Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for June 2016

Flares (again)

People talk about flares as if they come and go, wax and wain. My experience since being diagnosed two years ago is that I am always in a great deal of pain,...

People talk about flares as if they come and go, wax and wain. My experience sin...

happytulip

•8 years ago

12 Replies

The funny and dark side of lupus #1

I wasn't sure where to put this post.... I dont ask questions and I very very rarely give advise as there are many well qualified and more knowledgeable people...

I wasn't sure where to put this post.... I dont ask questions and I very very ra...

amandalilley

•8 years ago

11 Replies

so many posts - thank you Administrators

There seems to be a huge increase in posts and am worried I might miss something pertaining to my specific condition although have 'my communities' to click...

There seems to be a huge increase in posts and am worried I might miss something...

CreakyBea

•8 years ago

2 Replies

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Morning Medications

I know I'm not the only one of us with Lupus who takes a lot of medication, but, I almost despise morning for this reason. This does not include the other 5...

I know I'm not the only one of us with Lupus who takes a lot of medication, but,...

Tiras

•8 years ago

4 Replies

Funny turn

Has anyone experienced an episode of jumpy, flickering vision with affects to hearing, coordination and ability to speak? this was the most surreal funny turn...

Has anyone experienced an episode of jumpy, flickering vision with affects to he...

Queencara78

•8 years ago

2 Replies

MRI

Hi all, Can anyone tell me the truth about average age for a diagnosis of trigeminal neuralgia? Is it unusual to first experience this awful condition in...

Hi all, Can anyone tell me the truth about average age for a diagnosis of trigem...

Queencara78

•8 years ago

1 Reply

Pain again!

So I get this pain on my left side n it works it's way to my neck. Also down to my thighs n I also get this tingling feeling n numbness. What does that mean....

So I get this pain on my left side n it works it's way to my neck. Also down to ...

Jo_25

•8 years ago

5 Replies

Road to R-E-C-O-V-E-R-Y!!

So I was diagnosed with Lupus about 2 yrs ago. No symptoms, was feeling fine up until i got a weird rash on my left quad when I was out hiking one afternoon. I...

So I was diagnosed with Lupus about 2 yrs ago. No symptoms, was feeling fine up ...

Warrior_1982

•8 years ago

13 Replies

Anyone have a theory about us and Vit B12?

I was browsing, looking for any answers about stomach probs, pain, aneamia and other symptoms when I saw a piece about B12 solving a lot of problems for...

I was browsing, looking for any answers about stomach probs, pain, aneamia and o...

Footygirl

•8 years ago

28 Replies

Still Fish with Lupus

As promised here is a photo of the new Bass Boat. Got to have some way to deal with lupus, this is one way for me. Tiras 👣👣👣👣👣👣👣👣👣👣👣 "The Barefoot...

As promised here is a photo of the new Bass Boat. Got to have some way to deal w...

Tiras

•8 years ago

12 Replies

First appointment looming ahead

Dear all, this is my first post and as you can probably tell from the title of this I am pretty new at lupus! ! The first time I had heard of lupus was...

Dear all, this is my first post and as you can probably tell from the title of t...

Jewel79

•8 years ago

12 Replies

Lumps behind ear

Hi all, I have 3 little lumps just behind my ear which I noticed in February. They've grown in size and a couple have merged together, and they are quite hard...

Hi all, I have 3 little lumps just behind my ear which I noticed in February. Th...

educk

•8 years ago

4 Replies

connective tissue

Have not written for a while I saw my consultant in February who then sent me for a heart CT Scan as I kept getting breathless last week the consultant rang me...

Have not written for a while I saw my consultant in February who then sent me fo...

sharon53

•8 years ago

3 Replies

What to pack ?

On July 27th - August 1st I'm going to stay at my aunties . It's only in Wolverhampton so a train ride . If I forget or need something I can't just go and get....

On July 27th - August 1st I'm going to stay at my aunties . It's only in Wolverh...

LouLamb

•8 years ago

3 Replies

Cancer & immune dysfunction link + new survival guide

This link just pinged in from medpage. It's helping me understand more about why rheumatology & immunology researchers have been telling me that my previous...

This link just pinged in from medpage. It's helping me understand more about wh...

Barnclown

•8 years ago

8 Replies

16 days into steroids and boy what a difference! This is the best I have felt for at least 3 years, probably a lot longer.

I feel like a new woman! I was prescribed a short burst of steroids so that we could confirm that the remainder of my symptoms were in fact lupus and not...

I feel like a new woman! I was prescribed a short burst of steroids so that we ...

Wendy39

•8 years ago

18 Replies

Chemotherapy for Lupus Nephritis

Hey everyone! I am an 18 year old girl, who has had lupus for 18 months now. A year ago, after a kidney biopsy I was diagnosed with lupus nephritis class IV,...

Hey everyone! I am an 18 year old girl, who has had lupus for 18 months now. A y...

Lilly25

•8 years ago

13 Replies

I'm still alive

So top that everybody that still following me on here I was just sitting here in the hospital I got really sick I couldn't do anything ended up with a double...

So top that everybody that still following me on here I was just sitting here in...

Julietsmombless2015

•8 years ago

7 Replies

Do I have lupus?

Hi there. I was diagnosed with fibromyalgia at age 30, but had symptoms beginning at age 28. I also have autonomic dysfunction & chronic migraines. For the...

Hi there. I was diagnosed with fibromyalgia at age 30, but had symptoms beginni...

EmBrown

•8 years ago

2 Replies

Very small itchy bumps in body

Hello, I have very small itchy bumps on my body, they started on my arms randomly at night and didn't bother it thinking it would go away. When I woke up in...

Hello, I have very small itchy bumps on my body, they started on my arms randoml...

Nick_C

•8 years ago

1 Reply

Rash , any ideas?

Hey guys, This weird rash? Has come up on my thigh. It's red and hot to the touch, not itchy or anything. (See pic) I was out in the sun today but wearing...

Hey guys, This weird rash? Has come up on my thigh. It's red and hot to the tou...

stacieann1989

•8 years ago

8 Replies

Finally my referral

After a year of pleading and asking my dr for a referral I got it for a rheumy. As luck would have it my dr was out and I had a substitute dr. She was an awe...

After a year of pleading and asking my dr for a referral I got it for a rheumy. ...

Ratana21

•8 years ago

10 Replies

does anyone get this

twitching of nerves for no apparent reason in legs and like back going out to ribs

twitching of nerves for no apparent reason in legs and like back going out to ri...

minka

•8 years ago

8 Replies

New here....

Hi there! My name is Cheryl and I am from Canada! I came across your group while searching for some medical information and started reading the posts. The site...

Hi there! My name is Cheryl and I am from Canada! I came across your group while...

Cherzhere

•8 years ago

7 Replies

12.40 two hours of pip home assessment done guys!

What a lovely lady. Ex nurse superb. Used Nat insuance card for requisit id We armed ourselves by re reading the form we sent in to apply for PIP. We checked...

What a lovely lady. Ex nurse superb. Used Nat insuance card for requisit id We a...

Footygirl

•8 years ago

4 Replies

Life With Lupus

I got out in the boat and done a little fishing. I didn't catch many, and didn't keep any fish, but, I did have some alone relaxing time. I wasn't barefoot in...

I got out in the boat and done a little fishing. I didn't catch many, and didn't...

Tiras

•8 years ago

6 Replies

Pip

I got it I got it . Letter came to day scored 13 points for daily living . I am so happy . I felt as if they didn't believe me at the tribunal . They only...

I got it I got it . Letter came to day scored 13 points for daily living . I am ...

LouLamb

•8 years ago

8 Replies

Impatient with myself

OK, after many years of symptoms and illnesses that were treated singly, I finally got to see a rheumy last year and a diagnosis which brings it all together...

OK, after many years of symptoms and illnesses that were treated singly, I final...

Lupiknits

•8 years ago

3 Replies

First rheumy appt yesterday.

So far he has given me the diagnoses of Hughes syndrome, Hashimoto's and fibromyalgia. Took 10 more vials of blood today to test for Ana, Sjogrens...

So far he has given me the diagnoses of Hughes syndrome, Hashimoto's and fibro...

JenInCali

•8 years ago

3 Replies

i have oral lichen planus

i have suffered with lichen planus in my mouth now for 6 years and tried everything i can to get rid of it .I've had a biopsy on my tongue 2 on my gums at...

i have suffered with lichen planus in my mouth now for 6 years and tried every...

jes2212

•8 years ago

5 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2016

Flares (again)

The funny and dark side of lupus #1

so many posts - thank you Administrators

Morning Medications

Funny turn

MRI

Pain again!

Road to R-E-C-O-V-E-R-Y!!

Anyone have a theory about us and Vit B12?

Still Fish with Lupus

First appointment looming ahead

Lumps behind ear

connective tissue

What to pack ?

Cancer & immune dysfunction link + new survival guide

16 days into steroids and boy what a difference! This is the best I have felt for at least 3 years, probably a lot longer.

Chemotherapy for Lupus Nephritis

I'm still alive

Do I have lupus?

Very small itchy bumps in body

Rash , any ideas?

Finally my referral

does anyone get this

New here....

12.40 two hours of pip home assessment done guys!

Life With Lupus

Pip

Impatient with myself

First rheumy appt yesterday.

i have oral lichen planus

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