Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,716 members • 28,082 posts

All posts for July 2015

Finally..

Okay, I know I might be 'jumping the gun' here but went for a follow up with GP today and my dentist - and GP agrees I need to be tested for Sjorgens. So he is...

Okay, I know I might be 'jumping the gun' here but went for a follow up with GP ...

trueman

•9 years ago

11 Replies

I have never missed work in two years

I'm just so tired, and hurt. I have a week of days and then a week of nights. I can't afford to go part time. If I could sleep it would help , but as we know...

I'm just so tired, and hurt. I have a week of days and then a week of nights. I...

clarelsmith

•9 years ago

6 Replies

Bad day

If the lupus rash wasn't enough my acne has flared up as well 😢. Sick of not being able to to go out with my mates because of my tablet scheme don't wanna be...

If the lupus rash wasn't enough my acne has flared up as well 😢. Sick of not be...

Hidden

•9 years ago

3 Replies

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July's Blog - Debra's experience of changing diet

For July and August we have invited people living with lupus to share their experiences of changing diet and lifestyle. This month's story comes from Debra...

For July and August we have invited people living with lupus to share their expe...

Paul_Howard

Partner•9 years ago

5 Replies

Help.. terrible night. What do I do next?

Hi, I hope you don't mind posting a bit of a panic post. I think I have scared myself and perhaps need some perspective! Last night I woke up wheezing quite...

Hi, I hope you don't mind posting a bit of a panic post. I think I have scared m...

trueman

•9 years ago

8 Replies

Tinnitus

Does anyone else have ringing in the ears? Is this linked to Lupas? I've had it for 10 years, but am used to it.

Does anyone else have ringing in the ears? Is this linked to Lupas? I've had it ...

Razoo

•9 years ago

27 Replies

Carpul tunnel

Had my test on Monday for carpul tunnel results should be back in about a week or so....have been diagnosed with fibro and raynauds but blood results for CTD...

Had my test on Monday for carpul tunnel results should be back in about a week o...

kazhodluckymilo17

•9 years ago

10 Replies

Wrinkly fingers

I've raynauds my fingers tips are all wrinkled like I've been in the bath for a long time , severe hair loss , burning tingly feeling in my hands and lower...

I've raynauds my fingers tips are all wrinkled like I've been in the bath for a ...

Hidden

•9 years ago

10 Replies

Thyroid

Hi there just ad rests from thyroid blood test 0.14. (0.27-4.20miu/l serum tag level Serum free t4 level 19.5 pmol/L (13.10-21.30 pmol/L Doctor told me...

Hi there just ad rests from thyroid blood test 0.14. (0.27-4.20miu/l serum ...

Chance15

•9 years ago

1 Reply

Do you suffer from occasional wheezing? Not asthma related.

Sorry I'm asking questions today. Just trying to figure out what may be/ may not be part of Lupus/Sjorgens or what could be a part of it. I have this as yet...

Sorry I'm asking questions today. Just trying to figure out what may be/ may not...

trueman

•9 years ago

1 Reply

Does my daughter have Lupus?

My daughter is 15 months old. About 2 weeks ago she developed a spot right on the bridge of her nose. At first I thought it was eczema starting up (she's had...

My daughter is 15 months old. About 2 weeks ago she developed a spot right on th...

Daisy_flower83

•9 years ago

16 Replies

When you have a flare up what are the two things that bother you most usually?

Just interested to know which two things bother you most when you have a flare up? And how long your flare ups usually last? Thank you :)

Just interested to know which two things bother you most when you have a flare u...

trueman

•9 years ago

13 Replies

So fatigued,I feel like I'm being held down with weights!!

I woke up this morning feeling like I was held down with weights it took me 2-3 hours to get out the bed . But last night was brutal .. Both knees red, hot and...

I woke up this morning feeling like I was held down with weights it took me 2-3 ...

winterbaby07

•9 years ago

6 Replies

Muscle & joint pains

Good evening all. I've been a "silent" member shy of a year now & this forum has proven to be of a comfort to me mentally & emotionally. I'm 35y/o & was...

Good evening all. I've been a "silent" member shy of a year now & this forum has...

Taurion

•9 years ago

10 Replies

Liver function

Hi all I have been taken of warfarin for multiple PE on both lungs and put on Riviaxoban, this has been since Sept 2014, now I have low liver function need to...

Hi all I have been taken of warfarin for multiple PE on both lungs and put on Ri...

lucybelle

•9 years ago

2 Replies

I just want people to understand !

New to this Web site thing , don't do self deprivation , but need some support. My partner is brill but I hurt and all meds cause problems , I'm 46 and...

New to this Web site thing , don't do self deprivation , but need some support....

clarelsmith

•9 years ago

7 Replies

But you look so well

This is a picture of me on a cruise with my family. We went to the Canary Islands in June. I use ambulatory oxygen but I took it off for the photo while I...

This is a picture of me on a cruise with my family. We went to the Canary Island...

Maureenpearl

•9 years ago

14 Replies

Upset and Frustrated!!

I'm feeling really down and frustrated. I've just had my appointment with neurology today and I was really hoping for an explanation for all the pain I'm in,...

I'm feeling really down and frustrated. I've just had my appointment with neurol...

Maya23

•9 years ago

11 Replies

Holy iron infusion, Batman!

Had my first infusion today - they gave me the quicker (more expensive) version due to potential issues with the longer version. Within a few minutes I was...

Had my first infusion today - they gave me the quicker (more expensive) version ...

Silvergilt

•9 years ago

14 Replies

Eye question

With Sjorgens and the dry eyes... Do you feel it most in the morning? Through night? I feel like it's difficult to open my eyelids properly and takes about...

With Sjorgens and the dry eyes... Do you feel it most in the morning? Through ni...

trueman

•9 years ago

7 Replies

Bones hurt

Woke this morning and all my bones hurt....I am on holiday in Spain and think it's the heat that's done this....I've been very careful not to sit in direct sun...

Woke this morning and all my bones hurt....I am on holiday in Spain and think it...

pjsmith0700

•9 years ago

7 Replies

Feeling drained with lupus

Symptoms still ongoing sore hips and joints Pain keeping me awake at night and feeling tired like iv ran a marathon all the time and feeling all over ill and...

Symptoms still ongoing sore hips and joints Pain keeping me awake at night and f...

andreabm

•9 years ago

8 Replies

Fibromyalgia or Lupus??

Hi my first rheumatologista ppt back in June said maybe fibromyalgia not lupas! Had blood tests done which came back all normal first ones show positive!! Had...

Hi my first rheumatologista ppt back in June said maybe fibromyalgia not lupas! ...

Dawn_mum

•9 years ago

11 Replies

Having a really bad flare

Hi guys I'm having a bad time with my lupus etc....Went to see my gp a few weeks ago and he faxed my consultant straight away coz I am quite swollen and have...

Hi guys I'm having a bad time with my lupus etc....Went to see my gp a few weeks...

Lisa78

•9 years ago

7 Replies

lupus rash 2

hi this is when my lupus is covered up .my doctor referred me to changing faces as i was getting depressed with everyone staring at me & avoiding me in case...

hi this is when my lupus is covered up .my doctor referred me to changing faces ...

charmaineholmes

•9 years ago

11 Replies

lupus rash 1

hi I've been suffering over a year with my rash. I wanted to share what changing faces can do to help camouflage it. I have over the past year tried different...

hi I've been suffering over a year with my rash. I wanted to share what changing...

charmaineholmes

•9 years ago

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SLE and Fibromyalgia

Hi. I've had SLE for 27 years. I am currently in a rather bad flare. The worst I've ever had! For about a month or more I wake up feeling like I've been...

Hi. I've had SLE for 27 years. I am currently in a rather bad flare. The worst ...

Mamasibby

•9 years ago

36 Replies

Potential cure?

http://www.healthline.com/health-news/scientists-cure-lupus-in-mice-021115 Saw this link today, not holding my breath but fingers crossed for our future dear...

http://www.healthline.com/health-news/scientists-cure-lupus-in-mice-021115 Saw ...

Hidden

•9 years ago

11 Replies

Lupus SLE

Hey, so I'm new to this /: I have Lupus SLE, I was diagnosed on the third of February this year when i was 19, ive recently turnt 20.. ever since i started...

Hey, so I'm new to this /: I have Lupus SLE, I was diagnosed on the third of Feb...

bethArnold

•9 years ago

7 Replies

Sick & Tired of being sick & tired

Hello. I am a 25 year old female who has suffered with various health problems all my life. I have an underactive thyroid which I take 75mg levothyroxine...

Hello. I am a 25 year old female who has suffered with various health problems a...

Rachel1989

•9 years ago

4 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for July 2015

Finally..

I have never missed work in two years

Bad day

July's Blog - Debra's experience of changing diet

Help.. terrible night. What do I do next?

Tinnitus

Carpul tunnel

Wrinkly fingers

Thyroid

Do you suffer from occasional wheezing? Not asthma related.

Does my daughter have Lupus?

When you have a flare up what are the two things that bother you most usually?

So fatigued,I feel like I'm being held down with weights!!

Muscle & joint pains

Liver function

I just want people to understand !

But you look so well

Upset and Frustrated!!

Holy iron infusion, Batman!

Eye question

Bones hurt

Feeling drained with lupus

Fibromyalgia or Lupus??

Having a really bad flare

lupus rash 2

lupus rash 1

SLE and Fibromyalgia

Potential cure?

Lupus SLE

Sick & Tired of being sick & tired

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