Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2017

Does anybody experience dizziness?

Hi everyone, I could do with some help please. I've been contacted by a former member of this community, who now unfortunately can't participate due to...

Hi everyone, I could do with some help please. I've been contacted by a former m...

Paul_Howard

Partner•7 years ago

36 Replies

Does it ever end?

Hi, I'm new to the site and I'm so glad I found it! I'm off to see GP again today to discuss blood results from dermatologist... I've been having symptoms for...

Hi, I'm new to the site and I'm so glad I found it! I'm off to see GP again tod...

Charliebear68

•7 years ago

5 Replies

Methotrexate

I'm starting on 10mg on Sunday night (as I have a dressage competition on Sunday afternoon I'm worried about side effects.) Just wondering how others have got...

I'm starting on 10mg on Sunday night (as I have a dressage competition on Sunda...

Nikki246

•7 years ago

3 Replies

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No treatment options available to me

I was diagnosed recently with Hughes/Lupus & Sjogrens and they tried me on Plaquanil and the side effects and reaction was too profound, I had a letter today...

I was diagnosed recently with Hughes/Lupus & Sjogrens and they tried me on Plaqu...

riannabri

•7 years ago

10 Replies

Had to stop azathioprine again!

Hi I have lupus and aps, mainly affected by fatigue and joint pain. Was started on azathioprine and gradually went up to 3 times a day. This made my liver...

Hi I have lupus and aps, mainly affected by fatigue and joint pain. Was started...

Sara_A

•7 years ago

4 Replies

ESA and work activity group

Hello all I have been on ESA for a long time and recently been asked if I want to attend a voluntary support group "the Work company" based in Manchester. As...

Hello all I have been on ESA for a long time and recently been asked if I want t...

rafenblood

•7 years ago

2 Replies

Letter with Diagnosis - Unsure what Tests mean?

So I had my letter from the Lupus Clinic today with a Diagnosis of Hughes Syndrome/Sjogrens and Lupus although some of my antibody tests were negative. What...

So I had my letter from the Lupus Clinic today with a Diagnosis of Hughes Syndro...

riannabri

•7 years ago

6 Replies

Sometimes, somethings, knock us for six

Hello everyone, hope you are all having a relatively good day today. I've not been here for a while as I've been in rather a dark place where things just...

Hello everyone, hope you are all having a relatively good day today. I've not be...

Georgie-girl

•7 years ago

17 Replies

20 sensible posts = 1 moan

This is my new rule. My day so far: 12midnight - 1am: the usual: awake, sweating, nauseous. 1.15am: weird sounds downstairs. Discover that cat has been sick...

This is my new rule. My day so far: 12midnight - 1am: the usual: awake, sweatin...

whisperit

•7 years ago

16 Replies

3rd driving lesson

Had my lesson last night . I drove all the way from work to a car park . I then did some reverse bay parking . I drove home and parked . !! Need to work on...

Had my lesson last night . I drove all the way from work to a car park . I then ...

LouLamb

•7 years ago

9 Replies

Fatigue/insomnia - is mirtazapine helpful?

Since last summer, I have been experiencing very poor sleep, and extreme fatigue. Episodes of nausea, sweating and shaking seem to follow any exertion. MY...

Since last summer, I have been experiencing very poor sleep, and extreme fatigue...

whisperit

•7 years ago

4 Replies

New facebook group for ladies with lupus

The Butterfly Sanctuary - Women With Lupus UK ♡ This is a new group for ladies only who have lupus as we may have some things we don't want to discuss in an...

The Butterfly Sanctuary - Women With Lupus UK ♡ This is a new group for ladies o...

Nickymck

•7 years ago

6 Replies

UV protection for car windows

I have a severe reaction to the sun and right now I am in a major flare so the reaction is much worse, just having the sun on me on a short journey gave be...

I have a severe reaction to the sun and right now I am in a major flare so the r...

riannabri

•7 years ago

7 Replies

Itchy throat and coughed up a little blood

About 5 days ago I might've scratched my throat with popcorn or shard of glass from pouring from a broken beer bottle I started feeling an itchy throat and...

About 5 days ago I might've scratched my throat with popcorn or shard of glass f...

Francop

•7 years ago

1 Reply

Black mark on under my arms near my breast

Does anyone get black marks under near breast under arms. Cause since 3-4 days now I've noticed these two marks. I'm a bit afraid , does anyone else with sle...

Does anyone get black marks under near breast under arms. Cause since 3-4 days n...

pascalelupus

•7 years ago

4 Replies

Follow up to successful pip claim

Hi, thank you to all who have supported me through my pip claim last year, I was awarded it this year but low and behold 2/3rds of my claim is being...

Hi, thank you to all who have supported me through my pip claim last year, I was...

sabine

•7 years ago

2 Replies

Rituximab and possible side effects

I am due to start my first rituximab infusions soon (four over four weeks) and although not great timing have the opportunity to start a job working at home...

I am due to start my first rituximab infusions soon (four over four weeks) and a...

Galaxy2

•7 years ago

15 Replies

connective tissue disease

Hi I have been diagnosed with connective tissue disease and know nothing about it GP was not helpful i take hydrochloxichlorine and azithopricine but nothing...

Hi I have been diagnosed with connective tissue disease and know nothing about...

kaya12

•7 years ago

8 Replies

March's Topic of the Month - Pain Management (We want to hear your tips and experiences)

Our 'Topic of the Month' discussion for March is going to be 'Pain Management'. Between 90% and 95% of people who have SLE will have muscle and/or...

Our 'Topic of the Month' discussion for March is going to be 'Pain Management'. ...

Paul_Howard

Partner•7 years ago

9 Replies

Working environment and lights

Hello all, It's been 3 months since I returned to work (university lecturer) following a 4 month sick period since being diagnosed with SLE in August. I think...

Hello all, It's been 3 months since I returned to work (university lecturer) fol...

Tripitaka

•7 years ago

9 Replies

Apple News from Medical Herald

My daughter sent me a link, but I couldnt open it. https://apple.news/ALmz4ajtlTUKsJzQi482WHg. Dont know if it will work, but it states that immune complexes...

My daughter sent me a link, but I couldnt open it. https://apple.news/ALmz4ajtlT...

Natura

•7 years ago

6 Replies

Has anyone tried IPL (Phillips Lumea)

I'm sure I've read about this on here before but can't remember what was said. I've just purchased the Phillips Lumea IPL hair removal system but have read...

I'm sure I've read about this on here before but can't remember what was said. ...

Shellessx

•7 years ago

2 Replies

Quinine Sulphate

Does anyone know if Quinine Sulphate is used for Lupus or Connective Tissue problems? I was prescribed Plaquanil/Hydroxychloroquine but has a horrific reaction...

Does anyone know if Quinine Sulphate is used for Lupus or Connective Tissue prob...

riannabri

•7 years ago

1 Reply

Lupus, self esteem, and relationship problems

In real life I've never talked about emotion and feeling because I think it'll become so drama and I hate it, but here I want to explain a little. I'm a 24 yo...

In real life I've never talked about emotion and feeling because I think it'll b...

Babymilo

•7 years ago

7 Replies

Really really bad night!

Hi just wondering..... does anyone have a night like this....... i woke up to so much pain in my lower back, right hip down to my right knee. It was agony...

Hi just wondering..... does anyone have a night like this....... i woke up to so...

sheilam52

•7 years ago

7 Replies

Is this pain due to my Lupus??

Hi, a new to Health unlocked. I have Lupus osteoarthritis and rheumatoid arthritis. I am at the moment on Azathrioprine at a dose of 150 mg a day although...

Hi, a new to Health unlocked. I have Lupus osteoarthritis and rheumatoid arthrit...

jopo280886

•7 years ago

18 Replies

Restless arms and legs

Why does my arms and legs get so jumpy , twitchy, for the need to move every second, it's driving me crazy the sensation is just awful, always starts happening...

Why does my arms and legs get so jumpy , twitchy, for the need to move every sec...

molly19

•7 years ago

12 Replies

SLE, Lupus Nephritis, IVF

Hello I have SLE, and I'm currently in remission from lupus nephritis. I changed from MMF to azathioprine at the end of January due to my desire to start a...

Hello I have SLE, and I'm currently in remission from lupus nephritis. I changed...

Cameron25

•7 years ago

3 Replies

Azathioprine

Hi, I've just been taken off of Azathioprine due to blood work. I've been on it since June last year. Just wondering how long it takes to come out of your...

Hi, I've just been taken off of Azathioprine due to blood work. I've been on it ...

mantha

•7 years ago

2 Replies

Lack of motivation

Does anyone know if lupus is also related to a part of the brain not functioning that has something to do with motivation? I am finding lately that I am unable...

Does anyone know if lupus is also related to a part of the brain not functioning...

Natura

•7 years ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2017

Does anybody experience dizziness?

Does it ever end?

Methotrexate

No treatment options available to me

Had to stop azathioprine again!

ESA and work activity group

Letter with Diagnosis - Unsure what Tests mean?

Sometimes, somethings, knock us for six

20 sensible posts = 1 moan

3rd driving lesson

Fatigue/insomnia - is mirtazapine helpful?

New facebook group for ladies with lupus

UV protection for car windows

Itchy throat and coughed up a little blood

Black mark on under my arms near my breast

Follow up to successful pip claim

Rituximab and possible side effects

connective tissue disease

March's Topic of the Month - Pain Management (We want to hear your tips and experiences)

Working environment and lights

Apple News from Medical Herald

Has anyone tried IPL (Phillips Lumea)

Quinine Sulphate

Lupus, self esteem, and relationship problems

Really really bad night!

Is this pain due to my Lupus??

Restless arms and legs

SLE, Lupus Nephritis, IVF

Azathioprine

Lack of motivation

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