Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,848 members • 28,191 posts

All posts for June 2017

Worried...

SO I have had SLE for 7 years and never really any major issues. I was on plaqunil 200 mgs for the whole time and blood work was normal. Then I did labs and...

SO I have had SLE for 7 years and never really any major issues. I was on plaqun...

jennyall12

•7 years ago

4 Replies

Saliva Glands

Hello! I recently had saliva Gland stone few months ago that got badly infected had to go to A&E for antibiotics because my doctor didn't take me seriously...

Hello! I recently had saliva Gland stone few months ago that got badly infected...

Jess_doyle

•7 years ago

6 Replies

health insurance

Hello! Loving this new app a lot easier then having to log in the browsers I wanting to go private under an insurance company because the NHS waiting times...

Hello! Loving this new app a lot easier then having to log in the browsers I w...

Jess_doyle

•7 years ago

5 Replies

Want to take advantage of all our features? Just log in!

is it possible

Is it possible to just have low wbcs and hair loss but all other lupus bloodwork is okay??

Is it possible to just have low wbcs and hair loss but all other lupus bloodwork...

jennyall12

•7 years ago

2 Replies

Research study seeking young people living with an autoimmune disease

We have been contacted by Jessica Williamson who is currently recruiting participants for a research study as part of her MA Sociology and Social Research...

We have been contacted by Jessica Williamson who is currently recruiting partici...

Paul_Howard

Partner•7 years ago

Be the first to reply

The HealthUnlocked iPhone App has now been launched globally!

HealthUnlocked have made it easier than ever to connect with other people with the same health condition as you. Following the release of the iPhone...

HealthUnlocked have made it easier than ever to connect with other people with t...

Paul_Howard

Partner•7 years ago

Be the first to reply

Lupus and pregnancy!!

Hello guys. I have had lupus for around tbe passed 4-5 years now. I am 11 weeks pregnant and it is taking its toll as i am not on my tablets anymore. I only...

Hello guys. I have had lupus for around tbe passed 4-5 years now. I am 11 weeks ...

blondie22

•7 years ago

19 Replies

Australia- Brisbane specialists

Hi ive just moved to Australia (brisbane) and was originally under Prof Khamashta at London uk. I found Prof K to be fantastic but he went on sabbatical and i...

Hi ive just moved to Australia (brisbane) and was originally under Prof Khamash...

jp83

•7 years ago

4 Replies

Freaking out.

I was diagnosed with lupus about seven years ago. I was on plaqunil for about seven years and then went for labs and my wbc dropped from 3.5 to 1.5. The doc...

I was diagnosed with lupus about seven years ago. I was on plaqunil for about se...

jennyall12

•7 years ago

15 Replies

I need help identifying this rash

I have a rash that is there all the time. But only itches sometimes. Wondering if there is a otc cream that help rid of it

I have a rash that is there all the time. But only itches sometimes. Wondering i...

Kbinsol

•7 years ago

3 Replies

Suncream

I have been using Nivea kids factor 50 . I used in on my legs and had terrible itchy legs didn't put it on my legs again haven't had itchy legs since . Used in...

I have been using Nivea kids factor 50 . I used in on my legs and had terrible i...

LouLamb

•7 years ago

15 Replies

Mycophenalate

Hi is anyone on mycophenalate for lupus? If so what dose? I started on 500mg once a day and now I'm on 500mg twice daily. Is this the max dose for lupus or...

Hi is anyone on mycophenalate for lupus? If so what dose? I started on 500mg on...

Sara_A

•7 years ago

5 Replies

Prednisolone diary 4 - down to 4mg

After 5 weeks on 4.5mg, I was getting increasing fatigue and weakness, so thought I would experiment with a further reduction to 4mg. Unfortunately, this seems...

After 5 weeks on 4.5mg, I was getting increasing fatigue and weakness, so though...

whisperit

•7 years ago

12 Replies

Hand and wrist pain

I have lupus and aps and my main joints affected are hands and wrists. At the moment tho my right hand and wrist is so bad I can hardly move or use it! I'm on...

I have lupus and aps and my main joints affected are hands and wrists. At the m...

Sara_A

•7 years ago

7 Replies

Currently in remission but watching very closely

Hello! I was diagnosed with lupus nephritis stage 4 last year, and went into remission after 2 months of treatment. I go for checkups every quarter to make...

Hello! I was diagnosed with lupus nephritis stage 4 last year, and went into rem...

LLLin

•7 years ago

1 Reply

Low neutrophils count

Hi. This is my first post here. I've a low WBC of 3.3 and neutrophils count of 1.23. My doctor has ordered another CBC in 2 weeks time. Anyone has had this...

Hi. This is my first post here. I've a low WBC of 3.3 and neutrophils count of 1...

JenLow

•7 years ago

6 Replies

My first weekend trip alone

Hi all Since my diagnosis 5years ago, i have never travelled alone. I have always been with my mum and son. But last weekend i had an associate weekend in...

Hi all Since my diagnosis 5years ago, i have never travelled alone. I have alwa...

ijeasike

•7 years ago

14 Replies

Off work agian

Dose anybody get miners/labrintitus lost count how many times I've had it now over the last 20 yrs

Dose anybody get miners/labrintitus lost count how many times I've had it now ov...

Ianrussell69

•7 years ago

1 Reply

forever moaning exhaustion taking over

These last few weeks have been a nightmare, I have been in constant pain and having random sharp pains in either my abdomen and chest, these pains last for a...

These last few weeks have been a nightmare, I have been in constant pain and hav...

imzi

•7 years ago

19 Replies

Iron infusion again

Had my last appointment with my rheumatology team at my old address. Now I've moved I need to go to new hospital team. I've had crushing fatigue for past...

Had my last appointment with my rheumatology team at my old address. Now I've mo...

Silvergilt

•7 years ago

3 Replies

Warning about Methotrexate taken with Amoxicillin

Hello everyone. I just wanted to share some information with everyone that I learned the hard way. Methotrexate and high doses of Amoxicillin should not be...

Hello everyone. I just wanted to share some information with everyone that I lea...

kinggus08

•7 years ago

6 Replies

Lupus and trying to lose weight

Anyone on here doing weight watchers, and having lupus, I lost for the last two weeks 4lbs each week, but currently in the middle of a big flare and upping my...

Anyone on here doing weight watchers, and having lupus, I lost for the last two ...

Clareward78

•7 years ago

14 Replies

Have a strange feeling in the ball of my foot. Like I have something in my shoe but I don't. Could it be Neuroma???

Yesterday I noticed that I have a feeling that I have something in my shoe, but when I took it off, there was nothing there. This sensation bugged me for the...

Yesterday I noticed that I have a feeling that I have something in my shoe, but ...

Wendy39

•7 years ago

21 Replies

Asthma

Hi everyone. Has anyone had asthma bought on due to lupus? Gp thinks I have asthma, never had any symptoms before now. Jo

Hi everyone. Has anyone had asthma bought on due to lupus? Gp thinks I have as...

joannebond360

•7 years ago

7 Replies

Bowels

I can't think of a better subject heading. For the last few weeks my bowels have becomes very erratic. Up until now, I haven't had any problems except...

I can't think of a better subject heading. For the last few weeks my bowels have...

Lupiknits

•7 years ago

11 Replies

Fatigued

I drove from home to Liverpool and back yesterday to pick my daughter up from uni. It was a 12 1/2 hr round trip. Today I am drippy Dora with a really bad...

I drove from home to Liverpool and back yesterday to pick my daughter up from un...

Rubylu

•7 years ago

1 Reply

HAIR LOSS

About twelve years ago my scalp became infected with itching, bleeding, pus filled sores from wearing a wig. I lost the middle and sides of my hair. The top of...

About twelve years ago my scalp became infected with itching, bleeding, pus fill...

DHoward4056

•7 years ago

3 Replies

Heart disease

I have lupus an just found out my heart wall is thick an my heart is enlarged the Dr did a heart Cather I don't have any blockage so I'm sure it's the lupus....

I have lupus an just found out my heart wall is thick an my heart is enlarged th...

Adalee

•7 years ago

1 Reply

Falls

Anyone falling from weak knees and unable to get up

biddy75

•7 years ago

11 Replies

Varicose Veins

Does anyone have issues VV? NHS will not operate until my daughter develops a thrombosis !! she is 32 and has done all she can to reduce the veins getting...

Does anyone have issues VV? NHS will not operate until my daughter develops a ...

Heather_Neilson

•7 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2017

Worried...

Saliva Glands

health insurance

is it possible

Research study seeking young people living with an autoimmune disease

The HealthUnlocked iPhone App has now been launched globally!

Lupus and pregnancy!!

Australia- Brisbane specialists

Freaking out.

I need help identifying this rash

Suncream

Mycophenalate

Prednisolone diary 4 - down to 4mg

Hand and wrist pain

Currently in remission but watching very closely

Low neutrophils count

My first weekend trip alone

Off work agian

forever moaning exhaustion taking over

Iron infusion again

Warning about Methotrexate taken with Amoxicillin

Lupus and trying to lose weight

Have a strange feeling in the ball of my foot. Like I have something in my shoe but I don't. Could it be Neuroma???

Asthma

Bowels

Fatigued

HAIR LOSS

Heart disease

Falls

Varicose Veins

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2017

Worried...

Saliva Glands

health insurance

is it possible

Research study seeking young people living with an autoimmune disease

The HealthUnlocked iPhone App has now been launched globally!

Lupus and pregnancy!!

Australia- Brisbane specialists

Freaking out.

I need help identifying this rash

Suncream

Mycophenalate

Prednisolone diary 4 - down to 4mg

Hand and wrist pain

Currently in remission but watching very closely

Low neutrophils count

My first weekend trip alone

Off work agian

*forever moaning* exhaustion taking over

Iron infusion again

Warning about Methotrexate taken with Amoxicillin

Lupus and trying to lose weight

Have a strange feeling in the ball of my foot. Like I have something in my shoe but I don't. Could it be Neuroma???

Asthma

Bowels

Fatigued

HAIR LOSS

Heart disease

Falls

Varicose Veins

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive

forever moaning exhaustion taking over