Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for January 2016

Hair dye and bleach?

Does anyone with lupus SLE know, if I can use bleach hair products in my hair? At the moment I use semi- permanent hair colours. I don't any problems with it...

Does anyone with lupus SLE know, if I can use bleach hair products in my hair? A...

xcuttsx

•8 years ago

12 Replies

Fatigue

Hi I've just been wrestling with a bed sheet, already folded by my husband, trying to iron it. Didn't realise it was min iron, not non iron. This is the most...

Hi I've just been wrestling with a bed sheet, already folded by my husband, tryi...

strawberryshortcake

•8 years ago

3 Replies

Fed up

Fed up with everything. I literally can not cope with all this anyone . It's really getting me down . Not gonna bother with medication anyone . I really...

Fed up with everything. I literally can not cope with all this anyone . It's rea...

LouLamb

•8 years ago

12 Replies

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Flare ups and monthly cycle

Hi, I was diagnosed with lupus and scleroderma in 2011. I have good days and bad days but find that the days leading up to and whilst on my period, I get the...

Hi, I was diagnosed with lupus and scleroderma in 2011. I have good days and bad...

MoominMomma

•8 years ago

8 Replies

Appointment tomorrow

Got my hospital appointment with my consultant not looking forward to. Have not been taking my steroids since before Christmas. Have not been making...

Got my hospital appointment with my consultant not looking forward to. Have not ...

LouLamb

•8 years ago

7 Replies

Flare up or what

Hi everyone not been on here for a while. Although i follow everyones posts. At the moment I've been feeling flu like symptoms since last week Monday. I've not...

Hi everyone not been on here for a while. Although i follow everyones posts. At ...

heda123

•8 years ago

3 Replies

Problems at work

Im really worried i could loose my job,was off 3 different times last year with my lupus,occupational health said im covered under dissability equality act,i...

Im really worried i could loose my job,was off 3 different times last year with ...

Jeffscott69

•8 years ago

11 Replies

Gp appointment to discuss the possibility of Lupus (Help!)

Hi, So no diagnosis yet. I posted on here a few months ago and i am only just going to the doctors to discuss this as unfortunately my endometriosis kicked up...

Hi, So no diagnosis yet. I posted on here a few months ago and i am only just go...

FairFacedFairy

•8 years ago

7 Replies

Where do I stand???

Any advice please. I am currently off sick and due to attend a meeting regarding this next week. After an initial appiointment with My rheumatologist shes...

Any advice please. I am currently off sick and due to attend a meeting regarding...

Toastie-69

•8 years ago

6 Replies

Azathioprine update

As promised guys here is an update. I started with the 25mg on azathioprine and I was having blood test every week and they was increasing the dose slowly. I...

As promised guys here is an update. I started with the 25mg on azathioprine and ...

blondie22

•8 years ago

2 Replies

ANA

Hi Received ana result 1/2560 is this ok. thx

Lucieb01

•8 years ago

11 Replies

Autoimmune Rheumatic Disorder

What does this mean exactly? I have all symptoms of lupus but have been diagnosed with this instead. It seems like a vague diagnosis...

What does this mean exactly? I have all symptoms of lupus but have been diagnos...

Annalouk

•8 years ago

7 Replies

Thank you

Thank you , I understand that you cannot interpret my results , as a doctor/ consultant should , I suppose it is just impatience .These bloods were taken 1st...

Thank you , I understand that you cannot interpret my results , as a doctor/ con...

sabre4

•8 years ago

3 Replies

LUPUS UK Fundraising tea party in Kent

Amy Baker is holding a tea party at her home in Maidstone, Kent in aid of LUPUS UK on Sunday 24th of January. If anybody would like to attend please contact...

Amy Baker is holding a tea party at her home in Maidstone, Kent in aid of LUPUS ...

Paul_Howard

Partner•8 years ago

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Azathioprine verus steroids

Hi i have a choice of med to choose what to go on. I have lupus/stjorgans and swelling of the liver. To get this swelling down on my liver these are the...

Hi i have a choice of med to choose what to go on. I have lupus/stjorgans and sw...

luppylou76

•8 years ago

8 Replies

Can Anyone help?

Hi, can someone please help me interpret my results please. I tried to cut and paste my results, but it wont let me at the moment. I have typed word for word...

Hi, can someone please help me interpret my results please. I tried to cut and ...

sabre4

•8 years ago

3 Replies

January's Topic of the Month - Fatigue (We want to hear your tips and experiences)

I would like to wish a belated Happy New Year to everybody. I hope that your 2016 is off to a good start. This year we would really like to get conversations...

I would like to wish a belated Happy New Year to everybody. I hope that your 201...

Paul_Howard

Partner•8 years ago

14 Replies

Mandatory sign-in.

Does anybody else hate having to sign in with a password every time? Call me sick and grumpy but it is so much wasted effort. I am not going on facebook.

Does anybody else hate having to sign in with a password every time? Call me si...

zzukke

•8 years ago

10 Replies

Numbness

I have recently been diagnosed with Lupus, went to my GP as my lips and left side of my face is numb, he totally dismissed this. Is this another symptom of...

I have recently been diagnosed with Lupus, went to my GP as my lips and left sid...

MarcelaS

•8 years ago

16 Replies

Lupus Awareness

Hello, Before I had this disease I knew very little about it. This applies to most people, including many medical professionals. I fully acknowledge that in a...

Hello, Before I had this disease I knew very little about it. This applies to m...

lupylupus

•8 years ago

4 Replies

Just cause you can't see my illness

I feel as if people do not believe Me. I feel like just because they cannot see my illness they do not want to acknowledge it. If someone had a broken arm...

I feel as if people do not believe Me. I feel like just because they cannot see ...

LouLamb

•8 years ago

5 Replies

Nail problems

Had nail probs for about 9 moths .Started with pain then bruising under toe nails .Then blood turning to white bubble ,now coming off .Waiting for hospital...

Had nail probs for about 9 moths .Started with pain then bruising under toe nai...

suzierwp330

•8 years ago

4 Replies

White eyebrow!

I started Hydroxychloroquine in September as at that time thought to be MCTD - now undifferentiated inflammatory arthritis, ? Psoriatic arthritis, but posting...

I started Hydroxychloroquine in September as at that time thought to be MCTD - n...

mirren

•8 years ago

8 Replies

Lupus now Fibromyalgia

Hi everyone. You may remember that I've been feeling confused because I've been getting a negative ANA result and low ESR readings, but I feel worse and worse...

Hi everyone. You may remember that I've been feeling confused because I've been...

Maya23

•8 years ago

37 Replies

Up date on PIP

Hi all I did promise a update on my pip decision , Well hear goes i was surprised i have been awarded it until 2025 !! At least i have a few years before...

Hi all I did promise a update on my pip decision , Well hear goes i was surpr...

rlupus

•8 years ago

16 Replies

Diagnosis

Hi. I was diagnosed with discoid lupus 3 years ago and had bloods done at that time. was told all was clear until about a year later my gp mentioned I was ANA...

Hi. I was diagnosed with discoid lupus 3 years ago and had bloods done at that t...

mistycat

•8 years ago

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Hydroxychloriquine help please

I was given a brand of Hydroxychloriquine at the hospital after diagnosis of UCTD, not quite sure of branding.think it was white box red writing, I noticed...

I was given a brand of Hydroxychloriquine at the hospital after diagnosis of UC...

Howsaboutit

•8 years ago

2 Replies

Seizure?

Hi just wondered if anybody has suddenly had a seizure out of nowhere with no warning. I had the most awful day yesterday,and still can't quite believe what...

Hi just wondered if anybody has suddenly had a seizure out of nowhere with no wa...

mum-two

•8 years ago

25 Replies

Worried about work

Hi all I'm just feeling a bit worried about work because of my sickness absence. I've been at my current workplace a year and I'm now on my fifth absence. But...

Hi all I'm just feeling a bit worried about work because of my sickness absence...

natal1a

•8 years ago

6 Replies

Back to work, a new year and resolutions

Been back at work long enough after the Xmas break to catch up with most people about Xmas, New Year, and of course resolutions. Okay, so everyone else's is...

Been back at work long enough after the Xmas break to catch up with most people ...

Diagnosed2012

•8 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2016

Hair dye and bleach?

Fatigue

Fed up

Flare ups and monthly cycle

Appointment tomorrow

Flare up or what

Problems at work

Gp appointment to discuss the possibility of Lupus (Help!)

Where do I stand???

Azathioprine update

ANA

Autoimmune Rheumatic Disorder

Thank you

LUPUS UK Fundraising tea party in Kent

Azathioprine verus steroids

Can Anyone help?

January's Topic of the Month - Fatigue (We want to hear your tips and experiences)

Mandatory sign-in.

Numbness

Lupus Awareness

Just cause you can't see my illness

Nail problems

White eyebrow!

Lupus now Fibromyalgia

Up date on PIP

Diagnosis

Hydroxychloriquine help please

Seizure?

Worried about work

Back to work, a new year and resolutions

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