Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,082 posts

All posts for April 2016

Fatigue

The two haven't been feeling it, I feel weak today. I don't have that much strength in me. I hate this.

The two haven't been feeling it, I feel weak today. I don't have that much stren...

Jo_25

•8 years ago

10 Replies

Foot pain

Hi, it's been a while since I last posted on here but I've a question ... I've got UCTD and recently I've been getting a whole lot of foot pain (both feet) I'm...

Hi, it's been a while since I last posted on here but I've a question ... I've g...

Kerry72

•8 years ago

6 Replies

Has anybody got or had Cushing?

After suffering with extremely swollen feet and ankles since Mother's Day,I went to see GP yesterday who thinks I might have Cushing. I have been taking...

After suffering with extremely swollen feet and ankles since Mother's Day,I wen...

mum-two

•8 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Feeling awesome

Made my own tshirt for the lupus walk tomorrow...ready to walk for all of us.

Ratana21

•8 years ago

12 Replies

The funny side of lupus #22

A quote from the amazing comidian sarah millican........ My husband divorced me after 9 years of marriage, he wasn't a bad person, he just stopped loving me,...

A quote from the amazing comidian sarah millican........ My husband divorced me ...

amandalilley

•8 years ago

5 Replies

Nose sore's

Any recommendations for treating such as what best from the Drs X

Esw4

•8 years ago

4 Replies

I dub thee Xavier

My friends have a tradition of giving their mobility devices names: Davros, Calypso, Ben-Hur, etc. The mobility scooter I had was called the Chairiot. I...

My friends have a tradition of giving their mobility devices names: Davros, Caly...

Silvergilt

•8 years ago

2 Replies

The darker side of lupus #12

I have no clocks in my bungalow........ I have only 1 mirror (in the spare room) Sounds ridiculous to most of the population but I have lupus....... What has...

I have no clocks in my bungalow........ I have only 1 mirror (in the spare room)...

amandalilley

•8 years ago

5 Replies

Curly question...

This is a very controversial question, and one that may spark a bit of debate, but there are some very knowledgeable people on here. My question is What is the...

This is a very controversial question, and one that may spark a bit of debate, b...

1985mum

•8 years ago

35 Replies

Return rhuemy visit.

Hi guys just an update on my rhuemy visit I requested. He was very thorough and really listened to me.He checked out the little sores I have near wrists and...

Hi guys just an update on my rhuemy visit I requested. He was very thorough and ...

Circles

•8 years ago

5 Replies

Thinking of travelling? 🌟 Tips Link:

Today's Despite Lupus blog post is full of good stuff:...

Barnclown

•8 years ago

Be the first to reply

The funny side of lupus #21

My personal darkness comes and goes with such speed and ferocity that I wonder how I stay strong trying to keep my mind balaced and logical. So when our stray...

My personal darkness comes and goes with such speed and ferocity that I wonder h...

amandalilley

•8 years ago

11 Replies

Gingivitis

Can I get some advice on oral care. I am getting persistent gingivitis. Brush teeth, floss and interdigital brush with dentyl mouth wash. Tried corsodyl. Not...

Can I get some advice on oral care. I am getting persistent gingivitis. Brush te...

Asarahjohnson

•8 years ago

20 Replies

Raising awareness for Lupus

Increase awareness for Lupus and other hidden illnesses.

Kevin53

•8 years ago

9 Replies

Kidney stone it's such a little thing Coffee coffee coffee

My uroligist tells me to drink coffee then water and repeat until it passes.My Mother is babysitting. I'm laying in bed on medicine just watching...

My uroligist tells me to drink coffee then water and repeat until it passes.My M...

Julietsmombless2015

•8 years ago

1 Reply

Could it be lupus?

I have 5 of the diagnostic criteria: 1. Nose ulcers 2. Migraines and cognitive clouding to the point where I can no longer work. Myoclonic jerking throughout...

I have 5 of the diagnostic criteria: 1. Nose ulcers 2. Migraines and cognitive c...

JenInCali

•8 years ago

3 Replies

Sulfasalazine

Hi. My Rheumy has just prescribed me Sulfasalazine to take along with Leflunomide (been on this for 3 years). Anyone out there had any side affects with...

Hi. My Rheumy has just prescribed me Sulfasalazine to take along with Leflunomid...

Megan2005

•8 years ago

3 Replies

April's Topic of the Month - Coping with Hair Loss

We have just published our article for this month on the LUPUS UK Blog at http://www.lupusuk.org.uk/coping-with-hair-loss/ Thank you so much to everybody who...

We have just published our article for this month on the LUPUS UK Blog at http:...

Paul_Howard

Partner•8 years ago

2 Replies

should I be worried?

Ive just had an app through the post today to see the consultant tomorrow for nephrology. I had bloods taken a week ago and wasn't expecting to see the...

Ive just had an app through the post today to see the consultant tomorrow for ne...

Naomi82

•8 years ago

3 Replies

The darker side of lupus #11

Is when through the munipulation of the illness known as Lupus you find yourself hiding, for sometimes days on end, from your family, friends and the world in...

Is when through the munipulation of the illness known as Lupus you find yourself...

amandalilley

•8 years ago

13 Replies

Azathioprine now doubled

Just increased dose from 50mgs to 100mgs on Sat. Feel so sick and really bad headaches!!! Xx

Just increased dose from 50mgs to 100mgs on Sat. Feel so sick and really bad hea...

Hesta

•8 years ago

7 Replies

Comfort? :/ Ana positive then negative..

Hi everyone, my Gp had ordered some blood test including Ana which came back positive. So she referred me to a Rheumy, I seen my Rheumy yesterday and got my...

Hi everyone, my Gp had ordered some blood test including Ana which came back pos...

Whelp529

•8 years ago

4 Replies

Criteria for diagnosis

Last weekend at our support group gathering, a rheumatologist from my lupus clinic gave an excellent talk on interpreting blood test results. This was...

Last weekend at our support group gathering, a rheumatologist from my lupus clin...

Barnclown

•8 years ago

38 Replies

Heart Attack at 54!!

Hello everyone, guess what I had a heart attack on March 8th. I have SLE and am on Hydroxychloroquine. I am now recovering and had to have a stent fitted. It...

Hello everyone, guess what I had a heart attack on March 8th. I have SLE and am ...

ulsterchick61

•8 years ago

6 Replies

Confused & frustrated about getting a diagnosis

Since seeing my GP twice about a possible butterfly rash I am now waiting to see a dermatologist in two weeks time. However my blood tests all came back...

Since seeing my GP twice about a possible butterfly rash I am now waiting to see...

LoveJoy07

•8 years ago

6 Replies

I'm getting Married this September ..Praying for remission before then.

I am so worried. I wont be able to walk down these cement stairs that lead to the beach front.How will I dance when I can hardly bare to walk.How will I last...

I am so worried. I wont be able to walk down these cement stairs that lead to th...

Julietsmombless2015

•8 years ago

17 Replies

I did it

I reached my goal to raise money for the lupus walk in Atlanta..! I pray for a warm day and that I'm able to walk 1.5 miles lol. Wish me luck!

I reached my goal to raise money for the lupus walk in Atlanta..! I pray for a ...

Ratana21

•8 years ago

9 Replies

Teeth

Has anyone found Lupus is affecting their teeth?

Esw4

•8 years ago

20 Replies

Headaches

I've been getting headaches every day for the past few weeks. They come and go throughout the day but at times are bad...pain across all of my head and neck...

I've been getting headaches every day for the past few weeks. They come and go ...

Dancingc21

•8 years ago

5 Replies

NORTHERN IRELAND LUPUS GROUP

LUPUS SUPPORT GROUP AGM We are holding our AGM on THURS 5th MAY at 7.30pm in Whiteabbey Methodist Church Hall on the Shore Rd. We are delighted to have DR...

LUPUS SUPPORT GROUP AGM We are holding our AGM on THURS 5th MAY at 7.30pm in Wh...

Bronagh2015

•8 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for April 2016

Fatigue

Foot pain

Has anybody got or had Cushing?

Feeling awesome

The funny side of lupus #22

Nose sore's

I dub thee Xavier

The darker side of lupus #12

Curly question...

Return rhuemy visit.

Thinking of travelling? 🌟 Tips Link:

The funny side of lupus #21

Gingivitis

Raising awareness for Lupus

Kidney stone it's such a little thing Coffee coffee coffee

Could it be lupus?

Sulfasalazine

April's Topic of the Month - Coping with Hair Loss

should I be worried?

The darker side of lupus #11

Azathioprine now doubled

Comfort? :/ Ana positive then negative..

Criteria for diagnosis

Heart Attack at 54!!

Confused & frustrated about getting a diagnosis

I'm getting Married this September ..Praying for remission before then.

I did it

Teeth

Headaches

NORTHERN IRELAND LUPUS GROUP

Search posts

Pinned Posts

Latest poll

Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

Topics

Archive