Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,848 members • 28,191 posts

All posts for May 2017

Hydroxy

Hi all After a recent flare I've been treated with steroids and mmf Went to hospital today and a Australian dr who is doing a year work in the uk asked why I...

Hi all After a recent flare I've been treated with steroids and mmf Went to ho...

poodlegal

•7 years ago

9 Replies

First apppintment

Hi all. I haven't been on here for a while. I had my first appointment with rheumatology this morning. She has said that although all my symptoms fit with...

Hi all. I haven't been on here for a while. I had my first appointment with rhe...

Chezchat

•7 years ago

16 Replies

Hi everyone, l am new here...

Hi everyone, l am new attendant to Lupus UK and l salute all of you. Apologies for my English, it is not quite perfect. I was diagnosed in 2013 with mild...

Hi everyone, l am new attendant to Lupus UK and l salute all of you. Apologies ...

dk11

•7 years ago

4 Replies

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Got my appointment

Went to get bloods done yesterday and called in to rumi clinic to see about my appointment should have had one back in march but they are very overstretched...

Went to get bloods done yesterday and called in to rumi clinic to see about my a...

Ianrussell69

•7 years ago

3 Replies

ANA positive, but comp. negative

I have had a positive ANA add I have 9 of the 11 symptoms of lupus; however, when my doctor done the ANA comp. test it came back negative. I was, also,...

I have had a positive ANA add I have 9 of the 11 symptoms of lupus; however, whe...

Jennwebb2006

•7 years ago

3 Replies

Considering Rituximab

Hi friends - I have SLE, Reynaud's and Sjogrens. I am mid 40s and was diagnosed age 12. I spent many years in remission without meds but badly flared after...

Hi friends - I have SLE, Reynaud's and Sjogrens. I am mid 40s and was diagnosed ...

ShannonB

•7 years ago

6 Replies

Teeth problems and jaw bone exposed, please help!

Hi everyone Hoping someone can please advise, brief summary of what's happened so far: -Diagnosed with lupus 2011 & started plaquenil. -This year had upper...

Hi everyone Hoping someone can please advise, brief summary of what's happened s...

sitting-pretty

•7 years ago

12 Replies

Finally feeling better at last

Woke up this morning feeling better than I have in the last 2 weeks had a stomach virus then that also flared up my diverticulitis. Was taken into hospital 3...

Woke up this morning feeling better than I have in the last 2 weeks had a stomac...

Jan101

•7 years ago

1 Reply

Lightheaded

Oh dear. Here I am again with another problem. I now have a walking stick and a blue badge. That's fine. But if I meet a friend for coffee for instance I can...

Oh dear. Here I am again with another problem. I now have a walking stick and a ...

bones-bones

•7 years ago

4 Replies

Wind

Morning this is a bit of a funny post ive been taking hydroxychloroqine for about a month it was 200mg and a week ago to 400 mg a day has anyone else...

Morning this is a bit of a funny post ive been taking hydroxychloroqine for abou...

rayl

•7 years ago

11 Replies

Pain again

Had a good run on the pain front but this morning every large muscle like I've been hit by a train looks like I'll be best friends with tramadol for a day or...

Had a good run on the pain front but this morning every large muscle like I've b...

Ianrussell69

•7 years ago

10 Replies

Hydroxychloroquine dosage

Hi All, A general question around dosage as I have been in 200mg twice daily and fairing well. I asked my consultant when this can be reduced and was advised...

Hi All, A general question around dosage as I have been in 200mg twice daily and...

Tilcara

•7 years ago

14 Replies

Symptoms Please 🌸

Hi everyone, kind of concerned about Lupus. Have a lot of body aches, off and on. Feels like I have the flu, then it goes away. Wondering what your symptoms...

Hi everyone, kind of concerned about Lupus. Have a lot of body aches, off and on...

rubyred777

•7 years ago

4 Replies

Abdominal problems

Hi, I need some help please... I have both, Lupus and Hughes, and have very bad abdominal problems, incl severe pain, cramps, extensive flatulence - regardless...

Hi, I need some help please... I have both, Lupus and Hughes, and have very bad ...

Kokica

•7 years ago

7 Replies

Permanent make up

Hey everyone. Has anyone had permenent make up? I have booked myself in for microblading on my eyebrows, just dawned on me that it might not be ok with us...

Hey everyone. Has anyone had permenent make up? I have booked myself in for mic...

joannebond360

•7 years ago

38 Replies

Monthly cold.

Hello! So for the past couple of months I've been getting a sore throat with a cough, feeling very weak and down. Its seeming to be every month that this...

Hello! So for the past couple of months I've been getting a sore throat with a ...

Jessiica

•7 years ago

5 Replies

May's Topic of the Month - Taking care of Nails (We want to hear your tips and experiences)

Our 'Topic of the Month' discussion for May is 'Taking care of Nails'. Quite a few changes can occur with the fingernails and toenails in people who have...

Our 'Topic of the Month' discussion for May is 'Taking care of Nails'. Quite a f...

Paul_Howard

Partner•7 years ago

13 Replies

Sickness review hearing - deep joy!!

I have been determined not to let Lupus get the better of me, but it looks like it may now be taking my job. I reduced my hours from full time to 20 hours a...

I have been determined not to let Lupus get the better of me, but it looks like ...

kezzabo

•7 years ago

9 Replies

So fed up 😢

I'm so fed up with being so tired , every night I'm in bed for 8 and feel could go earlier, I've been on plaquenil and methotrexate 20mg injections with no...

I'm so fed up with being so tired , every night I'm in bed for 8 and feel could ...

Harrisgran1

•7 years ago

6 Replies

The ANA test

Lab Tests Online have a very good section on ANA testing and how the results may be used. Thought this might help those with indefinite diagnoses understand...

Lab Tests Online have a very good section on ANA testing and how the results may...

Rubylu

•7 years ago

13 Replies

Some Advice please for my Granddaughter

I am Chapter, I have also posted this on the Vasculitis Page. My grand-daughter, Madison, will be 14 years old in June. For the last 6 months she has been...

I am Chapter, I have also posted this on the Vasculitis Page. My grand-daughte...

Chapter

•7 years ago

7 Replies

Hip injection 👍👍

Well i had my steroid injection this morning , not painful getting the injection but im feeling a bit sore now . I have to rest up for 48 hours so i will have...

Well i had my steroid injection this morning , not painful getting the injection...

weathervane

•7 years ago

14 Replies

Prednisolone diary 2 - from 5 to 4.5mg

Hello again As I wrote in episode 1, I am trying to taper my daily prednisolone to zero after a year of treatment starting at 20mg. Although my lung...

Hello again As I wrote in episode 1, I am trying to taper my daily prednisolone...

whisperit

•7 years ago

22 Replies

Just diagnosed

Hi all. After having various symptoms since October with intensity increasing since February I have been diagnosed with lupus. Im still getting my head around...

Hi all. After having various symptoms since October with intensity increasing si...

Hidden

•7 years ago

8 Replies

My Rituxan injection update

So, i was scheduled for my first Rituxan infusion on Friday. I read all the risk and side effects of the drug. I was really nervous about the infusion. So the...

So, i was scheduled for my first Rituxan infusion on Friday. I read all the risk...

Jaylowdancer

•7 years ago

8 Replies

Dissapointed and confused

I went to a doctor last week to show my DHEA test result that shows that it is under the normal rate. The doctor was nice, but the result was dissapointing. He...

I went to a doctor last week to show my DHEA test result that shows that it is u...

Babymilo

•7 years ago

3 Replies

Yawn!!!

Very tired, legs feel weak when walking also had arm muscle aches

Dobbo

•7 years ago

1 Reply

Aki early warning

Hi all. I noticed on my last set of blood tests the following.....Acute kidney injury warning stage.....my doctors haven't commented and I've not seen it...

Hi all. I noticed on my last set of blood tests the following.....Acute kidney i...

Neiluk75

•7 years ago

5 Replies

6 year old daughter...possible Lupus

Morning, we are currently under a paediatrian who has just reffered us to an immunologist, my daughter has been ill on and off for the past 18 months..we seem...

Morning, we are currently under a paediatrian who has just reffered us to an imm...

Worriedmumst

•7 years ago

4 Replies

Freaking out

Hi, I just joined and I'm hoping I'm able to get the help I need. I went to the Dr 3 months ago and was talking to the Dr about what has been going on. I asked...

Hi, I just joined and I'm hoping I'm able to get the help I need. I went to the ...

Meadows8

•7 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2017

Hydroxy

First apppintment

Hi everyone, l am new here...

Got my appointment

ANA positive, but comp. negative

Considering Rituximab

Teeth problems and jaw bone exposed, please help!

Finally feeling better at last

Lightheaded

Wind

Pain again

Hydroxychloroquine dosage

Symptoms Please 🌸

Abdominal problems

Permanent make up

Monthly cold.

May's Topic of the Month - Taking care of Nails (We want to hear your tips and experiences)

Sickness review hearing - deep joy!!

So fed up 😢

The ANA test

Some Advice please for my Granddaughter

Hip injection 👍👍

Prednisolone diary 2 - from 5 to 4.5mg

Just diagnosed

My Rituxan injection update

Dissapointed and confused

Yawn!!!

Aki early warning

6 year old daughter...possible Lupus

Freaking out

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