Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,734 members • 28,093 posts

All posts for August 2016

Cyclosporine ,Pain and fatigue

I feel so down hearted today , I was diagnosed with SLE ,Sjogrens hypo thyroid and early stage myeloma cancer last August and I feel I have been doing quite...

I feel so down hearted today , I was diagnosed with SLE ,Sjogrens hypo thyroid a...

JL1w

•8 years ago

18 Replies

No diagnosis just sadness and frustration. new to this site

Hi I'm just wondering if anyone has any advice on what I should do next. I have had pain in wrists and ankles on and off for 8 years. Saw rheumatologist who...

Hi I'm just wondering if anyone has any advice on what I should do next. I have ...

Bleachbabe

•8 years ago

7 Replies

Udate. Saga. Very short! Gastro apt

Hi gang Well this consultant has had a personality transplant, but my hubby came in too??? Coincidence? Right. Repeat of MRI nurse. Blown away AIH. Liver hunky...

Hi gang Well this consultant has had a personality transplant, but my hubby came...

Footygirl

•8 years ago

6 Replies

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Immuran (Azathioprine )50 mg twice or Myfortic 360 mg twice daily (mycophenolate sodium )

Immuran (Azathioprine )50 mg twice OR Myfortic 360 mg twice daily (mycophenolate sodium ) is better for MCTD or lupus and Sjogren?? any experience? i have...

Immuran (Azathioprine )50 mg twice OR Myfortic 360 mg twice daily (mycophenola...

Samaka

•8 years ago

4 Replies

Thanks to all

Thank you all for all your help and encouragement. It means soooo much to me. I am going through a lot right now and it is just what I needed. These diseases...

Thank you all for all your help and encouragement. It means soooo much to me. I ...

Tink45

•8 years ago

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Azathioprine, prednisolone and puffy face 😭

Hi, I've been on prednisolone for just over a month now and started azathioprine a week ago but I've noticed since starting azathioprine my face has become...

Hi, I've been on prednisolone for just over a month now and started azathioprin...

imzi

•8 years ago

5 Replies

Thinning hair because of mctd

Hello, about a year ago i was diagnosed with mctd and i have lost about half of the amount of hair on my head...it sure makes me feel ugly and also frustrated...

Hello, about a year ago i was diagnosed with mctd and i have lost about half of ...

stonehard

•8 years ago

10 Replies

Hoping for reassurance!

Really hoping for some reassurance please! I posted earlier in the week about increasing numbness/altered sensation spreading from my toes up my legs and...

Really hoping for some reassurance please! I posted earlier in the week about ...

LuckyJC

•8 years ago

9 Replies

Hair loss and thinning help

Hi my hair is falling out fast I was wondering does ne one wiv lupus sle have the same problem and what would u recommend to control it or help it grow back...

Hi my hair is falling out fast I was wondering does ne one wiv lupus sle have th...

Jakki27

•8 years ago

11 Replies

2x200 hydroxy + occasional 35 mg predni for 4 months has NOT worked. Should I move to methotexrate or myclophen or azathioprine- which one?

I have been diagnosed (based on skin biopsy) with Cutaneous (Skin) Lupus since April 2016. For past 4 monthsI have been on 2x200 hydroxychloroquine. I have...

I have been diagnosed (based on skin biopsy) with Cutaneous (Skin) Lupus since A...

MelbourneLupie

•8 years ago

7 Replies

Results

English language - d Maths -c Rs - c Science - d Additional science - c English literature - c Health and social - d History - f Ecdl - dist* 1 mark off c...

English language - d Maths -c Rs - c Science - d Additional science - c English...

LouLamb

•8 years ago

20 Replies

Eyesight and working with computers again

Hello community I hope you are well :) Before Lupus I worked 15 years in offices using computers for upto 9 hours a day. After having my son and becoming ill I...

Hello community I hope you are well :) Before Lupus I worked 15 years in offices...

Sami1982

•8 years ago

2 Replies

So fed up 😢😢

I have had lupus for several years , but diagnosed 2 years ago , I'm on 13 tablets a day due to having 2 heart attacks when I was 36 , have also had 3 back...

I have had lupus for several years , but diagnosed 2 years ago , I'm on 13 table...

Harrisgran1

•8 years ago

3 Replies

I am new to the site

Hello everyone. I am fairly new to the site. I live in the US. I have been dxs (diagnoised) by several doctors with either MCTD, myelody splastic syndrome...

Hello everyone. I am fairly new to the site. I live in the US. I have been dxs...

Tink45

•8 years ago

17 Replies

Update of sores from methotrexate

Hi well saw dr today she said stop the injections for a couple of weeks so sores can heal hopefully. But wants to order from a different manufacturers she said...

Hi well saw dr today she said stop the injections for a couple of weeks so sores...

charmaineholmes

•8 years ago

1 Reply

Anti DS-DNA Binding Level 2

Hi everyone, I'm really confused! I'm being screened for SLE by my GP. My bloods have come back weakly positive ANA, ENA positive( apparently this was done...

Hi everyone, I'm really confused! I'm being screened for SLE by my GP. My bloo...

BettieJ

•8 years ago

4 Replies

Clacton

Just on way home from Clacton . Had a nice day apart from the aches and pains . My back was killing me and my feet . Have now got restless legs in the car.

Just on way home from Clacton . Had a nice day apart from the aches and pains . ...

LouLamb

•8 years ago

2 Replies

Would like Kidney advice please?

Hi everyone, I'd like some advice please in preparation for my next Gp visit. I have APS, MS, Pernicious Anaemia and a few other related things. I also have...

Hi everyone, I'd like some advice please in preparation for my next Gp visit. I ...

anniesensi

•8 years ago

12 Replies

Saga. Update. Visit to Man Royal Infirmary to see Lupus nurse after Rheumy discharged me.

Can hardly write for tears. PMRpro, if you are reading this, there is care here in the UK. I have found it at the MRI. Went for my appointment, which...

Can hardly write for tears. PMRpro, if you are reading this, there is care here ...

Footygirl

•8 years ago

28 Replies

BURNING feet, hands & face today...here's a great erythromelalgia (EM) article

My erythromelalgia (EM) is simultaneous with raynauds (RP) 24/7 all year round...predictably, the EM burning is even worse than usual in this heat 😏...so am...

My erythromelalgia (EM) is simultaneous with raynauds (RP) 24/7 all year round.....

Barnclown

•8 years ago

19 Replies

Hi just poking around

Not having a good day today in loads of pain!! Hope everyone else doing well?

Susandraper64

•8 years ago

2 Replies

Nose sores?

I have yet to get a rheum to diagnose me but all the writing AND symptoms are on the wall and "lupus"is thrown around by all my other doctors. I have 9 joints...

I have yet to get a rheum to diagnose me but all the writing AND symptoms are on...

jillmd

•8 years ago

8 Replies

Dermatology Appointment Update

Hello everyone I had my long-awaited Dermatology Appointment yesterday which had to be the shortest consultation I've ever had!. It was good news that I don't...

Hello everyone I had my long-awaited Dermatology Appointment yesterday which had...

misty14

•8 years ago

9 Replies

Doctors visit Today👣👣👣👣👣👣👣👣👣👣👣👣👣👣👣👣

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi y'all! I went to my rheumatologist to day and, they were not happy with my Blood Pressure. My BP was 210/114 They gave me...

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi y'all! I went to my rheumatologist to day ...

Tiras

•8 years ago

22 Replies

Pelvic Pain & Lupus

Hi, Trying to determine the cause of long standing pelvic pain currently, and waiting for a second opinion after a laparoscopy didn't show anything. In the...

Hi, Trying to determine the cause of long standing pelvic pain currently, and w...

heatherevans28

•8 years ago

15 Replies

Pleurisy

Has anyone here had a case of pleurisy years ago, but never again in the course of your disease? Please share your experience with pleurisy. Thanks! Have a...

Has anyone here had a case of pleurisy years ago, but never again in the course ...

shareasmile

•8 years ago

18 Replies

Managing infections, antibiotics and immune suppressants

Hello again, I am new to lupus (currently on 20mg prednisilone and 400mg hydroxy), so I hope people don't mind me asking some elementary questions. I've just...

Hello again, I am new to lupus (currently on 20mg prednisilone and 400mg hydrox...

whisperit

•8 years ago

7 Replies

How often do lupus patients see their hospital doctors?

Hello I am new to this site, I have ongoing issues at present with the hospital who are supposed to be treating my Lupus, very long story. Could I just ask my...

Hello I am new to this site, I have ongoing issues at present with the hospital ...

Lupus1963

•8 years ago

12 Replies

PS To my saga re having a referral to Man Royal Infirmary to Lupus specialist?

So I told you I had my yearly apt with Rheumy who had never been that interested over the 13yrs in my Lupus. Her nose was out of joint so told me to choose...

So I told you I had my yearly apt with Rheumy who had never been that interested...

Footygirl

•8 years ago

6 Replies

Are Experts never Wrong!!!?

Do so called expert's ever get it wrong i tripped quite badly hurting my back in april 2014 the doctor sent me to see a consultant who sent me for a mri and...

Do so called expert's ever get it wrong i tripped quite badly hurting my back in...

bobbykins

•8 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for August 2016

Cyclosporine ,Pain and fatigue

No diagnosis just sadness and frustration. new to this site

Udate. Saga. Very short! Gastro apt

Immuran (Azathioprine )50 mg twice or Myfortic 360 mg twice daily (mycophenolate sodium )

Thanks to all

Azathioprine, prednisolone and puffy face 😭

Thinning hair because of mctd

Hoping for reassurance!

Hair loss and thinning help

2x200 hydroxy + occasional 35 mg predni for 4 months has NOT worked. Should I move to methotexrate or myclophen or azathioprine- which one?

Results

Eyesight and working with computers again

So fed up 😢😢

I am new to the site

Update of sores from methotrexate

Anti DS-DNA Binding Level 2

Clacton

Would like Kidney advice please?

Saga. Update. Visit to Man Royal Infirmary to see Lupus nurse after Rheumy discharged me.

BURNING feet, hands & face today...here's a great erythromelalgia (EM) article

Hi just poking around

Nose sores?

Dermatology Appointment Update

Doctors visit Today👣👣👣👣👣👣👣👣👣👣👣👣👣👣👣👣

Pelvic Pain & Lupus

Pleurisy

Managing infections, antibiotics and immune suppressants

How often do lupus patients see their hospital doctors?

PS To my saga re having a referral to Man Royal Infirmary to Lupus specialist?

Are Experts never Wrong!!!?

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