Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for October 2016

Lupus Research

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 😱Monday is the exam day at the Lupus research center. yep, it is time for "THE COMPLETE" exam again!😬...

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 😱Monday is the exam day at the Lupus research cent...

Tiras

•8 years ago

3 Replies

ESA nightmare

Anyone that has been following my nightmare experience with my recent esa medical will be as gobsmacked as me as to what has happened regarding this farce! On...

Anyone that has been following my nightmare experience with my recent esa medica...

smudge1980

•8 years ago

13 Replies

Lupus or infection?

Hi everyone, Had a bad day yesterday. I've had swollen lymphs behind my jaw/ear that got worse over a couple of days until it was so bad I couldn't turn my...

Hi everyone, Had a bad day yesterday. I've had swollen lymphs behind my jaw/e...

Emily00

•8 years ago

8 Replies

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Doctors

Been to the doctors tonight . As on my back I had a thing that started as a spot . Very hard to describe . Then it went bigger and red . I caught it the other...

Been to the doctors tonight . As on my back I had a thing that started as a spot...

LouLamb

•8 years ago

4 Replies

Azathioprine/Lupus/Sjogren's follow on

Saw Rheumatology nurse on Tues for my results on being able to use Azathioprine. Enzyme levels are good so all systems go. Letter coming out to me & GP within...

Saw Rheumatology nurse on Tues for my results on being able to use Azathioprine....

Hollydebs

•8 years ago

4 Replies

My SLE Experience

Hi everyone! I'm new to this side.I have just been diagnosed with SLE. I am still taking 25 mg steroids per day. Actually I became ill three months ago and i...

Hi everyone! I'm new to this side.I have just been diagnosed with SLE. I am stil...

ava97

•8 years ago

18 Replies

Goose Bumps

Hi all just wondering if anyone gets pain with cold chills and goose bumps? I have noticed in the last week that when I get cold my skin pricks up with pain.

Hi all just wondering if anyone gets pain with cold chills and goose bumps? I h...

Arrlly1

•8 years ago

6 Replies

Going Barefoot

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 I have to go barefoot because of lupus issues, I ran across this web sit about the advantages of going barefoot. Turns out it is...

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 I have to go barefoot because of lupus issues, I ra...

Tiras

•8 years ago

7 Replies

LUPUS AND THE AGONY OF HAVING TO GIVE UP MY JOB

Hello Pals Well. How do l start! After 17 years of working and living with SLE plus other associating conditions, it looks like l have to give up on my job! I...

Hello Pals Well. How do l start! After 17 years of working and living with SLE p...

eunidarling

•8 years ago

6 Replies

Burning pain in toes

Hi For the last week I have had intermittent burning pains in my toes of my left foot, anyone else???? Thank you

Hi For the last week I have had intermittent burning pains in my toes of my left...

Daisy1991

•8 years ago

10 Replies

Please welcome Fabienne to the LUPUS UK team

Hi everybody, Hidden has joined the LUPUS UK National Office team this week as our new Membership, Social Media & Information Officer. She will be working...

Hi everybody, Hidden has joined the LUPUS UK National Office team this week as ...

Paul_Howard

Partner•8 years ago

27 Replies

Stopping esa assessment in the news

Hi everyone has anyone heard anymore about the criteria for stopping reassessment for chronically ill patients claiming esa following the comments in the news...

Hi everyone has anyone heard anymore about the criteria for stopping reassessmen...

Buffy14

•8 years ago

7 Replies

been away

Hi all have not been on site for quite some time, have been very depressed and when i get like that I withdraw. I have a question, Does anyone here have a...

Hi all have not been on site for quite some time, have been very depressed and w...

julie1234

•8 years ago

5 Replies

Hydroxychloroquine - Plaquenil Alternative

Any suggestions...?! I originally took Plaquenil (Sanofi) but this brand is now discontinued. The generic form of this, on my prescription, gives me serious...

Any suggestions...?! I originally took Plaquenil (Sanofi) but this brand is now ...

KTRim

•8 years ago

9 Replies

Being real Frank, mental disorders and lupus

Hello everyone, I need some help. How many of us have mental disorders? Besides our obvious depression and anxiety we get. I mean actual diagnosed disorders? I...

Hello everyone, I need some help. How many of us have mental disorders? Besides ...

Lara4228

•8 years ago

35 Replies

When you're having a rubbish time and your friends forget 🙄

Just need a rant sorry, I'm sure many of you will know how I feel. Been off work sick for two weeks, haven't done a full day this week. Got a friend visiting...

Just need a rant sorry, I'm sure many of you will know how I feel. Been off work...

natal1a

•8 years ago

26 Replies

Flu jab?

Anyone know if you're eligible for the flu jab if you're on hydroxychloroquine? I.e. does it count as an immunosuppressant? Last year I paid for the flu jab...

Anyone know if you're eligible for the flu jab if you're on hydroxychloroquine? ...

LuckyJC

•8 years ago

25 Replies

Short and sweet, for a change! Steroids

Have you ever met a doc who prescribed Prednisolone in short bursts but never a taper? Just end after say 5 days? If so, is that ok? Evidence to the contrary...

Have you ever met a doc who prescribed Prednisolone in short bursts but never a ...

Footygirl

•8 years ago

20 Replies

👣👣👣👣👣👣👣👣👣👣👣👣👣👣👣LIFE WITH LUPUS👣👣👣👣👣👣👣👣👣👣👣👣👣👣

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 For those of you who know me, you know my sence of humor. I saw this and I had to post this photo. I thought of Crusee. She told...

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 For those of you who know me, you know my sence of ...

Tiras

•8 years ago

23 Replies

One diagnosis to another

I have been told either have rheumatoid to lupus and now might be fibromyalgia.... I have STOPPED all meds til I go somewhere else... don't these medical...

I have been told either have rheumatoid to lupus and now might be fibromyalgia.....

Mealfredo78

•8 years ago

7 Replies

Irritated bladder and constant need to wee

It's driving me crazy!!!!! Started fluoxetine 2 weeks ago, also antibiotics started at same time for an abscess. Finished antibiotics after 7 days, 3 days...

It's driving me crazy!!!!! Started fluoxetine 2 weeks ago, also antibiotics star...

Hidden

•8 years ago

12 Replies

Methotrexate - the good, the bad and the ugly?

I've been trying to take plaquenil over the last year or so having been unable to tolerate it in the past. This time round I go through the odd week where I...

I've been trying to take plaquenil over the last year or so having been unable t...

Mifford

•8 years ago

8 Replies

Small list of symptoms

Hi, thought I'd post up a small list of the symptoms I've had especially over the past months. Joint pain/loss of function in hands Pain in heels, ankles,...

Hi, thought I'd post up a small list of the symptoms I've had especially over th...

Hidden

•8 years ago

1 Reply

azathiorine

Hello, I am new to these forms I try and stay away due to scare stories and everything else, my first consultant said this to me which was good advice at the...

Hello, I am new to these forms I try and stay away due to scare stories and ever...

Jess_doyle

•8 years ago

6 Replies

Lupus and the nervous system / brain

Hello all I was just wondering whether lupus affecting the nervous system is quite a common thing,or not so much? I've been having vertigo on and off for a...

Hello all I was just wondering whether lupus affecting the nervous system is qui...

natal1a

•8 years ago

9 Replies

Muscle spasms / twitches / jolts

Hey guys hope you're all well. I'm posting today to try and figure out a strange symptom I'm getting. Okay so it mainly happens at night when I'm lying in bed...

Hey guys hope you're all well. I'm posting today to try and figure out a strange...

stacieann1989

•8 years ago

25 Replies

Just a quick update

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi everyone; just to let everyone know Mom & Dad are still having issues. I have got to take Mother to the doctor 3 more days this...

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi everyone; just to let everyone know Mom & Dad ar...

Tiras

•8 years ago

20 Replies

First rheumy appointment coming up, what to expect???

Hello everyone ❤️ Following my first post bloods where taken to see if anything showed for SLE, my ANA was abnormal so doc referred me strait away to hospital...

Hello everyone ❤️ Following my first post bloods where taken to see if anything...

Emma38xx

•8 years ago

10 Replies

The 4 best things I did with my Lupus treatment this year

It has been 12 months of diagnostics and consultants and I am just about there. Yes, a diagnosis as early as Monday of next week if things go to plan....

It has been 12 months of diagnostics and consultants and I am just about there. ...

Virginia70

•8 years ago

20 Replies

At 3%

Some wonder what's the difference between being tired and being fatigue. When you're tired you rest or take a nap. Most of the time you feel revived and...

Some wonder what's the difference between being tired and being fatigue. When y...

Ratana21

•8 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2016

Lupus Research

ESA nightmare

Lupus or infection?

Doctors

Azathioprine/Lupus/Sjogren's follow on

My SLE Experience

Goose Bumps

Going Barefoot

LUPUS AND THE AGONY OF HAVING TO GIVE UP MY JOB

Burning pain in toes

Please welcome Fabienne to the LUPUS UK team

Stopping esa assessment in the news

been away

Hydroxychloroquine - Plaquenil Alternative

Being real Frank, mental disorders and lupus

When you're having a rubbish time and your friends forget 🙄

Flu jab?

Short and sweet, for a change! Steroids

👣👣👣👣👣👣👣👣👣👣👣👣👣👣👣LIFE WITH LUPUS👣👣👣👣👣👣👣👣👣👣👣👣👣👣

One diagnosis to another

Irritated bladder and constant need to wee

Methotrexate - the good, the bad and the ugly?

Small list of symptoms

azathiorine

Lupus and the nervous system / brain

Muscle spasms / twitches / jolts

Just a quick update

First rheumy appointment coming up, what to expect???

The 4 best things I did with my Lupus treatment this year

At 3%

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