Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for November 2017

Update on my sensory tests and lumbar puncture re CNS Lupus

Hi everyone. I finally got some results back from my tests. I have been recently diagnosed with CNS Lupus with a potential high chord lesion. The results came...

Hi everyone. I finally got some results back from my tests. I have been recentl...

•7 years ago

Optican advice and plaquenil 👁👁

I had to stop plaquenil 3 weeks ago because of low White cell and neurophil count , since then ive been tired , achy and my eyes have been drier . I had an...

I had to stop plaquenil 3 weeks ago because of low White cell and neurophil coun...

•7 years ago

New apo

Hope this is OK to post, not got it myself but just seen a new lupus app advertised on twitter, available on IOS and Android Steve

Hope this is OK to post, not got it myself but just seen a new lupus app adverti...

•7 years ago

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Admitted to hospital for suspected AAA

Hello all, Well it's been a downhill spiral for me. I'm still having investigations for pancreatic pain . Still not eating, ensure shakes only. very...

Hello all, Well it's been a downhill spiral for me. I'm still having investiga...

•7 years ago

Weird Allergic Reactions

I was wondering if anyone has suffered from any odd allergic reactions that they think might be linked to their Lupus. A few nights ago I took an aspirin...

I was wondering if anyone has suffered from any odd allergic reactions that they...

•7 years ago

Biotin, has anyone tried it?

I'm starting to take biotin to fix my hair problem. This is still my 5th days so I can't give result soon. But I want to share things that I experienced. I...

I'm starting to take biotin to fix my hair problem. This is still my 5th days so...

•7 years ago

Guys Hospital apt to see Prof D'Cruz-Does he still work there?

Hi, I have an apt coming up to see Prof D'Cruz at Guy's Hospital. I noticed a thread on Facebook which mentioned someone had an appointment there recently and...

Hi, I have an apt coming up to see Prof D'Cruz at Guy's Hospital. I noticed a th...

•7 years ago

So scared that I might have lupus!!?

Please help and hear me out! , I’m new here so I don’t know where to start ... I’m really scared and just convinced myself that I have lupus because I’ve been...

Please help and hear me out! , I’m new here so I don’t know where to start ... I...

•7 years ago

Aortic stenosis

I'm sorry if I'm clogging up this feed with a subject that's inappropriate to it but I'm doing as much research as I can with my new diagnosis. I have been...

I'm sorry if I'm clogging up this feed with a subject that's inappropriate to it...

•7 years ago

Disappointing Rheumy Appointment

Went for my follow up appointment today, had loads to get through as until 3 months ago I hadn’t heard of lupus, started on hydroxy and was getting the results...

Went for my follow up appointment today, had loads to get through as until 3 mon...

•7 years ago

Not where I'd expect to get dating tips but...

Hello everyone! As I am new to this website, let me just give a brief introduction to myself. I was just recently diagnosed, on Oct 21, with SLE, although I...

Hello everyone! As I am new to this website, let me just give a brief introducti...

•7 years ago

More on PIP Failures: Today's BBC Radio 4 "You and Yours"

I caught part of a discussion about how PIP is failing people. I'll add the link, but here is a precis of what leapt out for me from what the disillusioned...

I caught part of a discussion about how PIP is failing people. I'll add the link...

•7 years ago

Extreme Fatigue

Hello all This is my first appearance on here 😆 I was just wondering if someone could give me any advice? I was diagnosed 5 years ago with discoid lupus and...

Hello all This is my first appearance on here 😆 I was just wondering if someone...

•7 years ago

Raynaud syndrome

Does this look no like a mild case? Or does it look normal. My hands feel weird pressure and numb feeling off and on.

Does this look no like a mild case? Or does it look normal. My hands feel weird ...

•7 years ago

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