Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2015

What is my condition

Hi unlike the stories I've read here I have not been diagnosed with anything as yet. I have been going to my doctor about my problem for about five years or...

Hi unlike the stories I've read here I have not been diagnosed with anything as ...

•9 years ago

Lupus Awareness / Advertisement - for discussion

There is currently a thread on one of the facebook groups I follow...

There is currently a thread on one of the facebook groups I follow...

•9 years ago

Private specialists Newcastle upon Tyne ? Dr Griffiths?

Does anyone know of a good private lupus specialists in the Newcastle upon Tyne area.... There's apparently Dr Griffiths at freeman NHS hospital but I don't...

Does anyone know of a good private lupus specialists in the Newcastle upon Tyne ...

•9 years ago

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Why are my feet like this..?

i work in a shoe shop were Im constantly on my feet, I can do between 4-8 hours on my feet and after my feet are swollen sore red warm and itchy, I have...

i work in a shoe shop were Im constantly on my feet, I can do between 4-8 hours ...

•9 years ago

Confused

I have been diagnosed with lupus for about a month now, been put on methotrexate and hydrocloraquine apologies for the spelling, but last round of bloods esr...

I have been diagnosed with lupus for about a month now, been put on methotrexate...

•9 years ago

Pip

Hi all,going to see cab today to try appeal my pip claim,I work but still want to,if I awarded pip,I reduce hours,but how can I possibly score points,when I...

Hi all,going to see cab today to try appeal my pip claim,I work but still want t...

•9 years ago

No Faith

Well he's done it again! Went to my GP for a prescription for medication which the rheumatologist was going to ask them to prescribe, only to find out that...

Well he's done it again! Went to my GP for a prescription for medication which t...

•9 years ago

Burning feet

I have Raynards symptoms but I am unsure if the burning sensation I get and the colouring changes are in someway connected to the lace rash on my legs rather...

I have Raynards symptoms but I am unsure if the burning sensation I get and the ...

•9 years ago

Rheumy appointment

Had my appointment on monday last week. My Lupus active and iron elevated ++. Am still struggling with headaches but hope they will soon be better! Still...

Had my appointment on monday last week. My Lupus active and iron elevated ++. Am...

•9 years ago

Professor Khamashta Confirmed Away on Sabbatical.

As some of you may know there has been some confusion about whether Professor Khamashta is away on sabbatical. I can confirm that having spoke to his Secretary...

As some of you may know there has been some confusion about whether Professor Kh...

•9 years ago

Recovering from Lupus

Hi, I'm a Lupie mum - my darling daughter was diagnosed 6 months ago and is doing pretty well, but it's scary. At the moment I do most of the reading and...

Hi, I'm a Lupie mum - my darling daughter was diagnosed 6 months ago and is doin...

•9 years ago

Electric shock pain

Morning, Not in a good place this morning. (I have APS) Yesterday about 4.30pm I started getting electric shock type pains in my right arm muscles. Over the...

Morning, Not in a good place this morning. (I have APS) Yesterday about 4.30pm...

•9 years ago

Discoid lupus

Hi everyone I was diagnosed with discoid lupus about 8 weeks ago I have a bald patch about 1" in diameter and also noticed last week another swelling on scalp...

Hi everyone I was diagnosed with discoid lupus about 8 weeks ago I have a bald p...

•9 years ago

Teesside Lupus support group launch of "Project Change"

We will be launching "Project Change" on the 27th JUNE 2015. If you would like to attend, inbox for more information. Everyone interested is welcome!!! There...

We will be launching "Project Change" on the 27th JUNE 2015. If you would like t...

•9 years ago

New here - looking for a specialist

Hello all, thank you for letting me join your little community :) I've experienced an ever-increasing number of symptoms for more than ten years, and have...

Hello all, thank you for letting me join your little community :) I've experien...

Curious7Curiouser

•9 years ago

Lupus/pulmonary fibrosis

Hi, Im after some advice really. My mum suffered with discoid lupus since 2009, but generally her symptons were quite mild, comparing to others, she was given...

Hi, Im after some advice really. My mum suffered with discoid lupus since 2009,...

•9 years ago

Energy smoothie's

Hi all, has anyone got any tasty recipes for smoothie drink for a bit of an energy boost or for aching joints? Find I'm not really interested in food till late...

Hi all, has anyone got any tasty recipes for smoothie drink for a bit of an ener...

•9 years ago

Is Prof Khamashta going to be away from Guys?

Hi just read someone mention that prof Khamashta is going to dubai for a year?....does anyone know when? I have an appointment in July so if its not going to...

Hi just read someone mention that prof Khamashta is going to dubai for a year?.....

•9 years ago

Advice please

I will try to keep this short.i have been on low dose steroids and pleq for 13 ish years for an unconfirm con tiss disorder.7 years go I was admitted and label...

I will try to keep this short.i have been on low dose steroids and pleq for 13 i...

•9 years ago

Back

Hi i have had a sore back on the right hand side. For 7 month's now I have test s and been to the doctors so many times now. Still have not found what is the...

Hi i have had a sore back on the right hand side. For 7 month's now I have test ...

•9 years ago

Does anyone suffer from corns on balls of feet

I have 5 corns on each foot , painful get them removed every 6 weeks could be doing with getting them removed ever 3 weeks. Walking a misery at times, due to...

I have 5 corns on each foot , painful get them removed every 6 weeks could be do...

•9 years ago

Let down again because blood tests all negative despite many symptoms!

I have just been seen at Guys Hospital....I did not get to see the consultant I wanted (experienced in seronegative lupus) and I have been Let down again...

I have just been seen at Guys Hospital....I did not get to see the consultant I ...

•9 years ago

Fatigue

Afternoon all I am currently in remission and am slowly reducing my medication after being diagnosed almost 2 years ago. My blood results are almost back to...

Afternoon all I am currently in remission and am slowly reducing my medication ...

•9 years ago

Fed up!

So not only did I not get pip (was 2 points of!), which I am appealing, I was told by my manager if I put another sick note in they will start ill health...

So not only did I not get pip (was 2 points of!), which I am appealing, I was to...

•9 years ago

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