Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,690 members • 28,072 posts

All posts for January 2017

Swollen ankle

I have been a prednisolone for few years for now,but been on higher doses for chest infection, the other day I noticed my ankle and foot swollen,but it's gone...

I have been a prednisolone for few years for now,but been on higher doses for ch...

mousey1

•7 years ago

13 Replies

Risk from shingles ??

Hi there , im probably being silly -- i was chatting to lady on the till in the shop and she told me she had been off work with shingles . She said they were...

Hi there , im probably being silly -- i was chatting to lady on the till in the ...

weathervane

•7 years ago

17 Replies

First appointment with Rheumatologist, and have jitters!

Hi, I'm due to see the rheumatologist at a UHMBT hospital in the next week. I am slightly apprehensive about my appointment. The referral comes after I had a...

Hi, I'm due to see the rheumatologist at a UHMBT hospital in the next week. I a...

Angi21

•7 years ago

2 Replies

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Today's rheumy review

First - so many thanks for all the supportive comments when I posted yesterday, you lovely people. You really helped me clarify my thoughts and go into today's...

First - so many thanks for all the supportive comments when I posted yesterday, ...

whisperit

•7 years ago

17 Replies

PIP,the finalchapter

If you have read my previous posts you will know that my DLA has ended and when I applied for PIP, I was awarded standard rate for both until 2026. I was...

If you have read my previous posts you will know that my DLA has ended and when ...

maurice1

•7 years ago

4 Replies

Any one with high serum ferritin and high transferrin saturation? Not hemochromatosis though.....

Hi everybody, Again I find myself at a bit of a loss and so do my Drs. After recently seeing a new Dr it turns out that in 2004 ..... yes 2004 I have written...

Hi everybody, Again I find myself at a bit of a loss and so do my Drs. After rec...

Jo883

•7 years ago

6 Replies

Uti infection

Hi, I keep getting uti infections which are very painful. I have lupus and on a aza..50mg.. I have had it twice this month since my last one I am drinkig at...

Hi, I keep getting uti infections which are very painful. I have lupus and on a ...

jeevan05

•7 years ago

8 Replies

Despondent

Hi I finally had my Rheumatology appt today, I've waited 3 months for this and tbh was a bit overwhelmed when I got there. I listed all my symptoms (covered in...

Hi I finally had my Rheumatology appt today, I've waited 3 months for this and t...

scscsc

•7 years ago

11 Replies

Some answers via a physio!

I had a physio appt today. I've had as much help as she can currently offer, and I agreed with her. She saw me about 6 weeks ago, and was really shocked today...

I had a physio appt today. I've had as much help as she can currently offer, and...

Lupiknits

•7 years ago

7 Replies

New diagnosis

Hi All I have just been diagnosed as having lupas in the skin, im trying to research the illness but there are several types, and the hospital wasnt very...

Hi All I have just been diagnosed as having lupas in the skin, im trying to rese...

rjep70

•7 years ago

3 Replies

Black country Thyroid Support Group - last Wednesday of every month

Brand new support group. Not sure if it will benefit anyone but I know anxiety/lupus/thyroid conditions can sometimes be linked.

Brand new support group. Not sure if it will benefit anyone but I know anxiety/l...

Lumac1988

•7 years ago

2 Replies

Mouth Rash? :(

Hi again everybody. It's been a while, but I am looking for some insight. Nearly a week ago, I developed a rash on the inside of my lower lip, and I'm...

Hi again everybody. It's been a while, but I am looking for some insight. Nearly...

apexx

•7 years ago

9 Replies

Rheumy review tomorrow. Displacement activity post

I have my rheumy review tomorrow. I last saw him 4 months ago. Last night I had a sudden panic as I realised how much is at stake on a good outcome - and how...

I have my rheumy review tomorrow. I last saw him 4 months ago. Last night I had ...

whisperit

•7 years ago

16 Replies

Unexplained bruise

Hi there, I'm new to this forum and just wanted to ask a question. I was diagnosed with Hashimoto's last July and am now on levothyroxine with bloods in normal...

Hi there, I'm new to this forum and just wanted to ask a question. I was diagnos...

Polly2501

•7 years ago

2 Replies

the raging inflammation process often breaks after midnight?!

Okay...so i have been fighting severe inflammation and pain all day long with all the meds I have in my arsenal which didnt seem to help much then a few hours...

Okay...so i have been fighting severe inflammation and pain all day long with al...

rome43

•7 years ago

2 Replies

how long does it take for prednisone to kick in?!!

I know it is telative to each person based on severity and if it is going to work but usually by now it starts kicking in for me.... been on it a week and...

I know it is telative to each person based on severity and if it is going to wor...

rome43

•7 years ago

3 Replies

Muscle pain all over after day out???!

I went for a day out yesterday to a town that i am thinking of moving to, and it has led to a flare of severe muscle pain throughout my arms, legs, feet and...

I went for a day out yesterday to a town that i am thinking of moving to, and it...

LuckyJC

•7 years ago

13 Replies

Haemophilus antibodies

Has anyone else on here been diagnosed with low or zero haemophilus antibodies with their lupus?

Has anyone else on here been diagnosed with low or zero haemophilus antibodies w...

Budrick

•7 years ago

2 Replies

Aches & Pains unknown

my mum is 67 yrs of age she complains of her bodys skin feeling sore & sensitive especially in the evenings please advise help!!?

my mum is 67 yrs of age she complains of her bodys skin feeling sore & sensitive...

Hidden

•7 years ago

5 Replies

Loss of my Blue Badge

I have been refused the renewal of my blue badge, I was awarded it in 2003 due to lupus and my muscle/joint pain/fatigue/breathlessness. I was awarded the...

I have been refused the renewal of my blue badge, I was awarded it in 2003 due t...

Hidden

•7 years ago

5 Replies

Inflammation of the Sacroiliac Joint and Muscle Spasms - linked to lupus or just co-incidence?

Does anyone else suffer from this? I have had a form of tendonitis in my wrists with my lupus and also bursitis in my hip - both of which I understand are...

Does anyone else suffer from this? I have had a form of tendonitis in my wrists ...

Wendy39

•7 years ago

43 Replies

Anybody had experience of requesting copy of your hospital records?

I don't know why it's only just occurred to me, but I'm preparing my request for copies of hospital records since I first saw a rheumy. The only way I can...

I don't know why it's only just occurred to me, but I'm preparing my request for...

Lupiknits

•7 years ago

16 Replies

private message

i meant to send this to everyone...does anyone know if we can send private messages to another member and if so how? Thank you for your help!

i meant to send this to everyone...does anyone know if we can send private messa...

rome43

•7 years ago

2 Replies

lupus diagnosus

Hi guys. Thank you to everyone who comforted me when I was diagnosed... I was so scared. After finally being diagnosed, I was put on a medication for lupus....

Hi guys. Thank you to everyone who comforted me when I was diagnosed... I was so...

beccaboom

•7 years ago

8 Replies

Lupus and diabetes

I have lupus but because of chronic itch,my GP tested bloods,i have to get a fasting glucose test done early mon morn,she think i may have diabetes and that...

I have lupus but because of chronic itch,my GP tested bloods,i have to get a fas...

Jeffscott69

•7 years ago

10 Replies

What does any of this mean?

My doctor wants to send me to a kidney doctor and I'm really scared and I don't know what any of this means. I just want to understand.

My doctor wants to send me to a kidney doctor and I'm really scared and I don't ...

tkroll0027

•7 years ago

14 Replies

Help with urinary problems

Hi all, I have had problems with my bladder for about the past 5 or 6 years. My symptoms are loss of sensation to urinate from my bladder (I get the sensation...

Hi all, I have had problems with my bladder for about the past 5 or 6 years. My ...

Sheepcoat

•7 years ago

8 Replies

Arthritis

I have arthritis as well as lupus . Is there anything anyone does to help with their arthritis . I am unable to bend down using my knees . I elbows can't be...

I have arthritis as well as lupus . Is there anything anyone does to help with t...

LouLamb

•7 years ago

13 Replies

Lupus acting up

Good morning everybody i was diagnosed with lupus and im started to wake up and my fingers are in pain and my wrist as well is new because it is the first time...

Good morning everybody i was diagnosed with lupus and im started to wake up and ...

Barbie2537

•7 years ago

3 Replies

Interesting turn of events. MP has been in touch and invited me to his offices to meet with him and a Senior Officer from the Health Board

As those of you who know me will know, I made contact with my MP last year complaining about the lack of specialist care for lupus sufferers in South West...

As those of you who know me will know, I made contact with my MP last year compl...

Wendy39

•7 years ago

26 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2017

Swollen ankle

Risk from shingles ??

First appointment with Rheumatologist, and have jitters!

Today's rheumy review

PIP,the finalchapter

Any one with high serum ferritin and high transferrin saturation? Not hemochromatosis though.....

Uti infection

Despondent

Some answers via a physio!

New diagnosis

Black country Thyroid Support Group - last Wednesday of every month

Mouth Rash? :(

Rheumy review tomorrow. Displacement activity post

Unexplained bruise

the raging inflammation process often breaks after midnight?!

how long does it take for prednisone to kick in?!!

Muscle pain all over after day out???!

Haemophilus antibodies

Aches & Pains unknown

Loss of my Blue Badge

Inflammation of the Sacroiliac Joint and Muscle Spasms - linked to lupus or just co-incidence?

Anybody had experience of requesting copy of your hospital records?

private message

lupus diagnosus

Lupus and diabetes

What does any of this mean?

Help with urinary problems

Arthritis

Lupus acting up

Interesting turn of events. MP has been in touch and invited me to his offices to meet with him and a Senior Officer from the Health Board

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