Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,687 members • 28,070 posts

All posts for October 2015

Hi can anyone tell me how ...long

It takes hydroxide to leave the body? Thank you in advance.

flossy1

•8 years ago

2 Replies

Neck pain and numb thumb

Hi All Just after a bit of knowledge from you all. I have been taking steroids for about 11 months now at 7mg/day. I take hydroxy at 400mg/day for about 5...

Hi All Just after a bit of knowledge from you all. I have been taking steroids ...

Claire12

•8 years ago

2 Replies

High C3 and C4 results?

Does anyone know why I should have very high levels of the above? In over 25 years of living with SLE I have never had high results, usually my results are the...

Does anyone know why I should have very high levels of the above? In over 25 yea...

InSpain

•8 years ago

5 Replies

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What would be the next step?

Hello all! I was diagnosed in May 2014 but docs feel Lupus was triggered by the birth of my son in 2012. I have been in a flare for almost five years. I've...

Hello all! I was diagnosed in May 2014 but docs feel Lupus was triggered by the ...

nerossa

•8 years ago

12 Replies

I dont know everything but i know a small bit

Hi everyone. For those of you who have lupus. You will never know everything about it. My mother died of lupus at the age of 44. She never. Drank.smoked. lived...

Hi everyone. For those of you who have lupus. You will never know everything abo...

yvonnetowie1

•8 years ago

9 Replies

Bit shocked

Oh dear, got to visit primary care at ten, blood in urine and pain in lower tummy, never had this before but think a few lupies have suffered this. Trying hard...

Oh dear, got to visit primary care at ten, blood in urine and pain in lower tumm...

KarenC

•8 years ago

8 Replies

Rituximab

Is there any one that can tell me abit about this drug?! Specialist think it's the best thing for me at the minute because now Iv got discoid as well as SLE....

Is there any one that can tell me abit about this drug?! Specialist think it's t...

LillyAlfie

•8 years ago

12 Replies

I am on fire!

I feel like I am burning up under my skin but I don't have a fever. Does anyone else get this? At night I sleep sometimes with ceiling fan on plus a small...

I feel like I am burning up under my skin but I don't have a fever. Does anyone...

ac489

•8 years ago

23 Replies

Help the development of a new study investigating decisions about pregnancy for lupus patients.

UCL are interested in investigating the reasons for some female ‪‎lupus‬ patients choosing not to have children and need your help to design the study. If you...

UCL are interested in investigating the reasons for some female ‪‎lupus‬ patient...

Paul_Howard

Partner•8 years ago

5 Replies

O.A ?

Has anyone else been told they have onset of O.A at a younger age.i am 39

amandajane76

•8 years ago

15 Replies

Confused

Hi. I am confused and any replies would be helpful. I have been diagnosed with SLE and have started Hydroxy. My ANA was positive Titre 1: 160 and DS DNA...

Hi. I am confused and any replies would be helpful. I have been diagnosed with S...

maybehope

•8 years ago

8 Replies

Lupus symptoms

I'm 52 recently post menopause. Started having heart arrhythmias, pleursy, butter fly rash. Diagnosed with Raynaud's yrs ago. Feet and hands cold on warm days....

I'm 52 recently post menopause. Started having heart arrhythmias, pleursy, butte...

Tinka10753

•8 years ago

11 Replies

H is for......

H is for....... Half term no rest time then for a week. Horrendous reaction to new meds. Hand splint added to list of NHS designer wear. Hour delay waiting...

H is for....... Half term no rest time then for a week. Horrendous reaction to...

littleeffie

•8 years ago

13 Replies

Not confirmed Lupus yet

Hi, I haven't been officially diagnosed yet but tested positive in ANA blood test. Almost two years ago, I was having extreme exhaustion which doctor claimed...

Hi, I haven't been officially diagnosed yet but tested positive in ANA blood tes...

ac489

•8 years ago

14 Replies

Lupus and benefit

Hi I have lupus and I am wondering if I would be entitled to any form of disability I'm only 16 . I was wondering about pip . As someone had mentioned it to...

Hi I have lupus and I am wondering if I would be entitled to any form of disabil...

LouLamb

•8 years ago

13 Replies

Pain in fingers

Hi there, does anyone else get painful fingers and fat looking knuckles. My fingers hurt a lot in the night and become very stiff. Also i,m getting clusters of...

Hi there, does anyone else get painful fingers and fat looking knuckles. My fing...

smellie

•8 years ago

19 Replies

Hair loss, itchy and painful scalp.

I am having a hard time sleeping coz of itchy scalp and pain. I also have hair loss which I have noticed whilst I washed the hair. it's falling off in big...

I am having a hard time sleeping coz of itchy scalp and pain. I also have hair l...

Pipido36

•8 years ago

18 Replies

Do you also have days when you seem to drop EVERYTHING?

ARGH!!!!! Some days I swear the part of my brain that deals with motor function doesn't want to work, its like my brain forgets I have something in my hand....

ARGH!!!!! Some days I swear the part of my brain that deals with motor function...

AutumnSun

•8 years ago

31 Replies

Recently Diagnosed and So Joined

After a long period of illness, I have recently been diagnosed with SLE. I've started on the Hydroxy. Any kind of steroids are out of the question as I have...

After a long period of illness, I have recently been diagnosed with SLE. I've st...

Lupyknit

•8 years ago

10 Replies

ESA Appeal Hearing

Has anyone been to an appeal hearing and got any advice to offer me? I have mine next week, I know what I am planning to say and am representing myself but...

Has anyone been to an appeal hearing and got any advice to offer me? I have min...

Galaxy2

•8 years ago

7 Replies

Cognitive impairment

Hi all, I joined this site last night after being recommended by a member I met at a Lupus Coffee Morning at Basildon Hospital. I've a feeling it's going to be...

Hi all, I joined this site last night after being recommended by a member I met ...

Alison-Brown

•8 years ago

26 Replies

Feeling fed up

We moved house at the end of August and I thought I was doing really well on the LDN (Low Dose Naltrexone), but evidently I borrowed too many 'spoons ' and now...

We moved house at the end of August and I thought I was doing really well on the...

Maya23

•8 years ago

12 Replies

Human parvovirus B19

Has anyone come across a connection with SLE and human parvovirus? I've just had a letter from my rheumatologist to say I've tested positive for it, but was...

Has anyone come across a connection with SLE and human parvovirus? I've just had...

Sarah777

•8 years ago

8 Replies

The MTHFR gene: Have you run into this?

A relative in the States was just on the phone updating me re progress in the diagnosis of another relative's autoimmune condition. He is being investigated...

A relative in the States was just on the phone updating me re progress in the di...

Barnclown

•8 years ago

10 Replies

Weganers

I have SLE,but before being diagnosed my rheumy questioned weganers,I can't get rid of sinus problems,despite 4 ops and ENT surgeon said surgery won't help...

I have SLE,but before being diagnosed my rheumy questioned weganers,I can't get ...

Jeffscott69

•8 years ago

1 Reply

Colchicine

Hi everyone I have been put on the anti- inflammatory Colchicine to treat the Lupus Chest Pain. I would love to read your experiences with taking it, did it...

Hi everyone I have been put on the anti- inflammatory Colchicine to treat the Lu...

misty14

•8 years ago

4 Replies

What Sort of work do you do?

Just reading through some of the threads and there seems to be a lot of health care professionals with connective tissue diseases / lupus Obviously it can be...

Just reading through some of the threads and there seems to be a lot of health c...

Howsaboutit

•8 years ago

34 Replies

Nope. No Way.Never again!

After today I am not going to ignore my gut instinct and listen to specialist consultants when medication is concerned. I have previously posted about my...

After today I am not going to ignore my gut instinct and listen to specialist co...

littleeffie

•8 years ago

18 Replies

Diagnosed

Hi guys, new to this site. I was diagnosed with SLE in 2013. I looked back through blood test results and noted my antinuclear antibody in 2005 was very high...

Hi guys, new to this site. I was diagnosed with SLE in 2013. I looked back throu...

Fats1963

•8 years ago

4 Replies

Daughter with autoimmune probs

My 21 year old daughter has been worked up for Lupus for years. Her rheum says she has something autoimmune but no definitive diagnosis yet. She's on plaquenil...

My 21 year old daughter has been worked up for Lupus for years. Her rheum says s...

Worriedmamahere

•8 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for October 2015

Hi can anyone tell me how ...long

Neck pain and numb thumb

High C3 and C4 results?

What would be the next step?

I dont know everything but i know a small bit

Bit shocked

Rituximab

I am on fire!

Help the development of a new study investigating decisions about pregnancy for lupus patients.

O.A ?

Confused

Lupus symptoms

H is for......

Not confirmed Lupus yet

Lupus and benefit

Pain in fingers

Hair loss, itchy and painful scalp.

Do you also have days when you seem to drop EVERYTHING?

Recently Diagnosed and So Joined

ESA Appeal Hearing

Cognitive impairment

Feeling fed up

Human parvovirus B19

The MTHFR gene: Have you run into this?

Weganers

Colchicine

What Sort of work do you do?

Nope. No Way.Never again!

Diagnosed

Daughter with autoimmune probs

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