Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,875 members • 28,215 posts

All posts for July 2016

Could it be back?

Hi, I had surgery on Monday, a hysterectomy, I haven't had any 'lupus' issues for nearly 4 years and have not taken any meds for 3 years. However following...

Hi, I had surgery on Monday, a hysterectomy, I haven't had any 'lupus' issues fo...

Kellyleg

•8 years ago

7 Replies

Help. Im in the wrong place.

I haven't got lupus! I've got fibrosis or ILD. Could you send me to the right forum, please?

I haven't got lupus! I've got fibrosis or ILD. Could you send me to the right fo...

Phyll

•8 years ago

1 Reply

Am in agony

Hello all I have complained about the sweĺlngs in my knees and ankles after surgery. I have seen my surgeon and he has refered me for an MRI. For the past...

Hello all I have complained about the sweĺlngs in my knees and ankles after surg...

ijeasike

•8 years ago

19 Replies

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Spots on tongue

Sorry pic is upside down . Every so often I keep getting these spots on my tongue . Does anyone know what these are . Has anyone had them before ?

Sorry pic is upside down . Every so often I keep getting these spots on my tongu...

LouLamb

•8 years ago

9 Replies

Hmmm, not Lupus, but now what ...

I previously wrote that I was getting checked out for Lupus. After giving 12 vials of blood, the Rheumy can now told me he thinks he can rule out Lupus. But...

I previously wrote that I was getting checked out for Lupus. After giving 12 vi...

Virginia70

•8 years ago

16 Replies

Changed diagnosis

Hi all. I saw my rheumy last week after getting blood work done. I definitely have Hughes (APS) and my HLA B27 is positive, suggesting ankylosing...

Hi all. I saw my rheumy last week after getting blood work done. I definitely ...

JenInCali

•8 years ago

3 Replies

Difficulty swallowing food and liquids

Hi all, just wondered if anyone else has experienced difficulties with swallowing food or drinks? it doesn't seem to happen very often but when it does it...

Hi all, just wondered if anyone else has experienced difficulties with swallowin...

Queencara78

•8 years ago

14 Replies

Bleeding pain

In a lot of pain today in knees and legs and feet even paracetamol dosnt work can hardly walk lupus auto you can stick it I'm shaking with the pain

In a lot of pain today in knees and legs and feet even paracetamol dosnt work ca...

Minka1

•8 years ago

3 Replies

lupus sufferer

hi to one and all I have had s l e for over 16 years and just always went with what I was dealt never ever read up on anything in fact never even listened to...

hi to one and all I have had s l e for over 16 years and just always went with w...

s0ggys0cks

•8 years ago

8 Replies

Diagnosis

Yesterday was officially diagnosed with cutaneous lupus........ need to see eye specialist / doctor for test and all clear before meds... Dolquine??? Been...

Yesterday was officially diagnosed with cutaneous lupus........ need to see eye...

MagsaTrini

•8 years ago

3 Replies

Sulfasalazine medication for RA and lupus

I have lupus and RA. I was on Methotrexate and Meloxicam but due to side effects and high blood pressure, my rheumatologist took me off these meds and I'm...

I have lupus and RA. I was on Methotrexate and Meloxicam but due to side effect...

Cindymc

•8 years ago

12 Replies

Lupus Blister

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 I am not sure what is going on but, this blister started last Saturday. It has gotten larger each day. I have already seen the...

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 I am not sure what is going on but, this blister st...

Tiras

•8 years ago

27 Replies

I never thought pain medication was an aid to walk my gosh.

I literally cannot walk hold the baby standing. Hands nerves are shot so they shake uncontrolled. I can not take a shower and get ready for my day . I take. 2...

I literally cannot walk hold the baby standing. Hands nerves are shot so they sh...

Julietsmombless2015

•8 years ago

2 Replies

Day by day

I'm starting to have a better outlook.As in this is a ***** way I feel but at least I feel.Its true this disease can steal the optimistic side you once had. I...

I'm starting to have a better outlook.As in this is a ***** way I feel but at le...

Julietsmombless2015

•8 years ago

1 Reply

Digestives problems

Just wondering would anyone experienced inability to move food through their digestive system,I suffer with chronic constipation,I have recently been treated...

Just wondering would anyone experienced inability to move food through their dig...

charlie007

•8 years ago

28 Replies

Knees

Hey there. I've hope everyone is managing and feeling well:) I'm struggling with my knees. They are very painful when I'm walking, sitting. I have this about...

Hey there. I've hope everyone is managing and feeling well:) I'm struggling with...

margaret3

•8 years ago

7 Replies

Hair loss ?

Is anyone else with Discoid Lupus suffering hair loss? Did Hydroxychloroquine help? Am trying not to panic but my bald patch has spread and I have huge...

Is anyone else with Discoid Lupus suffering hair loss? Did Hydroxychloroquine ...

Cas70

•8 years ago

14 Replies

July's Topic of the Month - Insect Bites

Our ‘Topic of the Month’ in July will be, ‘Insect Bites' Severe reaction to insect bites is a feature that is experienced by many people with lupus. Lupus...

Our ‘Topic of the Month’ in July will be, ‘Insect Bites' Severe reaction to inse...

Paul_Howard

Partner•8 years ago

29 Replies

I score a goal at last! Footy reference

Hi You may remember my being bullied by dental NHS doc into agreeing to extraction by local, when I wanted it be sedation. Well my lovely dentist was...

Hi You may remember my being bullied by dental NHS doc into agreeing to extracti...

Footygirl

•8 years ago

11 Replies

Rough after treatment

Started my treatment Tuesday morning had my first steroid injection, was very achy and my joints was hurting yesterday but today I feel like I have been hit...

Started my treatment Tuesday morning had my first steroid injection, was very ac...

Hidden

•8 years ago

3 Replies

I just don't know anymore

I don't even know if this is associated with my lupus or not. But lately I've been having the urge to just cry for no reason. I get jittery. My hands start...

I don't even know if this is associated with my lupus or not. But lately I've b...

Ratana21

•8 years ago

16 Replies

No go at hospital appointment they need glasses

Well guys I didn't have a lot of luck with my hospital appointment they where no concerned about my knee twisting but where going to send me for upper back...

Well guys I didn't have a lot of luck with my hospital appointment they where no...

Minka1

•8 years ago

2 Replies

Cat

Hi☺ Can someone tell me if it is okay for me to have a cat,I do Have lupus, i just want to if it's okay. From love4me😕

Hi☺ Can someone tell me if it is okay for me to have a cat,I do Have lupus, i ju...

love4me

•8 years ago

14 Replies

Tired all the time

Hi Guys, I just wanted to see if anyone else is experiencing the same. I am tired all the time, i wake up i'm tired and i got to bed i'm tired. It constant...

Hi Guys, I just wanted to see if anyone else is experiencing the same. I am tir...

yasmine

•8 years ago

13 Replies

Test And Doctor Today

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi All; Today I have to go to The University Of Alabama Birmingham hospital (in the U.S.) for pulmonary test this morning and...

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi All; Today I have to go to The University Of Al...

Tiras

•8 years ago

5 Replies

How to deal with flare up?

Since last thursday my immune system has been attacking my muslces which claused a lot of pain. I started on codeine(30mg) and paracetamol(500mg) which my body...

Since last thursday my immune system has been attacking my muslces which claused...

seanto

•8 years ago

16 Replies

What can i claim for?

I know iv been on about this before, but its really getting me down today. I was finally diagnosed last friday after a year of being ill.. I have been...

I know iv been on about this before, but its really getting me down today. I wa...

Hidden

•8 years ago

2 Replies

Lupus at 51?

could pre menopause set off lupus? I have all the symptoms but I'm 51 next month

could pre menopause set off lupus? I have all the symptoms but I'm 51 next month...

angiendaz

•8 years ago

2 Replies

good dr

HI ALL HAVE JUST HAD A VERY NICE DR WHO I HAVE NOT SEEN BEFORE RING ME TO GIVE ME MY ANA RESULTS I WAS EXPECTING THEM FOR AWHILE YET. he told me that my level...

HI ALL HAVE JUST HAD A VERY NICE DR WHO I HAVE NOT SEEN BEFORE RING ME TO GIVE M...

julie1234

•8 years ago

1 Reply

PNH suffering

Hi I was diagnosed with PNH benign about a year and a half ago. My potassium gaite was extremely high and Nerve Conduction tests also confirmed this the...

Hi I was diagnosed with PNH benign about a year and a half ago. My potassium ga...

Wakeem

•8 years ago

10 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2016

Could it be back?

Help. Im in the wrong place.

Am in agony

Spots on tongue

Hmmm, not Lupus, but now what ...

Changed diagnosis

Difficulty swallowing food and liquids

Bleeding pain

lupus sufferer

Diagnosis

Sulfasalazine medication for RA and lupus

Lupus Blister

I never thought pain medication was an aid to walk my gosh.

Day by day

Digestives problems

Knees

Hair loss ?

July's Topic of the Month - Insect Bites

I score a goal at last! Footy reference

Rough after treatment

I just don't know anymore

No go at hospital appointment they need glasses

Cat

Tired all the time

Test And Doctor Today

How to deal with flare up?

What can i claim for?

Lupus at 51?

good dr

PNH suffering

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