Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,082 posts

All posts for November 2016

Confused about lupus

Hiya. can someone advise me please. can i have lupus without ever having a rash. many thanks

Hiya. can someone advise me please. can i have lupus without ever having a rash....

maddien

•7 years ago

22 Replies

Rheumy appt and blood results

Hi everybody, I've posted a few times but quick recap - finally got an appt with a rheumy after only 25 years of ill health, although the letter says they will...

Hi everybody, I've posted a few times but quick recap - finally got an appt with...

Hidden

•7 years ago

25 Replies

Craving Ice??

HI ..my hubby suffers with Uctd and copd .he is eating a bag of ice everyday.he also been referred to a haematology coz he has low haemaglobin .. anybody else...

HI ..my hubby suffers with Uctd and copd .he is eating a bag of ice everyday.he ...

juliajm

•7 years ago

14 Replies

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Lupus symptoms after pregnancy

Hi all was just wondering if anyone's symptoms got worse after they had a baby? I've not yet been diagnosed still waiting for my appointment with...

Hi all was just wondering if anyone's symptoms got worse after they had a baby? ...

Ems666

•7 years ago

12 Replies

Engagement

I am sure that he will not mind!! Paul Howard (Lupus UK) does a tremendous amount of work on our behalf on this site. Last weekend (in Belgium) he proposed to...

I am sure that he will not mind!! Paul Howard (Lupus UK) does a tremendous amoun...

Kevin53

•7 years ago

42 Replies

Blessings

I do pray Jesus healing powers will let His will be done in our lives. I notice you have support groups in the UK. But wondering is there any in USA, Florida....

I do pray Jesus healing powers will let His will be done in our lives. I notice ...

Praying

•7 years ago

6 Replies

SLE Nephritis

Hi all, I was diagnosed with SLE Nephritis IV in 2008 (a year after my Daughter was born). I was also diagnosed with anti phospholipid syndrome after having...

Hi all, I was diagnosed with SLE Nephritis IV in 2008 (a year after my Daughte...

Roxy21

•7 years ago

5 Replies

US vs UK healthcare

Hi all, Noticing that a lot of you are from the US, (#Barnclown )I was wondering how you compared the difference in health care? I lived in the US for many...

Hi all, Noticing that a lot of you are from the US, (#Barnclown )I was wonderin...

Georgie-girl

•7 years ago

19 Replies

Slimming world update

Hi, I promised to update you all about my slimming world diet. I have now been following the diet for 7 weeks and have lost 1St 2 lbs I have to say that...

Hi, I promised to update you all about my slimming world diet. I have now been f...

creaky

•7 years ago

12 Replies

It's me again, now had blood work and rheumatoid doc wants me to see a blood doctor because my results are positive and complicated for lupus anticoagulant 😣...

It's me again, now had blood work and rheumatoid doc wants me to see a blood do...

Mealfredo78

•7 years ago

3 Replies

Hello All - A wee update

Just realized its been 10 months since my last update. Time to catch up with everyone. We had an enjoyable summer. Crossed one off my bucket list. We rode...

Just realized its been 10 months since my last update. Time to catch up with eve...

abby1649

•7 years ago

3 Replies

Awaiting Rheumatology appointment

Hi, I'm new here, so thanks for letting me in. I've had Raynauds syndrome for some years but lately it has disappeared to be replaced with joint pain & feeling...

Hi, I'm new here, so thanks for letting me in. I've had Raynauds syndrome for so...

Kitkat101

•7 years ago

5 Replies

Can Lupus come on suddenly?

Hello all, In March of this year I started experiencing joint pain, restless legs, heart palpitations, abdomen pain, gastro issues(diarrhea) and since May I...

Hello all, In March of this year I started experiencing joint pain, restless leg...

Lorensingstar9

•7 years ago

17 Replies

Starting methotrexate

So I had my 6 month check up with the rheumy today. She's totally lost knowing what to do with me - I've had to come off plaquenil again as it's just making me...

So I had my 6 month check up with the rheumy today. She's totally lost knowing w...

Mifford

•7 years ago

43 Replies

Farbys disease

Been told I have tested positive blood tests for an autoimmune condition but they're unsure what. Now being tested for farbys has anyone hered of it.

Been told I have tested positive blood tests for an autoimmune condition but the...

buryboy

•7 years ago

2 Replies

Terapia de LES

Alguien con experiencia en belimumab

Gmonckeberg

•7 years ago

6 Replies

Liver Cysts

Anyone ever find liver cysts on their liver? I would be very interested to know as I have some. My gallbladder has been irritating me. I have tried a natural...

Anyone ever find liver cysts on their liver? I would be very interested to know ...

Natura

•7 years ago

8 Replies

What happened to my post?

Hi, I wrote a post yeaterday asking about the effects of change of diet on lupu and it seems not to have come up. What did I do?

Hi, I wrote a post yeaterday asking about the effects of change of diet on lupu ...

Neriah

•7 years ago

3 Replies

Getting worse - advice/suggestions please?

Hello again, Desperation at my increasing fatigue and weakness prompts me to post once again, I'm afraid. ANY thoughts would be welcome. The daily pattern...

Hello again, Desperation at my increasing fatigue and weakness prompts me to po...

whisperit

•7 years ago

26 Replies

Have you had this happen to you? Small things that bring the big things home.

Cross posted from my online journal - I hope that's okay. I wrote this yesterday, but wanted to share it with other people who know EXACTLY what I'm talking...

Cross posted from my online journal - I hope that's okay. I wrote this yesterday...

quirkytizzy

•7 years ago

8 Replies

Lupus

Good morning, Has anyone had to have infusion because of their lupus flair up ? And did it work? I'm so fed up of being like this 😯

Good morning, Has anyone had to have infusion because of their lupus flair up ? ...

djsema

•7 years ago

11 Replies

Miracles TRULY do happen!

Yes they do! And I have proof to show it! Yesterday, my daughter was doing my hair for a Christmas work party, and while doing it she noticed that one of my...

Yes they do! And I have proof to show it! Yesterday, my daughter was doing my ha...

Lara4228

•7 years ago

35 Replies

Pain above my left breast

Hi i was wondering if someone could help me with some information I was wondering if someone could help me withwhat it could be I have had it for 2 days now if...

Hi i was wondering if someone could help me with some information I was wonderin...

Skyelouise09

•7 years ago

12 Replies

Neurosurgeon Appointment re syrinx cyst

I saw a Neurosurgeon privately (via husband's employee health care policy) on Wednesday evening. I was shattered afterwards and spent most of Thursday in bed...

I saw a Neurosurgeon privately (via husband's employee health care policy) on We...

Wendy39

•7 years ago

11 Replies

Swollen leg

Today the rash on my legs and wrist is awful and it can be painful to walk. It's paricularly bad on my right leg and the leg between knee and ankle is swollen

Today the rash on my legs and wrist is awful and it can be painful to walk. It's...

Suecon

•7 years ago

4 Replies

Immune Supressed

I work in a Primary school. Scarlett fever and Slap cheek are doing the rounds. I am taking 6 Mycophenolates, Prednisolone and Hydroychloroquine daily so am...

I work in a Primary school. Scarlett fever and Slap cheek are doing the rounds. ...

maybehope

•7 years ago

7 Replies

You Couldn't Make It Up.....

Hi Everybody, Sorry I've been away from the forum for a little while - I have MS, and it decided, for no apparent reason, to rear its ugly head for the last...

Hi Everybody, Sorry I've been away from the forum for a little while - I have MS...

BettieJ

•7 years ago

3 Replies

pain that started on the upper right side of by back and in 10 days is spreading to my chess :(

this pain started more than 10 days ago, i am traveling and thought was because of caring my heavy backpack and would stop when I stop to move so much. What...

this pain started more than 10 days ago, i am traveling and thought was because ...

josabete

•7 years ago

3 Replies

Pain under rib cage and into back

Hi by reading a few post it seems pain under rib cage is quite common problem I have it again went to dr sent me for X-ray and have antibiotics again think...

Hi by reading a few post it seems pain under rib cage is quite common problem I...

Paulakdean

•7 years ago

22 Replies

Itching

Whenever I have a shower or bath I itch like made after. It's not shower gel or anything Iam using it happened even if I use nothing but water. Is this lupus...

Whenever I have a shower or bath I itch like made after. It's not shower gel or ...

Ocy1

•7 years ago

17 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for November 2016

Confused about lupus

Rheumy appt and blood results

Craving Ice??

Lupus symptoms after pregnancy

Engagement

Blessings

SLE Nephritis

US vs UK healthcare

Slimming world update

More

Hello All - A wee update

Awaiting Rheumatology appointment

Can Lupus come on suddenly?

Starting methotrexate

Farbys disease

Terapia de LES

Liver Cysts

What happened to my post?

Getting worse - advice/suggestions please?

Have you had this happen to you? Small things that bring the big things home.

Lupus

Miracles TRULY do happen!

Pain above my left breast

Neurosurgeon Appointment re syrinx cyst

Swollen leg

Immune Supressed

You Couldn't Make It Up.....

pain that started on the upper right side of by back and in 10 days is spreading to my chess :(

Pain under rib cage and into back

Itching

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