Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,739 members • 28,100 posts

All posts for October 2015

Lacri-lube - Allergan

Been informed by chemist the above is no longer available. Can anyone tell me an alternative brand they use that has the same effect? Many thanks and have a...

Been informed by chemist the above is no longer available. Can anyone tell me a...

AutumnSun

•9 years ago

3 Replies

Am I in a flare up

I'm taken 15mg of mtx injections every mon,also hydroxychloroquine,by time a thurs comes,my body is aching,sinuses block up constantly,very sensitive to...

I'm taken 15mg of mtx injections every mon,also hydroxychloroquine,by time a thu...

Jeffscott69

•9 years ago

2 Replies

advice please

hi not posted for long while. after a long battle actually have apt with rhem doc November 3rd. just picked print out of bloods to take with me. receptionist...

hi not posted for long while. after a long battle actually have apt with rhem do...

-fudge-

•9 years ago

3 Replies

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Hoarse voice

Hi everyone. Has anyone else had problems with their voice? I have SLE, Fibro and asthma and am on the usual cocktail of drugs. I couldn't sing for four...

Hi everyone. Has anyone else had problems with their voice? I have SLE, Fibro a...

Tinksie

•9 years ago

17 Replies

Hydroxychloroquine (lactose free)

Hi Guys Advice needed please. Been on the above for a year and I'm still having stomach problems. Due to see the Rhuem Consultant in two weeks and will be...

Hi Guys Advice needed please. Been on the above for a year and I'm still having ...

AutumnSun

•9 years ago

13 Replies

Benefits.

Hi. I've been diagnosed with ale for 5 years and never claimed anything. It's worse than ever now and can only work 4 hours a week. How do I claim. ?? Please...

Hi. I've been diagnosed with ale for 5 years and never claimed anything. It's wo...

Lillypops12

•9 years ago

7 Replies

Mycophenolate

I've been on this 9 days had a blood test, told to come off it as my liver count was low (my bloods do do this on occasion and I told the nurse this!). have...

I've been on this 9 days had a blood test, told to come off it as my liver count...

kazp

•9 years ago

7 Replies

Wanting answers

2years ago i had a few lumps appear on my thigh&1 on arm.both on thigh became swollen&filled with fluid.gp treated me for insect bites with many...

2years ago i had a few lumps appear on my thigh&1 on arm.both on thigh became sw...

kiwid25

•9 years ago

2 Replies

Knee problems

We all know that we experience knee problems with lupus . What I would really like to know is how do people manage it ? Do you use strapping as support? Do you...

We all know that we experience knee problems with lupus . What I would really li...

Newwine

•9 years ago

1 Reply

New wine

So , I have been diagnosed with lupus . Has anybody out there experienced trouble with their knees . Yesterday I gently kicked a soft ball and as I did I felt...

So , I have been diagnosed with lupus . Has anybody out there experienced troubl...

Newwine

•9 years ago

2 Replies

Azathioprine

Hi, anyone on this med, I'm a bit worry about going on it.. Infections , bloods every week . Thank you xD

Hi, anyone on this med, I'm a bit worry about going on it.. Infections , bloods ...

Hidden

•9 years ago

6 Replies

Lupus sle

Hi there Iv been diagnosed with lupus sle since last November.I suffer with extreme fatigue.I asked my gp to test me for fibromalagia but I was confused with...

Hi there Iv been diagnosed with lupus sle since last November.I suffer with extr...

ramada

•9 years ago

9 Replies

Pain after esi

I had my second injection and after 3 day I was in pain now it been a week I have pain like when I first get the first injection the Dr said this second one...

I had my second injection and after 3 day I was in pain now it been a week I hav...

jm76

•9 years ago

1 Reply

Private consultation

I was wondering whether anyone knows how long you should wait to hear something following a GP referral for a private consult? Any information would be great....

I was wondering whether anyone knows how long you should wait to hear something ...

C101

•9 years ago

5 Replies

are you managing chronic vertigo and trying to understand your diagnosis?

i was joining in a good discussion on this subject on the HU vasculitis forum yesterday and decided to follow that up with a bit of searching online. i've...

i was joining in a good discussion on this subject on the HU vasculitis forum ye...

Barnclown

•9 years ago

8 Replies

Fibromyalgia

Hi everyone, im Sue & this is my 1st post 😀 I was wondering if anyone on here has Fibromyalgia, do they suffer with stinging/burning eyes & how do they deal...

Hi everyone, im Sue & this is my 1st post 😀 I was wondering if anyone on here ...

Shroom17

•9 years ago

10 Replies

Sle /heart attack

Hi everyone I've got sle on all the usual meds and thought it was getting under control until 2 weeks ago when I had a heart attack apparently women of my age...

Hi everyone I've got sle on all the usual meds and thought it was getting under ...

lisaSLE

•9 years ago

3 Replies

Pain

My joints in hands are so sore today.i carnt help but think my hands look a little arthritic

My joints in hands are so sore today.i carnt help but think my hands look a litt...

amandajane76

•9 years ago

3 Replies

~ swelling to face, hands, legs and feet.

Hi. Wonder if anyone could give me any advice please. I have arthritis after my spinal fracture 2 years ago but now my G.P is testing me for #Sle Lupus ( my...

Hi. Wonder if anyone could give me any advice please. I have arthritis after m...

Jenwren77777

•9 years ago

13 Replies

Jaw pain

I was getting severe pain in my ear it felt like someone was stabbing my ear inside I went to my dr. Cause I thought I had a ear infection and he told me I...

I was getting severe pain in my ear it felt like someone was stabbing my ear ins...

STAY-C

•9 years ago

5 Replies

Rash

I have undifferentiated connective tissue disease and it has been a challenge ! I am on humira and have been for 2 years . over last few months I've developed...

I have undifferentiated connective tissue disease and it has been a challenge !...

maddy02

•9 years ago

3 Replies

ESA assessments

Hi,im Andrew,i have Lupus,scored 0/15 on my assessment,the `medical professional` lied among other things,my 15 minutes walking turned into 15 minutes,the...

Hi,im Andrew,i have Lupus,scored 0/15 on my assessment,the `medical professional...

RAZ76

•9 years ago

9 Replies

Rheumatology appointment update

Since I previously posted how nervous I was, I thought I'd let you know how I got on at my 2nd rheumatology appointment last week. Since ALL my bloods came...

Since I previously posted how nervous I was, I thought I'd let you know how I go...

Hidden

•9 years ago

4 Replies

Repeat hydroxy prescriptions after 3 months don't get caught short

Love the NHS but here's something to be aware of - I was caught up in red tape this week and went without my hydroxy for a few days with a lot of chasing...

Love the NHS but here's something to be aware of - I was caught up in red tape t...

Hidden

•9 years ago

7 Replies

Rheumatology appointment

Finally got my rheumy appointment next week. Any tips on getting the best from the short time you get with the consultant? Im going to try and compile a...

Finally got my rheumy appointment next week. Any tips on getting the best from ...

Howsaboutit

•9 years ago

32 Replies

Lupus

So i got my results back from my lumbure puncture and it was normal except I have 4 obligoclonal bands im so scared and nervous does anyone know what this...

So i got my results back from my lumbure puncture and it was normal except I hav...

Mariar

•9 years ago

14 Replies

UCTD at uni

Hi there I've recently been diagnosed and I'm having a pretty rough time :/ Im taking Plaquenil which seems to help a bit. I've been taking it for about 4-5...

Hi there I've recently been diagnosed and I'm having a pretty rough time :/ Im ...

Sunflowergirl94

•9 years ago

7 Replies

Esa

I hate esa was on it for depression and my bk simce fed went for my med i got 9 points and the doctor lied about it what she put so i failled but the 9 points...

I hate esa was on it for depression and my bk simce fed went for my med i got 9 ...

essexgal7

•9 years ago

9 Replies

What to do now ?

Hi all I have had lupus symptoms for 3.5 years skin biopsy taken lichen planus. I have extreme joint pain hair loss skin rashes dry mouth livedo light...

Hi all I have had lupus symptoms for 3.5 years skin biopsy taken lichen planus. ...

paula1969

•9 years ago

6 Replies

Vertigo... Help!

Has anyone had really bad vertigo? I've had it over a week now, went to hospital on sat and was given some tablets but they haven't worked so am going back to...

Has anyone had really bad vertigo? I've had it over a week now, went to hospita...

natal1a

•9 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2015

Lacri-lube - Allergan

Am I in a flare up

advice please

Hoarse voice

Hydroxychloroquine (lactose free)

Benefits.

Mycophenolate

Wanting answers

Knee problems

New wine

Azathioprine

Lupus sle

Pain after esi

Private consultation

are you managing chronic vertigo and trying to understand your diagnosis?

Fibromyalgia

Sle /heart attack

Pain

~ swelling to face, hands, legs and feet.

Jaw pain

Rash

ESA assessments

Rheumatology appointment update

Repeat hydroxy prescriptions after 3 months don't get caught short

Rheumatology appointment

Lupus

UCTD at uni

Esa

What to do now ?

Vertigo... Help!

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