Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for March 2016

The funny side of lupus #14

Is when after numerous people complimenting you on the smell of your hair you discover that for the past couple of weeks you have been using the lime and lemon...

Is when after numerous people complimenting you on the smell of your hair you di...

amandalilley

•8 years ago

5 Replies

Sweating and lupus

Hey. Does anyone have problems with sweating and are they on any medication for it.

Hey. Does anyone have problems with sweating and are they on any medication for ...

biddy75

•8 years ago

7 Replies

Question about pip

Hi can anybody help with a question about pip please. Somebody I know got awarded standard rate for mobility last year for one year.They received new forms in...

Hi can anybody help with a question about pip please. Somebody I know got awarde...

mum-two

•8 years ago

7 Replies

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Should all Lupus patients have Vitamins and minerals checked as Vit D deficit often missed?

Hi Following our talks on Vitamin D deficiency and how a lot of us find an improvement after we take regular prescribed doses, have any of you subsequently had...

Hi Following our talks on Vitamin D deficiency and how a lot of us find an impro...

Footygirl

•8 years ago

13 Replies

Round 2 with Senior GP

Hi. Update Overall first apt went ok. Bit snippy but said he would refer me. Sent me for chest xray and gastroscopy re no feeling in gastroscopy. Today The...

Hi. Update Overall first apt went ok. Bit snippy but said he would refer me. Sen...

Footygirl

•8 years ago

3 Replies

Message for you from littleeffie 🤗

This just came to me from effie via the messages function here on forum: "Hyper quick message.Out of infection control and off to nuclear medicine dept.blood...

This just came to me from effie via the messages function here on forum: "Hyper...

Barnclown

•8 years ago

13 Replies

Blood test results

I feel so poorly at the moment! I have SLE but have been so ill And exhausted since about November and nothing's helping :( I had a blood test done a few...

I feel so poorly at the moment! I have SLE but have been so ill And exhausted s...

Charlottelauren

•8 years ago

13 Replies

The darker side of lupus #9

Lets talk anger....... Why, because we have all felt it. Consultants, dr', friends, family, aquaintances, the general public and ourselves, have all, at...

Lets talk anger....... Why, because we have all felt it. Consultants, dr', frie...

amandalilley

•8 years ago

16 Replies

Foot Pain advice

Hello all Am just back from my 6 monthly lupus clinic. While waiting, I spotted this excellent booklet on the freebies wall rack...because my clinic has...

Hello all Am just back from my 6 monthly lupus clinic. While waiting, I spotte...

Barnclown

•8 years ago

5 Replies

Breast screening

For the ladies only - if you've been invited to take part of the breast screening, do you attend regularly? I've had my first screen 3 years ago and it is now...

For the ladies only - if you've been invited to take part of the breast screenin...

Purpletop

•8 years ago

13 Replies

Feeling a little better🙃

I just love how this website helps you to communicate and connect with others who have the same thing you have. It's truly amazing to see how many others...

I just love how this website helps you to communicate and connect with others wh...

DemetriaLigon

•8 years ago

4 Replies

Hydroxychloroquine (Zentiva)

Hi :) Like many of you I struggle with some brands of hydroxychloroquine and was advised to take the zentiva brand when hydroxychloroquine was discontinued....

Hi :) Like many of you I struggle with some brands of hydroxychloroquine and wa...

Jessie_2014

•8 years ago

17 Replies

Trying to get used to this lupus thing.

Hi, my name is Demetria I am 18 years old.I was diagnosed with lupus around September of 2015. Truthfully, it has not been easy to deal with, especially...

Hi, my name is Demetria I am 18 years old.I was diagnosed with lupus around Sept...

DemetriaLigon

•8 years ago

11 Replies

Feeling awful.

Hey guys. I'm feeling awful today. Got my next appointment with rehumatologist, but not for another five weeks. The past two weeks I've been suffering on and...

Hey guys. I'm feeling awful today. Got my next appointment with rehumatologist, ...

stacieann1989

•8 years ago

6 Replies

Iain Duncan smith is being interviewed on the Andrew Marr show 9am Sunday 20th March, so if you want to see what he says you have 40minutes

Get the kettle on girls, will be interested to see what he says.

noonoo52

•8 years ago

11 Replies

New to Site

I've recently been diagnosed with Stage 4 Lupus Nephritis and I'm still trying to understand what changes I'll be going through. So far I've had the pains in...

I've recently been diagnosed with Stage 4 Lupus Nephritis and I'm still trying t...

Btaylor7809

•8 years ago

5 Replies

RESPONSES

To everyone who responded to my "cry for help", thank you. I will take all your suggestions to my doctor next week and we'll see what happens. Just so VERY...

To everyone who responded to my "cry for help", thank you. I will take all your...

ginatri

•8 years ago

1 Reply

Tinnitus

Hi, anyone suffers from tinnitus , drives me crazy , cause me nausea and dizziness at times and the noise omg!!.. Specialists are sayng there's nothing you...

Hi, anyone suffers from tinnitus , drives me crazy , cause me nausea and dizzin...

Hidden

•8 years ago

13 Replies

Thank you so much for your responses

I will check into all the possibilities with my doctor next week. I haven't been on pred for several weeks now (at first thought that was the culprit) but...

I will check into all the possibilities with my doctor next week. I haven't bee...

ginatri

•8 years ago

Be the first to reply

👋👋👋👋from littleeffie....

Hello all Many of you will have been missing our littleeffie...the other day I messaged her to check in...she got my message on the first day she had been...

Hello all Many of you will have been missing our littleeffie...the other day I ...

Barnclown

•8 years ago

20 Replies

Hello, I'm in Canada but suffer from lupus too, along with raynauds, serious gut problems they won't do any more surgery on and and and, but

Has anyone noticed a weight gain. I'm 72, about 5'3" and until the last several months always thought I'd like to put some weight on. I was about 125 and now...

Has anyone noticed a weight gain. I'm 72, about 5'3" and until the last several...

ginatri

•8 years ago

6 Replies

Vitamin D

Hi Following my visit to my Rhumatologist last week, I have received my blood test results. I am apparently lacking in vitamin D & my count is only 25 & it...

Hi Following my visit to my Rhumatologist last week, I have received my blood te...

Cal66

•8 years ago

17 Replies

Iain Duncan Smith resigns

Thats all folks

Footygirl

•8 years ago

11 Replies

The darker side of lupus #8

CALLING ALL PROFESSIONALS - THIS RANT IS FOR YOU.........sorry, its long.. lol THE SILENT AND STEALTH OF CONTINUAL INVISABLE PAIN Ignored by most...

CALLING ALL PROFESSIONALS - THIS RANT IS FOR YOU.........sorry, its long.. lol ...

amandalilley

•8 years ago

8 Replies

The funny side of lupus #13

Is when, as a 'good mum' you offer you iron, (yes, iron,) your daughters uniform.........i am sure as lupies you understand how difficult ironing can be and we...

Is when, as a 'good mum' you offer you iron, (yes, iron,) your daughters uniform...

amandalilley

•8 years ago

Be the first to reply

Lupus

Need some advice ,am going to,Florida in October with family , and was wondering if any body can advice me on long haul flights and what can I do to prevent my...

Need some advice ,am going to,Florida in October with family , and was wondering...

Barbara28

•8 years ago

11 Replies

Ninja roll.

After the second night of high temperature last week, my brain decided there was an iguana in the bed. My husband described my ninja roll out of the bed,...

After the second night of high temperature last week, my brain decided there was...

johare

•8 years ago

7 Replies

Blue fingers and lips!

I'm 21 years old, diagnosed with SLE almost 1 year ago. Was just wondering if anyone else got blue fingers / lips on a regular basis? I'm on hydroxychloroquine...

I'm 21 years old, diagnosed with SLE almost 1 year ago. Was just wondering if an...

Charlottelauren

•8 years ago

8 Replies

Ask about benlista

hi my friend I ask how much should pay if I want get benlista injection?

asma1364

•8 years ago

3 Replies

Advice on 2nd opinion for SLE...ANA positive, ENA positive, anti RO antibodies positive in recent blood test...please ?

After a stint gong in and out of hospital for undiagnosed abdominal pain, procedures etc, I was referred after 6 blood tests which showed low sodium and...

After a stint gong in and out of hospital for undiagnosed abdominal pain, proced...

25clai

•8 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for March 2016

The funny side of lupus #14

Sweating and lupus

Question about pip

Should all Lupus patients have Vitamins and minerals checked as Vit D deficit often missed?

Round 2 with Senior GP

Message for you from littleeffie 🤗

Blood test results

The darker side of lupus #9

Foot Pain advice

Breast screening

Feeling a little better🙃

Hydroxychloroquine (Zentiva)

Trying to get used to this lupus thing.

Feeling awful.

Iain Duncan smith is being interviewed on the Andrew Marr show 9am Sunday 20th March, so if you want to see what he says you have 40minutes

New to Site

RESPONSES

Tinnitus

Thank you so much for your responses

👋👋👋👋from littleeffie....

Hello, I'm in Canada but suffer from lupus too, along with raynauds, serious gut problems they won't do any more surgery on and and and, but

Vitamin D

Iain Duncan Smith resigns

The darker side of lupus #8

The funny side of lupus #13

Lupus

Ninja roll.

Blue fingers and lips!

Ask about benlista

Advice on 2nd opinion for SLE...ANA positive, ENA positive, anti RO antibodies positive in recent blood test...please ?

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