Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,821 members • 28,155 posts

All posts for October 2017

Anxious

I did labs today and I hate waiting for the results ... Anyone else experience this?? How do you cope and deal? Jen

I did labs today and I hate waiting for the results ... Anyone else experience t...

jennyall12

•7 years ago

7 Replies

Hydroxychloroquine

I Am taking 400mg of hydroxychloroquine and I have noticed that my appetite has gone down (quite happy with that) and I have terrible nausea and stomach ache....

I Am taking 400mg of hydroxychloroquine and I have noticed that my appetite has ...

Tulipano

•7 years ago

6 Replies

Flare and the unbelievable pain

I got diagnosed over a year ago with UCTD even though I fit everything for LUPUS except the positive ANA's and have been on Plaquenil ever since. Life has been...

I got diagnosed over a year ago with UCTD even though I fit everything for LUPUS...

LucyK5821

•7 years ago

9 Replies

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Infusion

Has anyone had lidocaine infusions

biddy75

•7 years ago

4 Replies

Fatigue

Hi All. Hoping for some advise please. I am struggling badly with fatigue and have been for few months. I've had to take time off work with it which didn't...

Hi All. Hoping for some advise please. I am struggling badly with fatigue and h...

Hollydebs

•7 years ago

14 Replies

Throat discomfort

I am new runny , finding it hard to handle the symptoms

Runny

•7 years ago

10 Replies

Still getting more pain

Hi all, so following on from my multiple joint pain, I have tried to get referred to rheumatologist but no one is willing to do it. I have had a really bad...

Hi all, so following on from my multiple joint pain, I have tried to get referre...

jrrees81

•7 years ago

8 Replies

Leukocytes in urine

Hi... Had moderate lower abdominal for 3 weeks. Then found I've been lost on the system and am not on the rheumatologist waiting list. Dr on Monday to sort...

Hi... Had moderate lower abdominal for 3 weeks. Then found I've been lost on the...

Jennieja

•7 years ago

1 Reply

SLE with Sjögren's syndrome

I was diagnosed with SLE when I was 15, I'm 19 now and I get flares like twice a year. I was diagnosed with Sjögren's syndrome too a few weeks ago. This year...

I was diagnosed with SLE when I was 15, I'm 19 now and I get flares like twice a...

Butterflyer

•7 years ago

8 Replies

Severelightheadedness

How do I tackle

Runny

•7 years ago

3 Replies

Prescription charge

Went to get my prescription for zentiva today and been told have to pay extra as cost over NHS amount is that right never had to pay extra before

Went to get my prescription for zentiva today and been told have to pay extra as...

dianeee

•7 years ago

8 Replies

Christmas Cards for Lupus

Anyone who needs Christmas cards can purchase them using the Lupus UK website site, help support the cause. Thanks John

Anyone who needs Christmas cards can purchase them using the Lupus UK website si...

Johnnyb10

•7 years ago

2 Replies

It’s not been good . . !

I’ve posted a couple of times about the infected bite (insect or sea-living) from my Caribbean holiday some months ago. It has refused to settle despite...

I’ve posted a couple of times about the infected bite (insect or sea-living) fro...

Fennella02

•7 years ago

10 Replies

Another drug

Hi has anyone been on drapsone Dr wants to try this one he said don't worry about side affects but the last drug belimumb I had caused damage to my throat so...

Hi has anyone been on drapsone Dr wants to try this one he said don't worry abou...

charmaineholmes

•7 years ago

6 Replies

HIB vaccine

Has anyone had to have a Hibb vaccine? I have had numerous haemafilus influenza infections since having rituximab. In fact I can’t get rid of it at the moment...

Has anyone had to have a Hibb vaccine? I have had numerous haemafilus influenza ...

joannebond360

•7 years ago

3 Replies

Driving licence

Hello everyone Just thought I would update you on getting my replacement driving licence and it's good news!. It's been approved and is on its way, no...

Hello everyone Just thought I would update you on getting my replacement drivin...

misty14

•7 years ago

47 Replies

Any advice accepted in UCTD area

Sorry everyone but I've been diagnosed with a UCTD but also have a meningioma in my brain/spinal area (on a watch and wait for the latter). My problem, beside...

Sorry everyone but I've been diagnosed with a UCTD but also have a meningioma in...

Angiedj

•7 years ago

7 Replies

Update after paying to go private.

Hi everyone hope you are all well.......Today I took my daughter for her follow up appointment after having MORE blood tests and another urine test. This time...

Hi everyone hope you are all well.......Today I took my daughter for her follow ...

JoBriggs

•7 years ago

5 Replies

Help with biopsy results please!

Hi everyone, was wondering if anyone could relate to my skin biopsy results? Had ongoing issues for years with painful joints (which recently an MRI has...

Hi everyone, was wondering if anyone could relate to my skin biopsy results? Ha...

Comeonpeeps

•7 years ago

13 Replies

AWARENESS MONTH

HI All, As I have indicated on Twitter, throughout October all my runs will be in the purple Lupus running vest. This includes training runs and my weekly Park...

HI All, As I have indicated on Twitter, throughout October all my runs will be i...

Johnnyb10

•7 years ago

1 Reply

Could this be lupus ?

Hi, thank you first of all to anyone reading this post. I am new to this forum and I have not been diagnosed with this condition, but more and more I think it...

Hi, thank you first of all to anyone reading this post. I am new to this forum a...

DeniseBee

•7 years ago

5 Replies

WHOS' AFRAID OF THE BIG BAD WOLF

"Who's Afraid of the Big, Bad Wolf?" (My Lupus Journey)© There was a Walt Disney cartoon (boy, I’m telling my age!) named “The Three Little Pigs”. Most of us...

lupusforme

•7 years ago

10 Replies

Depressing!

I hate being on meds ,.. I am on plaqinil, 200 Mgs daily. I tried going off of it and flared badly :( I seriously hate knowing that I am dependent on a drug...

I hate being on meds ,.. I am on plaqinil, 200 Mgs daily. I tried going off of i...

jennyall12

•7 years ago

4 Replies

Is fatigue Lupus related?

I have been diagnosed with fibromyalgia but I have always had a good nights sleep, I sleep for around 7-9hours a night but in the daytime fatigue is awful and...

I have been diagnosed with fibromyalgia but I have always had a good nights slee...

suzannejayne

•7 years ago

10 Replies

PIP update ... the (very) long and winding road

So for anyone who has been following the saga that is my PIP appeal I thought I’d do a new update. If your memory goes back that far my first appeal was back...

So for anyone who has been following the saga that is my PIP appeal I thought I’...

Mifford

•7 years ago

11 Replies

Azathioprine

Hello I was wondering if anyone takes Hydroxychoroquine as well Azathioprine and how does it work together I am starting the Azathioprine on Wednesday but been...

Hello I was wondering if anyone takes Hydroxychoroquine as well Azathioprine and...

alisoncrowther

•7 years ago

19 Replies

Severe pain and swelling below knee cap region .

Hi, My mother has swelling in her legs , below knee caps above the bone . She has trouble in walking and feels severe pain doing the same . There is numbness...

Hi, My mother has swelling in her legs , below knee caps above the bone . She ha...

JakeBlack

•7 years ago

1 Reply

Lupus Nephritis IV

Was diagnosed with lupus last month. I’ve been suffering joint pain and inflammation since end of July this year. Had an urgent kidney biopsy last week and...

Was diagnosed with lupus last month. I’ve been suffering joint pain and inflamma...

Wizz13

•7 years ago

10 Replies

Feeling very down. Awful fatigue. This is the loneliest journey at times.

Hi everyone Sorry in advance for what will seem like self pity and rambling but I don't know who else to talk to. As you'll see from my previous posts, I'm in...

Hi everyone Sorry in advance for what will seem like self pity and rambling but...

Nat1291

•7 years ago

14 Replies

HRT with SLE

Hi everyone, I've recently had a hysterectomy and been suffering terrible menopausal symptoms. I'm considering HRT but have been told it's risky in SLE...

Hi everyone, I've recently had a hysterectomy and been suffering terrible menopa...

primrose9

•7 years ago

9 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2017

Anxious

Hydroxychloroquine

Flare and the unbelievable pain

Infusion

Fatigue

Throat discomfort

Still getting more pain

Leukocytes in urine

SLE with Sjögren's syndrome

Severelightheadedness

Prescription charge

Christmas Cards for Lupus

It’s not been good . . !

Another drug

HIB vaccine

Driving licence

Any advice accepted in UCTD area

Update after paying to go private.

Help with biopsy results please!

AWARENESS MONTH

Could this be lupus ?

WHOS' AFRAID OF THE BIG BAD WOLF

Depressing!

Is fatigue Lupus related?

PIP update ... the (very) long and winding road

Azathioprine

Severe pain and swelling below knee cap region .

Lupus Nephritis IV

Feeling very down. Awful fatigue. This is the loneliest journey at times.

HRT with SLE

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