Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,830 members • 28,167 posts

All posts for November 2016

Am I Going Insane.

Can I ask for some help, I have been getting tingling feelings up the right side of my scalp, I eventually learnt that was not uncommon. However I have started...

Can I ask for some help, I have been getting tingling feelings up the right side...

les61

•8 years ago

5 Replies

Message in a bottle campaign

As requested in another post I'm putting this separately for more people to see. My local GP and pharmacy stock the message in a bottle system promoted by the...

As requested in another post I'm putting this separately for more people to see....

Mifford

•8 years ago

7 Replies

DIAGNOSIS- FM Anyone?!

Hello :) so I have been to my first rheumatologist appointment today. I would say it went fairly ok, although there are still some unanswered questions.. My...

Hello :) so I have been to my first rheumatologist appointment today. I would sa...

Lauralulu

•8 years ago

20 Replies

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Sore head

Hi. Does anyone else get a sore head after wear a hat or hair band?

Lancslass1962

•8 years ago

9 Replies

Pip tribunial

Hi, well at last the day has arrived and I am going to my pip tribunial today 24/11/2016. Did have representation but they let me down at the last minute...

Hi, well at last the day has arrived and I am going to my pip tribunial today 24...

sabine

•8 years ago

14 Replies

Botox

Hi everyone Due to years of uncontrollable head sweats I was started on a course of meds to help reduce the sweats. All this did was make my eyes dry, drink...

Hi everyone Due to years of uncontrollable head sweats I was started on a cours...

eejit

•8 years ago

1 Reply

FIRST VISIT - what to expect?!

Hello :) I'm off to my first rheumatologist appointment tomorrow. I'm quite nervous as I don't know what to expect, and two I'm just hoping I don't just get...

Hello :) I'm off to my first rheumatologist appointment tomorrow. I'm quite nerv...

Lauralulu

•8 years ago

9 Replies

Brrrr.....I'm FREEZING and low body temp😩

Hi everyone! Not sure if this could be Lupus related but I can't shake this chill. I have on two tanks, long sleeve shirt, sweatshirt, jacket, long socks,...

Hi everyone! Not sure if this could be Lupus related but I can't shake this chil...

LucyK5821

•8 years ago

9 Replies

Losing my job!

Im with the same employer (nhs) over 20 years. Ive been on sick leave this past year. Had my Occ Health app yesterday and she asked how I was, told her still...

Im with the same employer (nhs) over 20 years. Ive been on sick leave this past ...

Shann07

•8 years ago

27 Replies

Passwords!!

Is it just me or does anyone else forget passwords on a daily basis!! Aargh!! The amount of times I've had to reset my passwords is a nightmare! I know I...

Is it just me or does anyone else forget passwords on a daily basis!! Aargh!! T...

Sara_A

•8 years ago

10 Replies

Heart attack.

Hiya everyone, I haven't been posting recently due to not being to great but have been checking in each day. Have been having some palpitations and shortness...

Hiya everyone, I haven't been posting recently due to not being to great but hav...

KarenC

•8 years ago

10 Replies

Coming off lansoprazole - UPDATE

After coco's helpful post yesterday, I did some more research on PPIs. One issue sprung out for me - the (rare) side effect of magnesium deficiency after...

After coco's helpful post yesterday, I did some more research on PPIs. One issue...

whisperit

•8 years ago

31 Replies

Medic alert

My husband has suggested that I wear a medic alert pendant or bracelet for lupus. I always carry my last repeat prescription in my handbag and my NHS number, I...

My husband has suggested that I wear a medic alert pendant or bracelet for lupus...

creaky

•8 years ago

24 Replies

Pain...

I am in the worst pain!!! From my waist up I feel like someone beat the crap out of me. I am also starting a migraine. Anyone with the same pain?

I am in the worst pain!!! From my waist up I feel like someone beat the crap ou...

Dalollies

•8 years ago

11 Replies

Hair loss

What medications most improved your hair loss? Thank you

Hidden

•8 years ago

10 Replies

PIP appeal update

So following on from my previous post I have now submitted my appeal form to the tribunal. I had a letter from them today saying that they will now send...

So following on from my previous post I have now submitted my appeal form to the...

Mifford

•8 years ago

1 Reply

Strange heel/foot pain .. any clues??

For quite a while now I've had intermittent pain in the underneath of my foot - it's the most excruciating sharp pain that goes up through my heel as if I've...

For quite a while now I've had intermittent pain in the underneath of my foot - ...

Mifford

•8 years ago

8 Replies

Is it lupus ??

Hi all. My Gp has just referred me for ?? lupus. i have many symptoms and have done for the past five years. chronic joint and muscle pain. unexplained...

Hi all. My Gp has just referred me for ?? lupus. i have many symptoms and have d...

maddien

•8 years ago

3 Replies

Esa appeal

Hi I would like some advice please. I passed me pip with flying colours, I failed my esa and I had nobody to help me with my appeal. Now its to appeal again....

Hi I would like some advice please. I passed me pip with flying colours, I faile...

gillid

•8 years ago

3 Replies

Electric shocks and neurologist

As you all know prior to recent post I suffer with electric shocks in my left side of head and fingers to chest and neck.... I have been told I should see a...

As you all know prior to recent post I suffer with electric shocks in my left si...

Hidden

•8 years ago

2 Replies

Sjorgrens and IBS.?

Hello. I am new to this forum. I have Lupus, Sjorgrens and anti phospholipid. I have IBS. Does anyone else have IBS that may be linked to Sjorgrens. My Lupus...

Hello. I am new to this forum. I have Lupus, Sjorgrens and anti phospholipid. I...

Shantana

•8 years ago

6 Replies

When to take them?

I take hydroxychloroquine daily and low dose aspirin for Lupus and anti- phospholipid syndrome. Last winter my consultant recommended doubling the...

I take hydroxychloroquine daily and low dose aspirin for Lupus and anti- phospho...

madgerac

•8 years ago

5 Replies

Coconut Oil - health benefits. Lots of positive claims for various uses. Anyone use it?

I have been using coconut oil as a heavy duty moisturiser for a while now. It seems to be growing in popularity for other uses too. I am increasingly using it...

I have been using coconut oil as a heavy duty moisturiser for a while now. It se...

Wendy39

•8 years ago

25 Replies

Feeling heard

Went to gp, feeling good that I've been heard! being referred to Derm regarding some symptoms, looking at possible psoriatic arthritis due to nail changes and...

Went to gp, feeling good that I've been heard! being referred to Derm regarding ...

Tracylove

•8 years ago

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Odd smells?

Hi all , this may seem an odd question, does anyone else experience strange smells ? I keep smelling burning or smoke , it has been going on for a couple of...

Hi all , this may seem an odd question, does anyone else experience strange smel...

weathervane

•8 years ago

21 Replies

Pneumonia jab

Hi, had my pneumonia jab yesterday and today feel like I've been hit by about 10 trucks!! Feel so stiff and in pain just feel awful, thankfully it's my...

Hi, had my pneumonia jab yesterday and today feel like I've been hit by about 10...

Sara_A

•8 years ago

3 Replies

Kidney symptoms

Does this sound like its stemming from the lupus, for past few months i've had periods where I constantly need a wee, i'm waking up 3-5 times a night. I have...

Does this sound like its stemming from the lupus, for past few months i've had p...

Beau2016

•8 years ago

18 Replies

Just Joined

Good morning everyone. I have just joined the group and I am looking forward to reading your posts and joining in the discussions.

Good morning everyone. I have just joined the group and I am looking forward to ...

Hidden

•8 years ago

5 Replies

Scared ********! Looking for words on encouragement please?

For those of you who have helped me along the way since I have joined this summer, may remember my journey thus far. I leave Sunday to have my initial...

For those of you who have helped me along the way since I have joined this summe...

Lara4228

•8 years ago

8 Replies

Is this rash Lupus related?????

Hi everyone! Hope everyone is feeling well today. Soooo.....yesterday I woke up and found this lovely shade of red on my stomach, chest, arms, legs and back....

Hi everyone! Hope everyone is feeling well today. Soooo.....yesterday I woke up...

LucyK5821

•8 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2016

Am I Going Insane.

Message in a bottle campaign

DIAGNOSIS- FM Anyone?!

Sore head

Pip tribunial

Botox

FIRST VISIT - what to expect?!

Brrrr.....I'm FREEZING and low body temp😩

Losing my job!

Passwords!!

Heart attack.

Coming off lansoprazole - UPDATE

Medic alert

Pain...

Hair loss

PIP appeal update

Strange heel/foot pain .. any clues??

Is it lupus ??

Esa appeal

Electric shocks and neurologist

Sjorgrens and IBS.?

When to take them?

Coconut Oil - health benefits. Lots of positive claims for various uses. Anyone use it?

Feeling heard

Odd smells?

Pneumonia jab

Kidney symptoms

Just Joined

Scared ********! Looking for words on encouragement please?

Is this rash Lupus related?????

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