Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for September 2016

My Mum and lupus

Hello All! My mum was diagnosed with lupus at 18 following a blood clot and stroke. She suffers daily with it but last week she had a flare up and was...

Hello All! My mum was diagnosed with lupus at 18 following a blood clot and str...

EllieJones21

•8 years ago

7 Replies

Tips for starting mycophenolate?

Hello, I can see a few past posts about this, and it looks as if the main issue can be gastro-side effects. I'm on hydroxycholoquine and 15mg prednisilone atm,...

Hello, I can see a few past posts about this, and it looks as if the main issue ...

whisperit

•8 years ago

29 Replies

Where to begin

hi, what to do or where to go, am sure I have lupus as have researched the condition and have many of the symptoms, the reason I looked into it was afew months...

hi, what to do or where to go, am sure I have lupus as have researched the condi...

lorna118

•8 years ago

5 Replies

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Doctors and doctors

A few months ago, Scope, the magazine for the Institute of Physics and Engineering in Medicine, had a historical article about the man who founded the society...

A few months ago, Scope, the magazine for the Institute of Physics and Engineeri...

PMRpro

•8 years ago

2 Replies

Stuttering

I will be seeing the Rhematologist in October for the first time since my positive ANA result. I have began to stutter a little and sometimes have a hard time...

I will be seeing the Rhematologist in October for the first time since my positi...

faithnhm333

•8 years ago

18 Replies

What do I need to look for?

Hi all, there's this girl I really like, I know bit of an odd start, basically she has SLE and I wanted to know if there are any signs I need to look out for?...

Hi all, there's this girl I really like, I know bit of an odd start, basically s...

Preywinder

•8 years ago

4 Replies

Trig neuralgia

Hi recently diagnosed with sero negative sle , I have an enlarged thymus and a hole heap of symptoms that over the years Gp's have just passed off as me being...

Hi recently diagnosed with sero negative sle , I have an enlarged thymus and a h...

Hidden

•8 years ago

6 Replies

Help!! Am I losing my mind?

Hi all, I've been a lurked for some time and have found a lot of posts helpful. For over 3 years now I've been having lots of random symptoms, aches, pains,...

Hi all, I've been a lurked for some time and have found a lot of posts helpful. ...

Hayleybabes1982

•8 years ago

22 Replies

Ughhhh

Nasty dry cough, have to go to the bathroom after I eat (can't handle any food), no appetite, feels timgly on my tongue lips and mouth...is this lupus,...

Nasty dry cough, have to go to the bathroom after I eat (can't handle any food),...

Ratana21

•8 years ago

2 Replies

Omega3

Hi all I don't know if it's the 5mg weekly dose of methotrexate or the omega 3 liquid ive bern taking but touch wood fingers crossed I've been taking both for...

Hi all I don't know if it's the 5mg weekly dose of methotrexate or the omega 3 ...

Tre123

•8 years ago

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Anyone had small nerve test?

Tomorrow going through yet another test. Hope this comes up with somethings. The really weird,can't describe as rash, look like circles. Started on face now...

Tomorrow going through yet another test. Hope this comes up with somethings. The...

LottieD

•8 years ago

5 Replies

Recent rituximab infusion

I had my latest Rituximab infusion 2 weeks ago. I feel very weak, dizzy and somewhat nauseous. Also my back hurts . I don't remember it being as bad as this...

I had my latest Rituximab infusion 2 weeks ago. I feel very weak, dizzy and some...

Neriah

•8 years ago

1 Reply

Lupus at Leeds - 25th October 2016

For those in the Yorkshire area, I've just seen that Leeds Musculoskeletal Biomedical Research Unit is holding a Lupus Awareness Month event on the 25th of...

For those in the Yorkshire area, I've just seen that Leeds Musculoskeletal Biome...

RichardE

•8 years ago

1 Reply

Full of despair

I start my hydroxychloroquine in middle of October once eye consultant has checked my eyes. Steroid injection wore off last week ( it was my first one when...

I start my hydroxychloroquine in middle of October once eye consultant has check...

Hidden

•8 years ago

5 Replies

Finally! Lupus Clinic here I come :)

After months and months of chasing drs to help me with my discoid and multiple appointments each week within the months and months to help nail down what my...

After months and months of chasing drs to help me with my discoid and multiple a...

Lara4228

•8 years ago

5 Replies

Ring splints trial

I used to love wearing rings - I have metal allergies, but I prided myself on my 'alternative' looks of hair dye, piercings, and sterling silver rings....

I used to love wearing rings - I have metal allergies, but I prided myself on my...

Silvergilt

•8 years ago

11 Replies

Would like some help!!!

I have recently been diagnosed with Fibromyalgia about a month after this I developed a red itchy rash on the tops of my legs, side and then it went to the...

I have recently been diagnosed with Fibromyalgia about a month after this I deve...

Macberts

•8 years ago

3 Replies

Steroids

Does a week of 20 mg of cortisone beginning with P ( I forgot the name ) makes you gain weight ? Thank you

Does a week of 20 mg of cortisone beginning with P ( I forgot the name ) makes y...

Hidden

•8 years ago

5 Replies

East Anglia Lupus Information Day 2016

The East Anglia Lupus Information Day will take place on Saturday 22nd October 2016 at The Wellcome Trust Conference Centre, Hinxton, Cambridge CB10 1RQ....

The East Anglia Lupus Information Day will take place on Saturday 22nd October 2...

Paul_Howard

Partner•8 years ago

5 Replies

Update On Salagen Pilocarpine Saga

Hi Everyone, Just thought I would update the situation regarding being unable to source the much needed Salagen. First a big thank you to Barnclown for...

Hi Everyone, Just thought I would update the situation regarding being unable to...

Mrsdoozer

•8 years ago

6 Replies

Rash

Hi I just wondered if this rash looks anything like a lupus rash. Been to see my GP who thought it looked fungal. Its quite dry. Suffer from Graves disease and...

Hi I just wondered if this rash looks anything like a lupus rash. Been to see my...

Welshgirly

•8 years ago

2 Replies

High cholesterol

I don't eat like a crazy person but my cholesterol... 244 a heart atack waiting at the door😳 Is that another one of lupus games????

I don't eat like a crazy person but my cholesterol... 244 a heart atack waiting ...

Mealfredo78

•8 years ago

7 Replies

Ovestin

Hi, I'm a newbie to the site. I was wondering if anyone has any experience of sle and using Ovestin cream. Any advice greatly appreciated. Thank you.

Hi, I'm a newbie to the site. I was wondering if anyone has any experience of sl...

Hunibee

•8 years ago

5 Replies

In pain

I've been in pain with my knees for over 4 weeks now. I rang my rheumy nurse and she said I'm having a flare due to my kidney infection. I cry with pain, so...

I've been in pain with my knees for over 4 weeks now. I rang my rheumy nurse and...

Lancslass1962

•8 years ago

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Update on my Dermatology Appointment, with my Knight, 13th September

Well, I finished my steroids (2nd 5 week course - got me through the summer and my holiday in Italy - made a world of difference to me this summer!) last...

Well, I finished my steroids (2nd 5 week course - got me through the summer and ...

Wendy39

•8 years ago

19 Replies

Redeemed skin all over

Hi I am new here. I have been referred to a rheumatologist based on a positive ANA and signs n symptoms, and just the other day Lichen Sclerosus confirmed by...

Hi I am new here. I have been referred to a rheumatologist based on a positive A...

Jar1973

•8 years ago

5 Replies

NEW TO THE SITE

Hi, I,M Dave and new to the site. I was diagnosed with CRPS about 2 years ago, originally it effected just my left arm and leg, but now it has "migrated" to my...

Hi, I,M Dave and new to the site. I was diagnosed with CRPS about 2 years ago, o...

doddy1952

•8 years ago

5 Replies

Hospital stay

Took I'll last Sunday afternoon with high temp my wife insisted I went to walk in center they sent me straight to m,a,u at Derby Royal 5 days later I get let...

Took I'll last Sunday afternoon with high temp my wife insisted I went to walk i...

Ianrussell69

•8 years ago

3 Replies

PCOS SLE

I am getting to the end of my tether with the entire medical profession I'm sorry to say. I am 69 and todate I'm so complicated not one doctor has actually...

I am getting to the end of my tether with the entire medical profession I'm sorr...

New47

•8 years ago

17 Replies

pain and lethargy

Hi, Please tell me it's not just me! I have lupus ( and aps) which gives me a lot of joint pain and fatigue. I have days where I feel ok and can do a short...

Hi, Please tell me it's not just me! I have lupus ( and aps) which gives me a l...

Sara_A

•8 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for September 2016

My Mum and lupus

Tips for starting mycophenolate?

Where to begin

Doctors and doctors

Stuttering

What do I need to look for?

Trig neuralgia

Help!! Am I losing my mind?

Ughhhh

Omega3

Anyone had small nerve test?

Recent rituximab infusion

Lupus at Leeds - 25th October 2016

Full of despair

Finally! Lupus Clinic here I come :)

Ring splints trial

Would like some help!!!

Steroids

East Anglia Lupus Information Day 2016

Update On Salagen Pilocarpine Saga

Rash

High cholesterol

Ovestin

In pain

Update on my Dermatology Appointment, with my Knight, 13th September

Redeemed skin all over

NEW TO THE SITE

Hospital stay

PCOS SLE

pain and lethargy

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