Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for July 2017

My Biological therapist

I generally spend more than 23 hours a day in the house, 7 days a week. So it's a wonder that I am not more bonkers than I am. The trick is that I have a small...

I generally spend more than 23 hours a day in the house, 7 days a week. So it's ...

whisperit

•7 years ago

32 Replies

Lung Tests

Hey all Me again! Sorry to be posting once again. Apparently the hospital tried several times to get hold of me last week but with no success, although I was...

Hey all Me again! Sorry to be posting once again. Apparently the hospital trie...

LSurtees

•7 years ago

8 Replies

Need help

I have been told by a gastric doctor that I should take B12 injections for the pain in my live bowl area. I've had cameras and everything looks normal, done...

I have been told by a gastric doctor that I should take B12 injections for the ...

Tomomi29

•7 years ago

3 Replies

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Swollen feet/ankles

Hi my name is Kim I have been told that lupus is in my blood but as I am on warfarin because of a dvt they are unable to run more tests. Could someone please...

Hi my name is Kim I have been told that lupus is in my blood but as I am on warf...

kim1967

•7 years ago

3 Replies

Assessment day

Got a letter today for a pip assessment . Thursday 13th July 9am . Guess me ringing up got them moving 👍🏼. Very nervous about it as last time had a home...

Got a letter today for a pip assessment . Thursday 13th July 9am . Guess me ring...

LouLamb

•7 years ago

14 Replies

SUPER frustrating

My doc took me off plaqunil because my white blood cell count was too low. Now I am on NOTHING and 6 months after being OFF the plaqunil I am getting hand...

My doc took me off plaqunil because my white blood cell count was too low. Now I...

jennyall12

•7 years ago

1 Reply

Searching for answers (is it autoimmune?)

I've been having issues for a few years now which largely involve fatigue. I've been diagnosed with hypothyroidism (with antibodies) and some vitamin...

I've been having issues for a few years now which largely involve fatigue. I've ...

BubbleMonkey

•7 years ago

8 Replies

June's Topic of the Month - Involving technology in your healthcare

Our blog article for June about involving technology in your healthcare has now been published....

Our blog article for June about involving technology in your healthcare has now ...

Paul_Howard

Partner•7 years ago

1 Reply

Rituximab - feed back please

Hi there My rheumy is thinking about me trying rituximab. Have any of you been on this and how did you get on. Any side effects? Did you feel it helped? Did it...

Hi there My rheumy is thinking about me trying rituximab. Have any of you been o...

hildebeast

•7 years ago

4 Replies

Done it again

Had a good week end went to Stratford river festival with all the family as it always falls week end before or just after my b day lots of factor 50 hat the...

Had a good week end went to Stratford river festival with all the family as it a...

Ianrussell69

•7 years ago

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Pip

Hi my condition got worse like I'm on pycotics and paraoxatine I was on pip so I done the decent thing and told them my condition has been diagnosed worse...

Hi my condition got worse like I'm on pycotics and paraoxatine I was on pip so ...

Hidden

•7 years ago

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Granduloma Annular

Good morning all! I too have an many health issues and immune disorder. Has anyone ever heard of Granduloma Annular? Diagnosed with bioposy. My ANA was...

Good morning all! I too have an many health issues and immune disorder. Has anyo...

Sweetnlow

•7 years ago

2 Replies

Dry and irritation eyes

Hi I am suffering from sjogren.i have very dry eyes.i also went to optician ,he said me also dry eyes.i am already putting hylo tears and lubricant gel .it...

Hi I am suffering from sjogren.i have very dry eyes.i also went to optician ,he ...

sonika786

•7 years ago

4 Replies

Cut my hair.

So, i cut my hair Super short. It was a daring and brave decision on my part. I have never had short hair EVER! Ive been on plaquenil, bactrim, methotrexate,...

So, i cut my hair Super short. It was a daring and brave decision on my part. I ...

Jaylowdancer

•7 years ago

7 Replies

Hi, I haven't posted in a while, been hurting sooo bad.

It's been awful, I work full time and my job is soooo stressful. So much drama and crazy going on at every level. I've been offered another job that starts in...

It's been awful, I work full time and my job is soooo stressful. So much drama a...

Loopydroopy

•7 years ago

4 Replies

I need to get this off my chest then I can sleep!

1. My British Gas boiler is playing up again. I've hated it since it was installed when they flooded through the ceiling of my kitchen twice ( fortunately I...

1. My British Gas boiler is playing up again. I've hated it since it was install...

Lupiknits

•7 years ago

9 Replies

PIP follow up

I rang pip as I haven't heard anything from them since April when they told me they received my form . It's been 10 weeks . They said they received all my...

I rang pip as I haven't heard anything from them since April when they told me t...

LouLamb

•7 years ago

17 Replies

Complete lung function test, recently diagnosed SLE

Hi all, I was diagnosed with Lupus around 2 weeks ago, I was sent for all sorts of tests one of which was chest x-ray as have difficulty breathing and chest...

Hi all, I was diagnosed with Lupus around 2 weeks ago, I was sent for all sorts ...

Loopy87

•7 years ago

23 Replies

pain down my back

I have been experiencing pain in my back down my right side and trouble breathing

I have been experiencing pain in my back down my right side and trouble breathin...

meiceman63

•7 years ago

6 Replies

new diagnosis

i just got diagnosed like three weeks ago. i've been crying every day since. each day i wonder if it will be the day i accept it finally. i'm constantly on...

i just got diagnosed like three weeks ago. i've been crying every day since. eac...

kay814

•7 years ago

22 Replies

Newbie

I have the dotted rash all over, hellish fatigue, purple and red fingers and toes. Headaches, hair falling out, rash along lip line and my ANA came back at...

I have the dotted rash all over, hellish fatigue, purple and red fingers and toe...

Jennaj79

•7 years ago

2 Replies

Armed for doctor appointment 😠

Following on from previous post about disappointing rheumy visit . I have severe stabbing pain in sacroiliac area , hip and leg it maybe from bulging disc .Im...

Following on from previous post about disappointing rheumy visit . I have severe...

weathervane

•7 years ago

33 Replies

Lupus or anxiety?

Hello, My gp is currently testing me for lupus, I'm worried he is wasting his time, I had a negative ana test 2 years ago and every doctor I have seen before...

Hello, My gp is currently testing me for lupus, I'm worried he is wasting his ti...

Tigtigs

•7 years ago

17 Replies

Bye Bye Xavier

Welp, it finally happened. The 'you are INVITED to apply for PIP form' came in the post, a good four months before my DLA award is due to stop. As I'm...

Welp, it finally happened. The 'you are INVITED to apply for PIP form' came in t...

Silvergilt

•7 years ago

10 Replies

Hi

I've just been told I have lupus

Eddie1970

•7 years ago

6 Replies

20th driving lesson

7:30 am start for me today ! Today's driving seemed to go very well . I drove to Pinner as that is where I am going to be doing my test . The driving guy...

7:30 am start for me today ! Today's driving seemed to go very well . I drove to...

LouLamb

•7 years ago

6 Replies

ESA No need for a Doctors Note

Hi i was hoping that someone can put my mind at rest i attended a ESA heath assessment on March the 7 and some time later received a phone call saying i had...

Hi i was hoping that someone can put my mind at rest i attended a ESA heath asse...

Tibby1

•7 years ago

6 Replies

Daughter in search of helping her mom.

Hello looking for some advice. My mom that i love dearly has Lupus she have lost her hair,she at times have pain in her joints complain about headache and...

Hello looking for some advice. My mom that i love dearly has Lupus she have lost...

Majormonique37

•7 years ago

3 Replies

Wife is extremely short tempered with me (husband) and I need help

Name is Dave and I'm trying so hard to please my wife on anything and I end up saying the wrong words and she explodes with anger at me...help!

Name is Dave and I'm trying so hard to please my wife on anything and I end up s...

Bounty17

•7 years ago

17 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2017

My Biological therapist

Lung Tests

Need help

Swollen feet/ankles

Assessment day

SUPER frustrating

Searching for answers (is it autoimmune?)

June's Topic of the Month - Involving technology in your healthcare

Rituximab - feed back please

Done it again

Pip

Granduloma Annular

Dry and irritation eyes

Cut my hair.

Hi, I haven't posted in a while, been hurting sooo bad.

I need to get this off my chest then I can sleep!

PIP follow up

Complete lung function test, recently diagnosed SLE

pain down my back

new diagnosis

Newbie

Armed for doctor appointment 😠

Lupus or anxiety?

Bye Bye Xavier

Hi

20th driving lesson

ESA No need for a Doctors Note

Daughter in search of helping her mom.

Wife is extremely short tempered with me (husband) and I need help

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