Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for July 2017

Red or pink butterfly rash?

Hiya I'm trying ascertain if a lupus butterfly rash has ever presented pink for anyone instead if the usual red? I had the correct pattern and it felt hot like...

Hiya I'm trying ascertain if a lupus butterfly rash has ever presented pink for ...

spiceyandsugar

•7 years ago

8 Replies

Butterfly rash with Sjogren's?

What exactly brings on the butterfly rash? Is it actually a rash of bumps or just red splotches? I've not be diagnosed with Lupus. I have Sjogren's and RA....

What exactly brings on the butterfly rash? Is it actually a rash of bumps or jus...

wsjkcj1

•7 years ago

8 Replies

How many Lupus patients in the UK?

Hello everyone! Does anyone know how many Lupus patients are there in the UK? Thank you!

Hello everyone! Does anyone know how many Lupus patients are there in the UK? ...

Dalilatm

•7 years ago

8 Replies

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Subcutaneous

Hi does anybody have subcutaneous lupus and is also on mepacrine please,as u can seemim in a skin flare up and the mepacrine is pigmentating my skin x

Hi does anybody have subcutaneous lupus and is also on mepacrine please,as u ca...

kittykat68

•7 years ago

13 Replies

Predisolone diary 6: struggling to stick to 4mg

I've now been on 4mg daily for about 8 weeks, sticking it out in the hope that my adrenal system will kick in and restore its natural functioning given enough...

I've now been on 4mg daily for about 8 weeks, sticking it out in the hope that m...

whisperit

•7 years ago

33 Replies

someone tell me what this is ??

so this has appeared on my arm, i just noticed it today it hasn't been itchy and i wouldn't have noticed it unless my amazing girlfriend spotted it and told me...

so this has appeared on my arm, i just noticed it today it hasn't been itchy and...

shaunhughes123

•7 years ago

7 Replies

Not Lupus

I was diagnosed with Lupus 15 years ago from complaining of chronic fatigue! My blood tests apparently indicated lupus at the time because of a raised ANA...

I was diagnosed with Lupus 15 years ago from complaining of chronic fatigue! My ...

fifi6

•7 years ago

26 Replies

Advice on painkillers please?

I’ve had a headache for about 7 weeks now. I insist 1 headache as it just not let up at all. My GP told me that I should stop taking Co-dydramol tablets as...

I’ve had a headache for about 7 weeks now. I insist 1 headache as it just not l...

Nat1969

•7 years ago

7 Replies

Who would you recommend to help diagnose in London or England

Hi. Can anyone help me find a doctor who can help diagnose me. I only have the money for one private appointment. So I need to be very careful to get this...

Hi. Can anyone help me find a doctor who can help diagnose me. I only have the m...

Nikkilama

•7 years ago

9 Replies

Me

I am in my early 70's and have had fibromyalgia for years. I have a full and happy life but have questions about this old age and things happening.

I am in my early 70's and have had fibromyalgia for years. I have a full and ha...

GeeGee1943

•7 years ago

6 Replies

KNOW THE SYMPTOMS......A.A.A.D.D. =Age Activated Attention Deficit Disorder

Thank goodness there's a name for this disorder. Somehow I feel better, even though I have it !! Recently, I was diagnosed with A.A.A.D.D. = Age...

Thank goodness there's a name for this disorder. Somehow I feel better, even tho...

SLEEPINGDOG

•7 years ago

2 Replies

Hi. Does anyone know about CRP levels please

Hi. The only result I have had that has been substantial proof of something wrong was this. My CRP level was 107 then the week after it was 5. I'm still not...

Hi. The only result I have had that has been substantial proof of something wron...

Nikkilama

•7 years ago

13 Replies

Age spots on my right leg. Related to lupus?

I have some age kind of rashes on my right leg. Does anyone know what this is? I am only 35 years old Indian female and i have sle, itp, apla. I am on...

I have some age kind of rashes on my right leg. Does anyone know what this is?...

Jhavibha_2013

•7 years ago

1 Reply

Am I losing it

Just found this site as I was looking up why I sometimes forget the names of things stupid things that I know the names of but can't spit them out when trying...

Just found this site as I was looking up why I sometimes forget the names of thi...

donnalee65

•7 years ago

6 Replies

Butterfly rash

Looking at some old photos a few days ago I came across one where the butterfly rash is very noticeable, but not to me at the time. Is it possible to have it...

Looking at some old photos a few days ago I came across one where the butterfly ...

Suecon

•7 years ago

7 Replies

Blood in urine?

I am undiagnosed. I have an appointment at the end of August for Rheumatology. I have come up positive for RA but have not had the tests yet for Lupus...

I am undiagnosed. I have an appointment at the end of August for Rheumatology. I...

cheshcat

•7 years ago

29 Replies

When should we expect hair loss and how can we reduce it?

I have been through quite a lot over the past year but now feeling good and nearly feeling myself again. I have been losing hair the whole time that I have...

I have been through quite a lot over the past year but now feeling good and near...

HannahLupus

•7 years ago

6 Replies

Rheumatology progress

Hello again, I had my second appointment with the rheumatologist yesterday and I'm a little further forward with diagnosis. Because of my great response to...

Hello again, I had my second appointment with the rheumatologist yesterday and...

NicT

•7 years ago

3 Replies

Bruised gum??

So I wake up today go to floss/brush my teeth and notice this on my gum not sure if it's a bruise or a burst vein and I'm not sure if I should be worried. I've...

So I wake up today go to floss/brush my teeth and notice this on my gum not sure...

Sami1982

•7 years ago

7 Replies

Sterilisation yesterday...

Had my sterilisation op yesterday via keyhole, the op in its self went well. After op whilst coming round of anesthetic the lupus kicks in. I could breathe or...

Had my sterilisation op yesterday via keyhole, the op in its self went well. Aft...

Hidden

•7 years ago

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Fatigue

Hi everyone What's the best way to deal with fatigue? I try to pace myself but still feel exhausted quite often. Thanks

Hi everyone What's the best way to deal with fatigue? I try to pace myself but s...

Sunflower-1

•7 years ago

23 Replies

Anyone on here need methylated vitamin b?

I'm starting MTX and I forgot to tell my Dr I can't process normal B vitamins. He gave me folic acid to take along with it. I'm just wondering if I need the...

I'm starting MTX and I forgot to tell my Dr I can't process normal B vitamins. H...

Loopydroopy

•7 years ago

4 Replies

The power of positive thinking

I'm a great believer in the power of positive thinking. On that basis, I'd like to ask a favour. On Wednesday I go under the knife for a triple bypass and...

I'm a great believer in the power of positive thinking. On that basis, I'd like ...

maurice1

•7 years ago

28 Replies

Switched methotrexate to azathioprine and am now always hungry?!

I've switched tablets from metho to azathioprine around 4 weeks ago. I'm feeling rather run down at the moment so I know it hasn't fully kicked in yet, but on...

I've switched tablets from metho to azathioprine around 4 weeks ago. I'm feeling...

SLC03

•7 years ago

3 Replies

Moving home!!!

Hi guys, I'm moving to Glasgow in just over a weeks time. I have SLE with significant renal impairment. Currently I'm under the care of renal and rheumatology...

Hi guys, I'm moving to Glasgow in just over a weeks time. I have SLE with signi...

Nikkiemorgan

•7 years ago

4 Replies

Help please, rather confused! X

(Posted in two places)?Hi just a quick one, I hope it makes sense 😊 I currently get PIP standard mobility from 2015, I got much worse, more problems so I told...

(Posted in two places)?Hi just a quick one, I hope it makes sense 😊 I currently...

Anyac81

•7 years ago

4 Replies

Getting rid of a verruca?

Has anyone had a verruca while they have had lupus and managed to get rid of it? I've literally had mine for years and feel like I have tried everything that...

Has anyone had a verruca while they have had lupus and managed to get rid of it?...

HannahLupus

•7 years ago

10 Replies

23 rd driving lesson

Today's lesson went better than others. Made a mistake and let it go this time . I'm not only making progress is driving I am making progress in my life . Not...

Today's lesson went better than others. Made a mistake and let it go this time ....

LouLamb

•7 years ago

5 Replies

Its finally happened.

Today, after three years of illness affecting my work I was finally dismissed on the grounds of ill health. I've been in employment since the age of 16 and...

Today, after three years of illness affecting my work I was finally dismissed on...

happytulip

•7 years ago

18 Replies

Travel Vaccinations

Hi everyone! I have been to my doctors surgery this afternoon and seen a nurse who has given me the Hepatitis A & Typhoid vaccines, despite the medical leaflet...

Hi everyone! I have been to my doctors surgery this afternoon and seen a nurse w...

MrsBxxx

•7 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2017

Red or pink butterfly rash?

Butterfly rash with Sjogren's?

How many Lupus patients in the UK?

Subcutaneous

Predisolone diary 6: struggling to stick to 4mg

someone tell me what this is ??

Not Lupus

Advice on painkillers please?

Who would you recommend to help diagnose in London or England

Me

KNOW THE SYMPTOMS......A.A.A.D.D. =Age Activated Attention Deficit Disorder

Hi. Does anyone know about CRP levels please

Age spots on my right leg. Related to lupus?

Am I losing it

Butterfly rash

Blood in urine?

When should we expect hair loss and how can we reduce it?

Rheumatology progress

Bruised gum??

Sterilisation yesterday...

Fatigue

Anyone on here need methylated vitamin b?

The power of positive thinking

Switched methotrexate to azathioprine and am now always hungry?!

Moving home!!!

Help please, rather confused! X

Getting rid of a verruca?

23 rd driving lesson

Its finally happened.

Travel Vaccinations

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