Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for August 2016

Stage 3 CKD for 2 years and my Rheumatologist did not tell me!

Hi everyone, I went for a medical review just recently and happened to see a Dr I have not seen before. I thought it would be a quick in and out, but he really...

Hi everyone, I went for a medical review just recently and happened to see a Dr ...

Jo883

•8 years ago

18 Replies

New Here

HI, I have suffered from Lupus, Fibromyalgia, Raynaud's Syndrome, RA and several other conditions for over 10 yrs. It took about 7 yrs to get a dx on...

HI, I have suffered from Lupus, Fibromyalgia, Raynaud's Syndrome, RA and several...

sr1986

•8 years ago

4 Replies

Why are my feet numb?

Over the last week or so my toes on both feet and my right foot have become increasingly numb, what could this be? I saw rheumatologist today and she said let...

Over the last week or so my toes on both feet and my right foot have become incr...

LuckyJC

•8 years ago

9 Replies

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Mindfulness and Fatigue

I find mindfulness helpful in managing life in general, and with LUPUS symptoms especially fatigue. It doesn't get rid of anything but mindfulness practice...

I find mindfulness helpful in managing life in general, and with LUPUS symptoms ...

Tripitaka

•8 years ago

6 Replies

Purple fingers

My fingers keep going like this and become painful anyone else have this?

Hidden

•8 years ago

8 Replies

Do not know what do to about a new drug I can't get funding for?

I got offered a drug called biliexa I can't spell it right haha! My specialist said I would get it but now 6 months in they still can't get me it!! Iv been...

I got offered a drug called biliexa I can't spell it right haha! My specialist s...

LillyAlfie

•8 years ago

8 Replies

Got my lab results back

from my first rheumatologist appt. I got it via email and am trying to research everything bc I have no idea what this means. My next appt won't be till Sept...

from my first rheumatologist appt. I got it via email and am trying to research ...

Ratana21

•8 years ago

3 Replies

Concerns about daughter

Hi folks, I have been diagnosed with SLE for 4 years now and have severe organ involvement, heart/lungs. Looking back I think I have had this all of my life....

Hi folks, I have been diagnosed with SLE for 4 years now and have severe organ i...

mcjm

•8 years ago

4 Replies

yeast and Sjogren's

Does anyone suffer from chronic vaginal yeast infections? I've had one for two months since returning from a vacation of swimming. I first used over the...

Does anyone suffer from chronic vaginal yeast infections? I've had one for two m...

wsjkcj1

•8 years ago

12 Replies

First flare since starting hydroxychloroquine

Hi all, hoping everyone is doing ok? I think I'm experiencing my first flare since I started hydroxychloroquine just after Christmas (about 8 months). I had a...

Hi all, hoping everyone is doing ok? I think I'm experiencing my first flare sin...

Nurseladybird

•8 years ago

5 Replies

Night time dry mouth solved!

I have discoid lupus and Sjogrens - haven't slept well for over a year. My mouth is so dry and painful even with sprays. Sjogrens magazine popped thou the...

I have discoid lupus and Sjogrens - haven't slept well for over a year. My mout...

Cas70

•8 years ago

10 Replies

Methotrexate injection

Hi I was wondering if anybody on here that injects methotrexate had a reaction to it .I am covered in sores where I inject Dr's say it not the drug it's my...

Hi I was wondering if anybody on here that injects methotrexate had a reaction t...

charmaineholmes

•8 years ago

49 Replies

Pillows

Can't believe how excited I am to be getting some new pillows tomorrow .Going to Argos getting a memory foam pillow and a memory foam v neck pillow . Also...

Can't believe how excited I am to be getting some new pillows tomorrow .Going to...

LouLamb

•8 years ago

4 Replies

Countdown the wedding is only in 19 more days

So I was hoping that I would go into remission before the wedding but I didn't think that it was going to happen I'm still going to take the pictures with my...

So I was hoping that I would go into remission before the wedding but I didn't t...

Julietsmombless2015

•8 years ago

5 Replies

ANA test

Hello everyone, has anyone had a ANA test with score of positive 1.8. Does it mean I have lupus.

Hello everyone, has anyone had a ANA test with score of positive 1.8. Does it m...

faithnhm333

•8 years ago

8 Replies

Calf & knee pain - sound familar to anyone?

For the past couple of months I've been getting a pain in my knee that comes and goes. It's been quite painful and making me limp/favour my left leg. The...

For the past couple of months I've been getting a pain in my knee that comes and...

Nat1969

•8 years ago

8 Replies

High Ferritin

I am 25 years old. Ten years ago, i found that my ferritin is high, around 500-600. For 8 years it was on this levels. I didn't searched for the reason until...

I am 25 years old. Ten years ago, i found that my ferritin is high, around 500-6...

spiros

•8 years ago

6 Replies

Dead leg

Hi Just like to ask has anyone experienced having dead leg at all ,as this keeps happening to me, my anckles feel weird all the time ,trying to keep cheerful...

Hi Just like to ask has anyone experienced having dead leg at all ,as this keep...

whatsit

•8 years ago

11 Replies

Hair loss with lupus

I know that hair loss is a symptom of lupus. Has anyone here with a lupus diagnosis experienced hair loss on legs only, but still full hair on the head?

I know that hair loss is a symptom of lupus. Has anyone here with a lupus diagno...

shareasmile

•8 years ago

23 Replies

Crazy racing heart

Does anyone suffer from palpitation? I'm just sitting here in an armchair whilst working on my laptop. My heart keeps racing so hard it feels like I've been...

Does anyone suffer from palpitation? I'm just sitting here in an armchair whils...

growingnuttier

•8 years ago

5 Replies

PLE

Hi all my daughter was diagnosed with lupus this week( we think )however because she was previouly diagnosed with PLE the rheumatologist does not want to over...

Hi all my daughter was diagnosed with lupus this week( we think )however because...

Sandie1964

•8 years ago

4 Replies

Yay

Pip back dated money went in today 😀😀😀😀😀

LouLamb

•8 years ago

6 Replies

Hair loss ? :-(

Hey everyone. I've posted a couple of times this past month about how I've been suffering with mad itching. It's calmed down on my body but is getting worse...

Hey everyone. I've posted a couple of times this past month about how I've been...

stacieann1989

•8 years ago

15 Replies

Varicose vein surgery - any experiences or thoughts please?

I was recently diagnosed with lupus with interstitial lung disease. I'm now on 20mg prednisilone and 400mg hydroxychloroquine daily. I have had mild varicose...

I was recently diagnosed with lupus with interstitial lung disease. I'm now on 2...

whisperit

•8 years ago

7 Replies

Can't seem to quite get my Lupus under control.

It took me 7.5 yrs to get my lupus diagnosed, which finally happened last October. However it started to get a lot worse last August, that was when the chest...

It took me 7.5 yrs to get my lupus diagnosed, which finally happened last Octobe...

Nikki246

•8 years ago

12 Replies

Not diagnosed yet

Well today I saw a rheumatologist and explained the long list of symptoms to him and he got the Ana test results which were taken I believe in the beginning of...

Well today I saw a rheumatologist and explained the long list of symptoms to him...

Painfulboy03

•8 years ago

15 Replies

Kidney pain??

I have had back pain for the past week around mid back. Also feeling nauseous, sweats and generally unwell again!!! I saw doc on Wednesday who said kidney...

I have had back pain for the past week around mid back. Also feeling nauseous, s...

Karen1983

•8 years ago

1 Reply

6 day till results

I can't believe how fast time is going. Thursday I will get my GCSEs results . I'm going to Clacton for the day on Wednesday with my brother and friend

I can't believe how fast time is going. Thursday I will get my GCSEs results . I...

LouLamb

•8 years ago

3 Replies

Pip letter

Got a letter today stating my award for pip I am awarded £82.30 a weeks from 11th November 2015 to 10th may 2016 ( them 2 dates included ) I worked it out...

Got a letter today stating my award for pip I am awarded £82.30 a weeks from 11...

LouLamb

•8 years ago

8 Replies

Side affects of Quinoric

Hi everyone I have just got my liver function test back and it's extremely high being referred to gastro, also developed Rosacia and my skin is really bad with...

Hi everyone I have just got my liver function test back and it's extremely high ...

Loraine14

•8 years ago

6 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2016

Stage 3 CKD for 2 years and my Rheumatologist did not tell me!

New Here

Why are my feet numb?

Mindfulness and Fatigue

Purple fingers

Do not know what do to about a new drug I can't get funding for?

Got my lab results back

Concerns about daughter

yeast and Sjogren's

First flare since starting hydroxychloroquine

Night time dry mouth solved!

Methotrexate injection

Pillows

Countdown the wedding is only in 19 more days

ANA test

Calf & knee pain - sound familar to anyone?

High Ferritin

Dead leg

Hair loss with lupus

Crazy racing heart

PLE

Yay

Hair loss ? :-(

Varicose vein surgery - any experiences or thoughts please?

Can't seem to quite get my Lupus under control.

Not diagnosed yet

Kidney pain??

6 day till results

Pip letter

Side affects of Quinoric

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