Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,733 members • 28,092 posts

All posts for January 2016

White blood count

Hi My white blood count is very low, does anyone know what the hospital can do to increase it? My doctor said rest , but I can't do that every time it gets low...

Hi My white blood count is very low, does anyone know what the hospital can do t...

Heather53

•8 years ago

13 Replies

Phlebitis and SLE?

Hi . Just wanted to know if anyone else has suffered with Phlebitis as a SLE symptom or if it is my meds that might be causing it. It is bad enough that I...

Hi . Just wanted to know if anyone else has suffered with Phlebitis as a SLE sym...

maybehope

•8 years ago

3 Replies

Pain in my rib cage

Doctors cannot tell me nothing I've been hospitalized for and they will not give me the medicine to treat this my left side rib cage it's very painful at times...

Doctors cannot tell me nothing I've been hospitalized for and they will not give...

Rico2323

•8 years ago

8 Replies

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People are such unaware jerks!

I have lupus and I have dark circles which I hide under cover up,I have pale lips I color in with lip stain/lipstick,pale skin I brighten up with concealer and...

I have lupus and I have dark circles which I hide under cover up,I have pale lip...

Julietsmombless2015

•8 years ago

28 Replies

" Red like blood blisters " on side of and underneath tongue.

I have been having the above symptoms for two months or so! I now seem to have developed ulcer like lesions on the inside of my bottom lip! When the blood...

I have been having the above symptoms for two months or so! I now seem to have d...

Loopy-loo

•8 years ago

7 Replies

Hydroxychloroquine

Hi, my new dermatologist has said I have discoid Lupus as well as systemic and will write to my renal transplant consultant to ask if I can be put on...

Hi, my new dermatologist has said I have discoid Lupus as well as systemic and w...

MandaM

•8 years ago

9 Replies

Annoying people

Hi all I was diagnosed before Xmas and am now going through the battle of getting my meds right as I still have too many pains, breathlessness etc. Is it...

Hi all I was diagnosed before Xmas and am now going through the battle of getti...

Neiluk75

•8 years ago

24 Replies

Kidney pains

Ok so I'm not yet diagnosed with lupus, but everything is pointing to it... I have so many symptoms and it's really scary.. My joins hurt constantly, and it's...

Ok so I'm not yet diagnosed with lupus, but everything is pointing to it... I ha...

Wiki_pie

•8 years ago

9 Replies

Vitmains/minerals/supplements and fatigue

Hi, I' new here, but I was wondering if anyone found taking vitamins/supplements helped them and which vitamins. I have iron, calcium, vitamin d and...

Hi, I' new here, but I was wondering if anyone found taking vitamins/supplements...

keenziie

•8 years ago

24 Replies

RA & Glenn Frey: more food for thought

In this article, a rheumatologist reviews the complications associated with Rheumatoid arthritis....the autoimmune condition that caused Fery's death. I was...

In this article, a rheumatologist reviews the complications associated with Rheu...

Barnclown

•8 years ago

36 Replies

Kenalog injection and trying without hydroxy now..

Hi, just wondering how people get on with kenalog injections? I was given one before xmas. Found not a great deal of difference from it, I have reduced my...

Hi, just wondering how people get on with kenalog injections? I was given one be...

Gizmok9

•8 years ago

8 Replies

I am back

Hello to all my Lupus family! Been away in hospital for a week and missed my encouraging lupie family I have grown to be part of. So I ended up going to er...

Hello to all my Lupus family! Been away in hospital for a week and missed my enc...

ac489

•8 years ago

4 Replies

Pals

I sent an email to pals today , they rang me back soon after and they explained to me that my local rheumatology received a letter from Manchester but was...

I sent an email to pals today , they rang me back soon after and they explained ...

Hidden

•8 years ago

1 Reply

reduce dosage

Hello, I had an appt with my rheumatologist on 22/12/15, and I request to try to reduce my medication after blood test which was good, anyone know that how...

Hello, I had an appt with my rheumatologist on 22/12/15, and I request to try t...

vambat

•8 years ago

8 Replies

Diet

I am very interested in finding out what kind of dietary changes people have made that have helped their lupus. I have tried Paleo diet, low-carb diet, But...

I am very interested in finding out what kind of dietary changes people have mad...

nanleighh

•8 years ago

32 Replies

Fatigue.

Hi everyone, Firstly I have no diagnosis of lupus, but have decided to post on this forum because I don't know what it is and I would really like regards to...

Hi everyone, Firstly I have no diagnosis of lupus, but have decided to post on ...

KiwiMonkey

•8 years ago

17 Replies

Travel vacation (yellow fever)

Just a quick question my doctor told me I need to get yellow fever vacation but it can make you flare up cause I'm planning to go to Africa Angola for a...

Just a quick question my doctor told me I need to get yellow fever vacation but ...

Faithing-it

•8 years ago

10 Replies

Colchicine- periodic fever syndrome

Just wondering if anybody has been prescribed this medication? Thanks :)

Jessie_2014

•8 years ago

12 Replies

Lupus or CFS/ME

Hi, I was diagnosed with ME eight years ago. I've always thought the diagnosis was accurate until fairly recently. Over the past year or so, the usual things I...

Hi, I was diagnosed with ME eight years ago. I've always thought the diagnosis w...

Ihave3kids

•8 years ago

8 Replies

Woman's hour, 21/1/16

I have just listened to today's Woman's Hour and the first item is about living with a chronic illness. It is so worth downloading. We will all identify in...

I have just listened to today's Woman's Hour and the first item is about living ...

Musicteach

•8 years ago

6 Replies

Sometimes it helps to see the funny side

My daughter posted this on her face book page made me laugh even though it's really not funny Makes you realise that we are not alone I'm sure this is most of...

My daughter posted this on her face book page made me laugh even though it's rea...

Rush2112

•8 years ago

10 Replies

Update on light bulb

Can't get a doc appointment !! About right so I'm goin to hospital tomorow and hopefully I can see nurse by emergency, spoke to my chemist and she was adamant...

Can't get a doc appointment !! About right so I'm goin to hospital tomorow and h...

Donnygirl

•8 years ago

5 Replies

well...

after 2 years of being told yup if u go off those meds, you will have full blown lupus....I havent been on meds for a year, and went to the rhumetologist other...

after 2 years of being told yup if u go off those meds, you will have full blown...

dgleds

•8 years ago

7 Replies

What is it?

Okay so I've been going to Rhuemy Doctors for over 15 years. Been on Plaquenil all this time plus on prednisone off and on. Now since I have moved, this new...

Okay so I've been going to Rhuemy Doctors for over 15 years. Been on Plaquenil a...

Tinky52

•8 years ago

13 Replies

Sudden lightbulb !!

Suddenly realised why I've been so poorly recently .... And it has made me so down !! I have a really bad rash all over my body and it hurts like hell ... My...

Suddenly realised why I've been so poorly recently .... And it has made me so do...

Donnygirl

•8 years ago

9 Replies

Found serious lung issues that occur in lupus

I found this article which describes - Lung problems that occur in lupus situation. Some of the complications associated with lupus will be familiar to those...

I found this article which describes - Lung problems that occur in lupus situati...

samira_wiley

•8 years ago

3 Replies

news: myco, nephritis & sjogrens

This article is mainly about primary sjogrens, but I like its analysis of how myco works (my daily relatively low dose (1000mg) myco has been helping me a lot...

This article is mainly about primary sjogrens, but I like its analysis of how my...

Barnclown

•8 years ago

6 Replies

Lupus

My diagnosis came early november and also have had bladder cancer3x , many wrists have hurt last couple nights,,, sharp pains,,, the fatigue has super glued me...

My diagnosis came early november and also have had bladder cancer3x , many wrist...

Timothy42

•8 years ago

6 Replies

Newly and Happily married to Lupus

Hello, i am looking for support. My husband has been diagnosed with with systemic lupus. I am looking for supportive wives out there, who can help me and give...

Hello, i am looking for support. My husband has been diagnosed with with systemi...

Marriedtolupus

•8 years ago

11 Replies

Appointment

Doctor has put me on 30mg steroids for 1 weeks 20mg for 2 weeks and 10mg for 4 weeks. Not going to start methotreaxte injections yet going to try 7.5mg in...

Doctor has put me on 30mg steroids for 1 weeks 20mg for 2 weeks and 10mg for 4 w...

LouLamb

•8 years ago

14 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for January 2016

White blood count

Phlebitis and SLE?

Pain in my rib cage

People are such unaware jerks!

" Red like blood blisters " on side of and underneath tongue.

Hydroxychloroquine

Annoying people

Kidney pains

Vitmains/minerals/supplements and fatigue

RA & Glenn Frey: more food for thought

Kenalog injection and trying without hydroxy now..

I am back

Pals

reduce dosage

Diet

Fatigue.

Travel vacation (yellow fever)

Colchicine- periodic fever syndrome

Lupus or CFS/ME

Woman's hour, 21/1/16

Sometimes it helps to see the funny side

Update on light bulb

well...

What is it?

Sudden lightbulb !!

Found serious lung issues that occur in lupus

news: myco, nephritis & sjogrens

Lupus

Newly and Happily married to Lupus

Appointment

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