Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2017

Eye clinic

Hi all just wondering how many of you have needed involvement from the ophthalmology clinics, I've been put on 4 different eye drops/gels. Eyes very stingy at...

Hi all just wondering how many of you have needed involvement from the ophthalmo...

Vbutton

•7 years ago

23 Replies

Appointment appointment

I am really fed up that my appointments keep getting changed. Was meant to have one 27th Feb now got one 25th March . I had planned to talk about the arthritis...

I am really fed up that my appointments keep getting changed. Was meant to have ...

LouLamb

•7 years ago

7 Replies

Newbie with very cold hands

Hi everyone, I'm new here and new to Lupus symptoms. I'm in the process of acknowledging with Dr's help what is happening to me but have not gotten a...

Hi everyone, I'm new here and new to Lupus symptoms. I'm in the process of ackn...

Bajalala

•7 years ago

7 Replies

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feels like I am running high fever all the time!

I feel like i am running at least 105° fever all the time!...thermom reads normal...it is crazy. does anyone is experience this??

I feel like i am running at least 105° fever all the time!...thermom reads norm...

rome43

•7 years ago

13 Replies

Diet plan???

I've read others talk about a diet program that has been effective. It is a U.K. Plan, I'm from the US and would really like to try it. If anyone has info on...

I've read others talk about a diet program that has been effective. It is a U.K...

Loopydroopy

•7 years ago

8 Replies

Getting tested for Lupus with crest

My doctor suspects Lupus with crest . I haven't displayed the characteristeric rash on my face at all. I have had a rash on either arm . My vitamin D was...

My doctor suspects Lupus with crest . I haven't displayed the characteristeric ...

topsmrp

•7 years ago

15 Replies

Working with CND/Lupus

Hi there, I have been given a provisional diagnosis of CND/SLE as might symptoms fit, but my bloodwork is unremarkable. I have been started on...

Hi there, I have been given a provisional diagnosis of CND/SLE as might symptoms...

dotty2203

•7 years ago

5 Replies

Lupus skin issues

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi All; Not only do I have rashes/blisters on my feet, now I have a place on my left arm. After a shower last night I was...

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi All; Not only do I have rashes/blisters on ...

Tiras

•7 years ago

8 Replies

Lupus and lighting at work

Hi, I have SLE and one of my involvements is my eyes. Super light sensitive. I get Scleritis, Iritis and viruses in my cornea. I have explained loads at work...

Hi, I have SLE and one of my involvements is my eyes. Super light sensitive. I g...

MandaM

•7 years ago

6 Replies

Allergic reaction to fibromyalgia meds 😥

Hi all, I'd like to start by saying I apologise for not replying to everybody as I just feel so sore and drained, been to the doctors and I've had an...

Hi all, I'd like to start by saying I apologise for not replying to everybody a...

X-Jojom-X

•7 years ago

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benefits

i m sonika.i have lupus from last 8 years and i am also suffering from thyroid.i have a lots if pains in my body specially in the the morning.bottom of feet...

i m sonika.i have lupus from last 8 years and i am also suffering from thyroid.i...

sonika786

•7 years ago

2 Replies

Pip Renewal

Lord where has the time gone guys? It feels like only yesterday I was going through the application process. My PIP comes to an end in March but I still have...

Lord where has the time gone guys? It feels like only yesterday I was going thr...

wotshernameagain

•7 years ago

2 Replies

My test for POTS

Just back from my tilt table test for Postural Tachycardia Syndrome. Started by soaking my hands in hot water for 15 minutes because they were blue and the...

Just back from my tilt table test for Postural Tachycardia Syndrome. Started by...

whisperit

•7 years ago

14 Replies

I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with ..

I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with SCLE but this has...

I am curious, how many of you have a diagnosis of SLE but have never had organ i...

Wendy39

•7 years ago

26 Replies

Duloxetine

Hi all, Just wondered if anyone with sle has taken Duloxetine for depression, anxiety and pain? I've had sle now for 15years and have always tried to cope on...

Hi all, Just wondered if anyone with sle has taken Duloxetine for depression, an...

nikki25

•7 years ago

9 Replies

Help and advice please

Recently diagnosed (at last!) Hi all haven't been on here In a while... I've suffered with lupus for nearly 10 years but the past 2 years they have been...

Recently diagnosed (at last!) Hi all haven't been on here In a while... I've ...

X-Jojom-X

•7 years ago

7 Replies

Going for regular eye tests

I went to the opticians today, as I hadn't been for a long time. I had a headache for 2 weeks before Christmas, since then I have started to have some...

I went to the opticians today, as I hadn't been for a long time. I had a headac...

Cal66

•7 years ago

3 Replies

Mitral valve regurgitation

Before Christmas I had an Echocardiogram which showed up a problem with my mitral valve. On the same day another poster had exactly the same diagnosis....

Before Christmas I had an Echocardiogram which showed up a problem with my mitra...

maurice1

•7 years ago

3 Replies

hello

hello everyone, I am new here and so happy to have found this site...i have been sick for so long and it yas been so helpful to read your posts!!! everyones...

hello everyone, I am new here and so happy to have found this site...i have been...

rome43

•7 years ago

3 Replies

Waiting on blood tests is this lupus rash?

Hi sorry very new here. In a bad place right now and been poorly for over a month. Run down, sore everywhere, very tired, swelling, lost about 16lb in just...

Hi sorry very new here. In a bad place right now and been poorly for over a mont...

mandjaz06

•7 years ago

7 Replies

Jaw pain

Sorry to have a bit of rant again but thinking of coming off methatrexate got a little cold thought I was going back to hospital talk agout man flu before...

Sorry to have a bit of rant again but thinking of coming off methatrexate got a ...

Ianrussell69

•7 years ago

7 Replies

Tests

Hi, Last year I started feeling poorly, red rash, joint pain and feeling extremely tired. At first I thought it was just a reaction to something until I...

Hi, Last year I started feeling poorly, red rash, joint pain and feeling extrem...

Larny

•7 years ago

4 Replies

Symptoms of lupus

I'm new on here I have just had my second lot of bloods make which have shown positive for lupus again as I was told you Need 2 positive readings before they...

I'm new on here I have just had my second lot of bloods make which have shown po...

Yozzer

•7 years ago

9 Replies

Night sweats- any advice please

I have been diagnosed with undifferentiated connective tissue disease. Blood tests have shown weakly positive ANA with cytoplasmic speckles and mildly positive...

I have been diagnosed with undifferentiated connective tissue disease. Blood tes...

paula-moo

•7 years ago

10 Replies

Increased positive ANA

Hi, I am very confused. I had an ANA test 3 months ago and results were positive 1:80, the doctor asked for lupus and raumathoid tests and it came negative. I...

Hi, I am very confused. I had an ANA test 3 months ago and results were positive...

Dinasamir

•7 years ago

6 Replies

Mtx injection vs tablets

I'm due to start mtx next week, In a last ditch attempt to get my steroid dose down before it comes to biologicals. I have been given the option to go...

I'm due to start mtx next week, In a last ditch attempt to get my steroid dose ...

Fg27

•7 years ago

29 Replies

Chilblains

I have recently been diagnosed with lupus, I'm currently under a rheumatologist due to having chilblain type symptoms on my toes. Has anyone else experienced...

I have recently been diagnosed with lupus, I'm currently under a rheumatologist ...

Megan89

•7 years ago

8 Replies

Coal tar shampoo

Hi all, I've been suffering with painful fingers and feet for some time. Ive been referred by GP to Rhematologist and have appointment in March. Ive had...

Hi all, I've been suffering with painful fingers and feet for some time. Ive bee...

Saralpt30

•7 years ago

5 Replies

Crohns and lupus

Hi all. Saw the gastroenterologist yesterday and he has ordered an mri and some cameras top and bottom as he thinks I may have developed crohns or colitis to...

Hi all. Saw the gastroenterologist yesterday and he has ordered an mri and some ...

Neiluk75

•7 years ago

19 Replies

Feeling way better

Don't know why I get like that sometimes , but I am going to check my hormones and everything else. Thank you everyone for your intelligence as loving care. ❤

Don't know why I get like that sometimes , but I am going to check my hormones a...

Priss

•7 years ago

1 Reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2017

Eye clinic

Appointment appointment

Newbie with very cold hands

feels like I am running high fever all the time!

Diet plan???

Getting tested for Lupus with crest

Working with CND/Lupus

Lupus skin issues

Lupus and lighting at work

Allergic reaction to fibromyalgia meds 😥

benefits

Pip Renewal

My test for POTS

I am curious, how many of you have a diagnosis of SLE but have never had organ involvement? And how many of you have been diagnosed with ..

Duloxetine

Help and advice please

Going for regular eye tests

Mitral valve regurgitation

hello

Waiting on blood tests is this lupus rash?

Jaw pain

Tests

Symptoms of lupus

Night sweats- any advice please

Increased positive ANA

Mtx injection vs tablets

Chilblains

Coal tar shampoo

Crohns and lupus

Feeling way better

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