Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2017

PIP Timescales

I submitted my mandatory reconsideration request on 23/12. Has anybody any idea about timescales for a reply? I'm not hopeful of a positive outcome on this but...

I submitted my mandatory reconsideration request on 23/12. Has anybody any idea ...

maurice1

•7 years ago

14 Replies

Seriously I am half an inch from giving up. If you're reading this PLEASE reply. I am at a loss.

Hi, I'm Tiff, and I'm new here. Literally I joined two minutes ago. I am a 19 year old female who has been diagnosed with Fibromyalgia. When I was 15 I noticed...

Hi, I'm Tiff, and I'm new here. Literally I joined two minutes ago. I am a 19 ye...

tkroll0027

•7 years ago

30 Replies

Is there a good lupus rheumatologist in West Mids?

Hi all, Does anyone know of a good rheumatologist who specialises in lupus in the West Midlands please?

Hi all, Does anyone know of a good rheumatologist who specialises in lupus in th...

Sheepcoat

•7 years ago

17 Replies

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discharged?!

Not a happy bunny at all today, from an awful consultation with my GP Friday now having to make a complaint, to then calling the Rhumotology today for an...

Not a happy bunny at all today, from an awful consultation with my GP Friday now...

Hidden

•7 years ago

7 Replies

Reaction to Rituximab

Hey guys After crying and begin my Rheumy for two years! A few months ago I had quite a severe flare and was put forward for a Rituximab infusion. The...

Hey guys After crying and begin my Rheumy for two years! A few months ago I h...

wotshernameagain

•7 years ago

5 Replies

Bad cramp

Hi everyone does anyone else have chronic cramp in their shins when they walk? I only have to walk a few steps and mine cramp up, I hate it I need to walk to...

Hi everyone does anyone else have chronic cramp in their shins when they walk? I...

julie1234

•7 years ago

1 Reply

ANA positive years ago

I think I might have asked this somewhere b4 but I can't remember where or what answer I got and I haven't the strength to search back through... When I was...

I think I might have asked this somewhere b4 but I can't remember where or what ...

1985mum

•7 years ago

13 Replies

Lupus menopausal night sweats

Hi all, I don't get on here too often but wondering if anyone has tried anything for night sweats post menopausal. I've had a total hysterectomy and have...

Hi all, I don't get on here too often but wondering if anyone has tried anything...

Roanna

•7 years ago

8 Replies

Hot flushes

Hi, does anyone experience hot flushes either from lupus or as a side effect? Im taking azathioprine, hydroxychloroquine, cyclizine, omeprazole and...

Hi, does anyone experience hot flushes either from lupus or as a side effect? Im...

educk

•7 years ago

11 Replies

Insurance anyone?

I am intending to fly to America later this year and am looking for travel insurance. I have lupus nephritis, Raynaud's and Sjogren's. and am on low dose...

I am intending to fly to America later this year and am looking for travel insur...

Neriah

•7 years ago

11 Replies

What happens to a disease doctors Cannot diagnose

Have to post this lecture for everyone to listen to. This woman is amazing!...

Natura

•7 years ago

4 Replies

Azathioprine

Is anybody taking azathioprine? Should be starting it on Wednesday but how bad are the side affects??x

Is anybody taking azathioprine? Should be starting it on Wednesday but how bad a...

elliejo2103

•7 years ago

19 Replies

Rituximab causing gluten intolerance?

Hi there , just a query! I get the second half of rituximab infusion tomorrow and ive found that bread is have an instant effect , that is bloating and slight...

Hi there , just a query! I get the second half of rituximab infusion tomorrow an...

weathervane

•7 years ago

25 Replies

Fatigue

Hi, is there anything that you can take to relieve the fatigue. I drink a glass of beetroot juice everyday, this is quite helpful but I still feel exhausted...

Hi, is there anything that you can take to relieve the fatigue. I drink a glass ...

strawberryshortcake

•7 years ago

3 Replies

Panic/depression/ lupus attack!!

I honestly don't understand my feelings any more. I forget everything I hate myself most of the time. Iwon't get out of bed sometimes I feel when something...

I honestly don't understand my feelings any more. I forget everything I hate mys...

Priss

•7 years ago

19 Replies

Peripheral Neuropothy

Hi I had been prescribed Lyrica Pregabalin for Nearpathic Pain , just abit worried as my Dr., has given me Zentiva Pregabalin same strength has anyone heard of...

Hi I had been prescribed Lyrica Pregabalin for Nearpathic Pain , just abit worri...

Tawannda

•7 years ago

6 Replies

Fibromyalgia 27 years but maybe Lupus now?

Hello all. My name is Mega. Short for Megapodius. Mega Fauna, big feet. Ha. Name just appealed to me somehow. Down to business then. Fibromyalgia...

Hello all. My name is Mega. Short for Megapodius. Mega Fauna, big feet. Ha. ...

Megapodius

•7 years ago

2 Replies

Interstitial Cystitis

Hello, Last I was on here was complaining about having Hives,. They did eventually clear up with short course of prednisone. I have since seen dermatologist...

Hello, Last I was on here was complaining about having Hives,. They did eventual...

Chapter

•7 years ago

20 Replies

Heartbeats

I'm having a flare at the moment and one weird experience is of being very aware of my heart beating. It's not going fast or palpitating - I literally am...

I'm having a flare at the moment and one weird experience is of being very aware...

Marley

•7 years ago

5 Replies

Newbie to this forum, and to lupus.

Hi I'm Zoë, I've just joined this site :) - So after 16 years of problems, it seems I am close to gettting a diagnosis of lupus. Until a few weeks ago, I had...

Hi I'm Zoë, I've just joined this site :) - So after 16 years of problems, it se...

Giorgi84

•7 years ago

6 Replies

Pericardial Lupus

Just had an emergency procedure which resulted in 1.3 litres of fluid being removed from around my heart (Pericardium area). Yet to get the lab results as to...

Just had an emergency procedure which resulted in 1.3 litres of fluid being rem...

gogspr

•7 years ago

3 Replies

SharonMack50

Been fighting Lichen Planus for 2yrs. Now having systems of Lupus, mother has it. Scared to find out.

Been fighting Lichen Planus for 2yrs. Now having systems of Lupus, mother has it...

SharonMack50

•7 years ago

8 Replies

Exercise during a flare

Is it good to exercise during a flare? I definitely don't FEEL like it, and I suspect that the next day or two my muscles and joints will be extraordinarily...

Is it good to exercise during a flare? I definitely don't FEEL like it, and I su...

Jorgenli

•7 years ago

10 Replies

Mouth wash for ulcers

Saw rheumatologist on Wednesday. She recommended a mouthwash for ulcers and for the life of me I can't remember the name of it, can anyone help? Plus she told...

Saw rheumatologist on Wednesday. She recommended a mouthwash for ulcers and for ...

Hidden

•7 years ago

24 Replies

My little boy and Lupus - I have it could he??

Hi all, I've been a member on here for almost a year and always found the advice and support helpful. This is about my 22 month old son. He seems to get ill...

Hi all, I've been a member on here for almost a year and always found the advice...

Sami1982

•7 years ago

4 Replies

Speckled pattern

I have a speckled pattern of 250 what does this mean is this good or bad

Mebros

•7 years ago

3 Replies

Bloods sent away to test for Lupus. Been put on Pregabalin. Worried about Sjorgens. Any advice?

Hi everyone, Its been a while since I posted- my last post was that I had been sent for generic blood tests, which came back with vitamin D deficiency and I...

Hi everyone, Its been a while since I posted- my last post was that I had been s...

Nat1291

•7 years ago

13 Replies

Confused

I have a few symptoms for lupus and my mum past away from lupus but when I called the doctors to book an appointment to get tested, they refused me because "I...

I have a few symptoms for lupus and my mum past away from lupus but when I calle...

GJS123

•7 years ago

7 Replies

Fed up & confused!!!

Nothing really to do with my illness but all the stress is making me feel worse! Struggling with money pretty bad, never struggled since being ill... I cant...

Nothing really to do with my illness but all the stress is making me feel worse!...

Hidden

•7 years ago

2 Replies

Lupus and chronic itch

Iv had 8 hrs sleep in last few days,itchy hands,feet,ankles and legs,im demented with it,on mtx,hydrochloroquine for a while,got fexofenadine from doc and...

Iv had 8 hrs sleep in last few days,itchy hands,feet,ankles and legs,im demented...

Jeffscott69

•7 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2017

PIP Timescales

Seriously I am half an inch from giving up. If you're reading this PLEASE reply. I am at a loss.

Is there a good lupus rheumatologist in West Mids?

discharged?!

Reaction to Rituximab

Bad cramp

ANA positive years ago

Lupus menopausal night sweats

Hot flushes

Insurance anyone?

What happens to a disease doctors Cannot diagnose

Azathioprine

Rituximab causing gluten intolerance?

Fatigue

Panic/depression/ lupus attack!!

Peripheral Neuropothy

Fibromyalgia 27 years but maybe Lupus now?

Interstitial Cystitis

Heartbeats

Newbie to this forum, and to lupus.

Pericardial Lupus

SharonMack50

Exercise during a flare

Mouth wash for ulcers

My little boy and Lupus - I have it could he??

Speckled pattern

Bloods sent away to test for Lupus. Been put on Pregabalin. Worried about Sjorgens. Any advice?

Confused

Fed up & confused!!!

Lupus and chronic itch

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