Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for July 2015

Male aged 71. Married for 46 years. Two daughters and one smashing granddaughter. Retired at age 55 - was involved as business consultant.

Diagnosed with SLE in November 2014. Some problems with medication, particularly when reducing amount of steroids to zero as this resulted in chronic adrenal...

Diagnosed with SLE in November 2014. Some problems with medication, particularly...

gogspr

•9 years ago

6 Replies

Sugar, Pasta, White Flour and White Bread.

Could these food items be to blame for my flare up? I read somewhere that if you omit these four white foods you will notice improvement. It all gets a bit...

Could these food items be to blame for my flare up? I read somewhere that if you...

Razoo

•9 years ago

6 Replies

Tightening of scars, uctd? What the heck?

I keep thinking I got a handle on what I'm doing here but I realise I've stuck my head in the sand about how sick I am. I aint as tough as I used to be I have...

I keep thinking I got a handle on what I'm doing here but I realise I've stuck m...

cctexan

•9 years ago

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pain in feet

Does anyone in here with lupus get pain on the balls of your feet that make it too uncomfortable to walk around the house without shoes on? My feet feel very...

Does anyone in here with lupus get pain on the balls of your feet that make it t...

silverbeatl

•9 years ago

28 Replies

It's been a long time but hello! Flare up - Sjorgen's?

Well, I was on this forum a while back. Took a break because I had no diagnosis of Lupus and put it all down to my 'state of mind' again... But I am back...

Well, I was on this forum a while back. Took a break because I had no diagnosis ...

trueman

•9 years ago

16 Replies

Are these signs?

I have recently (past month) been experiencing awful joint/bone(?) pain especially in the hip, sweating during the night but being cold a lot of time during...

I have recently (past month) been experiencing awful joint/bone(?) pain especial...

Holliee

•9 years ago

16 Replies

Malar Rash with Shaving

I hope that you are all as well as well can be. I have never had/suffered from the infamous malar rash. However, whenever I shave (not in the sun, though) one...

I hope that you are all as well as well can be. I have never had/suffered from t...

Adam2014

•9 years ago

4 Replies

Rituximab side effects

Hi. I had rituximab infusions in feb for ra and was wondering has anyone experienced diarhea as a side effect. I have had it for a few weeks now with stomach...

Hi. I had rituximab infusions in feb for ra and was wondering has anyone experie...

jeanette60

•9 years ago

4 Replies

Leg pain

Hi all, question? Does anyone else suffer with leg pain at night? Almost as soon as I get in to bed my legs start to play up, sometimes it's just twitching...

Hi all, question? Does anyone else suffer with leg pain at night? Almost as so...

bluefingers

•9 years ago

21 Replies

Imuran related pain

Has anyone experienced pain just under ribs or achy hips, back, and legs while on Imuran. I recently upped dose from 50mg to 100 and have been getting weird...

Has anyone experienced pain just under ribs or achy hips, back, and legs while o...

Roanna

•9 years ago

4 Replies

Feeling Frustrated

Hi, Had an acute lupus flare up nearly 4 months ago. I had a red fiery rash all over my body which has now died down and left me with blotchy marks on my body...

Hi, Had an acute lupus flare up nearly 4 months ago. I had a red fiery rash all...

Louise0802

•9 years ago

5 Replies

Extreme period pains - anyone else

I just wondered if other people suffer very extreme and debilitating period pains? No idea if it's anything to do with Lupus, but prior to getting Lupus...

I just wondered if other people suffer very extreme and debilitating period pain...

yakamalayo

•9 years ago

8 Replies

Objective Chronic Fatigue questionnaire

I just found this link on the Vasculitis forum...it is from the Crohn's & Colitis site and was developed for providing a more objective measurement of fatigue...

I just found this link on the Vasculitis forum...it is from the Crohn's & Coliti...

Barnclown

•9 years ago

9 Replies

Recently diagnosed with Sarcoid, don't be fobbed off by Drs.

I was diagnosed with Sarcoidosis of lungs and liver about 6 yrs ago. Have been really fit and healthy because I played tennis three times + a week, the only...

I was diagnosed with Sarcoidosis of lungs and liver about 6 yrs ago. Have been r...

sandrainaustralia

•9 years ago

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Do immunosuppressants and sushi mix?

Hey guys a bit if a random question. Met up with a friend at Yo Sushi and had a lovely catch up which was nice because I don’t get to go out that often....

Hey guys a bit if a random question. Met up with a friend at Yo Sushi and had ...

wotshernameagain

•9 years ago

3 Replies

Being brave and talking about my lupus this morning eek!

Morning all I just wanted to share that this morning, I will be talking to a group of people at my workplace about lupus eeeek! I started my job in January...

Morning all I just wanted to share that this morning, I will be talking to a gr...

natal1a

•9 years ago

7 Replies

We want to hear your stories about changes in your diet or eating habits

For July and August we would like to invite you to share any experiences you may have of changing your diet or eating habits to try and manage your lupus. The...

For July and August we would like to invite you to share any experiences you may...

Paul_Howard

Partner•9 years ago

6 Replies

Bupa

Hi has anyone seen a good rhymatologist in the cheshire area please. Cannot wait for gp to refer me. Thanks

Hi has anyone seen a good rhymatologist in the cheshire area please. Cannot wait...

paula1969

•9 years ago

8 Replies

Lupus and hypothyroidism.

I have had lupus for at least ten years and hypothyroid symptoms for at least three years although the blood tests have only just shown abnormal. I think there...

I have had lupus for at least ten years and hypothyroid symptoms for at least th...

johare

•9 years ago

17 Replies

LDH (lactate dehydrogenase)

Hi all, I have just had a follow up blood test to check my LDH levels as they were elevated to 418 last test (normal levels are between 105-333). Just wanted...

Hi all, I have just had a follow up blood test to check my LDH levels as they we...

Queencara78

•9 years ago

7 Replies

Sweating

I have been having extreme bouts with sweating, I mean really bad. I can being sitting and not moving and it just pours and it happen every day. Input would be...

I have been having extreme bouts with sweating, I mean really bad. I can being s...

ryoung-7330

•9 years ago

9 Replies

Not sure what to do now? Stay with local hospital or move?

I asked my GP to refer me to Leeds as I did not feel my local hospital were looking after me. I never saw the same person twice and although I should have seen...

I asked my GP to refer me to Leeds as I did not feel my local hospital were look...

Gymbabe

•9 years ago

4 Replies

High Liver readings

Hi, I've had a 'fatty liver' for over 20 years without and treatment. Due to my Lupus (also have Fibromyalgia with a few other complications) I have regular...

Hi, I've had a 'fatty liver' for over 20 years without and treatment. Due to m...

Iona467

•9 years ago

10 Replies

Advice re tetracycline

I have Lupus and now also rosacea. Topical treatment has only been moderately successful and antibiotics are now under consideration. No 1 choice would be...

I have Lupus and now also rosacea. Topical treatment has only been moderately s...

MrsMouseSJ

•9 years ago

3 Replies

New tablets

Hi all I went back to my specialist yesterday as I have discoid lupus which is making my face very painful to the point the sores are even bleeding at the...

Hi all I went back to my specialist yesterday as I have discoid lupus which is ...

steffie_steph03

•9 years ago

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Beetroot Benefits

Just some info on Beets.

Razoo

•9 years ago

1 Reply

Hi everyone I'm a newbie :) sorry can't find a heading for back problems

Anyone got any ideas what's wrong with me :( been having lower back pain , pins and needles in legs right down to toes , heavy muscle at top of left leg can't...

Anyone got any ideas what's wrong with me :( been having lower back pain , pins ...

Paisleymiller1

•9 years ago

11 Replies

Shrinking Lungs Disease

I've just been diagnosed with shrinking lungs disease, does anyone out have it? Or can you tell me about it. I'm on Plaqunil they want to change my meds, to...

I've just been diagnosed with shrinking lungs disease, does anyone out have it? ...

lupylulu

•9 years ago

2 Replies

Lupus support group on Facebook

https://www.facebook.com/lupus.support.eachother Please copy and paste this link. It's a new Facebook page I have made for all lupus suffering in or around...

https://www.facebook.com/lupus.support.eachother Please copy and paste this lin...

blondie22

•9 years ago

1 Reply

Beetroot

Well I'm back, I have the recipe. 1 Large Beetroot 1 Medium Carrot 1 Large Granny Smith Apple( red apples are fine to) 3 Lemons Some Honey to sweeten. Grate...

Well I'm back, I have the recipe. 1 Large Beetroot 1 Medium Carrot 1 Large Grann...

Razoo

•9 years ago

12 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2015

Male aged 71. Married for 46 years. Two daughters and one smashing granddaughter. Retired at age 55 - was involved as business consultant.

Sugar, Pasta, White Flour and White Bread.

Tightening of scars, uctd? What the heck?

pain in feet

It's been a long time but hello! Flare up - Sjorgen's?

Are these signs?

Malar Rash with Shaving

Rituximab side effects

Leg pain

Imuran related pain

Feeling Frustrated

Extreme period pains - anyone else

Objective Chronic Fatigue questionnaire

Recently diagnosed with Sarcoid, don't be fobbed off by Drs.

Do immunosuppressants and sushi mix?

Being brave and talking about my lupus this morning eek!

We want to hear your stories about changes in your diet or eating habits

Bupa

Lupus and hypothyroidism.

LDH (lactate dehydrogenase)

Sweating

Not sure what to do now? Stay with local hospital or move?

High Liver readings

Advice re tetracycline

New tablets

Beetroot Benefits

Hi everyone I'm a newbie :) sorry can't find a heading for back problems

Shrinking Lungs Disease

Lupus support group on Facebook

Beetroot

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