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LUPUS UK

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All posts for June 2015

June's Blog - Bronagh's experience of her first rheumatology appointment

For June we continue sharing their experiences from people with lupus about their first rheumatology appointment. This month's story comes from Bronagh....

For June we continue sharing their experiences from people with lupus about thei...

Paul_Howard

Partner•9 years ago

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Skin Biopsy

Hi everyone It is a while since I posted, basically because I am so fed up with it all. No joy with either Dermatologist or Rheumatologist at my last...

Hi everyone It is a while since I posted, basically because I am so fed up with ...

lorac1

•9 years ago

2 Replies

Lupus/Sjogren and Ugly days!

Hey all Just having one of those days where my hair loss seems to be really noticeable, scalp glaring at me from mirror, weight gain around butt and tummy from...

Hey all Just having one of those days where my hair loss seems to be really noti...

Hidden

•9 years ago

7 Replies

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skin biopsy

If dermatologist did a biopsy of my scalp and said it was psoriasis could they be wrong? Could I still have lupus and they just don't know how to recognize it?...

If dermatologist did a biopsy of my scalp and said it was psoriasis could they b...

silverbeatl

•9 years ago

21 Replies

Frustration

Just found out I carnt start methotrexate until I have had c.t of lungs as breathing test mildly abnormal.could this mean if the c.t show mild abnormalities I...

Just found out I carnt start methotrexate until I have had c.t of lungs as breat...

amandajane76

•9 years ago

2 Replies

Three 'mild' positive Anti DsDNA tests, negative ANA, low C4.. Literally losing my hair!

Hi all, I've posted previously regarding my two positive DsDNA tests, but with negative ANA tests. I was informed by the nurse at Guys that the bloods are...

Hi all, I've posted previously regarding my two positive DsDNA tests, but with n...

jp83

•9 years ago

9 Replies

Plaquenil withdrawal

Hi, Jules! I have just reinstated my full dose of plaquenil after six weeks of being put on half dose. The instant flaring I got in those six weeks was...

Hi, Jules! I have just reinstated my full dose of plaquenil after six weeks of b...

Musicteach

•9 years ago

5 Replies

Feel This Pain: Ehlers-Danlos

Much more than just a "stretchy skin" disease, Ehlers-Danlos is a very painful syndrome with very real consequences for those who have it. #EhlersDanlos...

Much more than just a "stretchy skin" disease, Ehlers-Danlos is a very painful s...

Hidden

•9 years ago

4 Replies

Hydroxychloroquine (plaquenil) withdrawl?

I don't know if anyone can help as this isn't technically lupus related. I've been on plaquenil for 6 months for suspected Sjogren's syndrome (I don't have...

I don't know if anyone can help as this isn't technically lupus related. I've be...

Jules_Essex

•9 years ago

10 Replies

Birthday Party was a success.

So I had the birthday party for my two children, 17 and 24. It was a surprise birthday for my son, as he doesn't live with me, so he flew down thinking he was...

So I had the birthday party for my two children, 17 and 24. It was a surprise b...

Razoo

•9 years ago

1 Reply

Hi im new to forum

Hi everyone i am new to the forum i have many health issues i have COPD, OSTEROARTHRITIS in hands feet and knees. In 2012 my health took another bashing i was...

Hi everyone i am new to the forum i have many health issues i have COPD, OSTEROA...

corfu

•9 years ago

3 Replies

Choice??

The hardest aspect of having so many painful and debilitating symptoms that are mostly undiagnosed is the fact that many people, medically trained or not,...

The hardest aspect of having so many painful and debilitating symptoms that are ...

Lizzy_G

•9 years ago

12 Replies

weight gain

Does Plaquenil cause weight gain?

silverbeatl

•9 years ago

6 Replies

Feel This Pain: Lupus

My sincere thanks to Molly's Fund Fighting Lupus for letting me use the information from their site for my video. :-) "While lupus is not well known or...

My sincere thanks to Molly's Fund Fighting Lupus for letting me use the informat...

Hidden

•9 years ago

16 Replies

Thyroid

Hi to one and all, just a quick question do many suffer from thiroid problems, high blood levels and how long should you wait before taking medication....

Hi to one and all, just a quick question do many suffer from thiroid problems, h...

ftjftj63

•9 years ago

2 Replies

Does anybody have colitis?

Does anybody have colitis? My GP thinks I may have it,just wondered what your symptoms are and what treatment you have for it?

Does anybody have colitis? My GP thinks I may have it,just wondered what your sy...

mum-two

•9 years ago

6 Replies

how does your livedo reticularis behave?

hello all....have been noticing that my version of livedo reticularis has been flaring up & down much more since i stopped daily hydroxy last feb (when my head...

hello all....have been noticing that my version of livedo reticularis has been f...

Barnclown

•9 years ago

11 Replies

Prdensolon

How long are any one with Lupus given Prdensolon for my GP can't do maths I have had only 3 days of Prdensolon they can't do the math as the dose they have...

How long are any one with Lupus given Prdensolon for my GP can't do maths I hav...

AngelADark

•9 years ago

2 Replies

subacute cutaneous lupus

Just a query really, can the skin rash itch with SCLE, mine has never itched but recently where the rash is i itch like mad. looking on the web its states...

Just a query really, can the skin rash itch with SCLE, mine has never itched but...

madhead

•9 years ago

13 Replies

Teesside Lupus support group meeting

Apologies: The meeting has been cancelled due to unforseen circumstances. Will be informed of the next meeting date.

Apologies: The meeting has been cancelled due to unforseen circumstances. Will ...

Pipido36

•9 years ago

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Summer weather????

So my question is do any of you have a harder time once summer hits even if you stay inside? I had lupus symptoms for years but thought they were normal as I...

So my question is do any of you have a harder time once summer hits even if you ...

Terrier_Lady

•9 years ago

8 Replies

Zentiva Supply Issues - We Need Your Help

If you have had difficulty obtaining Hydroxychloroquine Sulphate tablets produced by Zentiva from your pharmacist, can you please email paul@lupusuk.org.uk...

If you have had difficulty obtaining Hydroxychloroquine Sulphate tablets produce...

Paul_Howard

Partner•9 years ago

17 Replies

Caffeine Makes Me Tired

So I recently got into coffee, it startet with just a little, but now I'm drinking large amouts of it ( so much that I don't actually know how much) but I...

So I recently got into coffee, it startet with just a little, but now I'm drinki...

The_VIP_Gentleman

•9 years ago

2 Replies

When best time of day to take plaquenil?

Hello I have just been reading that plaquenil can cause insomnia and nightmares which I suffer with. I take my plaquenil with my evening meal. When is the...

Hello I have just been reading that plaquenil can cause insomnia and nightmares...

Whatamess2

•9 years ago

6 Replies

Anxiety and Plaquenil

Has anyone experienced mood changes/anxiety/depression while taking Plaquenil? I started on plaquenil July 2014. Last several months, I have been struggling...

Has anyone experienced mood changes/anxiety/depression while taking Plaquenil? ...

Onslow315

•9 years ago

36 Replies

Teesside Lupus support group meeting on the 27 June 2015

Hi everyone Just a reminder of the meeting on Saturday 27 June from 12.45 to 3.45 at Thornaby Library st the Pavillion. If you are attending inbox me. Thanks

Hi everyone Just a reminder of the meeting on Saturday 27 June from 12.45 to 3....

Pipido36

•9 years ago

2 Replies

Blood test results

Hi, hoping that someone can advise. I have just returned from an urgent appointment with my GP as my potassium results from blood taken earlier today were...

Hi, hoping that someone can advise. I have just returned from an urgent appoi...

Fennella02

•9 years ago

9 Replies

Out of spoons by end of day

Hi all...I know I have tested negative through blood work, but I know that something is still off in my body. Wanted to reach out to the community to get...

Hi all...I know I have tested negative through blood work, but I know that somet...

Natura

•9 years ago

18 Replies

My Rhumatologist

I am on 30mg every morning of Prednisolone my skin is a mess I hope to God my skin clears up as my Rhumy Dr Sanna said I had a neg RNA so he discharged me 10%...

I am on 30mg every morning of Prednisolone my skin is a mess I hope to God my s...

AngelADark

•9 years ago

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Leaving work

Hi, I have had lupus for 23 years since I was 17 years old and fibromyalgia for 21 years, underactive thyroid for 2 years, I also have raynaulds. I have been...

Hi, I have had lupus for 23 years since I was 17 years old and fibromyalgia for ...

loober

•9 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for June 2015

June's Blog - Bronagh's experience of her first rheumatology appointment

Skin Biopsy

Lupus/Sjogren and Ugly days!

skin biopsy

Frustration

Three 'mild' positive Anti DsDNA tests, negative ANA, low C4.. Literally losing my hair!

Plaquenil withdrawal

Feel This Pain: Ehlers-Danlos

Hydroxychloroquine (plaquenil) withdrawl?

Birthday Party was a success.

Hi im new to forum

Choice??

weight gain

Feel This Pain: Lupus

Thyroid

Does anybody have colitis?

how does your livedo reticularis behave?

Prdensolon

subacute cutaneous lupus

Teesside Lupus support group meeting

Summer weather????

Zentiva Supply Issues - We Need Your Help

Caffeine Makes Me Tired

When best time of day to take plaquenil?

Anxiety and Plaquenil

Teesside Lupus support group meeting on the 27 June 2015

Blood test results

Out of spoons by end of day

My Rhumatologist

Leaving work

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