Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,691 members • 28,072 posts

All posts for June 2016

Heart murmur advice please?

Hello, , ,. I am a 50 year old female and since I was 17, I have suffered hypertension. Despite trying many different medications etc. It has continued...

Hello, , ,. I am a 50 year old female and since I was 17, I have suffere...

Hidden

•8 years ago

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Paying for it now

Went shopping today , but paying for it now Trying to sleep and have got very restless and painful legs and feet 😔

Went shopping today , but paying for it now Trying to sleep and have got very r...

LouLamb

•8 years ago

2 Replies

Thank you one and all, Mandy. Xx

I wanted to thank everyone who responded to my question about some strange night time experiences, it really was much appriciated. My local gp was great as...

I wanted to thank everyone who responded to my question about some strange night...

amandalilley

•8 years ago

13 Replies

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CeLLs

Hello everyone, has anyone had low T cells and had a blood transfusion are discussed it with your rheumy?

Hello everyone, has anyone had low T cells and had a blood transfusion are discu...

vonda

•8 years ago

1 Reply

Pleased

Went with my cousin and brother today and brought some new clothes . Very happy with the smaller sizes fitting. I got : -4 pairs of jeans -4 pairs of shorts...

Went with my cousin and brother today and brought some new clothes . Very happy ...

LouLamb

•8 years ago

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June's Topic of the Month - Coping with Light Sensitivity

We have just published our article for this month on the LUPUS UK Blog at http://www.lupusuk.org.uk/coping-with-light-sensitivity/ Thank you so much to...

We have just published our article for this month on the LUPUS UK Blog at http:/...

Paul_Howard

Partner•8 years ago

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Seaweed dressings

Hello everyone, Due to long term steroid usage and severe lupus, my skin takes a long time to heal, but cuts and bruises very easily. The length of time these...

Hello everyone, Due to long term steroid usage and severe lupus, my skin takes ...

heatherevans28

•8 years ago

5 Replies

Constantly falling asleep

Hi guys Hope you are all doing well? I wanted to ask if anyone else has this problem. I keep nodding off all the time, have been doing this for weeks. I am...

Hi guys Hope you are all doing well? I wanted to ask if anyone else has this pro...

esky

•8 years ago

9 Replies

Help with an old blood result

I'm needing some expert advice again... I recently requested my medical files from the hospital where I was treated 13 years ago for ITP. On looking through...

I'm needing some expert advice again... I recently requested my medical files fr...

1985mum

•8 years ago

3 Replies

Steroids and weight gain 😭

I'm really struggling with how much weight I have gained recently. I was on 50mg of pred after a flare up and have been gradually bringing it down. I am now on...

I'm really struggling with how much weight I have gained recently. I was on 50mg...

Rachael23

•8 years ago

19 Replies

Is intermittent haematurea a symptom of Lupus?

Hi everyone, I hope you are all alright at the moment and that this damp weather isn't troubling you! Ok. I'm a bit worried about something. I have been...

Hi everyone, I hope you are all alright at the moment and that this damp weather...

anniesensi

•8 years ago

7 Replies

MEDS REVIEWS

Just a reminder to all who are on meds. Please ensure that you ask for a regular review to ensure that you protect your internal organs from permanent damage....

Just a reminder to all who are on meds. Please ensure that you ask for a regular...

Alexandria

•8 years ago

2 Replies

Doctors Visit

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 I forgot to mention that my rheumatologist up the dosage of methotrexate from 7.5 mg a week to 12.5 Mg a week. Instead of taking...

👣👣👣👣👣👣👣👣👣👣👣👣👣👣 I forgot to mention that my rheumatologist up the ...

Tiras

•8 years ago

19 Replies

Not responding to methotrexate... what's next?

So I'm still in a flare up since September. Started methotrexate 15mg in January, lowered my hydroxy to 200mg and also on 8mg of prednisolone. In march I...

So I'm still in a flare up since September. Started methotrexate 15mg in January...

SLC03

•8 years ago

4 Replies

Going Private?

Morning all, Having had my July appointment cancelled and no news of another, and feeling like a bag of the proverbial, does anyone know of a really good...

Morning all, Having had my July appointment cancelled and no news of another, an...

Saintsmad

•8 years ago

4 Replies

Mouthwash

I've seen mentioned here, many times, the use of mouthwash. I try to avoid using it since the last one I've used, stained my teeth and it was hell at the...

I've seen mentioned here, many times, the use of mouthwash. I try to avoid using...

Purpletop

•8 years ago

21 Replies

Best thing ever! So happy!

Saturday 18th of June i got my book appointment letter through for bath rheumatology hospital. Had to wait till monday 20th to book it. When i rang up they...

Saturday 18th of June i got my book appointment letter through for bath rheumato...

seanto

•8 years ago

1 Reply

Give me a large digital pin!!

Nothing to do with lupus but HU what have you done? Any body else find these Private Message Bubbles a nightmare? Can't scroll or risk message disappearing...

Nothing to do with lupus but HU what have you done? Any body else find these Pri...

littleeffie

•8 years ago

6 Replies

Morning jaw/ ear pain

Hello! This morning I woke up and yawned. Once my mouth was fully opened a jolt of pain shot up my jaw to somewhere behind it. It felt like it was by my ear....

Hello! This morning I woke up and yawned. Once my mouth was fully opened a jolt ...

poppop911

•8 years ago

2 Replies

Pain PLEASE HELP!

Hi, I recently wrote a post about being pregnant and trying to cope with the pain till I see my specialist. Well tomorrow is the day!!!!! however last night...

Hi, I recently wrote a post about being pregnant and trying to cope with the pai...

Mumtobe2017

•8 years ago

12 Replies

The funny side of lupus #28

Is when after a 2nd night of very strange shinnanagans throughout my body and terrifying paralysus, racing heart and pins abd needles in every non moving...

Is when after a 2nd night of very strange shinnanagans throughout my body and te...

amandalilley

•8 years ago

8 Replies

Bloods

when the dr does a blood count , is he going to check for diabetes too?

Hidden

•8 years ago

2 Replies

Friends ?

This may seem a bit wired . I was wondering if anyone can give advice on how I can make some new friends . I've never been very good at socialising. Since I...

This may seem a bit wired . I was wondering if anyone can give advice on how I ...

LouLamb

•8 years ago

4 Replies

Stomach problems

Are there any of you having stomach problems with lupus one of the GP doctors I saw last year told me to ask rheumatologist could lupus be affecting my stomach...

Are there any of you having stomach problems with lupus one of the GP doctors I ...

mtbr

•8 years ago

12 Replies

I honestly thought that I would die two weeks ago and now I'm just living with the pain of Lupus which is much better

My kidney infection must have gone away. I do not feel it anymore ,I'm also not passing blood anymore. I have my regular pain from lupus at more of a severe...

My kidney infection must have gone away. I do not feel it anymore ,I'm also not ...

Julietsmombless2015

•8 years ago

4 Replies

Please help...

Good afternoon, My name is Natasha Capel. I am 28years old from Bristol in England. I was diagnosed with MCTD when I was 13. The disease was managed well by...

Good afternoon, My name is Natasha Capel. I am 28years old from Bristol in Engla...

tashacapes

•8 years ago

3 Replies

jamier's lupus....asking about her laboratory tests...

gud eve everyone..im a lupus patient also and i want to ask about it..last year my lupus was trigger and i had a flare my skin on my skin was attacked we visit...

gud eve everyone..im a lupus patient also and i want to ask about it..last year ...

jamiernavarro11

•8 years ago

6 Replies

Working with a disability

I have just been awarded a PIP Payment does anyone know if this affects my employment i.e am I classed as disabled or does it restrict what i can do at work....

I have just been awarded a PIP Payment does anyone know if this affects my emplo...

NIGELMOORING

•8 years ago

2 Replies

A guide to light sensitivity for people with lupus

Summer is upon us and so is the sun. As exposure to the sun increases so does the likelihood that people with lupus will experience photosensitive rashes or...

Summer is upon us and so is the sun. As exposure to the sun increases so does th...

HealthUnlocked

HealthUnlocked•8 years ago

15 Replies

WELL I HAD A BIG FLAIR LAST NIGHT WOW

ALL ME BACK WAS LIKE WATER ATTACKING IT THEN ME HANDS THEN MY FINGERS WONDER WHAT THE HELL WAS HAPPENING AND THIS MORNING I CANT USE MY LEGS PROPPER KNEES FEEL...

ALL ME BACK WAS LIKE WATER ATTACKING IT THEN ME HANDS THEN MY FINGERS WONDER WHA...

minka

•8 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2016

Heart murmur advice please?

Paying for it now

Thank you one and all, Mandy. Xx

CeLLs

Pleased

June's Topic of the Month - Coping with Light Sensitivity

Seaweed dressings

Constantly falling asleep

Help with an old blood result

Steroids and weight gain 😭

Is intermittent haematurea a symptom of Lupus?

MEDS REVIEWS

Doctors Visit

Not responding to methotrexate... what's next?

Going Private?

Mouthwash

Best thing ever! So happy!

Give me a large digital pin!!

Morning jaw/ ear pain

Pain PLEASE HELP!

The funny side of lupus #28

Bloods

Friends ?

Stomach problems

I honestly thought that I would die two weeks ago and now I'm just living with the pain of Lupus which is much better

Please help...

jamier's lupus....asking about her laboratory tests...

Working with a disability

A guide to light sensitivity for people with lupus

WELL I HAD A BIG FLAIR LAST NIGHT WOW

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