Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2016

Not getting no where with consultant

So I was diagnosed over 2 months I think now with inflammatory arthiriets, mixed connective tissue disease and the start of lupus... I have had many problems...

So I was diagnosed over 2 months I think now with inflammatory arthiriets, mixed...

Hidden

•8 years ago

2 Replies

Medication stopped

Well my methotrexate was stopped my sores on my legs are starting to heal . But now I'm deteriorating struggling with pain can't breath properly it hurts so...

Well my methotrexate was stopped my sores on my legs are starting to heal . But ...

charmaineholmes

•8 years ago

16 Replies

Working

Today the children came back to school . I really enjoyed it . If everyday is like today I know I'll be able manage with the pain . Today an assessor came in...

Today the children came back to school . I really enjoyed it . If everyday is li...

LouLamb

•8 years ago

2 Replies

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5 days till wedding today is not a very good day for me

So I had plans to meet up with the DJ and go with my bridesmaids to pick out her dress with her at the mall I had to cancel all my plans because I can't do...

So I had plans to meet up with the DJ and go with my bridesmaids to pick out her...

Julietsmombless2015

•8 years ago

2 Replies

Knees giving way

Do any of you ever have a problem of your knee giving way? It happens several times a day to me, both knees seem to take turns doing it. Luckily I've never...

Do any of you ever have a problem of your knee giving way? It happens several ti...

Hidden

•8 years ago

11 Replies

Living with Systemic Lupus

Hi to all 😘 I've had systemic lupus for 10 years and l was diagnosed when my first child was born. I've suffered like so many people that l've read about but...

Hi to all 😘 I've had systemic lupus for 10 years and l was diagnosed when my fi...

Moi1x

•8 years ago

33 Replies

LUPUS Specialist Nurse

Hello to you all, I live in South Wales and I am really keen to talk with a nurse who specialises in LUPUS. I am aware of other specialist nurses but there...

Hello to you all, I live in South Wales and I am really keen to talk with a nurs...

Tripitaka

•8 years ago

18 Replies

Aciclovir mood swings

i presume that most of us are on immunosuppressive medications so when something like shingles comes along they deal with it quite agressively. i have a...

i presume that most of us are on immunosuppressive medications so when something...

maeows

•8 years ago

6 Replies

Scunnered with others lack of understanding?

Hi. Im being treated with Hydroxychloroquine and due to start on sulfasalazine soon as still very sore. Have cocodamol and NSAIDs for pain, but the later make...

Hi. Im being treated with Hydroxychloroquine and due to start on sulfasalazine s...

Hidden

•8 years ago

6 Replies

I'm meant to be moving out.

just starting off by saying i know that people on here are not medical trained however any advice that can be offered would be grate. So on thursday I made a...

just starting off by saying i know that people on here are not medical trained h...

seanto

•8 years ago

1 Reply

One Bad Night

Last night was probably one of the worst nights I've had. My hands and feet started to itch as always. Then my feet started to swell. I put cortisone in it,...

Last night was probably one of the worst nights I've had. My hands and feet sta...

Ratana21

•8 years ago

4 Replies

Hi guys help me out with this one please.

Whent for a swim yesterday instead of walking cos it just dosnt seem to be doing me any good i thought, Then at night i did some leg exersises to get my quads...

Whent for a swim yesterday instead of walking cos it just dosnt seem to be doing...

minka

•8 years ago

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I just knew I was right but maybe not!

I've been sick for awhile now and I thought I was never going to get an answer. So my husband and I did a Year's worth of research and finally talk to my...

I've been sick for awhile now and I thought I was never going to get an answer. ...

Littlebitofftoday

•8 years ago

7 Replies

I just know!

I have been getting sicker and sicker over the past few years, and nobody except my husband believed me and my doctor was not trying to figure it out very hard...

I have been getting sicker and sicker over the past few years, and nobody except...

Littlebitofftoday

•8 years ago

1 Reply

sore heels

does anyone else suffer from sudden onset of painful sore, hard skin on the heels that isn't caused by new footwear?

does anyone else suffer from sudden onset of painful sore, hard skin on the hee...

Queencara78

•8 years ago

7 Replies

Early side effects of hydroxychloroquine

HI all, I started hydroxychloroquine yesterday ... 200ml twice a day with food...... Would appreciate your experiences with early side effects please Thanks...

HI all, I started hydroxychloroquine yesterday ... 200ml twice a day with food.....

MagsaTrini

•8 years ago

21 Replies

Sore mouth

Have lupus /fibro .Have had lots of dental problems last few years and didn't make a connection untill reading some of your posts here. Has anyone had...

Have lupus /fibro .Have had lots of dental problems last few years and didn't ma...

Mandagee

•8 years ago

11 Replies

A blinding headache that ends up with nosebleeds.

I normally have a blinding headache. It normally start with pain 4rm the back of my head and then moves up to the top and front part. I end up having a...

I normally have a blinding headache. It normally start with pain 4rm the back of...

ijeasike

•8 years ago

5 Replies

8 Days countdown towards wedding date which is September 10th

Okay so I need everyone's opinion on this my natural hair color is very light and it's blonde up the tips from the Sun I have thrown it out and actually really...

Okay so I need everyone's opinion on this my natural hair color is very light an...

Julietsmombless2015

•8 years ago

15 Replies

Maybe I have lupus?

Hello everyone, I just recently moved to a very humid/hot place from a colder climate. Now that I recall, my face has had redness on and off for the past year....

Hello everyone, I just recently moved to a very humid/hot place from a colder cl...

antoanetm25

•8 years ago

5 Replies

Anyone else got turned down for esa

Bad outcome after face to face assessment, doesn't help that I haven't been diagnosed yet. Been off work 12months employers been great up to now. Even arranged...

Bad outcome after face to face assessment, doesn't help that I haven't been diag...

LottieD

•8 years ago

7 Replies

Rhumatoid arthritis

Hi ive had r/a for 15 years and predisilone sorts it fast but ive only had a couple of shots and courses over 10 years ago as i managed it with ibuprofen....

Hi ive had r/a for 15 years and predisilone sorts it fast but ive only had a cou...

Augustus-6

•8 years ago

7 Replies

New Medication

Hi all, I've been taken off cleaxane and aspirin and put on to a drug called Dabigatran etxilate 150mg twice daily. I was just wondering if anyone has used...

Hi all, I've been taken off cleaxane and aspirin and put on to a drug called Dab...

Katrinam

•8 years ago

1 Reply

Haven't been diagnosed, but wondering if anyone has this symptom

I haven't been diagnosed, but I google every "new symptom + lupus" and I have a lot of symptoms. This is the second time this has happened to me in my fingers...

I haven't been diagnosed, but I google every "new symptom + lupus" and I have a ...

MariGG

•8 years ago

11 Replies

First Day Completed

On the way home now . First day wasn't to bad . They didn't ask for my bank details or my DBS . I asked the teachers classroom who I'm in and she said they...

On the way home now . First day wasn't to bad . They didn't ask for my bank deta...

LouLamb

•8 years ago

2 Replies

can't breath can't go out side

It's been awhile,have been poorly for a year now,am now on Azathioprine and it is helping,but January this year my breathing became a real concern doc said it...

It's been awhile,have been poorly for a year now,am now on Azathioprine and it i...

Maggiej28

•8 years ago

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Well I'm struggling this morning

sore mouth and knees that want to give way on me and foot well it feels broken my big toe on the bad knee just ache all over and got to lye on bed today no...

sore mouth and knees that want to give way on me and foot well it feels broken m...

minka

•8 years ago

Be the first to reply

The cell v myfenax saga

Have now received my cellcept, so changing over today. I will have had one weeks worth when I see my rheumatologist. I will let those who have an interest...

Have now received my cellcept, so changing over today. I will have had one week...

creaky

•8 years ago

3 Replies

Self-management update

Hello all Just thought I'd update that the self-management course in Barnstaple Devon is now Full with no plans for anymore. Decision decided for me!. Thank...

Hello all Just thought I'd update that the self-management course in Barnstaple ...

misty14

•8 years ago

3 Replies

sensitive skin

I haven't been diagnosed with Lupus, although I have several of the symptoms. But when they test me for it it never shows positive. My old Rheumatologist‎ use...

I haven't been diagnosed with Lupus, although I have several of the symptoms. Bu...

SassyZee

•8 years ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2016

Not getting no where with consultant

Medication stopped

Working

5 days till wedding today is not a very good day for me

Knees giving way

Living with Systemic Lupus

LUPUS Specialist Nurse

Aciclovir mood swings

Scunnered with others lack of understanding?

I'm meant to be moving out.

One Bad Night

Hi guys help me out with this one please.

I just knew I was right but maybe not!

I just know!

sore heels

Early side effects of hydroxychloroquine

Sore mouth

A blinding headache that ends up with nosebleeds.

8 Days countdown towards wedding date which is September 10th

Maybe I have lupus?

Anyone else got turned down for esa

Rhumatoid arthritis

New Medication

Haven't been diagnosed, but wondering if anyone has this symptom

First Day Completed

can't breath can't go out side

Well I'm struggling this morning

The cell v myfenax saga

Self-management update

sensitive skin

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