Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,864 members • 28,204 posts

All posts for October 2016

South Wales Lupus Group

Hi, I'm Cath from South Wales Lupus Group, we have a number of events and social meeting coming up and wanted to share them on this forum in case people would...

Hi, I'm Cath from South Wales Lupus Group, we have a number of events and social...

Slowmo

•8 years ago

7 Replies

Hello

Hello. My name is Ann. I'm in the USA, have Reynauds only, not lupus at this time. A friend forwarded your link to me. Just going to be watching only. Best to...

Hello. My name is Ann. I'm in the USA, have Reynauds only, not lupus at this tim...

annhm

•8 years ago

7 Replies

Test Results

Ive been to my rheumatologist waiting on test results. Hoping they will call me soon. Its been 5 days, so maybe everything is fine.

Ive been to my rheumatologist waiting on test results. Hoping they will call me ...

faithnhm333

•8 years ago

7 Replies

Want to take advantage of all our features? Just log in!

Is this a flare?

I have Discoid Lupus and Sjogrens . After taking Hydroxychloroquine for several weeks I felt heaps better until last week. The awful dry retching cough I had...

I have Discoid Lupus and Sjogrens . After taking Hydroxychloroquine for several ...

Cas70

•8 years ago

3 Replies

Hellllppp!!!!!!

Hi all have just got back from the rheumatologist with my daughter and she has been prescribed hydroxy chloroquine to take 2 a day but didn't say if this was...

Hi all have just got back from the rheumatologist with my daughter and she has b...

Sandie1964

•8 years ago

18 Replies

Medication through the letterbox! A God send.

I have SLE and was diagnosed over a year ago. My brother had SLE and sadly died due to SLE complications 7 years ago. I was starting to get a bit fed up of...

I have SLE and was diagnosed over a year ago. My brother had SLE and sadly died...

kezzabo

•8 years ago

5 Replies

Intense burning sensation in the sun

Hi all. I have read people with lupus can not stand being in the sun. I find I have to plaster my top half in factor 50 as I feel like I'm on fire but I don't...

Hi all. I have read people with lupus can not stand being in the sun. I find I h...

buryboy

•8 years ago

1 Reply

Rheumatologist appointment in a week and a half

Hi everyone! First time posting! Wondering if any of you have any insight. I've been on and off sick for over a year. Strep, constant sinusitis, got diagnosed...

Hi everyone! First time posting! Wondering if any of you have any insight. I've ...

LucyK5821

•8 years ago

5 Replies

PIP update

Last week I asked for a bit of advice as my DLA had stopped and I was applying for PIP. I joined Benefits forWork as I had seen it mentioned in previous posts....

Last week I asked for a bit of advice as my DLA had stopped and I was applying f...

maurice1

•8 years ago

6 Replies

Please complain with me !

I think it is about time we all complained about the work capacity assessment and the companies who carry them out . So many people on here are going through...

I think it is about time we all complained about the work capacity assessment an...

Buffy14

•8 years ago

31 Replies

New diagnoses

Hi all, I have just been diagnosed with SLE and wondered how many of you have your eyes regularly screened from the medication? I already have a squint and...

Hi all, I have just been diagnosed with SLE and wondered how many of you have yo...

Ndwndw

•8 years ago

7 Replies

Greedy and unfair

https://www.leafly.com/news/politics/breaking-uk-halts-cbd-sales/?utm_source=Sailthru&utm_medium=email&utm_campaign=Weekend%20News%20%20-%20Week%2038%20-%20Eng&

https://www.leafly.com/news/politics/breaking-uk-halts-cbd-sales/?utm_source=Sai...

Hidden

•8 years ago

3 Replies

Hair loss

I know hair loss is one of the symptoms for lupus, But i only seem to lose quite a lot of hair to me when washing my hair & brushing.. I know that's normal,...

I know hair loss is one of the symptoms for lupus, But i only seem to lose quite...

Hidden

•8 years ago

12 Replies

Lupus study for student University dissertation

Hi, I am a Lupus patient and am currently in my final year of a BSc degree in Western Herbal Medicine at the University of Westminster. I decided I would...

Hi, I am a Lupus patient and am currently in my final year of a BSc degree in W...

SonyaNME

•8 years ago

9 Replies

Shock

Was in a car accident yesterday . I am everyone else are fine I've only hurt my knee . I couldn't feel any of joint pains because of the shock . It's amazing...

Was in a car accident yesterday . I am everyone else are fine I've only hurt my ...

LouLamb

•8 years ago

14 Replies

Pain

This evening around 4 pm I started getting this pain on lower back to my front, also goes down my legs. Both feet n legs swollen. On my left side of my stomach...

This evening around 4 pm I started getting this pain on lower back to my front, ...

Jo_25

•8 years ago

3 Replies

Needing advice?

Hi I am new here and I was just curious I have been diagnosed with raynaud's for 2yrs now and I didn't really do anything about it until these past 2months or...

Hi I am new here and I was just curious I have been diagnosed with raynaud's for...

Shari_bags

•8 years ago

16 Replies

Dizziness or vertigo lupus related?

I have been experience dizziness (vertigo) off and on for several years. All the research I have done states that they don't think it's related to lupus, but...

I have been experience dizziness (vertigo) off and on for several years. All the...

nanleighh

•8 years ago

22 Replies

Hair breaking & bald spot

Has anyone found any help for hair breakage & bald spots. I am currently undiagnosed however all specialists ''suspect'' auto immune. Will this quit when they...

Has anyone found any help for hair breakage & bald spots. I am currently undiagn...

Sheole

•8 years ago

8 Replies

0 points at esa assessment/ being put on jsa without signing on.

Hi everyone, I haven't posted for a while, I felt I wanted to because I have been reading about others who have had 0 points following their esa assessment and...

Hi everyone, I haven't posted for a while, I felt I wanted to because I have bee...

field

•8 years ago

30 Replies

panic attacks...

...appear to be my latest treat. I have never experienced them before, but over the past few weeks, when I have a bad day - feeling especially tired or...

...appear to be my latest treat. I have never experienced them before, but over ...

whisperit

•8 years ago

19 Replies

Working with lupus.

Still trying my best to stay in work. Had a flare recently and I went to see the doctor. He gave me two choices, either he signs me off or I take a course of...

Still trying my best to stay in work. Had a flare recently and I went to see the...

Dan30cr

•8 years ago

8 Replies

Please help, I'm digging my skin 🙁

Hello. I am new on here. I was diagnosed with Lupus along with copd and osteoarthritis. I'm just wondering if anyone out there has ever had a itching...

Hello. I am new on here. I was diagnosed with Lupus along with copd and oste...

CindyV

•8 years ago

19 Replies

?lupus rash

Hi looking for advise whilst waiting for rheumatologist and neurologist page which will likely be in December. This is second time I have had this rash this...

Hi looking for advise whilst waiting for rheumatologist and neurologist page whi...

Caramia1964

•8 years ago

24 Replies

PET Scan & Diagnosis.

Have any of you had a PET Scan. Was it used as a diagnosis aide for auto immune. It's been a couple years of inflammatory markers in blood tests. Lots of...

Have any of you had a PET Scan. Was it used as a diagnosis aide for auto immune....

Sheole

•8 years ago

5 Replies

Lupus and Addison's disease

Does anyone have both? My mom has had Addison's for 30+ years but was just diagnosed with lupus. Looking for any tips, recommendations, or encouragement about...

Does anyone have both? My mom has had Addison's for 30+ years but was just diagn...

LizTNJ33

•8 years ago

3 Replies

Medication

Have just picked up my prescription from the chemist,usually it's zentiva hydroxychloroquine believe befor it was plaquenal, the box I have comes from Bristol...

Have just picked up my prescription from the chemist,usually it's zentiva hydro...

chaimee

•8 years ago

7 Replies

Preventing lung infection, any thoughts?

Every year I end up with some form of lung infection that lasts for weeks - it's a pretty miserable time, to be honest! The house is old and I'm sure there's...

Every year I end up with some form of lung infection that lasts for weeks - it's...

Silvergilt

•8 years ago

2 Replies

October's Topic of the Month - Raynaud's Phenomenon

Our ‘Topic of the Month’ in October will be, ‘Raynaud's Phenomenon' Raynaud’s phenomenon is a condition in which the small blood vessels in the extremities...

Our ‘Topic of the Month’ in October will be, ‘Raynaud's Phenomenon' Raynaud’s p...

Paul_Howard

Partner•8 years ago

44 Replies

No to mandatory reconsideration, what a surprise

Hi all got my mandatory reconsideration letter today they are still saying I am fit for work it's a joke and more stress to flare my lupus up I now have to...

Hi all got my mandatory reconsideration letter today they are still saying I am ...

Buffy14

•8 years ago

17 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2016

South Wales Lupus Group

Hello

Test Results

Is this a flare?

Hellllppp!!!!!!

Medication through the letterbox! A God send.

Intense burning sensation in the sun

Rheumatologist appointment in a week and a half

PIP update

Please complain with me !

New diagnoses

Greedy and unfair

Hair loss

Lupus study for student University dissertation

Shock

Pain

Needing advice?

Dizziness or vertigo lupus related?

Hair breaking & bald spot

0 points at esa assessment/ being put on jsa without signing on.

panic attacks...

Working with lupus.

Please help, I'm digging my skin 🙁

?lupus rash

PET Scan & Diagnosis.

Lupus and Addison's disease

Medication

Preventing lung infection, any thoughts?

October's Topic of the Month - Raynaud's Phenomenon

No to mandatory reconsideration, what a surprise

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