Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for November 2017

Ten weeks off methatrexate

Hi all well it’s been a bit of a rocky road with recovery from annul fistula surgery due to this I’ve been taken off methatrexate I was beginning to wonder if...

Hi all well it’s been a bit of a rocky road with recovery from annul fistula sur...

Ianrussell69

•6 years ago

4 Replies

Barefoot With Lupus

Good morning everyone or evening depending on where you are? As most of you know I have to go barefoot due to lupus skin issues. I have always kept my feet...

Good morning everyone or evening depending on where you are? As most of you ...

Tiras

•6 years ago

6 Replies

Happy birthday

Happy birthday to a very special man & dear friend Professor Graham Hughes, Consultant Rheumatologist & Head of the London Lupus Centre, London Bridge...

Happy birthday to a very special man & dear friend Professor Graham Hughes, Cons...

SuzanneJ

•6 years ago

3 Replies

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suicidal thoughts

I’m lost.. I’m sorry, Recently I’ve had 3 assessments in the past week in half over the phone regarding my mental health. I’ve been easily diagnosed with...

I’m lost.. I’m sorry, Recently I’ve had 3 assessments in the past week in half...

LauraMk30

•6 years ago

29 Replies

Feeling so weird.

Woke up this morning feeling okay, but this afternoon I start to feel so sick. Light headed, bloated, muscles pain, heartburn and tremors everywhere in my...

Woke up this morning feeling okay, but this afternoon I start to feel so sick. L...

Tulipano

•6 years ago

2 Replies

NEW VIDEOS!! YOUNG PEOPLE WITH LUPUS CONVERSATION (Diagnosis, Doctors, Mental Health, Social Media, Friends & Family)

Hello dear forum members, Last month I filmed a conversation with beloved Barnclown talking about Lupus at birth, patient-doctor dynamics and self-management...

Hello dear forum members, Last month I filmed a conversation with beloved Barncl...

lupusinflight

•6 years ago

72 Replies

Feet and ankles are screaming at me!

Sorry for being dramatic, but I'm so fed up with my feet and ankles. They are always a problem for me but at the moment they are awful, making walking...

Sorry for being dramatic, but I'm so fed up with my feet and ankles. They are a...

creaky

•6 years ago

6 Replies

Come off quinoric very suddenly

Hi everyone, about week and half ago I went to see my rheumy for a check up and told him having lots of pain in my right arm. Any way I ask is true what they...

Hi everyone, about week and half ago I went to see my rheumy for a check up an...

Brothersteve8

•6 years ago

5 Replies

Taking cbd oil with other meds

Can anyone point me in the direction of reliable information about possible interactions with prescribed meds and cbd oil? I will have a word with the...

Can anyone point me in the direction of reliable information about possible inte...

grannyjogger

•6 years ago

5 Replies

Chest pain help 😢

Wondering if any fellow lupus sufferers had suggestions on how to deal with chest pain and an explanation of why i might be getting them? Been coming and going...

Wondering if any fellow lupus sufferers had suggestions on how to deal with ches...

stephaniejpm

•6 years ago

9 Replies

Hair loss

Hi all. Had anyone suffered from hair loss whilst taking mycophenelate? I've been on it 4 months now but only.now has my hair started falling out. It's...

Hi all. Had anyone suffered from hair loss whilst taking mycophenelate? I've bee...

Twad

•6 years ago

6 Replies

Costochondritis in lupus

I've just come back Dr's who has said I have Costochondritis showed me diagram etc and what is inflammed in the rib cage said antibiotics should clear it up....

I've just come back Dr's who has said I have Costochondritis showed me diagram e...

Hidden

•6 years ago

19 Replies

Blood in the urine

I constantly have blood in my urine but ct scan and blood test results were normal. Definitely not urine infection so I am wondering if it is still my...

I constantly have blood in my urine but ct scan and blood test results were norm...

Tulipano

•6 years ago

10 Replies

Lips swollen

Hi, I'm new to this forum. I've just recently being diagnosed with lupus but today I woke up with swollen lips especially the upper one. My GP suspects it...

Hi, I'm new to this forum. I've just recently being diagnosed with lupus but tod...

malwela

•6 years ago

4 Replies

Reoccurring urine infection

I have been getting loads of urine infections recently, around 1 every month at the moment! Was wondering if this was the case with any one else with lupus ?

I have been getting loads of urine infections recently, around 1 every month at ...

stephaniejpm

•6 years ago

20 Replies

Red feet

Does anyone have feet that look like this?

Macsimum_de

•6 years ago

23 Replies

Pneumonia vaccine & nerve damage from blood test?

Anyone else having problems getting the pneumonia vaccine? My GP’s say they’re in short supply and haven’t got them yet which sounds bizarre as it’s nearly...

Anyone else having problems getting the pneumonia vaccine? My GP’s say they’re i...

MissFG

•6 years ago

5 Replies

Blue badge assessment

Hello I have a blue badge assessment on Saturday. Any tips?! Thanks.

MandaH1

•6 years ago

10 Replies

Malar rash

How does a malar feel?

shareasmile

•6 years ago

7 Replies

Happy Thanksgiving!

For us in United States to day is a national holiday! I want to wish each and everyone of Y'all, even my friends all over the world. A HAPPY THANKSGIVING.

For us in United States to day is a national holiday! I want to wish each and e...

Tiras

•6 years ago

8 Replies

Am suspecting I have lupus

Having bloods done today for Lupus, I myself have asked the doctor for this who looked at me bizarre. I have been suffering weird symptoms for some time years...

Having bloods done today for Lupus, I myself have asked the doctor for this who ...

Geri76

•6 years ago

4 Replies

Help

I'm hoping someone can help I'm 30 and suffer widespread pain in every single part of my body the doctor has said I have fibromyalgia but no medication seems...

I'm hoping someone can help I'm 30 and suffer widespread pain in every single pa...

Lljb

•6 years ago

9 Replies

Carpal tunnel surgery

Hi I'm due to have surgery in two weeks and was told to stop my Cellcept and plaquenill 2 weeks before and not to start them again until my hand has healed.The...

Hi I'm due to have surgery in two weeks and was told to stop my Cellcept and pla...

1573

•6 years ago

5 Replies

Is this a normal feeling with Plaquenil ?

Hi, I'm new to this site and to treatments for RA and Lupus. I was diagnosised 35 yrs ago with RA and recent blood work put me on the path to see a Rhuematiod...

Hi, I'm new to this site and to treatments for RA and Lupus. I was diagnosised ...

gmasheila

•6 years ago

6 Replies

Rituximab again

Last Thursday I had my fourth of a two part course of Rituximab infusion along with oral Piriton and Paracetamol tablets. I started to sleep because of the...

Last Thursday I had my fourth of a two part course of Rituximab infusion along w...

Maureenpearl

•6 years ago

6 Replies

Carpal Tunnel a life saver.

In my last post I talked about my holiday and results of Carpal Tunnel tests. Last Wednesday I went in for review with GP, and she had results that I should...

In my last post I talked about my holiday and results of Carpal Tunnel tests. L...

Chapter

•6 years ago

7 Replies

Feeling flush

I haven't been on for quite some time. Has anyone ever felt flush ears, throat and get hoarse? I have positive Ana but not yet diagnosed. Have many symptoms...

I haven't been on for quite some time. Has anyone ever felt flush ears, throat a...

Dalollies

•6 years ago

5 Replies

Hives

Hi fellow lupies, I pray that you are all well. A couple of weeks ago i started getting this hives like rash. First it came on slowly abit on my face and legs....

Hi fellow lupies, I pray that you are all well. A couple of weeks ago i started ...

heda123

•6 years ago

13 Replies

Fevers - sinus infections ...

Does anyone get lupus flares with fevers / sinus infections ?

jennyall12

•6 years ago

5 Replies

Lupus /joint hypermobility / recent diagnosis

My 21 year old daughter was recently diagnosed with lupus. Her rheumatologist is sympathetic but has said that 'chasing it with drugs isn't the answer. Fair...

My 21 year old daughter was recently diagnosed with lupus. Her rheumatologist is...

Hidden

•6 years ago

23 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2017

Ten weeks off methatrexate

Barefoot With Lupus

Happy birthday

suicidal thoughts

Feeling so weird.

NEW VIDEOS!! YOUNG PEOPLE WITH LUPUS CONVERSATION (Diagnosis, Doctors, Mental Health, Social Media, Friends & Family)

Feet and ankles are screaming at me!

Come off quinoric very suddenly

Taking cbd oil with other meds

Chest pain help 😢

Hair loss

Costochondritis in lupus

Blood in the urine

Lips swollen

Reoccurring urine infection

Red feet

Pneumonia vaccine & nerve damage from blood test?

Blue badge assessment

Malar rash

Happy Thanksgiving!

Am suspecting I have lupus

Help

Carpal tunnel surgery

Is this a normal feeling with Plaquenil ?

Rituximab again

Carpal Tunnel a life saver.

Feeling flush

Hives

Fevers - sinus infections ...

Lupus /joint hypermobility / recent diagnosis

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