Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for June 2016

What does these results mean

Hello all and thank you for reading my post I have fibro and ME abd have recently been to see a rheumatologist. He ordered a barrage of tests and what cane...

Hello all and thank you for reading my post I have fibro and ME abd have recent...

fidders

•8 years ago

8 Replies

SLE and Pregnancy

Hi I was diagnosed 17 years ago with SLE, I self medicate when I have flare ups. However 6 weeks ago I became really bad literally overnight, I am awaiting an...

Hi I was diagnosed 17 years ago with SLE, I self medicate when I have flare ups....

Mumtobe2017

•8 years ago

6 Replies

Diagnosis finally!!!!!!!!

I know I told you that I had seen my Rhemy last week for the first time and that I had a IM Depo Medrone injection 120mg well that's what it was anyway lol and...

I know I told you that I had seen my Rhemy last week for the first time and that...

Michelle4267

•8 years ago

3 Replies

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The darker side of Lupus #14

Is when after a couple of 'good' days.... (less pain and able to potter, stopping every hour rather than every ten mins.. lol) My body decided, at 3.45 this...

Is when after a couple of 'good' days.... (less pain and able to potter, stoppin...

amandalilley

•8 years ago

6 Replies

Testicle hit by fast tennis ball.

Hello, I got hit by a tennis ball on my right testicle and it got swollen, my urologist gave me Brufen and some basic medicin. It's been 40 days now, the pain...

Hello, I got hit by a tennis ball on my right testicle and it got swollen, my ur...

Valyrian

•8 years ago

1 Reply

So baffled by all the jargon please help.

Hi all, I have been having a really bad time of it at late and appointments are 3 months apart and when you have Lupus as you know a awful lot happens to you...

Hi all, I have been having a really bad time of it at late and appointments are ...

willowwag

•8 years ago

9 Replies

The funny side of Lupus #27

Is when you admit you are a little crazy and its not always Lupus at the core..... This is me, my geekness and my stock, before the lupus fog decended and took...

Is when you admit you are a little crazy and its not always Lupus at the core......

amandalilley

•8 years ago

10 Replies

Any flare tips please?

Hello All, hope you are all doing ok. I could really do with some advice on flares please. I have recently had The Cough which is generously spreading its way...

Hello All, hope you are all doing ok. I could really do with some advice on flar...

happytulip

•8 years ago

4 Replies

Had appeal

Had my appeal got to wait for letter about their decision . I know I won't get it . Felt like they didn't believe me . At the end of the day they don't know...

Had my appeal got to wait for letter about their decision . I know I won't get i...

LouLamb

•8 years ago

3 Replies

The funny side of Lupus #26

Is when, during the usual insomnia that accompanies lupus, you end up watching a documentary on what happened before the 'big bang''........ Yes, it actually...

Is when, during the usual insomnia that accompanies lupus, you end up watching a...

amandalilley

•8 years ago

5 Replies

Help & advice needed?

Please can anyone advice me on how to get a quick diagnosis..I was diagnosed 20 years ago with lupus but then my consultant change it to urticaria vasculitis...

Please can anyone advice me on how to get a quick diagnosis..I was diagnosed 20 ...

Sarakitten123

•8 years ago

6 Replies

Trigeminal neuralgia?

Hi all, I am curious to know if anyone on here suffers with trigeminal neuralgia and how they are treated and cope please?

Hi all, I am curious to know if anyone on here suffers with trigeminal neuralgi...

Queencara78

•8 years ago

11 Replies

Reduction in hydroxy = return of symptoms?

Hi all, Hope you are all doing well? I have a question about reducing hydroxychloroquine. I was finally diagnosed with Lupus last summer after having symptoms...

Hi all, Hope you are all doing well? I have a question about reducing hydroxychl...

Nurseladybird

•8 years ago

10 Replies

Research on use of online communities for support with long-term health conditions

Research taking place at Uni of Southampton looking at how people use online communities such as Health unlocked to manage their condition. Researchers are...

Research taking place at Uni of Southampton looking at how people use online com...

Lyndsy3

•8 years ago

1 Reply

Work

Struggling to stay in work due to illness constantly being signed off sick again by my Drs.. I have been refused my pip so appealed against that today but no...

Struggling to stay in work due to illness constantly being signed off sick again...

Hidden

•8 years ago

4 Replies

holiday

i am going to brave the sun and hope my dry rash skin will cope i am going morocco is there any advice any one can give me thanks

i am going to brave the sun and hope my dry rash skin will cope i am going moroc...

carollesley

•8 years ago

11 Replies

Vitamin Deficiency dilemma

Hi I had a letter from my rheumatologist a few days after my last appointment, informing me that my vitamin D levels are too low again and advising me to...

Hi I had a letter from my rheumatologist a few days after my last appointment, ...

creaky

•8 years ago

7 Replies

Methotrexate, withdrawal and side effects pattern

Hi users of methotrexate and/or Prednisolone,I have been off of methotrexate, for about 3 months, now.I tapered both methotrexate 10 mg once per week,...

Hi users of methotrexate and/or Prednisolone,I have been off of methotrexate, fo...

Dalas

•8 years ago

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Run For Lupus

My Daughter ran a 1/2 marathon in Atlanta Georgia in the U.S., today for Lupus awareness. I am very proud of Her! Tiras "The Barefoot Gardener"

My Daughter ran a 1/2 marathon in Atlanta Georgia in the U.S., today for Lupus a...

Tiras

•8 years ago

7 Replies

Depressed

Having a bad day my friends. Feel alone and just plain tired. Getting mean to my family because I cannot be the mother they all want me to be anymore. Making...

Having a bad day my friends. Feel alone and just plain tired. Getting mean to my...

Natura

•8 years ago

12 Replies

The funny side of Lupus #25

HAPPY FATHERS DAY to all you amazing men out there that support or need support whilst dealing with the complicated illness we all know as lupus. May the...

HAPPY FATHERS DAY to all you amazing men out there that support or need support ...

amandalilley

•8 years ago

4 Replies

Mrs. Barefoot Gardener

This is my beautiful wife Laura. She is "The Mrs. Barefoot Gardener". Yep, she is barefoot, and she goes barefoot a lot, but, she can wear shoes if she has...

This is my beautiful wife Laura. She is "The Mrs. Barefoot Gardener". Yep, she ...

Tiras

•8 years ago

11 Replies

Worried

Got appointment on the 4th with Rheumy . I stopped taking my injections because I had exams and it was hurting my legs . I really can't be bothered to start...

Got appointment on the 4th with Rheumy . I stopped taking my injections because ...

LouLamb

•8 years ago

10 Replies

Feelin good

My brothers got a new flat . So was helping to decorate . Was stripping the wall paper , then my shoulder started hurting . I stopped then went back at it . It...

My brothers got a new flat . So was helping to decorate . Was stripping the wall...

LouLamb

•8 years ago

Be the first to reply

Methotrexate and blurred vision

Can methotrexate cause blurred vision, iv only been on it for four weeks, iv more or less had a low grade headache the whole time, but since yesterday my eyes...

Can methotrexate cause blurred vision, iv only been on it for four weeks, iv mor...

Bellacat2011

•8 years ago

4 Replies

REPLY to us all from our Footy...who is having tech trouble

My Ipad has gone daft. I have lost all my inbox of one mail address! But worse, whilst reading the kind responses 😘😘😘😘😘 to my posts on HU I am not able to...

My Ipad has gone daft. I have lost all my inbox of one mail address! But worse, ...

Barnclown

•8 years ago

4 Replies

Me again

Hi It's been a very long time since I last posted something . I was diagnosed with lupus nepheristis last year, was treated with cyclophosomide , mycropen,...

Hi It's been a very long time since I last posted something . I was diagnosed w...

ajanjua

•8 years ago

3 Replies

Platelet Count?

I have had a high Platelet count now for a year, but it was only brought to my attention today by the drs after having my bloods done yesterday.. I am being...

I have had a high Platelet count now for a year, but it was only brought to my a...

Hidden

•8 years ago

1 Reply

Exams over

Today I finished my last exam 🎉🎉🎉 My apprenticeship called as well and asked if now I've finished my exam , would I like to go in for a couple of days . To...

Today I finished my last exam 🎉🎉🎉 My apprenticeship called as well and asked...

LouLamb

•8 years ago

2 Replies

What is happening?

I had a major op at the end of March and the next month to six weeks I spent recovering, including being treated for a UTI. I then felt quite bright and the...

I had a major op at the end of March and the next month to six weeks I spent rec...

MrsMouseSJ

•8 years ago

13 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2016

What does these results mean

SLE and Pregnancy

Diagnosis finally!!!!!!!!

The darker side of Lupus #14

Testicle hit by fast tennis ball.

So baffled by all the jargon please help.

The funny side of Lupus #27

Any flare tips please?

Had appeal

The funny side of Lupus #26

Help & advice needed?

Trigeminal neuralgia?

Reduction in hydroxy = return of symptoms?

Research on use of online communities for support with long-term health conditions

Work

holiday

Vitamin Deficiency dilemma

Methotrexate, withdrawal and side effects pattern

Run For Lupus

Depressed

The funny side of Lupus #25

Mrs. Barefoot Gardener

Worried

Feelin good

Methotrexate and blurred vision

REPLY to us all from our Footy...who is having tech trouble

Me again

Platelet Count?

Exams over

What is happening?

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