Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for June 2016

One flare straight after another?

Is it possible to have one flare start after another, 4 weeks ago I had my first skin flare, it took 3/4 weeks to clear and now starting again, I really think...

Is it possible to have one flare start after another, 4 weeks ago I had my first...

MagsaTrini

•8 years ago

11 Replies

Hi Im new here.

Hi everyone Im new to this website. Im on medication for Lupus but Im not diagnosed with Lupus. Ive have better days and worse. Now Im angry because they...

Hi everyone Im new to this website. Im on medication for Lupus but Im not diagno...

margaret3

•8 years ago

2 Replies

Hydroxychloroquine and drowsiness

I started Hydroxy 250 mg twice a day ten days ago and it's made me so drowsy I'm having trouble keeping my eyes open and doing anything is harder than usual,...

I started Hydroxy 250 mg twice a day ten days ago and it's made me so drowsy I'm...

ExtremeDuvetDaze

•8 years ago

9 Replies

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June's Topic of the Month - Light Sensitivity

Our ‘Topic of the Month’ in June will be, ‘Coping with Light Sensitivity' The hotter weather and longer days are now with us again, so it seems like a good...

Our ‘Topic of the Month’ in June will be, ‘Coping with Light Sensitivity' The ho...

Paul_Howard

Partner•8 years ago

40 Replies

Lupus therapy

One of my ways to try to forget about my Lupus issues is my Garden. I have posted a photo of one of my 50 + tomatoe plants. As of now I have well over 200...

One of my ways to try to forget about my Lupus issues is my Garden. I have poste...

Tiras

•8 years ago

7 Replies

Lupus Marthon

Next Sunday on June 12, my Daughter who loves to run, will be doing a 1/2 Marathon in Atlanta Georgia in the U.S. Each runner pays their on entry fee, and...

Next Sunday on June 12, my Daughter who loves to run, will be doing a 1/2 Marat...

Tiras

•8 years ago

5 Replies

Saga update PIP Assessment postponed

Hi all You must be tired of this saga, I know I am.PIP supposed to be friday 10.30 - 12. Appointment came through for AIH review with liver doc, never...

Hi all You must be tired of this saga, I know I am.PIP supposed to be friday 10....

Footygirl

•8 years ago

9 Replies

Venice Ironman

Just to let everyone know my amazing wife Mhairi completed the Challenge Venice Ironman event yesterday and raised a fair sum of money which is going to Lupus...

Just to let everyone know my amazing wife Mhairi completed the Challenge Venice ...

vitalspark

•8 years ago

6 Replies

Do you need to have a positive ANA to have Lupus ? I have all the symptoms of lupus plus fibromaligia, M.E, Pernicious Anemia & Vit D Defic

Do you need a positive ANA test before you can be diagnosed with Lupus ? Even though I'm showing classic lupus symptoms & also have fibromaligia, M.E,...

Do you need a positive ANA test before you can be diagnosed with Lupus ? Even th...

Jacqueline_J

•8 years ago

11 Replies

To The Members Of This Commuinty

To start off, I want to say THANK YOU to everyone who is a part of LUPUS UK! A recent post caught my attention and hit home. I thought I was the only one who...

To start off, I want to say THANK YOU to everyone who is a part of LUPUS UK! A ...

Tiras

•8 years ago

4 Replies

Holiday in the sun

I'm off on my first hopefully sunny holiday next week. I have my big sun hat, sun glasses, shawl/cardigans to cover the body and major sun tan lotion. At this...

I'm off on my first hopefully sunny holiday next week. I have my big sun hat, su...

Whathappned

•8 years ago

22 Replies

Pain but weird

Woke up ok this morning n two hours later I got this bad pain on my left hip. Everytime I move different it hurted so bad. Sharp pains just hits me. After a...

Woke up ok this morning n two hours later I got this bad pain on my left hip. Ev...

Jo_25

•8 years ago

2 Replies

just started having headaches coming of Prednisone

hi iwas put on 55mg of Prednisone,and have come down 10mg a week and am now on 5mg going on to 5mg every other day,what i would like to know is are the...

hi iwas put on 55mg of Prednisone,and have come down 10mg a week and am now on 5...

inxs1212

•8 years ago

7 Replies

Update on Rheumatology Appointment !

Oh well a little update, I went & seen the rheumatogilist & was told by her since my doctor did a ana test & it was negative she would not bother doing another...

Oh well a little update, I went & seen the rheumatogilist & was told by her sinc...

Jacqueline_J

•8 years ago

4 Replies

Tired of being exhausted

I had an appointment with my gp about my ankle and knees which get swollen when i walk. I also showed him the lumps on all my joints. He said that it is...

I had an appointment with my gp about my ankle and knees which get swollen when ...

ijeasike

•8 years ago

4 Replies

Help with dx

Hi I am new on here. I have been seeing the Rheumatologist since 2013 without a proper DX. My problems started in 2011, aching all overplus generally feeling...

Hi I am new on here. I have been seeing the Rheumatologist since 2013 without a...

Daisy1991

•8 years ago

12 Replies

semi positivity moment

Yesterday I was seen by my nice gp whos been helping me out with getting the right diagnoses/help. I took in peace of paper with all the symptoms I had, had...

Yesterday I was seen by my nice gp whos been helping me out with getting the rig...

seanto

•8 years ago

3 Replies

Diagnosis

Well went to the dr. This wat he said I have . Fibermalga planters feet carpal tunnel syndrome. Ana an back pain

Well went to the dr. This wat he said I have . Fibermalga planters feet carpal ...

missyluis

•8 years ago

2 Replies

Diagnosis

My GP diagnosed me with SLE yesterday. I see the rheumy on the 20th. I haven't had the ANA test yet but I'm pos. For lupus anticoagulant. Pretty sure I have...

My GP diagnosed me with SLE yesterday. I see the rheumy on the 20th. I haven't ...

JenInCali

•8 years ago

5 Replies

Mouth ulcers

Anyone else get really painful mouth ulcers? I've had them on an off for years, way before I'd even ever heard of Lupus. Monday evening I could feel I was...

Anyone else get really painful mouth ulcers? I've had them on an off for years, ...

Nikki246

•8 years ago

31 Replies

Knee replacement and wet then dry knees

Hi anyone had a knee replacement whilst having Lupus This time my lupus started in ankle then knee feels like an abscess under knee cap knees always cold...

Hi anyone had a knee replacement whilst having Lupus This time my lupus starte...

Minka1

•8 years ago

Be the first to reply

Pls i need help PIP

Hi all, I am trying to apply for PIP, but i called the customer service and asked for the application. They asked me to get DS1500 from my gp. My gp...

Hi all, I am trying to apply for PIP, but i called the customer service and aske...

ijeasike

•8 years ago

5 Replies

Hydroxychloroquine reduction

Hi everyone It has been a while for me to come on this site as I've just been super busy. Anyway my inflammation levels have been good so rhuemy decided to...

Hi everyone It has been a while for me to come on this site as I've just been s...

heda123

•8 years ago

14 Replies

Just trying to get though the day

hi I'm Melissa wanting to know more about lupus might have it.

missyluis

•8 years ago

11 Replies

Worse rash

this rash has got worse.catnt get in at gp sister thinks its acne 😞

amandajane76

•8 years ago

13 Replies

Pain in knee and cramp/ache above knee and below to foot - sound familar to anyone?

I have a pain in my knee which I've had for four days now. I don't remember hurting myself so am wondering if this is a new "something" I'm going to be...

I have a pain in my knee which I've had for four days now. I don't remember hur...

Nat1969

•8 years ago

6 Replies

Newbie

Hi,I am new here,I am awaiting a rhumotologyy appt after being referred by GP. My symptoms go back about 14 years. Just wondering if this photo of a rash I get...

Hi,I am new here,I am awaiting a rhumotologyy appt after being referred by GP. M...

cel91273

•8 years ago

12 Replies

Lupus Anticoagulant and Anti cardiolipin blood tests...

Hi there, I have another question, amongst all my blood tests I've had recently I had the test for primary Antiphospholipid syndrome, I have copies of my...

Hi there, I have another question, amongst all my blood tests I've had recently ...

ExtremeDuvetDaze

•8 years ago

8 Replies

Flare from UV Lighting?

I'm currently awaiting an official diagnosis, seeing specialist next week with blood and urine results. I have 9 of the 11 criteria and had symptoms for...

I'm currently awaiting an official diagnosis, seeing specialist next week with b...

MagsaTrini

•8 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2016

One flare straight after another?

Hi Im new here.

Hydroxychloroquine and drowsiness

June's Topic of the Month - Light Sensitivity

Lupus therapy

Lupus Marthon

Saga update PIP Assessment postponed

Venice Ironman

Do you need to have a positive ANA to have Lupus ? I have all the symptoms of lupus plus fibromaligia, M.E, Pernicious Anemia & Vit D Defic

To The Members Of This Commuinty

Holiday in the sun

Pain but weird

just started having headaches coming of Prednisone

Update on Rheumatology Appointment !

Tired of being exhausted

Help with dx

semi positivity moment

Diagnosis

Diagnosis

Mouth ulcers

Knee replacement and wet then dry knees

Pls i need help PIP

Hydroxychloroquine reduction

Just trying to get though the day

Worse rash

Pain in knee and cramp/ache above knee and below to foot - sound familar to anyone?

Newbie

Lupus Anticoagulant and Anti cardiolipin blood tests...

Flare from UV Lighting?

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