Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,875 members • 28,215 posts

All posts for September 2016

She say I'm lazzy

I whent to the supermarket today and the wife said your such a lazzy sod with this lupus Well I was so shocked i nearly fell out of the trolley Just to buck us...

I whent to the supermarket today and the wife said your such a lazzy sod with th...

minka

•8 years ago

2 Replies

Saga update PIP application

Guess what folks? First PIP payment due yesterday. Didnt arrive. Phoned up. Asked ten, yes 10 times for account number. Get this. Girl was going to...

Guess what folks? First PIP payment due yesterday. Didnt arrive. Phoned up. Aske...

Footygirl

•8 years ago

9 Replies

Anyone else see "TRUST ME I'M A DOCTOR" last night?

Great gadget just developed apparently. Electronic device once size of about inch and a half (sorry, dont do new money) diameter implant like pacemaker been...

Great gadget just developed apparently. Electronic device once size of about in...

Footygirl

•8 years ago

6 Replies

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Angina Haemorrhagica Bullosa?

I have never been tested for Lupus or Sjogrens. Only Pemphigus (Negative). I get massive blood blisters in mouth and throat, obstructing airway. I can no...

I have never been tested for Lupus or Sjogrens. Only Pemphigus (Negative). I g...

beyondthepale

•8 years ago

5 Replies

Hydroxychloroquine update and ana blood result question.

Hi everyone, I wonder if anyone can answer a question I have about my blood test result, i.e has anyone had the same result and what was your diagnosis for the...

Hi everyone, I wonder if anyone can answer a question I have about my blood test...

Daisy1991

•8 years ago

20 Replies

Hip replacement looming.

Hi, I am hoping you might give me some extra encouragement. I am due to have a total hip replacement on Monday. I have been putting it off, as my Mum is...

Hi, I am hoping you might give me some extra encouragement. I am due to have a t...

frog

•8 years ago

7 Replies

Not the best day today

Really enjoyed the morning. then the teacher in my class tells me there a meeting afterwards till half 4 . So i checked with the head to see i needed to attend...

Really enjoyed the morning. then the teacher in my class tells me there a meetin...

LouLamb

•8 years ago

1 Reply

NPSLE experiences?

Hi everyone! Hope you're all having a good day ❤️ Does anyone here have any insight into the kinds of neuropsych symptoms rheumatologists would find relevant?...

Hi everyone! Hope you're all having a good day ❤️ Does anyone here have any ins...

Monkey14

•8 years ago

5 Replies

Tribunal part 2

So now I have a submission put together from my support organisation SERC. In Salford and I found out through them that my consultant has changed, yet another...

So now I have a submission put together from my support organisation SERC. In Sa...

sabine

•8 years ago

3 Replies

Find relief in avoiding certain foods

Five years ago I was suddenly hit with a horrible illness. But it wasn't till three years ago that I was diagnosed with Lupus. I have not yet given into any...

Five years ago I was suddenly hit with a horrible illness. But it wasn't till th...

PrissyU

•8 years ago

9 Replies

Natural remedies

I have totally climbed out of my box and been to see a naturopath yesterday. My lovely new general physician doctor has hit a brick wall with investigations....

I have totally climbed out of my box and been to see a naturopath yesterday. My ...

1985mum

•8 years ago

18 Replies

The countdown till the wedding continues we have 3 more days

Ok to start off 3 days ago I was having horrible pain in my left side it was from a kidney stone I finally went into my doctor's office today I was afraid I...

Ok to start off 3 days ago I was having horrible pain in my left side it was fro...

Julietsmombless2015

•8 years ago

3 Replies

Struggling with work

How do you all decide when you need to either take a break from work or give it up completely? I am really struggling at the moment - constantly exhausted and...

How do you all decide when you need to either take a break from work or give it ...

LuckyJC

•8 years ago

9 Replies

The change

Can't believe the change i am seeing in myself from only Monday. The job i am doing i really enjoy. I have only been having a few stupid thoughts over 3 days...

Can't believe the change i am seeing in myself from only Monday. The job i am do...

LouLamb

•8 years ago

6 Replies

Alternative treatment

could anyone recommend any way to treat lupus/connective tissue disease with non drug. I am sick of being pushed pain killers, steroids and methotrexate that...

could anyone recommend any way to treat lupus/connective tissue disease with non...

witch2

•8 years ago

2 Replies

Can anyone relate?

So I started exhibiting symptoms pretty early on in life first it was open lesions all over my scalp at the age of 6 which the doctor couldn't give my mum any...

So I started exhibiting symptoms pretty early on in life first it was open lesio...

Linorandthewolf

•8 years ago

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Ana

Can u have more than one pattern with a positive ana

Deenicole

•8 years ago

12 Replies

important new research conclusions: long term remission & SLE

Sobering, but not surprising....am glad to see the issue of "remission" VS "pharmaceutically induced remission" being clarified. The MEDPAGE link is below As...

Sobering, but not surprising....am glad to see the issue of "remission" VS "phar...

Barnclown

•8 years ago

8 Replies

Overlap?

Hi, I have RA, osteo, fibromyalgia and Hughes but when the consultant writes on blood test slips, he also writes MCTD. But a junior dr then said I had overlap...

Hi, I have RA, osteo, fibromyalgia and Hughes but when the consultant writes on...

rosiemay

•8 years ago

4 Replies

Lupus and the dwp

Hi , I have had lupus SLE for 14 years I am now 56 .I have arthritis, rash and lupus nephritis level 3 .since my diagnosis I have had an acoustic neuroma and...

Hi , I have had lupus SLE for 14 years I am now 56 .I have arthritis, rash and l...

Buffy14

•8 years ago

14 Replies

Don't let these things beat you up!- laughter is the best medicine - swop jokes on e-mail - rest & enjoy things that make you LOL . .

I've had 2 brain tumours, three heart attacks, Epilepsy and now Lupus, but keeping a strong sense of humour, a wonderful, and keeping sympathetic friends gets...

I've had 2 brain tumours, three heart attacks, Epilepsy and now Lupus, but keepi...

SLEEPINGDOG

•8 years ago

6 Replies

We got out wedding license today

We have that behind us and nothing but to look forward. I'm putting lowlights in my hair fir the wedding, some natural hair with a flare.

We have that behind us and nothing but to look forward. I'm putting lowlights in...

Julietsmombless2015

•8 years ago

1 Reply

Good rheumatologist in Florida

I know it's a long shot, with this being a primarily UK site, but still thought I'd throw it out there. I will drive to anywhere in Florida. I just want...

I know it's a long shot, with this being a primarily UK site, but still thought ...

Monkey14

•8 years ago

12 Replies

Questionnaire on Lupus UK on FaceBook, for those with Lupus re use of sun screen.

LUPUS EUROPE are seeking participants for a survey evaluating the application and use of sunscreens in patients with #lupus and skin lesions. The survey...

LUPUS EUROPE are seeking participants for a survey evaluating the application an...

Wendy39

•8 years ago

3 Replies

Having a bad day

Hi folks , Wasn't having too bad a day untill I had to phone doctors as there was a problem with my managed repeat prescription when I went to pick it up from...

Hi folks , Wasn't having too bad a day untill I had to phone doctors as there wa...

Mandagee

•8 years ago

2 Replies

Ritoximab horrible Side effects?

Hello , i was diagnosed SLE and Sjogren , my dr gave me Ritoximab 500 mg , 3 dosages then i had anaphylactic reaction and she was unable to give me the 4 th...

Hello , i was diagnosed SLE and Sjogren , my dr gave me Ritoximab 500 mg , 3 do...

Samaka

•8 years ago

2 Replies

More work progress

Today was great like yesterday . Done 10 mintutes of bench sitting with a boy . Was harder to get up today . Gonna apply more jel to my knees when I get in ....

Today was great like yesterday . Done 10 mintutes of bench sitting with a boy . ...

LouLamb

•8 years ago

2 Replies

Lung capacity with SLS

I am new here. I have had Lupus over 40 years (I am 60). I also have Sjogren's, Reynaud's, Hashimoto's, and Shrinking Lung Syndrome and a few other lesser...

I am new here. I have had Lupus over 40 years (I am 60). I also have Sjogren's, ...

Hidden

•8 years ago

2 Replies

New Diagnoses to Lupus

I seem to not be able to take the usual medications. Side effects greater than the help.

I seem to not be able to take the usual medications. Side effects greater than t...

Hidden

•8 years ago

1 Reply

Preparing for winter - tips and tricks?

Well, summer, such as it was, is heading out in the UK and I am on the whole sorry to see it go. My garden got in a bit of a state as this year the Simponi...

Well, summer, such as it was, is heading out in the UK and I am on the whole sor...

Silvergilt

•8 years ago

Be the first to reply

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2016

She say I'm lazzy

Saga update PIP application

Anyone else see "TRUST ME I'M A DOCTOR" last night?

Angina Haemorrhagica Bullosa?

Hydroxychloroquine update and ana blood result question.

Hip replacement looming.

Not the best day today

NPSLE experiences?

Tribunal part 2

Find relief in avoiding certain foods

Natural remedies

The countdown till the wedding continues we have 3 more days

Struggling with work

The change

Alternative treatment

Can anyone relate?

Ana

important new research conclusions: long term remission & SLE

Overlap?

Lupus and the dwp

Don't let these things beat you up!- laughter is the best medicine - swop jokes on e-mail - rest & enjoy things that make you LOL . .

We got out wedding license today

Good rheumatologist in Florida

Questionnaire on Lupus UK on FaceBook, for those with Lupus re use of sun screen.

Having a bad day

Ritoximab horrible Side effects?

More work progress

Lung capacity with SLS

New Diagnoses to Lupus

Preparing for winter - tips and tricks?

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