Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for October 2016

Confused

Hi. Since I had flu back in December I've been getting frequent bouts of flu-like symptoms - exhaustion, pain in muscles and joints etc. On these days I can...

Hi. Since I had flu back in December I've been getting frequent bouts of flu-lik...

Suecon

•8 years ago

6 Replies

Work/life balance?

Feeling frustrated here, been off work for the last month, back pain, then doc reckoned it was kidney stones, then I had a UTI now told its muscular 🙄 Was...

Feeling frustrated here, been off work for the last month, back pain, then doc ...

Loulouella

•8 years ago

2 Replies

Occipital neuralgia, memory fog, fatigue, positive biopsy for SLE - Rheumy says it's not SLE

Hi all, I have been suffering for 4.5 yrs now. Had extreme rashes caused by high levels of leukocytes - biopsy of active papule came back as SLE, severe...

Hi all, I have been suffering for 4.5 yrs now. Had extreme rashes caused by hig...

MadgeM

•8 years ago

5 Replies

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What do my bloods mean ?

Hi can somebody shine some light on my bloods was admitted to hospital with sepcis was told I had lupus 8 month ago and am on hydroxi and methatrexate Initial...

Hi can somebody shine some light on my bloods was admitted to hospital with sepc...

Ianrussell69

•8 years ago

4 Replies

Hello, new and had blood results - thoughts?

Hello, I'm new on here and have posted in various different forums. Long story short I have had two lots of bloods taken one back in May and another in...

Hello, I'm new on here and have posted in various different forums. Long story ...

Balletmum71

•8 years ago

2 Replies

Advice please on mouth ulcers and blisters!!

It has recently been confirmed that I have small nerve peripheral neuropathy and Raynaurds. Other autoimmune stuff still under investigation. Have had a nice...

It has recently been confirmed that I have small nerve peripheral neuropathy and...

LottieD

•8 years ago

11 Replies

Lupus Diagnosis with Hashimoto's

Hi I am waiting for an appointment to see a rheumotologist after having borderline lupus blood results. I was diagnosed with hashimoto's 5 years ago, but...

Hi I am waiting for an appointment to see a rheumotologist after having borderli...

Sophie1304

•8 years ago

19 Replies

Is neuralgia symptom of SLE?

Hello! I am waiting to attend an appointment to see a Rheumatologist soon, as my GP is suspecting SLE. But I was wondering if neuralgia is one of many...

Hello! I am waiting to attend an appointment to see a Rheumatologist soon, as my...

Jacqui65

•8 years ago

6 Replies

Is it fibro though?

Hello all, just asking for some support. Went for my rheumi appointment a couple of weeks ago and saw yet another consultant. She said as I didn't have a...

Hello all, just asking for some support. Went for my rheumi appointment a coupl...

Hippykar

•8 years ago

11 Replies

Lupus and weganers

I was diagnosed with lupus but my rheumy questioning weganers,had 5 sinus ops,not worked,ent surgeon said next step is to obliterate sinuses,apparantly...

I was diagnosed with lupus but my rheumy questioning weganers,had 5 sinus ops,no...

Jeffscott69

•8 years ago

5 Replies

More Lupus Awareness

Hello everyone Have just read that Lady Gaga has named her latest new album Joanne after her aunt who died from Lupus at 19 years old!. It's released on...

Hello everyone Have just read that Lady Gaga has named her latest new album Joan...

misty14

•8 years ago

20 Replies

ESA work based program

Hi, I suffer for anxiety, mental health and self harming. A few weeks ago I had a tribunal and won my case and it was discussed about going into the work...

Hi, I suffer for anxiety, mental health and self harming. A few weeks ago I had...

Spiritse

•8 years ago

2 Replies

WBC keeps getting lower and lower

Hi everyone! I'm so anxious to get into see my rhumatologist this Thursday. I haven't been diagnosed yet but my pcp thinks I am displaying symptoms. Just out...

Hi everyone! I'm so anxious to get into see my rhumatologist this Thursday. I ha...

LucyK5821

•8 years ago

1 Reply

Sick watch?

Hello xoxo I have just been given a letter from work saying that I have been put on sick watch because I have had 4 periods of sickness last year and that if I...

Hello xoxo I have just been given a letter from work saying that I have been put...

leannehowis

•8 years ago

10 Replies

Low wbc

Sorry I feel like I'm forever moaning on this page but I'm feeling fed up. I'm currently taking predislone (7.5), hydroxychloroquine (200) and was taking (100)...

Sorry I feel like I'm forever moaning on this page but I'm feeling fed up. I'm c...

imzi

•8 years ago

12 Replies

Long list of symptoms - what is your take on them?

Hello :) The other night I kept getting searing pains down my front right thigh. Feeling fed up with all the various oddities of pains, feelings I found a...

Hello :) The other night I kept getting searing pains down my front right thigh....

Lara4228

•8 years ago

7 Replies

Osteomyletis

Hello :) What i thought was a sinus infection (intense frontal and temple headaches, lots of lovely coloured snot, eye pain, cheek pain, ear pain and jaw pain,...

Hello :) What i thought was a sinus infection (intense frontal and temple headac...

Lara4228

•8 years ago

11 Replies

Anyone catch Casualty tonight? We made it to TV

Any opinions on their portrayal? Nice it still is incurable, but it sounded so neat and tidy after diagnosis. I wish! I used to laugh at House. Practically...

Any opinions on their portrayal? Nice it still is incurable, but it sounded so n...

Hidden

•8 years ago

12 Replies

Pip appeal - any advice from those that have gone through it?

Hi everyone. I've been on pip for two years now and recently had my review questionnaire on which I'd indicated that I'm now much worse than I was 2 years ago...

Hi everyone. I've been on pip for two years now and recently had my review quest...

Mifford

•8 years ago

24 Replies

Mycophenolate/myfortic what's the difference ?

Hi , I have been reading a couple of posts regarding Mycophenolate intolerance , it is in my notes that I am Mycophenolate intolerant but then I was put on...

Hi , I have been reading a couple of posts regarding Mycophenolate intolerance ,...

Buffy14

•8 years ago

4 Replies

To start a new treatment Beliumumab

Hello everyone How are u all doing? As the title of my post say am about to start a new treatment on monday called beliumumab or belysta which is a biological...

Hello everyone How are u all doing? As the title of my post say am about to star...

ijeasike

•8 years ago

2 Replies

Can someone explain please

My bloods also showed a reduced eGFR?

Hidden

•8 years ago

7 Replies

Wrist seizing

Hi, I have recently been diagnosed with Rhupus as my joints were very inflamed and sore for what felt like an eternity. I am taking 25 mg methotrexate...

Hi, I have recently been diagnosed with Rhupus as my joints were very inflamed a...

Arrlly1

•8 years ago

5 Replies

Your results and reports...are they really ours?

Asking this question on several sites guys. What /who says our test results are ours? Is there legislation I can quote to get them? Just been told,...

Asking this question on several sites guys. What /who says our test results are ...

Hidden

•8 years ago

32 Replies

Newbie Here!!... Lupus (SLE) Diagnosis in 2015

Joining the Lupus group here in hopes to either find solutions and discussions pertaining to medical issues I am experiencing, have experienced, and/or help...

Joining the Lupus group here in hopes to either find solutions and discussions p...

Chlsbug

•8 years ago

16 Replies

Credit where it is due

I just saw my respirology consultant for a review. I was feeling lousy; barely able to walk unaided from the hospital car park to out patients. The nursing...

I just saw my respirology consultant for a review. I was feeling lousy; barely ...

whisperit

•8 years ago

15 Replies

Mycophenolate intolerant

I posted a couple of days ago wondering if some of my recent symptoms were the result of a reaction to mycophenolate. I've just come back from seeing my...

I posted a couple of days ago wondering if some of my recent symptoms were the r...

whisperit

•8 years ago

15 Replies

mycophenolate

I've recently started taking mycophenolate after a serious lupus flare , after reading about the side effects I was very reluctant to start taking them , I'm...

I've recently started taking mycophenolate after a serious lupus flare , after r...

Krissy91

•8 years ago

17 Replies

Falling GFR---help needed!

Hello, my lupus friends! I need your help. I received blood test results today. My GFR (Glomerular Filtration Rate) fell drastically over the last 4 months...

Hello, my lupus friends! I need your help. I received blood test results today...

shareasmile

•8 years ago

30 Replies

First Visit to Rheumatology, Take Two.

Just the once, it would be really nice if the left hand actually knew what the right hand was up to regarding this diagnosis malarkey ( I would say farce, but...

Just the once, it would be really nice if the left hand actually knew what the ...

BettieJ

•8 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2016

Confused

Work/life balance?

Occipital neuralgia, memory fog, fatigue, positive biopsy for SLE - Rheumy says it's not SLE

What do my bloods mean ?

Hello, new and had blood results - thoughts?

Advice please on mouth ulcers and blisters!!

Lupus Diagnosis with Hashimoto's

Is neuralgia symptom of SLE?

Is it fibro though?

Lupus and weganers

More Lupus Awareness

ESA work based program

WBC keeps getting lower and lower

Sick watch?

Low wbc

Long list of symptoms - what is your take on them?

Osteomyletis

Anyone catch Casualty tonight? We made it to TV

Pip appeal - any advice from those that have gone through it?

Mycophenolate/myfortic what's the difference ?

To start a new treatment Beliumumab

Can someone explain please

Wrist seizing

Your results and reports...are they really ours?

Newbie Here!!... Lupus (SLE) Diagnosis in 2015

Credit where it is due

Mycophenolate intolerant

mycophenolate

Falling GFR---help needed!

First Visit to Rheumatology, Take Two.

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