Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for October 2017

Need advice on new GP please!

Hello everyone, I just moved to London a month ago and would like to get registered with a GP. My last doctor (back in Mexico City where I was living) sent me...

Hello everyone, I just moved to London a month ago and would like to get registe...

MerB90

•7 years ago

6 Replies

Labs ...

I rec'd labs back as docs were watching the white cell count which was low. It has gone from 1.2 to 1.8 in three months ... doc says all the other lab work...

I rec'd labs back as docs were watching the white cell count which was low. It h...

jennyall12

•7 years ago

2 Replies

Lyme and lupus oh my

I am not on disability as of yet but I was headed that way fast. You see I am an electrician and having to do the physically demanding work was taking me down...

I am not on disability as of yet but I was headed that way fast. You see I am an...

Tally30176

•7 years ago

5 Replies

Want to take advantage of all our features? Just log in!

PIP - the final chapter (hopefully!)

As promised I received the Tribunal decision this morning and typed a big long update earlier quoting what it said etc ... and my iPad did something odd and I...

As promised I received the Tribunal decision this morning and typed a big long u...

Mifford

•7 years ago

18 Replies

Wanted know if there r anyone day centres or lupus groups they r based in east London . M bored n isolated thank u all stay blessed 🙏🌟🌟

Wanted know if there r anyone day centres or lupus groups they r based in east L...

Mystik

•7 years ago

2 Replies

Just so tired

Morning all, now I know with Lupus chronic fatigue is a big thing and I get that but I’m really struggling. All I do is look forward to going to bed. I’m not...

Morning all, now I know with Lupus chronic fatigue is a big thing and I get that...

JennaeClifford

•7 years ago

8 Replies

Recent collapse

I recently had an episode where I came over very weak and collapsed, my partner helped me to the bed where I came over very cold and my whole body spasmed...

I recently had an episode where I came over very weak and collapsed, my partner ...

Dan30cr

•7 years ago

3 Replies

Results --

So I have been having low white count for the past year. It has gone from 1.5, to 1.7, to 1.2 to 1.8. My recent labs show it went up from 1.2 to 1.8 in about 3...

So I have been having low white count for the past year. It has gone from 1.5, t...

jennyall12

•7 years ago

1 Reply

BBC Website: Invisible Disabilities

I'm sure a lot of us can relate to this http://www.bbc.co.uk/news/disability-41733769

I'm sure a lot of us can relate to this http://www.bbc.co.uk/news/disability-417...

Lupiknits

•7 years ago

1 Reply

Pip mobility

Hi Has anyone been told that your score is 10, but because you can use a sat nav to plan a journey your refused motability part even though she has Fibro, if...

Hi Has anyone been told that your score is 10, but because you can use a sat nav...

Cal66

•7 years ago

8 Replies

Vitamin D question

Hi everyone, Just quick question for those of you who know about vitamin D. Had GP surgery on phone: I was Vit D deficient (30) this time last year and...

Hi everyone, Just quick question for those of you who know about vitamin D. Ha...

Hidden

•7 years ago

12 Replies

Trying to reduce steroids

Trying to reduce steroids and feeling anxious+Little depressed, Also feel quite isolated. Anybody feel like this trying to reduce steroids? Thanks

Trying to reduce steroids and feeling anxious+Little depressed, Also feel quite ...

Clemenceau

•7 years ago

3 Replies

Can't believe it

I fly home tomorrow night and land early hours of Friday . Been an amazing 2 weeks , had some bad new from work yesterday about a child but apart from that...

I fly home tomorrow night and land early hours of Friday . Been an amazing 2 wee...

LouLamb

•7 years ago

8 Replies

Help with fatiguability

Iam 55 diagnosed with lupus 15 years Currently on hydroxchloroquine.no system involvement my problem mild joint pain and severe fatiguabiliy....any thing...

Iam 55 diagnosed with lupus 15 years Currently on hydroxchloroquine.no system in...

Southall

•7 years ago

9 Replies

Wanting a diagnosis

Hi, I've just joined this group and feel frustrated with my health issues. 15 years ago was diagnosed with an under active Thyroid, prior to that was diagnosed...

Hi, I've just joined this group and feel frustrated with my health issues. 15 ye...

Corinna_55

•7 years ago

2 Replies

Worried

I had my bloods taken last week and I got a call from the hospital saying my liver enzimes have risen dramatically. Got another appointment for bloods next...

I had my bloods taken last week and I got a call from the hospital saying my liv...

Lancslass1962

•7 years ago

4 Replies

Annoying comments

What to stay to people who keep saying that I just need to exercise more? I suffer with lupus sle and polymyositis 😭

What to stay to people who keep saying that I just need to exercise more? I suff...

Tulipano

•7 years ago

7 Replies

Pregablin

Hi, I have been taking pregablin for around 4 months now and although my GP keeps upping my dose I haven't had any benefit from it at all. Before that I was...

Hi, I have been taking pregablin for around 4 months now and although my GP keep...

suzannejayne

•7 years ago

11 Replies

Wheezing

Hi I woke up during the night because I felt like I could not breath and wheezing. I was so scared. I can breath but when I take a deep breath I start to...

Hi I woke up during the night because I felt like I could not breath and wheezin...

Tulipano

•7 years ago

2 Replies

Vitamin D updates and hair problem

About a month ago I went to doctor and talked about my symptomps (hairloss, dry skin, headache sometimes). He suggested me to test my vit D levels and it was...

About a month ago I went to doctor and talked about my symptomps (hairloss, dry ...

Babymilo

•7 years ago

10 Replies

Hallucinations

Hi all, not posted on here for a while. Aside from my skin lesions and fatigue my symptoms had been very mild which is great. But the last week or so I seem to...

Hi all, not posted on here for a while. Aside from my skin lesions and fatigue m...

Athens94

•7 years ago

13 Replies

Alendronic Acid

My son has been told to take this weekly to help protect his bones ( he has SLE and lupus nephritis so on prednisolone) . I don't like the look of all the...

My son has been told to take this weekly to help protect his bones ( he has SLE ...

Deegraham

•7 years ago

16 Replies

Just Want to Cry!

On Saturday I went to collect my meds from the pharmacy. It's not too far to walk so I took my dog. We walked in a different direction which was exciting...

On Saturday I went to collect my meds from the pharmacy. It's not too far to wal...

Lupiknits

•7 years ago

23 Replies

Azathioprine

Hi All, I am starting azathioprine on Thursday and have been suspended from work while I am on them as they are immunosuppressants and I work in a lab....

Hi All, I am starting azathioprine on Thursday and have been suspended from wo...

AmyKG

•7 years ago

15 Replies

Newbie

Hi I’m Jacqui I was diagnosed with Lupus 2-3 years ago and nothing more was done until recently when I was given the mild tablet for Lupus (stomach went mad so...

Hi I’m Jacqui I was diagnosed with Lupus 2-3 years ago and nothing more was done...

Jacqui296

•7 years ago

5 Replies

Diet tips anyone

Hi Everyone, I have been following you guys for a few months now. I have RA and a fibrotic lung condition. I have notice that we all are struggling with...

Hi Everyone, I have been following you guys for a few months now. I have RA and ...

Zhee

•7 years ago

5 Replies

Heavy and weak

Hi lovely people My body feels like lead and I feel really weak with a pounding headache. Maybe I’m coming down with something ?? Hope you’re all well and...

Hi lovely people My body feels like lead and I feel really weak with a pounding ...

Celestine71

•7 years ago

1 Reply

Hoarse after stress?

Hi all. It's been awhile so hope everyone is doing well (or the best you can!). So, I had an experience lately that has only happened to me once before, many...

Hi all. It's been awhile so hope everyone is doing well (or the best you can!). ...

katidid

•7 years ago

6 Replies

Strange mark

Does anyone know what this is? I noticed it this evening because it was slightly itchy. It looks like a blood blister but is more red. I did have several bouts...

Does anyone know what this is? I noticed it this evening because it was slightly...

Suecon

•7 years ago

8 Replies

Lupus?

Hi I am new to site. I have hypothyroidism but I had an autoimmune profile show up positive anti nuclear antibodies (Hep2 speckled) and positive anti smooth...

Hi I am new to site. I have hypothyroidism but I had an autoimmune profile show ...

Peachy86

•7 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2017

Need advice on new GP please!

Labs ...

Lyme and lupus oh my

PIP - the final chapter (hopefully!)

Wanted know if there r anyone day centres or lupus groups they r based in east London . M bored n isolated thank u all stay blessed 🙏🌟🌟

Just so tired

Recent collapse

Results --

BBC Website: Invisible Disabilities

Pip mobility

Vitamin D question

Trying to reduce steroids

Can't believe it

Help with fatiguability

Wanting a diagnosis

Worried

Annoying comments

Pregablin

Wheezing

Vitamin D updates and hair problem

Hallucinations

Alendronic Acid

Just Want to Cry!

Azathioprine

Newbie

Diet tips anyone

Heavy and weak

Hoarse after stress?

Strange mark

Lupus?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive