Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,830 members • 28,167 posts

All posts for May 2015

Lupus rash?

My official diagnosis is UCTD but the rheumatologist has used the words lupus and Sjögren's syndrome during consultations. Is it possible to have a mild...

My official diagnosis is UCTD but the rheumatologist has used the words lupus an...

jennawings

•9 years ago

10 Replies

Connective tissue

My reumy,still hasn't said what connective tissue is along with my lupus,I don't understand how she doesn't know.I was at ENT surgeon yesterday,had 4 sinus...

My reumy,still hasn't said what connective tissue is along with my lupus,I don't...

Jeffscott69

•9 years ago

10 Replies

PIP award

I thought this may be of interest to some of you..... I applied for PIP on 13th March 2015 after 2+ yrs of on going health issues. I have not been officially...

I thought this may be of interest to some of you..... I applied for PIP on 13th ...

heather1983

•9 years ago

8 Replies

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Circulation

Strange mottling on arms

amandajane76

•9 years ago

6 Replies

Circulation

Wanted to share these pics and see if its common

amandajane76

•9 years ago

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Sar

Hi, I am waiting diagnosis for Lupus and seeing GP on Thursday. I have had 1 out of the 4 autoimmune test but not confirmed what one yet (GP is contacting...

Hi, I am waiting diagnosis for Lupus and seeing GP on Thursday. I have had 1 out...

SMabey

•9 years ago

1 Reply

Dr Sangle

Hi all, I had a mild positive anti dsDNA test in April and professor Khamashta asked me to return in 3 months after repeating the blood tests, my appointment...

Hi all, I had a mild positive anti dsDNA test in April and professor Khamashta a...

jp83

•9 years ago

5 Replies

Frustrated

I am sure that you guys have heard this story over and over but, have all the signs or lupus. I don't think I have read any posts on here that I didn't say me...

I am sure that you guys have heard this story over and over but, have all the si...

vexrll

•9 years ago

9 Replies

Frustrating rash on my nose

Hey there I have had this irritating rash onmy nose for about 9months it flares up and down, and I thought u had it almost completely gone taking all...

Hey there I have had this irritating rash onmy nose for about 9months it flares ...

BINNEY

•9 years ago

4 Replies

Vitamin D Deficiency

I have a follow up appointment with prof Bruce at MRI on Wednesday, when I should get results of numerous tests, and hopefully a diagnosis (Lupus, Hughes,...

I have a follow up appointment with prof Bruce at MRI on Wednesday, when I shoul...

heather1983

•9 years ago

18 Replies

Persistent throat problems

Hi everyone. I'm a new member so this is my first post. I,ve been diagnosed with undifferentiated connective tissue disease but on my notes i,ve noticed it...

Hi everyone. I'm a new member so this is my first post. I,ve been diagnosed with...

smellie

•9 years ago

11 Replies

Lupus with overlaps

Lupus with overlaps I have recently been diagnosed with mysotis and anti synthetase syndrome. Ks there anyone else with the same diagnosis?

Lupus with overlaps I have recently been diagnosed with mysotis and anti synthet...

Annastearman

•9 years ago

9 Replies

Immunosuppressant

My rheumy has mentioned immunosuppressants.imuran was one and methotrexate was the other.could anyone give me an idea of that these are like,side effects and...

My rheumy has mentioned immunosuppressants.imuran was one and methotrexate was t...

amandajane76

•9 years ago

5 Replies

Update

Hi all.i have managed to get through my first week of increased steroids, from 5 mg up to 20 mg.its been a struggle mentally but think I ve turned a corner.i...

Hi all.i have managed to get through my first week of increased steroids, from 5...

amandajane76

•9 years ago

3 Replies

Methotrexate

Hi Everyone, Hoping you are all having a good day? Not posted in a while but felt the need to update. I had Rheumy Appointment in March. She has taken me off...

Hi Everyone, Hoping you are all having a good day? Not posted in a while but fe...

Debbiemay

•9 years ago

4 Replies

Can Lupus link up with MS type Neurological symptoms ?

Have just been to see the Rheumatologist last week after a couple of months of increasingly severe neurological symptoms. He thinks I have Sjogrens, maybe...

Have just been to see the Rheumatologist last week after a couple of months of i...

cuttysark

•9 years ago

34 Replies

Exercise video for people with lupus

Hi everybody, Today is World Lupus Day, so to mark the event we have launched a brand new video. This video is designed to demonstrate some gentle exercises...

Hi everybody, Today is World Lupus Day, so to mark the event we have launched a...

Paul_Howard

Partner•9 years ago

5 Replies

I LIVE IN CHRONIC PAIN

Not too long ago, someone alerted me to a video making the rounds on Facebook that took aim at people who go to the ER for pain medication. The video looked...

Not too long ago, someone alerted me to a video making the rounds on Facebook th...

Hidden

•9 years ago

4 Replies

Trying to loose weight with antiphospholipid syndrome and hyperthyroidism

I've had apl for 15 years now (found by blood clot on brain) - also had overactive thyroid - which is being treated with tamoxifen - I've tried various liquid...

I've had apl for 15 years now (found by blood clot on brain) - also had overacti...

bettyboop28

•9 years ago

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because its our month luppies :)

lupus awareness! https://www.youtube.com/watch?v=wf8UUcfRiKU

claradias

•9 years ago

1 Reply

Antiphospholipid syndrome

For the last 15 years I have been doing my own home testing with a coagu monitor I bought from roche diagnostics.I have been Increasing my tablets to have an...

For the last 15 years I have been doing my own home testing with a coagu monitor...

charlie007

•9 years ago

29 Replies

Fatigue

I don't know what I can do for this constant fatigue,can't stand it,hard trying to go to work,try to socialise with pals,2 wines,feel the effect and have to go...

I don't know what I can do for this constant fatigue,can't stand it,hard trying ...

Jeffscott69

•9 years ago

15 Replies

Steroid struggle

Does anyone else struggle mentally when steroids are upped

amandajane76

•9 years ago

7 Replies

Anti ds DNA

Hi all, a few months ago I had a rash that came up on my legs and apart from feeling a bit tired I felt fine otherwise. I went to my GP who did various blood...

Hi all, a few months ago I had a rash that came up on my legs and apart from fee...

Hidden

•9 years ago

4 Replies

Diagnosis

Hello everyone Is sero-negative lupus the same diagnosis as Undifferentiated Connective Tissue Disease?. I will be interested to see your replies. X

Hello everyone Is sero-negative lupus the same diagnosis as Undifferentiated Co...

misty14

•9 years ago

16 Replies

Pelvic pain

I am really intrigued whether pelvic back pain in Sacroiliac joint is link to sle

I am really intrigued whether pelvic back pain in Sacroiliac joint is link to sl...

amandajane76

•9 years ago

19 Replies

Ferritin

Is low ferritin common in sle

amandajane76

•9 years ago

7 Replies

April's Blog (Part 2) - Aaron's experiences of being a male with lupus

For the last article in our series of stories from men with lupus, Aaron has shared an account of his experiences. Thank you Aaron for taking the time to...

For the last article in our series of stories from men with lupus, Aaron has sha...

Paul_Howard

Partner•9 years ago

8 Replies

Sero negative

How many have zero neg lupus ? What are you main issues and how are you medicated plz

How many have zero neg lupus ? What are you main issues and how are you medicate...

amandajane76

•9 years ago

4 Replies

Looking for local Lupus Group

Hi, never posted before, only replied to a few. I am moving soon to BArwell in Leicestershire and was wondering where my nearest Lupus Group was located?

Hi, never posted before, only replied to a few. I am moving soon to BArwell in L...

Poshcards

•9 years ago

2 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2015

Lupus rash?

Connective tissue

PIP award

Circulation

Circulation

Sar

Dr Sangle

Frustrated

Frustrating rash on my nose

Vitamin D Deficiency

Persistent throat problems

Lupus with overlaps

Immunosuppressant

Update

Methotrexate

Can Lupus link up with MS type Neurological symptoms ?

Exercise video for people with lupus

I LIVE IN CHRONIC PAIN

Trying to loose weight with antiphospholipid syndrome and hyperthyroidism

because its our month luppies :)

Antiphospholipid syndrome

Fatigue

Steroid struggle

Anti ds DNA

Diagnosis

Pelvic pain

Ferritin

April's Blog (Part 2) - Aaron's experiences of being a male with lupus

Sero negative

Looking for local Lupus Group

Search posts

Pinned Posts

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Did you experience more frequent and/or severe lupus flares during the hot summer 2018 compared to summer 2017? (Please explain in comments)

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