Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,818 members • 28,154 posts

All posts for November 2017

Cold and in a lot of pain with the aching.

The last week has been awful with sitting in the house with the heating on and a fleeced jacket. Can't keep warm. The aching muscles and stiffness has got so...

The last week has been awful with sitting in the house with the heating on and a...

Mandypandy1969

•7 years ago

4 Replies

Being a Misery ( my words) 😢

No need for replies here, I'm just moaning via keyboard because the dog isn't listening. Well, to be honest I don't know if I'm being a misery or over-worrying...

No need for replies here, I'm just moaning via keyboard because the dog isn't li...

Lupiknits

•7 years ago

8 Replies

Adrenalin rushes in?

I've had a few weeks where I the daily flushing/nausea/shaking episodes had eased off. But this week, they seemed to be returning. This afternoon, I had a...

I've had a few weeks where I the daily flushing/nausea/shaking episodes had ease...

whisperit

•7 years ago

16 Replies

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Participants needed for study looking at interstitial lung disease

A research study is seeking patients aged 18+ with a diagnosis of interstitial lung disease. Interviews are being conducted in a studio in Hammersmith, London...

A research study is seeking patients aged 18+ with a diagnosis of interstitial l...

Paul_Howard

Partner•7 years ago

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Is there such a thing as total remission in lupus ?

I went to see my Renal consultant yesterday and he said from a renal point of view I am in remission , this is because there is no longer protein in my urine ....

I went to see my Renal consultant yesterday and he said from a renal point of vi...

Buffy14

•7 years ago

15 Replies

November's Topic of the Month - Working with Lupus (We want to hear your tips and experiences)

Our Topic of the Month discussions are back for November. This month we're chatting about 'Working with Lupus'. Due to the impact of symptoms and the...

Our Topic of the Month discussions are back for November. This month we're chatt...

Paul_Howard

Partner•7 years ago

14 Replies

I officially hate my Rheumatologist continued!!!

10 days ago I posted about my disastrous appointment with my Rheumatologist when he would not read my list of symptoms and refused to look at the photos I had...

10 days ago I posted about my disastrous appointment with my Rheumatologist when...

SLEepyhead123

•7 years ago

18 Replies

Please vote for LUPUS UK in the Charity Film Awards 2017

Hi everyone, I'm very pleased to announce that our video 'LUPUS: An Invisible Monster' (which you can watch below) has been nominated for the Charity...

Hi everyone, I'm very pleased to announce that our video 'LUPUS: An Invisible Mo...

Paul_Howard

Partner•7 years ago

24 Replies

Mixed Connective Tissue Disease?

Hello all, I saw my rheumatologist yesterday, he has said that my Lupus is mild and through experience, he thinks it should stay that way, he has prescribed me...

Hello all, I saw my rheumatologist yesterday, he has said that my Lupus is mild ...

4144diane

•7 years ago

7 Replies

Orthopaedic/rheumatology appointment combined.

Still undiagnosed and after MRI results of wrists, the hand surgeon has arranged a combined appointment with himself and rheumatology together but not sure...

Still undiagnosed and after MRI results of wrists, the hand surgeon has arranged...

Comeonpeeps

•7 years ago

3 Replies

New to Lupus so many questions. Current pain is old news but no new answers. Who else feels this and have you had a doctor help you?

After 8 years of pain discomfort confusion and outright feeling sick most of the time I was finally diagnosed with lupus January of last year. I have a...

After 8 years of pain discomfort confusion and outright feeling sick most of the...

4Desi

•7 years ago

3 Replies

Bruising feeling

For the last few days around the outside of my eyes feel bruised . No bruises there but just the feeling . Today I have also got the feeling on my arms. On...

For the last few days around the outside of my eyes feel bruised . No bruises th...

LouLamb

•7 years ago

6 Replies

Genetics and autoimmunity. Ideas, thoughts, any logical explanations, help or advice please.

Hello all you lovely autoimmune buddies. I hope you are all as well as you can be. Sorry I’ve been absent for a while but I’ve been struggling dealing with...

Hello all you lovely autoimmune buddies. I hope you are all as well as you can b...

Georgie-girl

•7 years ago

28 Replies

Everyday Life. e.s.a. stopped.

I am finding I am getting more and more forgetful, absent minded. I don't listen. getting more clumsy and lack concentration. Nothing like this came up in my...

I am finding I am getting more and more forgetful, absent minded. I don't listen...

Mandypandy1969

•7 years ago

9 Replies

Weeks 7 & 8 on antibiotics 😩

For those who have seen my posts about my 4 month old infected insect bite and subsequent cellulitis, today’s review appt with my GP didn’t go quite as well as...

For those who have seen my posts about my 4 month old infected insect bite and s...

Fennella02

•7 years ago

20 Replies

Stress and anxiety

Hi, this is my first post even though I have had lupus 17 years. In the last year I get really stressed out by hospital appointments. I get so anxious I can't...

Hi, this is my first post even though I have had lupus 17 years. In the last yea...

Maverick77

•7 years ago

6 Replies

Feeling down

I have hyper mobility, mild asthma and connective tissue disease (probable lupus) I was put on a immunosuppressant back in July. They are strong so I said I...

I have hyper mobility, mild asthma and connective tissue disease (probable lupus...

nutler

•7 years ago

4 Replies

Hot tub - good or bad?

Been on holiday to a 'hot tub lodge' and have spent the week since getting back feeling awful. Aches all over, headaches, joint pain, sooooo tired, ulcers in...

Been on holiday to a 'hot tub lodge' and have spent the week since getting back ...

Nat1969

•7 years ago

8 Replies

Meeting this Monday in Birmingham West Midlands

I won't be able to make this but if you live in Birmingham, West Midlands, UK, you might like to join Contact Debbie Atkins at the Lupus Support Meeting, Toby...

I won't be able to make this but if you live in Birmingham, West Midlands, UK, y...

fabwheelie

•7 years ago

Be the first to reply

Worry regarding PIP

Hi I'm new to this board so please bare with me if I post in the wrong area or make mistakes ! I've signed up to the website as my daughter has recently ( well...

Hi I'm new to this board so please bare with me if I post in the wrong area or m...

GrannieG

•7 years ago

11 Replies

Been off methatrexate now for 7 weeks

Not been posting for a bit but been busy getting back on my feet literally as I've posed before had an opp and have been taken off methatrexate due to bad...

Not been posting for a bit but been busy getting back on my feet literally as I'...

Ianrussell69

•7 years ago

2 Replies

3rd Meeting of the Pembrokeshire Lupus Support Group - Saturday 18th November 2017.

We have our 3rd meeting of the Pembrokeshire Lupus Support Group on Saturday 18th November, at Crundale Community Hall, in Crundale, near Haverfordwest. 10-12...

We have our 3rd meeting of the Pembrokeshire Lupus Support Group on Saturday 18t...

Wendy39

•7 years ago

4 Replies

DLA to PIP

⚠️⚠️⚠️SPOTLIGHT PROGRAMME TUESDAY 10.40PM⚠️⚠️⚠️ Worth watching......the programme will assess the impact of the new Personal Independence Payment in Northern...

⚠️⚠️⚠️SPOTLIGHT PROGRAMME TUESDAY 10.40PM⚠️⚠️⚠️ Worth watching......the programm...

Bronagh2015

•7 years ago

4 Replies

Very discouraged

Hi. I have been going to a rheumatologist for a few years now. Diagnosed with fibromyalgia abnormal blood and chronic fatigue. Dr says still in grey area for...

Hi. I have been going to a rheumatologist for a few years now. Diagnosed with fi...

Donnareed12

•7 years ago

3 Replies

e.s.a. stopped just like that

hi all, I was just wondering how many people have had their e.s.a. stopped. no way can I manage to hold a job down due to the great fatigue and aching heavy...

hi all, I was just wondering how many people have had their e.s.a. stopped. no w...

Mandypandy1969

•7 years ago

22 Replies

Late onset diagnosis

Is there a member in Sussex who would be able to discuss the options for easing severe joint and muscle pain. From my shoulders, arms, fingers, spine,, hips...

Is there a member in Sussex who would be able to discuss the options for easing ...

Seasidesuki

•7 years ago

15 Replies

Heart rate

Hello everyone, My heart rate is always high. I am wondering if it common in lupus or I should be worried. Thanks x

Hello everyone, My heart rate is always high. I am wondering if it common in lu...

Tulipano

•7 years ago

10 Replies

Leflunomide

Hello!, I have recently started the medication Leflunomide. Is anyone on here taking it?, and how do you find it? Thankyou

Hello!, I have recently started the medication Leflunomide. Is anyone on here ta...

Hidden

•7 years ago

8 Replies

Scared 😔

Hi everyone I just got told that I tested positive for ana and that it had a homogeneous pattern. That we going do more blood test to figure it out. And I'm...

Hi everyone I just got told that I tested positive for ana and that it had a hom...

Hidden

•7 years ago

19 Replies

The guilt!

How do you all handle the guilt of cancelling your attendance at the last minute? I’ve had a very stressful week and I’ve come over extremely fatigued, feeling...

How do you all handle the guilt of cancelling your attendance at the last minute...

JennaeClifford

•7 years ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2017

Cold and in a lot of pain with the aching.

Being a Misery ( my words) 😢

Adrenalin rushes in?

Participants needed for study looking at interstitial lung disease

Is there such a thing as total remission in lupus ?

November's Topic of the Month - Working with Lupus (We want to hear your tips and experiences)

I officially hate my Rheumatologist continued!!!

Please vote for LUPUS UK in the Charity Film Awards 2017

Mixed Connective Tissue Disease?

Orthopaedic/rheumatology appointment combined.

New to Lupus so many questions. Current pain is old news but no new answers. Who else feels this and have you had a doctor help you?

Bruising feeling

Genetics and autoimmunity. Ideas, thoughts, any logical explanations, help or advice please.

Everyday Life. e.s.a. stopped.

Weeks 7 & 8 on antibiotics 😩

Stress and anxiety

Feeling down

Hot tub - good or bad?

Meeting this Monday in Birmingham West Midlands

Worry regarding PIP

Been off methatrexate now for 7 weeks

3rd Meeting of the Pembrokeshire Lupus Support Group - Saturday 18th November 2017.

DLA to PIP

Very discouraged

e.s.a. stopped just like that

Late onset diagnosis

Heart rate

Leflunomide

Scared 😔

The guilt!

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