Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,690 members • 28,072 posts

All posts for July 2016

How long after finishing a course of steroids do they continue to have an effect?

I recently had a 5 week course of prednisolone. 2 weeks at 20mg, 1 week at 15mg, 1 week at 10mg and 1 week at 5mg. I finished these on 14th July. They had a...

I recently had a 5 week course of prednisolone. 2 weeks at 20mg, 1 week at 15mg,...

Wendy39

•8 years ago

6 Replies

After allergic reaction

As you all know from my prior post I had q severe allergic reaction to my hydroxychloroquine tablets, few days after now the rash has calmed down my mouth and...

As you all know from my prior post I had q severe allergic reaction to my hydrox...

Hidden

•8 years ago

1 Reply

Struggling to sleep

Last night was bad - intense pain on left side of face all near jaw area and toward head - would roll on left side and pain would throb hard to where had to...

Last night was bad - intense pain on left side of face all near jaw area and tow...

Mealfredo78

•8 years ago

4 Replies

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Permitted Work ESA

Does anyone here claim ESA under permitted work? I have 2 jobs one post was 18hrs a week, which I am giving up as its too much for me and Im off sick now...

Does anyone here claim ESA under permitted work? I have 2 jobs one post was 18h...

Shann07

•8 years ago

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Sleep???

Just saying!

Alison-Brown

•8 years ago

2 Replies

Bottom Of Feet

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi all; Patrica made a post about smooth shinney feet. I have the opposite with my feet. Years of having to go barefoot, I...

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi all; Patrica made a post about smooth sh...

Tiras

•8 years ago

2 Replies

Mom & Dad

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi y'all; I have not had much time to be on our Commuinty the last week a lot of family stuff going on with my Mom & Dad....

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 Hi y'all; I have not had much time to be on...

Tiras

•8 years ago

22 Replies

Blood work doesn't show anymore but i'm in the middle of a flare??

I was diagnosed with Lupus in 2001. During the first few years i had severe symptoms, discoid lupus in my scalp, back of my thighs,and elbows. my kidney's,...

I was diagnosed with Lupus in 2001. During the first few years i had severe symp...

lupusforme

•8 years ago

11 Replies

How do I get answers?

I need help and advice!!! I have tested positive for lupus and I keep getting told that I probably just carry the antibody and it's just false positive. I...

I need help and advice!!! I have tested positive for lupus and I keep getting t...

ddperkins0104

•8 years ago

33 Replies

The neck

Why is it that when a flareup is coming starts with back left side neck swells up and hurts then everything else kicks in?

Why is it that when a flareup is coming starts with back left side neck swells u...

Mealfredo78

•8 years ago

2 Replies

What to watch for!?

Does anyone know what sever flareup I should seek emergency care for?

Mealfredo78

•8 years ago

1 Reply

Smoke for pain

Question I have smoked at night that not only helps me sleep but also numbs the lupus flareups... Is that ok? Only cause to many meds my stomach is so messed...

Question I have smoked at night that not only helps me sleep but also numbs the ...

Mealfredo78

•8 years ago

5 Replies

Diagnosed at 14 now turning 18

Hello my name is Karissa, I was diagnosed with Lupus at 14 years old with stage 4 S.L.E Lupus Nephritis also along with failing Lungs and an inflamed...

Hello my name is Karissa, I was diagnosed with Lupus at 14 years old with stage...

Kathleen1998

•8 years ago

5 Replies

Warning to all with an autoimmune disease, I have Lupus and Sjögren's. I also have Ehlers Danlos syndrome and am going for genetic testing.

Hi folks just a word of warning if you have SS or Lupus RA or PsA and are 'double Jointed' hyper mobile. Please tell your consultants, GP and dentist. Never...

Hi folks just a word of warning if you have SS or Lupus RA or PsA and are 'doubl...

Pam-EDS

•8 years ago

2 Replies

July's Topic of the Month - Preventing and Treating Insect Bites

We have just published our blog article for July, 'Preventing and Treating Insect Bites'. Thank you so much to everybody who submitted their tips and...

We have just published our blog article for July, 'Preventing and Treating Insec...

Paul_Howard

Partner•8 years ago

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Taste buds

Now I wake up naseau and certain smell of food make me sick- I used to love Dunkin donuts coffee now it taste terrible to me and eggs also and Pepsi which I...

Now I wake up naseau and certain smell of food make me sick- I used to love Dunk...

Mealfredo78

•8 years ago

22 Replies

Pip award

Hi I feel like a ton of bricks have finally been lifted off my shoulders. I had a text this morning say I am being awarded pip don't know how much letter to...

Hi I feel like a ton of bricks have finally been lifted off my shoulders. I had ...

charmaineholmes

•8 years ago

19 Replies

Hair loss

I have been suffering from hair loss and thinning Any tips or products to use to help Thank you

I have been suffering from hair loss and thinning Any tips or products to use to...

Doreen2014

•8 years ago

13 Replies

Low Triglycerides and LDL cholesterol. Anyone know about any connection in autoimmune diseases?

Sorry, I psted a very simila thread on the Gluren free Guerillas group,but thoght I would try here too.I read a research article that said they'd found that...

Sorry, I psted a very simila thread on the Gluren free Guerillas group,but thogh...

misswoosie

•8 years ago

2 Replies

New to lupus

I need help - today while at desk working felt intense hot as if suffocating and dizziness and lightheaded and felt as if I was going to throw up then feel...

I need help - today while at desk working felt intense hot as if suffocating and...

Mealfredo78

•8 years ago

6 Replies

Not too good

Been in a lot of pain the last few days and decided to go to the doctors. I have a kidney infection. Could this be due to lupus?

Been in a lot of pain the last few days and decided to go to the doctors. I have...

Lancslass1962

•8 years ago

3 Replies

Shiny and New

I think I have SLE -going to see Rheumy on Monday for my 1st appt after feeling so ill on and off for a while, years in fact lol......so my GP has referred me....

I think I have SLE -going to see Rheumy on Monday for my 1st appt after feeling ...

Tripitaka

•8 years ago

7 Replies

It has been a long road starting at a 170 the biggest I have ever been I'm finally down to 140

I honestly thought this weight would never come off .it has taken such a very long time for me to even lose 5 pounds and then when I would lose five pounds it...

I honestly thought this weight would never come off .it has taken such a very l...

Julietsmombless2015

•8 years ago

3 Replies

Onward, but with your love.

Thank hou my dear ones on the Other Side of The Pond. Interstitial lung disease, AND shrinking lung disease, are causing me great pain. Even hallow breathing...

Thank hou my dear ones on the Other Side of The Pond. Interstitial lung disease,...

Casimir

•8 years ago

5 Replies

How likely am I to get lupus?

I have a hernia by my small intestine and also my mother has lupus. How likely am I to develop lupus and what should I do? I'm 16 years old.

I have a hernia by my small intestine and also my mother has lupus. How likely a...

WorriedAboutLupus

•8 years ago

6 Replies

Have to stop Azathioprine

Ive been told to stop my aza and plaquenil immediately as my white cells are so low. My blood work will be repeated in 1 week. Has anyone experience of this...

Ive been told to stop my aza and plaquenil immediately as my white cells are so ...

Shann07

•8 years ago

11 Replies

Appointment Help

Hi everyone In three weeks time I have a first Dermatology Assessment Appointment for a leg lesion that could be a slow growing form of skin cancer. I am...

Hi everyone In three weeks time I have a first Dermatology Assessment Appointmen...

misty14

•8 years ago

25 Replies

Weight gain an feeling s of burning with Lupus

Does anyone else have this?

cadl1975

•8 years ago

2 Replies

Questions about how to figure out what is happening inside me

Diagnosed in Hamilton Ontario 3 years through a biopsy as having discoid lupus. All is good, given Olux foam and sent on my way. Moved to Edmonton Alberta....

Diagnosed in Hamilton Ontario 3 years through a biopsy as having discoid lupus. ...

Lara4228

•8 years ago

12 Replies

Rituximab??

Hi everyone im new on here and would love to hear other peoples advice. I have lupus overlap and was seriously ill 3 years ago with it. I recovered due to...

Hi everyone im new on here and would love to hear other peoples advice. I have l...

Rach459

•8 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2016

How long after finishing a course of steroids do they continue to have an effect?

After allergic reaction

Struggling to sleep

Permitted Work ESA

Sleep???

Bottom Of Feet

Mom & Dad

Blood work doesn't show anymore but i'm in the middle of a flare??

How do I get answers?

The neck

What to watch for!?

Smoke for pain

Diagnosed at 14 now turning 18

Warning to all with an autoimmune disease, I have Lupus and Sjögren's. I also have Ehlers Danlos syndrome and am going for genetic testing.

July's Topic of the Month - Preventing and Treating Insect Bites

Taste buds

Pip award

Hair loss

Low Triglycerides and LDL cholesterol. Anyone know about any connection in autoimmune diseases?

New to lupus

Not too good

Shiny and New

It has been a long road starting at a 170 the biggest I have ever been I'm finally down to 140

Onward, but with your love.

How likely am I to get lupus?

Have to stop Azathioprine

Appointment Help

Weight gain an feeling s of burning with Lupus

Questions about how to figure out what is happening inside me

Rituximab??

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