Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,693 members • 28,073 posts

All posts for July 2017

Problem

Hello, Docs and Peeps, I sometimes feel like my inside of the ears are shaking. And my eyes tries to drop down some tears but it hardly succeeds. I can't hold...

Hello, Docs and Peeps, I sometimes feel like my inside of the ears are shaking. ...

Sanjeevnhemha123

•7 years ago

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AXA Travel Insurance

Hi All I'm pretty new around here and haven't got to grips with posting etc. I just wanted to share some news with you all. I currently have travel insurance...

Hi All I'm pretty new around here and haven't got to grips with posting etc. I j...

LittleBrownBear

•7 years ago

4 Replies

How can I guarantee I have lupus?

So far I have failed all of the Anti DNA tests. My primary ran a bunch of tests but he is sending me to a rheumatologist to make it official. I will be seen in...

So far I have failed all of the Anti DNA tests. My primary ran a bunch of tests ...

fastermatt

•7 years ago

22 Replies

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I stopped taking my medication...

This is my first time posting here. I joined health unlocked about 2 years ago, just after my first diagnosis. Since then I have had IVF and have been on...

This is my first time posting here. I joined health unlocked about 2 years ago, ...

huba_naveed

•7 years ago

5 Replies

pins and needles

Can anyone help I have many symptoms of Lupus, my daughter tested positive for lupus but was told to go home and get some sleep and she would be ok. Do any of...

Can anyone help I have many symptoms of Lupus, my daughter tested positive for l...

onamission

•7 years ago

31 Replies

Worse week ever ☹

Hello my dear friends, Apologies for the lack of responses from me for a while but I have had the worse couple of weeks. It started off with my eldest...

Hello my dear friends, Apologies for the lack of responses from me for a while b...

Charliebear68

•7 years ago

26 Replies

Wrist joint injection

Hi I'm due to have a joint injection in my wrist in a couple of days, not had one before only ever had into my hips. Wanted to know whether I will be able to...

Hi I'm due to have a joint injection in my wrist in a couple of days, not had o...

Sara_A

•7 years ago

9 Replies

What the picture doesn't show

I got to my daughter's graduation this weekend. Hurray! Looking through the photos this morning, it struck me how much of our lives is under the surface -...

I got to my daughter's graduation this weekend. Hurray! Looking through the phot...

whisperit

•7 years ago

34 Replies

IBS

I'm looking for help with what my gp suggested might be IBS. I have mild SLE, Sjogrens and other things going on... I woke up in the early hours of last friday...

I'm looking for help with what my gp suggested might be IBS. I have mild SLE, Sj...

chrisj

•7 years ago

7 Replies

Methotrexate how long till it starts working?

For those of you that are taking methotrexate can you tell me how long before you noticed a difference? Thanks Teresa

For those of you that are taking methotrexate can you tell me how long before yo...

Loopydroopy

•7 years ago

3 Replies

Tigger

Hi haven't been on for a while . But I have a quick question / or dilemma how do I deal with a work colleague which turned around and asked me why I was so...

Hi haven't been on for a while . But I have a quick question / or dilemma how do...

barbdockeray

•7 years ago

11 Replies

Feeling ugly

Severe redness and flaky around eyes. Also some swelling My ears are also flaky with dry wax and my nose green mucus and most times bloody. I'm using a...

Severe redness and flaky around eyes. Also some swelling My ears are also flaky...

floisaac

•7 years ago

3 Replies

back on plaqunil

So the doc took me off plaqunil and referred me to a hematologist for low white blood count and now I am back on it because they think the lupus was causing...

So the doc took me off plaqunil and referred me to a hematologist for low white ...

jennyall12

•7 years ago

5 Replies

Whole30, Paleo, AIP Diet

Has anyone tried these and seen improvements? We are looking at trying Whole30. For chronic conditions, it mentions that it could take longer than 30 days...

Has anyone tried these and seen improvements? We are looking at trying Whole30....

Shaysuekirk

•7 years ago

17 Replies

Rituximab infusion and bad news about back☹️☹️☹️

In ward for 3 course of rituximab infusion . Just had consult with doctor and been told that mri of back shows 4 bulging discs with nerve impingement 😮☹️. She...

In ward for 3 course of rituximab infusion . Just had consult with doctor and be...

weathervane

•7 years ago

22 Replies

Increasing steroids for holidays abroad

Hi Does anyone increase steroids when going on holiday abroad. I have read about a few people doing that. Thank you

Hi Does anyone increase steroids when going on holiday abroad. I have read about...

joannebond360

•7 years ago

18 Replies

Feeling Worse

I am not sure how to title this posting because the post is the explanation. I have SLE and celiac. I accidentally ate gluten the other day, and now my body...

I am not sure how to title this posting because the post is the explanation. I h...

Boxxietrolls

•7 years ago

6 Replies

Hello - I'm new to this!

Have just had to give up work and feeling very low and depressed. Also feel as though I've failed in some way. Any advice please?

Have just had to give up work and feeling very low and depressed. Also feel as t...

Nickym2301

•7 years ago

25 Replies

Lupus burning

Hi, I have recently been diagnosed with lupus and waiting on bloood results and biopsy to find out what extent of lupus. I'm literally covered head to toe with...

Hi, I have recently been diagnosed with lupus and waiting on bloood results and ...

Bonnieagius

•7 years ago

2 Replies

Anxiety from Lupus

Anyone have anxiety / panic attacks from their Lupus?

jennyall12

•7 years ago

5 Replies

Skin burning and nauseau after Ct scans

I was recently feeling terrible the past two months. Bedridden, neck hurting and so stiff I was unable to turn my head or walk without feeling dizzy. Most of...

I was recently feeling terrible the past two months. Bedridden, neck hurting and...

Tezi

•7 years ago

4 Replies

Diagnosis

Hi everyone. I had a test for Lupus a couple of years ago with a titre reading of 640. Because I had few troublesome symptoms it was decided to monitoring...

Hi everyone. I had a test for Lupus a couple of years ago with a titre reading ...

Unag261

•7 years ago

2 Replies

Newly diagnosed

Hi there, I've recently been diagnosed with SLE and sjögens and I got given a lot of information rather quickly. Can I just ask one question. I'm on birth...

Hi there, I've recently been diagnosed with SLE and sjögens and I got given a lo...

JennaeClifford

•7 years ago

4 Replies

Pregnant with lupus, week 7

Hi all! I'm currently 7 and half weeks pregnant and I have lupus SLE. Diagnosed at 16, currently 23 years old. Have had past pericarditis and foot...

Hi all! I'm currently 7 and half weeks pregnant and I have lupus SLE. Diagnosed...

PositivelyLupus

•7 years ago

14 Replies

MORA therapy

Has anyone heard of or tried this? If so, what was your experience? I'm at a bit of a wits end desperate stage and a friend of my Mum's told her about this....

Has anyone heard of or tried this? If so, what was your experience? I'm at a bit...

1985mum

•7 years ago

6 Replies

Nausea and Vomiting

Hello lovelies, Any recommendations for getting rid of nausea and vomiting. So far I've tried Ondansetron, cyclizine, peppermint, ginger, pepto bismal, Maalox...

Hello lovelies, Any recommendations for getting rid of nausea and vomiting. So ...

sarahsea

•7 years ago

27 Replies

Abscess

Hello everyone not been on here for a while can anybody give advice on Abscesses I keep getting them under my arms and several lots of antibiotics don't work...

Hello everyone not been on here for a while can anybody give advice on Abscesses...

Yozzer

•7 years ago

7 Replies

Surprise biopsy!

So I had the dermatologist again today, with my ongoing rash. We discussed my positive ANA and that I'm seeing the rheumatologist tomorrow. She said she wanted...

So I had the dermatologist again today, with my ongoing rash. We discussed my po...

kazmac45

•7 years ago

4 Replies

Advice please on effects of sun

Hello all my wonderful forum friends. I hope life is being kind to you all. I know a lot of you have sun sensitivity issues and I'm hoping you can give me...

Hello all my wonderful forum friends. I hope life is being kind to you all. I k...

Georgie-girl

•7 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2017

Problem

AXA Travel Insurance

How can I guarantee I have lupus?

I stopped taking my medication...

pins and needles

More teeth problems

Worse week ever ☹

Wrist joint injection

What the picture doesn't show

IBS

Methotrexate how long till it starts working?

Tigger

Feeling ugly

back on plaqunil

Whole30, Paleo, AIP Diet

Rituximab infusion and bad news about back☹️☹️☹️

Increasing steroids for holidays abroad

Feeling Worse

Hello - I'm new to this!

Lupus burning

Anxiety from Lupus

Skin burning and nauseau after Ct scans

Diagnosis

Newly diagnosed

Pregnant with lupus, week 7

MORA therapy

Nausea and Vomiting

Abscess

Surprise biopsy!

Advice please on effects of sun

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