospital and since I have started the full treatment my blood tests are looking good but I still don't feel too...

Hello Just saw my consultant at addenbrookes hospital and since I have started t...

Tulipano

•6 years ago

3 Replies

Anxious

Had a call from the blood nurse, my liver enzyme is elevated. Been told to come off methetraxate and I’m scared my joints will start to be painful again. Being...

Had a call from the blood nurse, my liver enzyme is elevated. Been told to come ...

Lancslass1962

•6 years ago

2 Replies

Kidney infection

Hey! I’ve been really unwell the past few weeks tired l, peeing a lot last week my back started hurting at the bottom painkillers nothing was helping up all...

Hey! I’ve been really unwell the past few weeks tired l, peeing a lot last week...

Jess_doyle

•6 years ago

2 Replies

Mrs linda

I have a pain in my left ribs when I breath in and it hurts I have had a cold not got rid of it properly could you tell me what it could be

I have a pain in my left ribs when I breath in and it hurts I have had a cold no...

Lw62

•6 years ago

1 Reply

Cancer cells and immunosuppressants.

As many of you know, I've had a couple of biopsies since a routine mammogram picked up some calcium deposits. Thankfully, I've just been told it was normal....

As many of you know, I've had a couple of biopsies since a routine mammogram pic...

Georgie-girl

•6 years ago

11 Replies

Feeling dreadful-no one listening

Hi, i was diagnosed with severe me.cfs five years ago and have been housebound since then. Last year i was also diagnosed with fibromyalgia (not sure if i...

Hi, i was diagnosed with severe me.cfs five years ago and have been housebound s...

Kate16

•6 years ago

5 Replies

Is this just Lupus or something new?

Hi, Over the past few months I've developed some new symptoms and I can't decide if they are from my Lupus or if they're from something new. I'm hoping someone...

Hi, Over the past few months I've developed some new symptoms and I can't decide...

Bmagrl

•6 years ago

6 Replies

Gum problems?

Hey guys so I was recently diagnosed with lupus.. Like last year may and it's been sort of tough because all some of my bloods don't add up to everything but I...

Hey guys so I was recently diagnosed with lupus.. Like last year may and it's be...

Stephanie0210

•6 years ago

6 Replies

Anyone had chest imaging showing inflammation?

I am wondering if anyone has had imaging of their chest area which showed signs of inflammation? My team don’t want to do an MRI and I’ve had a CT but no one...

I am wondering if anyone has had imaging of their chest area which showed signs ...

cappygal

•6 years ago

31 Replies

Living with Multiple Conditions and the List Keeps Growing

I have so many conditions now that I have lost count. The funny and sad part is that doctors originally treated me as a hypochondriac--even after being...

I have so many conditions now that I have lost count. The funny and sad part is ...

MomsChronicRide

•6 years ago

Be the first to reply

Delayed reaction to steroid drop

Hi everyone, I came off my last one mm of prednisolone 8days ago. To my surprise, I felt wonderful, more positive and full of energy than I have for years....

Hi everyone, I came off my last one mm of prednisolone 8days ago. To my surprise...

Neriah

•6 years ago

11 Replies

Peeling palm

Hey Ladies & Gents Writing or typing has been kinda out of bounds for me, so I’m sorry I haven’t been able to reply to my previous post replies, this large...

Hey Ladies & Gents Writing or typing has been kinda out of bounds for me, so I...

LauraMk30

•6 years ago

14 Replies

Just a rash or malar rash

UPDATE - I can safely say this was dehydration, once I started drinking again it went, though I once had it for weeks, very bad in the morning and they called...

UPDATE - I can safely say this was dehydration, once I started drinking again it...

Krawlins

•6 years ago

10 Replies

Swellings??

Does anyone get swelling below collarbone and at top of sternum with lupus? My right tonsil hurts when I swallow but doesn't look inflamed or red. I have had...

Does anyone get swelling below collarbone and at top of sternum with lupus? My ...

mumsyme

•6 years ago

4 Replies

Living a Blessed Life with Lupus

Hi everyone, my name is Liz. I was diagnosed with both discoid/cutaneous, the skin manifestation and systemic lupus in 1981 after being ill for many years. The...

Hi everyone, my name is Liz. I was diagnosed with both discoid/cutaneous, the sk...

magpiemagpiemagpie18

•6 years ago

Be the first to reply

Hi there, does anyone know if Herceptin, that is used in cancer, is not good for a Lupus sufferer? Thank you.

Breast cancer, herceptin and lupus

Roxanaw

•6 years ago

4 Replies

Retuximab, I’ve just had my first infusion yesterday how worried should I be about infections/ colds I work in a big open plan office help

First time retuximab

dfehilly

•6 years ago

6 Replies

Hydroxychloroquine and photosensitivity

I'm diagnosed UCTD and I've been taking Hydroxychloroquine for 7 months. For people on this medication does your skin react quicker and/or more intensely to...

I'm diagnosed UCTD and I've been taking Hydroxychloroquine for 7 months. For pe...

Poppyfields65

•6 years ago

4 Replies

Severe Cold Urticaria and Lupus

Hello all, This is my first post and I’m hoping that some of you lovely people can help shed a little light on what’s going on........ I honestly feel like I’m...

Hello all, This is my first post and I’m hoping that some of you lovely people c...

Cellul

•6 years ago

4 Replies

C1q autoimmune blood test

On my last two blood test I had a positive c1q autoimmune. Do you know what that means and in what other disease apart from lupus can be positive? Thanks

On my last two blood test I had a positive c1q autoimmune. Do you know what that...

Tulipano

•6 years ago

2 Replies

Have To Go Barefoot Because Of Lupus

There are times when having to go barefoot is an inconvenience, so I have to be extremely careful. We heat our house with a modern fireplace, ( can you believe...

There are times when having to go barefoot is an inconvenience, so I have to be ...

Tiras

•6 years ago

15 Replies

Medicine

Do. Any one of you guys take mmf 500gram

Blessed25diva

•6 years ago

13 Replies

Rib cage Spleen

My left side of my rib cage is showing quite prominent and am worried my spleen is enlarged. I have been doing Dry January. Could this be the cause its is...

My left side of my rib cage is showing quite prominent and am worried my spleen ...

shells

•6 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2018

flares

Join the charity Lupus UK / Don't forget to renew your membership

Anemia rash?

Lupus

Could it be lupus

Update on SLE + Erythromelagia

Lupus skin rash

Kidney biopsy

Anxious

Kidney infection

Mrs linda

Cancer cells and immunosuppressants.

Feeling dreadful-no one listening

Is this just Lupus or something new?

Gum problems?

Anyone had chest imaging showing inflammation?

Living with Multiple Conditions and the List Keeps Growing

Delayed reaction to steroid drop

Peeling palm

Just a rash or malar rash

Swellings??

Living a Blessed Life with Lupus

Hi there, does anyone know if Herceptin, that is used in cancer, is not good for a Lupus sufferer? Thank you.

Retuximab, I’ve just had my first infusion yesterday how worried should I be about infections/ colds I work in a big open plan office help

Hydroxychloroquine and photosensitivity

Severe Cold Urticaria and Lupus

C1q autoimmune blood test

Have To Go Barefoot Because Of Lupus

Medicine

Rib cage Spleen

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