Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for April 2016

Still no answers from GP

Hello again. I thought I might get somewhere as GP consented to my having a gastroscopy. The result is mild gastritis and no H Pylori which he says means I get...

Hello again. I thought I might get somewhere as GP consented to my having a gast...

Footygirl

•8 years ago

3 Replies

Constant infections

Hello, I'm relatively new to this forum and am in the process of waiting for an appointment to see the rheumatologist, my ana was positive and ena was positive...

Hello, I'm relatively new to this forum and am in the process of waiting for an ...

Michelle4267

•8 years ago

5 Replies

Lupus rash

Hi there, I have 3 different types of rashes going on. I have just been referred to a rheumatologist by my neurologist. Various things going on. But rashes...

Hi there, I have 3 different types of rashes going on. I have just been referre...

trueman

•8 years ago

18 Replies

Want to take advantage of all our features? Just log in!

Giving up smoking.

Hi very one (tes i know i should smoke any way) I am using the pipe's they are ok but i thought giving up would make my health better. But no it hasn't it's...

Hi very one (tes i know i should smoke any way) I am using the pipe's they are o...

tiggergirl

•8 years ago

7 Replies

Hi there, I'm new here and confused 🙄

Hi there, I've just joined this group and my story goes like this, my dad had full blown lupus but sadly passed away 16 years ago at the age of 79, but in 2002...

Hi there, I've just joined this group and my story goes like this, my dad had fu...

ExtremeDuvetDaze

•8 years ago

10 Replies

Omega 7

Hi I have SLE and during the last year have developed secondary sjogrens. I'm not managing my dry eyes very well because my eyes are irritated by every type...

Hi I have SLE and during the last year have developed secondary sjogrens. I'm n...

creaky

•8 years ago

17 Replies

The funny side of lupus #20 - the othr men in my life. Lol

To all you wonderful people sho enjoyed the man in my life post...... I would like to introduce you to another...... oh yes, I have many....lol and once again...

To all you wonderful people sho enjoyed the man in my life post...... I would li...

amandalilley

•8 years ago

Be the first to reply

Autoimmune diet - Amy Myers

Hi, Ive been trying to follow the Autoimmune Protocol diet by Dr Amy Myers as she believes that many autoimmune conditions can be helped or reversed early on...

Hi, Ive been trying to follow the Autoimmune Protocol diet by Dr Amy Myers as sh...

Kate16

•8 years ago

15 Replies

Irritability Problems?

Hi everyone, This is my first time posting, however, I have been lurking for several weeks now. I am from the US so I hope it's okay that I do post here. I've...

Hi everyone, This is my first time posting, however, I have been lurking for se...

apexx

•8 years ago

15 Replies

Discoid Lupus Erythematosus Advice

I am from the UK a Female with Tanned Skin originally diagnosed by a few different doctors in UK with Topical Dermatitis. I Recently saw a Dermatologist...

I am from the UK a Female with Tanned Skin originally diagnosed by a few diffe...

Advice1

•8 years ago

2 Replies

I will smile with tears in my eyes. She will take the pain away and fill it with joy.Happy birthday Juliet

My princess is 1 today look at her happiness its so wonderful to have the honor of raising her.She makes this dreadful life filled with pain seem wonderful in...

My princess is 1 today look at her happiness its so wonderful to have the honor ...

Julietsmombless2015

•8 years ago

10 Replies

Its my daughters 1st birthday I feel beat up but her smile is worth the pain for sure.

I started at 8 AM and its now 9:20 pm finally can sit. My tendons in my whole body are so tight. I can barely sit up now.My shoulders are the worse, oh and I...

I started at 8 AM and its now 9:20 pm finally can sit. My tendons in my whole bo...

Julietsmombless2015

•8 years ago

4 Replies

Pink scars on toes

Does anyone wake up in the morning and have pink scars on their toes and feet? What is that about? I don't have the rash on my face, but find I get these from...

Does anyone wake up in the morning and have pink scars on their toes and feet? W...

Natura

•8 years ago

5 Replies

New and confused!

Hi I am Emma I live in Kent and I am currently being tested for Lupus. I visited my doctor with what I fault were just rescue ring symptoms that I've always...

Hi I am Emma I live in Kent and I am currently being tested for Lupus. I visite...

Esw4

•8 years ago

5 Replies

ANA test results

I have been told for about 18 months now I have SLE, but I am confused I think I was told the ANA for a normal person should be between 0 - 9. Mine is...

I have been told for about 18 months now I have SLE, but I am confused I think I...

Louisa65

•8 years ago

6 Replies

Pain relief...

After being diagnosed with Lichen Plans, Scarring Alopecia and bloods showing positive for Lupus, my dermatologist prescribed Hydroxychloroquine 200mg and my...

After being diagnosed with Lichen Plans, Scarring Alopecia and bloods showing po...

angbed

•8 years ago

2 Replies

The funny side of lupus #19

Is when after being on your own for 20 plus years, due to ex husband forgetting what the vows of marriage, after 10 years, 'in sickness and health' actually...

Is when after being on your own for 20 plus years, due to ex husband forgetting ...

amandalilley

•8 years ago

12 Replies

DLE

Hi to the Community, I am a SE Asian Female with Tanned Skin i was originally diagnosed by a few different doctors in the UK with Topical Dermatitis. I...

Hi to the Community, I am a SE Asian Female with Tanned Skin i was originally...

Advice1

•8 years ago

28 Replies

Throat

I have yellow on the top of my mouth and bumps in the back of my throat? Any ideas as to what it may be?

I have yellow on the top of my mouth and bumps in the back of my throat? Any ide...

Zdub

•8 years ago

5 Replies

Sleep Apnea and fatique

I am new here. I use a Cpap with 02 @ night @2 liters my o2 had dropped to 84% help a lot with my fatigue for 6 months my fatigue is back I sleep good, I am...

I am new here. I use a Cpap with 02 @ night @2 liters my o2 had dropped to 84% ...

1957May

•8 years ago

3 Replies

1st Rheumatology Appointment?

Hey everyone, so Monday I have my first rheumatology appointment. My doctor did a blood test and found that I'm positive ANA. So she referred me to a Rheum...

Hey everyone, so Monday I have my first rheumatology appointment. My doctor did...

Whelp529

•8 years ago

5 Replies

No response to Rituximab

I had 2 infusions the last one on Mar 3rd and apart from a couple of days feeling well after the 2nd dose (which could have been a response to the prednisolone...

I had 2 infusions the last one on Mar 3rd and apart from a couple of days feelin...

DaleDiva

•8 years ago

2 Replies

Undifferentiated Connective Tissue Disease - confused

Three years ago I was told by Rheumatologist I have Lupus SLE, then a year I ago I started seeing a dermatologist as well and she said it is more UCTD. Even...

Three years ago I was told by Rheumatologist I have Lupus SLE, then a year I ago...

Tassiewoo

•8 years ago

20 Replies

Im new ... On my way to Rheumy for first time

Hi, I am getting checked out for Lupus at the moment. Preparing for first Rheumatologist appt and would welcome any tips. I have a history of allergies and...

Hi, I am getting checked out for Lupus at the moment. Preparing for first Rheum...

Virginia70

•8 years ago

4 Replies

Its so hard having to plan things with this flare up I'm whipped before I do things need energy.

I had to plan this whole party.With not being able to remember anything then having to remember where I wrote down the things I couldn't remember.Then had to...

I had to plan this whole party.With not being able to remember anything then hav...

Julietsmombless2015

•8 years ago

2 Replies

Sjogrens and cataracts ?

I have SLE and Sjorgens, and have also developed a cataract in my right eye. Does anyone know if there are any problems with the Sjorgens if I have...

I have SLE and Sjorgens, and have also developed a cataract in my right...

KeepRinging

•8 years ago

6 Replies

taking the right approach.

So I felt that the Rhemotologiy where not doing anything to help me even when I went back too see them when I got worse. They keep using my blood work as a...

So I felt that the Rhemotologiy where not doing anything to help me even when I ...

seanto

•8 years ago

5 Replies

Does this mean not lupus??

My blood tests in November showed very raised anti cardiolipin antibodies and slightly raised ESR. Had them repeated last week, and bloods in normal ranges....

My blood tests in November showed very raised anti cardiolipin antibodies and sl...

Hidden

•8 years ago

8 Replies

Side effect after taking vitamin D??

Does anyone had headache and toothache after taking high dosage vitamin D, I have these issue continuoesly since I started taking it on 12th this month.

Does anyone had headache and toothache after taking high dosage vitamin D, I hav...

vambat

•8 years ago

13 Replies

Sjogrens or Fobbed-off-by-rheumatologist syndrome?

I had an unexpected rheumatologist appt today (long story). Anyway I saw a different guy - the clinical lead. I was hopeful n left feeling quite positive but...

I had an unexpected rheumatologist appt today (long story). Anyway I saw a diffe...

Polly2Cats

•8 years ago

8 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2016

Still no answers from GP

Constant infections

Lupus rash

Giving up smoking.

Hi there, I'm new here and confused 🙄

Omega 7

The funny side of lupus #20 - the othr men in my life. Lol

Autoimmune diet - Amy Myers

Irritability Problems?

Discoid Lupus Erythematosus Advice

I will smile with tears in my eyes. She will take the pain away and fill it with joy.Happy birthday Juliet

Its my daughters 1st birthday I feel beat up but her smile is worth the pain for sure.

Pink scars on toes

New and confused!

ANA test results

Pain relief...

The funny side of lupus #19

DLE

Throat

Sleep Apnea and fatique

1st Rheumatology Appointment?

No response to Rituximab

Undifferentiated Connective Tissue Disease - confused

Im new ... On my way to Rheumy for first time

Its so hard having to plan things with this flare up I'm whipped before I do things need energy.

Sjogrens and cataracts ?

taking the right approach.

Does this mean not lupus??

Side effect after taking vitamin D??

Sjogrens or Fobbed-off-by-rheumatologist syndrome?

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive