Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for June 2015

Fitness!!! (And Lupus)

So, I have Lupus and as a result was put on steroids. I quickly gained three stone (eugh) but am now so so nearly off them I think I can start properly trying...

So, I have Lupus and as a result was put on steroids. I quickly gained three sto...

barkers17

•9 years ago

5 Replies

Vit d low

Hi all. Just an update i am treated for lichen planus but have alot of lupus symtems iv had bone xray got bone scan next week and just got hospital letter my...

Hi all. Just an update i am treated for lichen planus but have alot of lupus sym...

paula1969

•9 years ago

4 Replies

Lungs

Just had results of lung test.it show some reduction in one of measurements, sometimes associated with inflamation of lungs.it is said to be slight reduction...

Just had results of lung test.it show some reduction in one of measurements, som...

amandajane76

•9 years ago

8 Replies

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anyone with a primary immunodeficiency here?

no firm conclusions have been drawn yet, but it seems i may have SLE + sjogrens & co secondary to a primary immunodeficiency. am being investigated by...

no firm conclusions have been drawn yet, but it seems i may have SLE + sjogrens ...

Barnclown

•9 years ago

6 Replies

Failed synacthen test

Hello everyone, I have been on various doses of prednisolone since diagnosis 20 years ago. Even though I'm on cellcept and plaquenil I have never managed to...

Hello everyone, I have been on various doses of prednisolone since diagnosis 20...

Bronagh2015

•9 years ago

2 Replies

Feeling fed up

I am exhausted at the moment and getting really frustrated and fed up 😞. I feel as though I have nothing to complain about as my lupus is mild compared to...

I am exhausted at the moment and getting really frustrated and fed up 😞. I feel...

crazyk

•9 years ago

4 Replies

any advice please

HI all i was given a new drug to start 2 weeks ago called rivaroxaban 20mg daily to replace warfarin as i am so unstable on it, However i was a little...

HI all i was given a new drug to start 2 weeks ago called rivaroxaban 20mg daily...

rlupus

•9 years ago

7 Replies

Tired

Hi everybody just a quick note ..just wondering if anybody else gets the symptoms of a tight chest and very achy legs and feet .my tongue is very sore .and I...

Hi everybody just a quick note ..just wondering if anybody else gets the symptom...

barbdockeray

•9 years ago

5 Replies

Just feeling a bit snappy!

Hello Hope everyone is well. Just wondered if anyone ever feels like their mood is a bit strange... Not depression or anxiety as such, just more... Grumpy?...

Hello Hope everyone is well. Just wondered if anyone ever feels like their moo...

natal1a

•9 years ago

6 Replies

Gall Bladder/Lupas

After reading many posts, I've noticed that a lot of you with Lupas have also had your G Bladder removed, asI have to. So is the G B related to the Lupas?...

After reading many posts, I've noticed that a lot of you with Lupas have also ha...

Razoo

•9 years ago

1 Reply

UV/Rain Umbrellas

Hello, Just wondered if anyone has found a UV/rain umbrella at a reasonable price. I would like one that folds up small. I have looked online but they all...

Hello, Just wondered if anyone has found a UV/rain umbrella at a reasonable pri...

Whatamess2

•9 years ago

6 Replies

Help! my pharamacist cant get plaquenil replacement

Hi, I've been on plaquenil for 2 years now after first trying quinoric which affected me badly. I've just spoken to my pharmacist about ordering in the...

Hi, I've been on plaquenil for 2 years now after first trying quinoric which af...

Belee

•9 years ago

21 Replies

Azathioprine. I feel so depressed.

I have recently had another flare. I was doing so well, it was a whole year or more since the last one and I had gone back to work and everything. Well because...

I have recently had another flare. I was doing so well, it was a whole year or m...

zebedee01

•9 years ago

8 Replies

Extreme light sensitivity with my eyes

Hi, one symptom I have is extreme light sensitivity in my eyes, it seems to have worsened recently. I regularly get scleritis. I even struggle indoors and have...

Hi, one symptom I have is extreme light sensitivity in my eyes, it seems to have...

MandaM

•9 years ago

8 Replies

No appetite loss 3lbs in 5 days, am I about to FLARE???????????

Ok so I've been noticing I have no appetite and I lost 3lbs already... My toes, and knee started bothering me last night with unfamiliar pain. Last week I felt...

Ok so I've been noticing I have no appetite and I lost 3lbs already... My toes, ...

winterbaby07

•9 years ago

6 Replies

Iron Injections

After months of feeling like hell on toast and getting nowhere with GP, the rheumy has come to the rescue and is prescribing some iron infusions as I've been...

After months of feeling like hell on toast and getting nowhere with GP, the rheu...

Silvergilt

•9 years ago

16 Replies

Lipomas anyone?

Does anybody else here have Lipomas? I have a huge one and many little lumps under the skin of my arms.

Does anybody else here have Lipomas? I have a huge one and many little lumps und...

Razoo

•9 years ago

6 Replies

Still have HOPE.

I have been googling, I love to Google. You just don't know what's hidden in the pages of this phenomenon. I can't remember what I typed in but it was to do...

I have been googling, I love to Google. You just don't know what's hidden in the...

Razoo

•9 years ago

7 Replies

Confused

Hi everyone, I went for my first rheumatologist appointment last week Awaiting results from blood tests. Does anybody know what happens if you have a negative...

Hi everyone, I went for my first rheumatologist appointment last week Awaiting ...

Dawn_mum

•9 years ago

5 Replies

Palidromic arthritis

Hi I have a question about palidromic arthritis. Can it lead to Lupus or rheumatoid arthritis? There is not alot of info as not much research has been done on...

Hi I have a question about palidromic arthritis. Can it lead to Lupus or rheumat...

Pickle33

•9 years ago

3 Replies

Communication issues

Hi everyone, I'm posting this in the hope of getting relevant advice. Last Fri, I went out for the 1st time in a while with a friend. We went to a Italian...

Hi everyone, I'm posting this in the hope of getting relevant advice. Last Fri,...

magSLE

•9 years ago

32 Replies

Colds, Infections and Phlegm

I hope you are all well (whatever being well means to each individual!). Like many here, I have SLE too. With my SLE, the joints and lungs are the problem...

I hope you are all well (whatever being well means to each individual!). Like m...

Adam2014

•9 years ago

5 Replies

I'm Ok, Lovely people.

Oh my goodness, how special and thankful I am to have this caring group. So I'm logging in to tell you all that I am doing good, my morning text was maybe a...

Oh my goodness, how special and thankful I am to have this caring group. So I'm ...

Razoo

•9 years ago

9 Replies

PIP assesment at home, in 2 weeks!

Help! Is it normal to have an assesment at home? How long do they take? Starting to panic now. I am UDCTD at mo but I think it is progressing towards Lupus now...

Help! Is it normal to have an assesment at home? How long do they take? Starting...

Gymbabe

•9 years ago

5 Replies

Kill me now.

Take the pain away please God.

Razoo

•9 years ago

26 Replies

Plaquenil has changed names

Hi everyone, I was prescribed plaquenil 3 months ago for my palindromic arthritis. Found it made such a difference that I didn't realise how much pain I was...

Hi everyone, I was prescribed plaquenil 3 months ago for my palindromic arthriti...

Pickle33

•9 years ago

7 Replies

First Rituximab Infusion

On Wednesday I was given the first of two Rituximab infusion after waiting over two years for the funding for this drug. I went into my local hospital...

On Wednesday I was given the first of two Rituximab infusion after waiting over ...

Maureenpearl

•9 years ago

20 Replies

wrag - unreasonable demands

urgent reply needed from anyone who can help - i am 58 and have peripheral vascular disease and chronic back problems - i am unable to walk very far at all due...

urgent reply needed from anyone who can help - i am 58 and have peripheral vascu...

rollondeath

•9 years ago

16 Replies

Its All In your Head

and i believed it after suffering bad effects since 1995 i have been told its all in my head......i at that time had white coat syndrome and believed it so i...

and i believed it after suffering bad effects since 1995 i have been told its al...

vansa

•9 years ago

4 Replies

I feel as though I'm overheating!

I just wondered if anyone else finds this? Obviously the weather is warmer but it still happens to a lesser degree on cooler days. When I go out I am...

I just wondered if anyone else finds this? Obviously the weather is warmer but ...

soootired

•9 years ago

11 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2015

Fitness!!! (And Lupus)

Vit d low

Lungs

anyone with a primary immunodeficiency here?

Failed synacthen test

Feeling fed up

any advice please

Tired

Just feeling a bit snappy!

Gall Bladder/Lupas

UV/Rain Umbrellas

Help! my pharamacist cant get plaquenil replacement

Azathioprine. I feel so depressed.

Extreme light sensitivity with my eyes

No appetite loss 3lbs in 5 days, am I about to FLARE???????????

Iron Injections

Lipomas anyone?

Still have HOPE.

Confused

Palidromic arthritis

Communication issues

Colds, Infections and Phlegm

I'm Ok, Lovely people.

PIP assesment at home, in 2 weeks!

Kill me now.

Plaquenil has changed names

First Rituximab Infusion

wrag - unreasonable demands

Its All In your Head

I feel as though I'm overheating!

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