Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2016

Hydroxychloroquine - symptoms temporarily worse before they get better?

Hello all, I'm quite new here and this is my first post. I was only diagnosed with lupus about 6 weeks ago (based on symptoms, history, bloods and family...

Hello all, I'm quite new here and this is my first post. I was only diagnosed wi...

Nurseladybird

•8 years ago

29 Replies

Achy jelly legs

Hi Does anyone on here suffer with painful (mainly when active ) jelly legs they feel wobbly and sore when I walk but not weak as I can easily climb stairs...

Hi Does anyone on here suffer with painful (mainly when active ) jelly legs they...

Hidden

•8 years ago

8 Replies

Junior doctors row - What patients need to know

Hi everyone, The BBC has written a helpful article for anybody who has been affected by the junior doctors' strike. If you have any uncertainties about what...

Hi everyone, The BBC has written a helpful article for anybody who has been aff...

Paul_Howard

Partner•8 years ago

4 Replies

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Update on my daughters GP vist

After my daughters hell with rheumatologist She today saw her GP to find out what the hell is going on Her GP was vey confused to why the rheumy would act...

After my daughters hell with rheumatologist She today saw her GP to find out wha...

Rush2112

•8 years ago

2 Replies

PPIs - interesting article

http://www.npr.org/sections/health-shots/2016/01/11/462423759/popular-acid-reflux-drugs-are-linked-to-kidney-disease-risk I just saw this article about the...

http://www.npr.org/sections/health-shots/2016/01/11/462423759/popular-acid-reflu...

Purpletop

•8 years ago

18 Replies

Natural Remedies/Hair loss

Hi all, I have lupus of the joints and am currently on hydroxychloroquine. I have only been on it for 1 year and my hair loss is quite bad at the moment. I am...

Hi all, I have lupus of the joints and am currently on hydroxychloroquine. I hav...

Samantha817

•8 years ago

8 Replies

Not diagnosed yet

I would just like to thank the wonderful people who run this site As I have not been diagnosed yet. You sent me in the post all the information that I needed...

I would just like to thank the wonderful people who run this site As I have not...

Gilly2111

•8 years ago

3 Replies

Throat

Hi there,I suffer with sle lupus and I'm experiencing problems where I'm finding hard to swallow my medication.my throat feels lumpy n everytime I swallow...

Hi there,I suffer with sle lupus and I'm experiencing problems where I'm finding...

ramada

•8 years ago

27 Replies

Why are my hands and feet swelling?

I am having almost identical symptoms and it is wonderful to have them validated! For nearly 15 years I have suffered with severe fatigue and body rashes....

I am having almost identical symptoms and it is wonderful to have them validated...

plee

•8 years ago

3 Replies

New brand of plaquenil and migraines

Hi can anyone help me? Been swopped to the new zentiva brand of hydroxychloriquine... And unfort suffering really bad migraines for last ten days. Nothing...

Hi can anyone help me? Been swopped to the new zentiva brand of hydroxychloriqu...

Manxie101

•8 years ago

4 Replies

will a cortisone shot effect my blood tests

Hi all, I've been trying to get answers for a while.I was told I was b12 deficient(with PA ,in feb 2015).I'm on b12 injections now (2 weekly at home)and they...

Hi all, I've been trying to get answers for a while.I was told I was b12 defici...

patmackfin

•8 years ago

2 Replies

Raynauds overheat

Anyone else with raynauds experience burning skin and overheating not just in summertime?

Anyone else with raynauds experience burning skin and overheating not just in su...

Hidden

•8 years ago

12 Replies

PMR mycophenolate and steroids

i have had PMR for over 4 years last march i was put on 1grm x 2 daily i got my steroids down to 9 as was doing ok the drop to 8 in steroids and back to all...

i have had PMR for over 4 years last march i was put on 1grm x 2 daily i got my ...

bri21

•8 years ago

4 Replies

Interesting week.

The last time I posted I could get hold of Flecanaide for heart arythmia. My GP refered me back to a private cardiologist I had seen three back! I sorted it...

The last time I posted I could get hold of Flecanaide for heart arythmia. My GP ...

johare

•8 years ago

12 Replies

I need help and advise to

Hi everyone I been diagnosed with lupus since last year after years of testing they finally did this test I also have rheumatoid arthritis anti ro + and...

Hi everyone I been diagnosed with lupus since last year after years of testing t...

Tasha1980

•8 years ago

3 Replies

kidneys.....

anyone out there had a kidney replacement or dialysis yet? Or maybe thinking its close to being that way?

anyone out there had a kidney replacement or dialysis yet? Or maybe thinking it...

mariearmstrong

•8 years ago

25 Replies

Kidney symptom?

Last 2-3 weeks urine colour change to light luminous green/darker brown despite drinking more water no change and occasional back pain- been on...

Last 2-3 weeks urine colour change to light luminous green/darker brown despite ...

vinygill

•8 years ago

15 Replies

Injections

Contacted my nurse from the hospital about my tablets and she is going to sort injections for the next time I see her in February ! Hopefully the constantly...

Contacted my nurse from the hospital about my tablets and she is going to sort i...

LouLamb

•8 years ago

5 Replies

Work

Hi just wondering if any one else out there has problems with their work place mine are very not understanding and don't seem to understand lupus or the...

Hi just wondering if any one else out there has problems with their work place m...

barbdockeray

•8 years ago

6 Replies

Awful abdominal pains linked to my bowel I think... I need food intolerance testing

Hi, I have lupus, hypothyroid, ic, adrenal insufficiency and now starting with abdominal bloating and cramps when I eat alongside chronic constipation only...

Hi, I have lupus, hypothyroid, ic, adrenal insufficiency and now starting with a...

Ieuann133

•8 years ago

4 Replies

Meds

Hi. I'm recently diagnosed with sle. I was started on indoneticin then steroids and have now been started on hydroxychloroquin so am currently taking all 3...

Hi. I'm recently diagnosed with sle. I was started on indoneticin then steroids ...

Neiluk75

•8 years ago

11 Replies

Frustration

I am aggravated with my customer service at my doctor's office. I've been going to the same doctor since 2012 in which I've stayed because she is suppose to be...

I am aggravated with my customer service at my doctor's office. I've been going ...

randa_lupie

•8 years ago

14 Replies

Headache and numbness to my tongue

Hi,I've been getting sever headaches and numbness to my tongue..anyone else experience the same?

Hi,I've been getting sever headaches and numbness to my tongue..anyone else expe...

ramada

•8 years ago

15 Replies

Reducing my hours

Hi everyone ive has a horrendous time recently with a massive flare which has had me off work for a month. I'm still having a lot of pain in my neck shoulder...

Hi everyone ive has a horrendous time recently with a massive flare which has ha...

Tre123

•8 years ago

4 Replies

Please please help

I'm weighting this in tears as I do not know what to do to help my. Daughter this will be along post to give background she is 26 and was diagnosed when she...

I'm weighting this in tears as I do not know what to do to help my. Daughter thi...

Rush2112

•8 years ago

11 Replies

Pains in Hips and lower stomach

Hi all , Happy New year , does anyone else get pains in their hips and lower stomach at all , been having it on and off for weeks .

Hi all , Happy New year , does anyone else get pains in their hips and lower sto...

tinkslupus

•8 years ago

16 Replies

Anyone been diagnosed by a dermatologist due to negative blood tests?

Anyone? Thanks ;)

Comeonpeeps

•8 years ago

17 Replies

Ramipril

Another Med to add to the growing list. Does anyone else take Ramipril to ease the Kidneys when protein is found. Taking prednisolone,...

Another Med to add to the growing list. Does anyone else take Ramipril to ease t...

maybehope

•8 years ago

12 Replies

Crying - why?

I would like to say Happy New Year to everyone and am pleased to report that for the first time in 2 years I did not have to go to hospital :-) My Rheumy had...

I would like to say Happy New Year to everyone and am pleased to report that for...

denden

•8 years ago

13 Replies

Methotrexate injections

I was wondering of those of you who use the injections , how many pens do u get given for a prescription. Also how much does it cost as I know with lupus you...

I was wondering of those of you who use the injections , how many pens do u get ...

LouLamb

•8 years ago

7 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2016

Hydroxychloroquine - symptoms temporarily worse before they get better?

Achy jelly legs

Junior doctors row - What patients need to know

Update on my daughters GP vist

PPIs - interesting article

Natural Remedies/Hair loss

Not diagnosed yet

Throat

Why are my hands and feet swelling?

New brand of plaquenil and migraines

will a cortisone shot effect my blood tests

Raynauds overheat

PMR mycophenolate and steroids

Interesting week.

I need help and advise to

kidneys.....

Kidney symptom?

Injections

Work

Awful abdominal pains linked to my bowel I think... I need food intolerance testing

Meds

Frustration

Headache and numbness to my tongue

Reducing my hours

Please please help

Pains in Hips and lower stomach

Anyone been diagnosed by a dermatologist due to negative blood tests?

Ramipril

Crying - why?

Methotrexate injections

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