Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,854 members • 28,196 posts

All posts for August 2017

Gerd / throat issues but no indigestion

When my first symptoms a the UCTD appeared, so did this feeling on my throat which has got progressively worse. I have tried PPIs without much luck. I was told...

When my first symptoms a the UCTD appeared, so did this feeling on my throat whi...

Thereisalight

•7 years ago

15 Replies

Mum & son

I'm having a moment... Instead of bottling up I wanted to share it. I think the saying is " a problem shared is a problem halved" My 13 year old son is...

I'm having a moment... Instead of bottling up I wanted to share it. I think th...

LauraMk30

•7 years ago

21 Replies

Crazy I know but does anyone have this crazy lymph node problem

I know it's been awhile since I posted but my neck breAks out in lesions and get crusty and hair grows under neither it but not noal it's long and fells like...

I know it's been awhile since I posted but my neck breAks out in lesions and get...

Lilrosie1

•7 years ago

1 Reply

Want to take advantage of all our features? Just log in!

lupus cure

can lupus disappear. diagnosed with lupus by two specialist. now told i never had lupus any suggestions

can lupus disappear. diagnosed with lupus by two specialist. now told i never ha...

bluetit42

•7 years ago

30 Replies

Weight loss

I started my weight loss August 2015 so 2 years ago today . I have lost 2 stones . The pic on the left was a family holiday in 2014 and the right is me...

I started my weight loss August 2015 so 2 years ago today . I have lost 2 stones...

LouLamb

•7 years ago

51 Replies

23, newly diagnosed SLE, struggling to cope

Hi, Thought I'd sign up to this forum as when I was having strange symptoms and waiting for test results before my diagnosis, this site constantly cropped up...

Hi, Thought I'd sign up to this forum as when I was having strange symptoms an...

AmyKG

•7 years ago

8 Replies

Skin rash

Hi all Last day i expose to hot weather and sun Unfortunately today in morning I developed fever snd flu like illness But sudden rash on my thigh and botouck...

Hi all Last day i expose to hot weather and sun Unfortunately today in morning ...

Hidden

•7 years ago

8 Replies

Diagnosed Yesterday With SLE

Hello all , it's my first time posting.. I have been having investigations for ANCA Vasculitis for the past 7 months, but been having ongoing health problems...

Hello all , it's my first time posting.. I have been having investigations for...

LauraMk30

•7 years ago

21 Replies

Skin care

Hello all . My face has been bothering for a time now . I go the whole day without thinking about until it comes time to go out and see people. My face is red...

Hello all . My face has been bothering for a time now . I go the whole day witho...

LouLamb

•7 years ago

9 Replies

Itching like crazy! Help!

Hi, I'm 47 and was diagnosed with Lupus and kidney disease in 1997. I was on dialysis for almost 4 years. I received a bilateral kidney transplant in 2001 and...

Hi, I'm 47 and was diagnosed with Lupus and kidney disease in 1997. I was on dia...

LupieMom

•7 years ago

2 Replies

Diagnosed Yesterday With SLE

Hello all , it's my first time posting.. I have been having investigations for ANCA Vasculitis for the past 7 months, but been having ongoing health problems...

Hello all , it's my first time posting.. I have been having investigations for...

LauraMk30

•7 years ago

11 Replies

Rituximab and steroid injection 🤔

Hi there , I just had another rituximab infusion a week ago , second s on the 18 th , im still tired but otherwise ok . I had results of an mri from the rheumy...

Hi there , I just had another rituximab infusion a week ago , second s on the 18...

weathervane

•7 years ago

27 Replies

Having a stay in my PJs and resting in bed day - but doing well on the whole. Mepacrine seems to suit me.

Woke with a headache and fuzziness in my head this morning. I am also tired. So having a stay in my PJs in bed day. I've taken paracetamol, ibuprofen &...

Woke with a headache and fuzziness in my head this morning. I am also tired. So ...

Wendy39

•7 years ago

30 Replies

I still haven't found what I'm looking for (or what could work for me!)

Hey everyone (: My name is Mercedes and I was erroneously diagnosed with "Severe Depression" when I was 13 years old. I spent five years taking...

Hey everyone (: My name is Mercedes and I was erroneously diagnosed with "Sever...

MerB90

•7 years ago

10 Replies

Cbd oil?

Hi everyone, this is my first post. I was diagnosed with lupus in April and in May I started taking lupus meds. I had a allergic reaction to the medication....

Hi everyone, this is my first post. I was diagnosed with lupus in April and in ...

pj5129

•7 years ago

Be the first to reply

Pre-lupus

I have my found myself categorising memories and events as pre-lupus. Does anybody else do this ? On my Facebook it popped up that 3 years ago today I was on...

I have my found myself categorising memories and events as pre-lupus. Does anybo...

LouLamb

•7 years ago

10 Replies

Brain fog is wrecking my life help!

Can't remember names, places, events and so many details of my life and work. Sometimes it's so bad I catch myself drifting off for hours or constantly...

Can't remember names, places, events and so many details of my life and work. So...

katidid

•7 years ago

11 Replies

Painful wrist/hand flare - Lupus SLE

Hi all, I'm trying to type this without aggravating my hands as I am currently suffering with a flare up in both my hands and wrists. I keep getting pains when...

Hi all, I'm trying to type this without aggravating my hands as I am currently s...

Shellbelldaubney

•7 years ago

22 Replies

Update on worst week ever...

My dearest friends, If I haven't replied directly to your lovely messages then please accept my heartfelt apologies. I've been drugged up to the eyeballs and...

My dearest friends, If I haven't replied directly to your lovely messages then p...

Charliebear68

•7 years ago

28 Replies

No Man Land Without a Shield! Any thoughts please

Hi All So I saw Dr Griffiths who was lovely & looked like we had pinned my varied symptoms down to polymyositis. Two raised CKs (1350) 4 wks apart. No...

Hi All So I saw Dr Griffiths who was lovely & looked like we had pinned my varie...

spiceyandsugar

•7 years ago

6 Replies

Chest pain 😡

Been having excruciating chest pain. Mainly left hand side, sometimes above breast and in shoulder, sometimes under breast and also middle of my chest (sternum...

Been having excruciating chest pain. Mainly left hand side, sometimes above brea...

Charlottelauren

•7 years ago

11 Replies

Home

I've arrived home . I'm in bed now . Feels nice being back in my own bed . I'm going to watch the last 3 episodes of game of thrones so I'm up to date with it...

I've arrived home . I'm in bed now . Feels nice being back in my own bed . I'm g...

LouLamb

•7 years ago

Be the first to reply

Lupus healthy eating

Hi, does anyone follow the Paleo Autoimmune Protocol (AIP) diet? or any other special diet that helps their lupus?

Hi, does anyone follow the Paleo Autoimmune Protocol (AIP) diet? or any other sp...

MandaH1

•7 years ago

4 Replies

Pedal exerciser

Hi, my partner has just bought us a pedal exerciser! I kept saying I wish I could do some exercise from on the sofa as I just feel too exhausted to even go...

Hi, my partner has just bought us a pedal exerciser! I kept saying I wish I coul...

Sara_A

•7 years ago

3 Replies

July's Topic of the Month - Managing Your Finances

Our blog article for July about managing your finances has now been published. http://www.lupusuk.org.uk/managing-finances/ Thank you so much to everybody who...

Our blog article for July about managing your finances has now been published. h...

Paul_Howard

Partner•7 years ago

Be the first to reply

Drug induced Lupus

Hi all i am a 47 year old male found to have drug induced Lupus,My question is they say coming off certain meds will help the symptom's, but what happens if...

Hi all i am a 47 year old male found to have drug induced Lupus,My question is t...

fatherchristmas2013

•7 years ago

13 Replies

flare or kidney infection?

Well i still haven't been diagnosed, last time i saw my rhumy was june - now sent a letter saying he wont see me until november?! I am still being checked for...

Well i still haven't been diagnosed, last time i saw my rhumy was june - now sen...

Hidden

•7 years ago

7 Replies

not diagnosed

Hi everyone, Initially, I went to the doctor because i felt a swollen lymph node in my neck and he referred me to a surgeon who said it was fine and not...

Hi everyone, Initially, I went to the doctor because i felt a swollen lymph nod...

Sana78

•7 years ago

7 Replies

Over thinking things

I know I'm overthinking things but here it goes . My Aunty , uncle and cousin may be going away in October and asked me if I wanted to come . I said of...

I know I'm overthinking things but here it goes . My Aunty , uncle and cousin ...

LouLamb

•7 years ago

12 Replies

Pain relief

In need of some advice, has anybody ever tried using amber beads or backers to help aid pain relief for lupus x

In need of some advice, has anybody ever tried using amber beads or backers to h...

Clareward78

•7 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2017

Gerd / throat issues but no indigestion

Mum & son

Crazy I know but does anyone have this crazy lymph node problem

lupus cure

Weight loss

23, newly diagnosed SLE, struggling to cope

Skin rash

Diagnosed Yesterday With SLE

Skin care

Itching like crazy! Help!

Diagnosed Yesterday With SLE

Rituximab and steroid injection 🤔

Having a stay in my PJs and resting in bed day - but doing well on the whole. Mepacrine seems to suit me.

I still haven't found what I'm looking for (or what could work for me!)

Cbd oil?

Pre-lupus

Brain fog is wrecking my life help!

Painful wrist/hand flare - Lupus SLE

Update on worst week ever...

No Man Land Without a Shield! Any thoughts please

Chest pain 😡

Home

Lupus healthy eating

Pedal exerciser

July's Topic of the Month - Managing Your Finances

Drug induced Lupus

flare or kidney infection?

not diagnosed

Over thinking things

Pain relief

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive