Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,818 members • 28,154 posts

All posts for October 2017

Caught in a postcode lottery

Hey ho...more of a ramble than anything. Went to new hospital team yesterday. I use the term 'team' very loosely as I felt more like cattle at an auction house...

Hey ho...more of a ramble than anything. Went to new hospital team yesterday. I ...

Silvergilt

•7 years ago

4 Replies

prednisolone

had a great response from prednisokone first time around. this time nothing like the last time. fatigue, aching. bloody nightmare. started hydroxy 3 weeks ago....

had a great response from prednisokone first time around. this time nothing like...

Mandypandy1969

•7 years ago

4 Replies

Child Ana

Good evening everyone, So I have SLE, Sjögrens, and Raynauds and hyper mobility. For a while now my 9 year old has been under the weather. She has been...

Good evening everyone, So I have SLE, Sjögrens, and Raynauds and hyper mobility...

Bellacat2011

•7 years ago

2 Replies

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Picking your brains

Hi, I am undiagnosed. I went to the rheumatologist and the experience was unhelpful. I was just researching Beau's nails and found this group. My pain is...

Hi, I am undiagnosed. I went to the rheumatologist and the experience was unhelp...

Betsy006

•7 years ago

2 Replies

Lump on arm where nurse drew blood on 19th September and itchy / tender

I attended my GPs surgery on 19th September for bloods, as ordered by my Rheumy. Usually done at the end of Rheumy appt, but she wanted fasting bloods....

I attended my GPs surgery on 19th September for bloods, as ordered by my Rheumy....

Wendy39

•7 years ago

1 Reply

7 DAYS POST - Steroid Hip Injections

It's been a week since these steroid injections were given, I had one in both hips. The 3 anaesthetic injections were more painful than the hip one. The...

It's been a week since these steroid injections were given, I had one in both hi...

InnerBeauty

•7 years ago

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Flare?

I've been sporting this attractive rash on my front, back, face and arms for a few days. I spoke to my GP on the phone yesterday who seemed to think it was an...

I've been sporting this attractive rash on my front, back, face and arms for a f...

flap7

•7 years ago

12 Replies

Am I stark, raving bonkers? 🤤

My dearest friends, It has been ages since I posted, I have been reading your posts and keeping up to date that way but a lot has happened since I last......

My dearest friends, It has been ages since I posted, I have been reading your po...

Charliebear68

•7 years ago

22 Replies

Can you help please

Can anyone let me know of a good consultant in or near Bristol, How best can I find out, please. Thank you very much for help.

Can anyone let me know of a good consultant in or near Bristol, How best can I ...

Gcart

•7 years ago

9 Replies

Another long awaited post

I'm getting really bad at this posting. It's been 10 months. I am on a site in the USA called MyLupusTeam. Terminology is more familiar than the UK as I...

I'm getting really bad at this posting. It's been 10 months. I am on a site in...

abby1649

•7 years ago

5 Replies

Low

Feeling really low today and feel like screaming why me. My whole body aches and my kneess are reall painful

Feeling really low today and feel like screaming why me. My whole body aches and...

Lancslass1962

•7 years ago

1 Reply

prednisolone.

been given another months course of prednisolone. into my fourth day and not much relief this time. I had an injection when I last saw rheumy nurse last month...

been given another months course of prednisolone. into my fourth day and not muc...

Mandypandy1969

•7 years ago

7 Replies

September's Topic of the Month - Getting Diagnosed with Lupus

Our blog article for September about getting diagnosed with lupus has now been published. http://www.lupusuk.org.uk/getting-diagnosed/ Thank you so much to...

Our blog article for September about getting diagnosed with lupus has now been p...

Paul_Howard

Partner•7 years ago

2 Replies

Confused by Rheumy appointment and everything else. Please advise? At my wits end 😓

Hi everyone. It's been a while since I posted last. Alot has went on so I'll recap quickly: - Positive Ana, Ena, C reactive protein, Ro and elevated platelets...

Hi everyone. It's been a while since I posted last. Alot has went on so I'll rec...

Nat1291

•7 years ago

9 Replies

Newly diagnosed

New here I am 50 years old and newly diagnosed with lupus can any one give me some advice?

New here I am 50 years old and newly diagnosed with lupus can any one give me so...

LadyJ1214

•7 years ago

4 Replies

dsDNA blood test

I've come over from thyroid uk and could I ask a question here. Having been to docs with dry eyes and dry mouth, body aches go without saying My dsDNA came...

I've come over from thyroid uk and could I ask a question here. Having been to ...

Gcart

•7 years ago

6 Replies

Ill health retirement

Am considering applying for this. I am a teacher. Am only 42 but I feel I can't do it anymore. Wondered if anybody has experience of this?

Am considering applying for this. I am a teacher. Am only 42 but I feel I can't ...

estpem

•7 years ago

11 Replies

Tired Today

Feeling tired today, luckily I haven't had many episodes of fatigue since diagnosed. Lupus does teach you that having sufficient rest and sleep is very...

Feeling tired today, luckily I haven't had many episodes of fatigue since diagno...

Johnnyb10

•7 years ago

1 Reply

Stomach

Hi My stomach feel so bloated. I hardly eat and my belly is huge 😭 could it be down to my kidneys ? I am having a kidney biopsy soon.

Hi My stomach feel so bloated. I hardly eat and my belly is huge 😭 could it be...

Tulipano

•7 years ago

11 Replies

Mystery illness

Doctors don't know what is wrong with me which has left me with no option but to try and find out for myself. I've been unwell and very run down for years but...

Doctors don't know what is wrong with me which has left me with no option but to...

Clairel1985

•7 years ago

9 Replies

I'm new here, diagnosed a few days ago. Only 21 and need advice on how to carry on...

I have been struggling with extreme fatigued and achy, painful swollen joints for months..getting to the stage in which I can hardly stand in the morning...

I have been struggling with extreme fatigued and achy, painful swollen joints fo...

alice_doick135

•7 years ago

11 Replies

Coughing, pain in my head & tasting blood

In June I got pneumonia for 2 months, 3 months later I'm still coughing & sometimes taste blood when I cough, also since June, when I cough hard I get this...

In June I got pneumonia for 2 months, 3 months later I'm still coughing & someti...

Tdolaher5

•7 years ago

1 Reply

Hiccups

I am experiencing hiccups a lot lately; usually when I start to eat. I thought it might be heart related as I can feel my heart flutter often. I take blood...

I am experiencing hiccups a lot lately; usually when I start to eat. I thought...

Meg03

•7 years ago

2 Replies

Knee update

Well today’s the day that I go in for my knee op to try and repair some of the damage caused by AVN and falls. Admission booked for 12:30 so I’m just finishing...

Well today’s the day that I go in for my knee op to try and repair some of the d...

Rubylu

•7 years ago

13 Replies

Lupus choking and feeling like throat goes into a spasm

I get extremely bad reflux and choke during the night and also daytime. When I choke and end up in a coughing fit, it then feels like my throat is going into a...

I get extremely bad reflux and choke during the night and also daytime. When I c...

Lorska1

•7 years ago

17 Replies

Chest pain

Hi This morning I woke up feeling like my chest was on fire. Was burning and a bit painful. Even though I wasn't out of breath I felt like I had to take deep...

Hi This morning I woke up feeling like my chest was on fire. Was burning and a b...

Tulipano

•7 years ago

2 Replies

GoTheExtraMile photos

Photo from todays run

Johnnyb10

•7 years ago

3 Replies

GoTheExtraMile 4mile run

Thanks for all your comments, I ran the 4miles this morning and have raised £283 for Lupus. We need to keep going with raising funds and making people aware of...

Thanks for all your comments, I ran the 4miles this morning and have raised £283...

Johnnyb10

•7 years ago

1 Reply

Finally Home in my comfort zone

Hello everyone. Hope you are all ok x Nice to be back in my own bed, So Some of my family came to visit me when I got home on Friday which was nice but...

Hello everyone. Hope you are all ok x Nice to be back in my own bed, So Some ...

LauraMk30

•7 years ago

8 Replies

18th birthday

Hi everyone I wish I wasn't here but I am and am probably going to be needing your support. My son has just been discharged from a horrible week in hospital...

Hi everyone I wish I wasn't here but I am and am probably going to be needing y...

Deegraham

•7 years ago

24 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2017

Caught in a postcode lottery

prednisolone

Child Ana

Picking your brains

Lump on arm where nurse drew blood on 19th September and itchy / tender

7 DAYS POST - Steroid Hip Injections

Flare?

Am I stark, raving bonkers? 🤤

Can you help please

Another long awaited post

Low

prednisolone.

September's Topic of the Month - Getting Diagnosed with Lupus

Confused by Rheumy appointment and everything else. Please advise? At my wits end 😓

Newly diagnosed

dsDNA blood test

Ill health retirement

Tired Today

Stomach

Mystery illness

I'm new here, diagnosed a few days ago. Only 21 and need advice on how to carry on...

Coughing, pain in my head & tasting blood

Hiccups

Knee update

Lupus choking and feeling like throat goes into a spasm

Chest pain

GoTheExtraMile photos

GoTheExtraMile 4mile run

Finally Home in my comfort zone

18th birthday

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