Posts - LUPUS UK | HealthUnlocked

LUPUS UK

31,744 members • 28,102 posts

All posts for May 2015

Viral meningitis and Lumbar Punch?

Hi hope everyone is ok,I have a question for any ladies or gents who have had viral meningitis and a lumbar punch. I was admitted to hospital 2weeks ago,spent...

Hi hope everyone is ok,I have a question for any ladies or gents who have had vi...

mum-two

•9 years ago

6 Replies

Hydroxy & Skin Rash

Hi I am a diagnosed lupey, used to suffer from a really bad itchy blistered red rash, could come up anywhere but mostly on hands and face. I took myself off...

Hi I am a diagnosed lupey, used to suffer from a really bad itchy blistered red ...

Bexs18

•9 years ago

3 Replies

familys

just wondering if anyone else finds it difficult with family members.. I am extremely sun sensitive. went on holiday not well at all only went wales rained all...

just wondering if anyone else finds it difficult with family members.. I am extr...

tracyxx

•9 years ago

9 Replies

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Gp problem

I'm off work,very sore and exhausted,went to my gp,not usual one,but he only one I could get app with,told him how I felt,he said I can't give you a docs line...

I'm off work,very sore and exhausted,went to my gp,not usual one,but he only one...

Jeffscott69

•9 years ago

7 Replies

Not raynards

Is this typical if vasculitus

amandajane76

•9 years ago

21 Replies

Pregabalin Warning

Hello everyone Just want to warn anyone of you who may be switching from Gabapentin to Pregabalin it's stronger version!. Just like Gabapentin you must start...

Hello everyone Just want to warn anyone of you who may be switching from Gabape...

misty14

•9 years ago

21 Replies

Methotrexate - confusion over when to take it, so took it daily!

I was prescribed Methotrexate a month ago due to having severe reaction to other meds. The hospital pharmacy said to take the doseage 4 times for 2 weeks then...

I was prescribed Methotrexate a month ago due to having severe reaction to other...

Iona467

•9 years ago

42 Replies

hydroxy

Call your prescribing chemist on this one. They are on of your best friends when your on meds and can almost always help you out.

Call your prescribing chemist on this one. They are on of your best friends when...

Enabeana

•9 years ago

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Flare with a toddler

Hi, I'm more a lurker on here, due to the fact that my lupus has been stable for the last 3 years. (Diagnosed for 7) I'm in the middle of my biggest flare...

Hi, I'm more a lurker on here, due to the fact that my lupus has been stable fo...

AlisonM

•9 years ago

1 Reply

Anxiety side effect of sle?

Hello all. I have sle, sjogrens and raynauds which I have been treating for last 7 yrs. Good days and bad days. I also suffer from anxiety which seemed to...

Hello all. I have sle, sjogrens and raynauds which I have been treating for last...

Hidden

•9 years ago

9 Replies

how to survey? how you believe your lupus was started?

You know your GP and Rhumetologist tell you this might be why you have Lupus etc.... But be very cool to have a survey as to what you think ,may have brought...

You know your GP and Rhumetologist tell you this might be why you have Lupus etc...

dgleds

•9 years ago

69 Replies

Very tired of feeling tired

Hi all. This is my first time posting on here so hope I do not do anything wrong or upset anyone!! This might end up as being a long old rant and I will...

Hi all. This is my first time posting on here so hope I do not do anything wrong...

Hidden

•9 years ago

45 Replies

Rash

I have a rash all the time on my neck and top of my chest don't know if it is any think I got APS my face and nose itches all the time at night some time...

I have a rash all the time on my neck and top of my chest don't know if it is an...

Lesley61

•9 years ago

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need some advice

hey I'm currently new to having lupus and was wondering if anyone knew if lupus can affect you from getting pregnant?

hey I'm currently new to having lupus and was wondering if anyone knew if lupus ...

Hidden

•9 years ago

2 Replies

Can't get Plaquenil Hydroxy chloroquine anymore

I had been taking plaquenil 200mg hydroxychloroquine sulphate for many years, when switched to a quinoric version I was unwell. The Dr said to make sure...

I had been taking plaquenil 200mg hydroxychloroquine sulphate for many years, wh...

Louisecoe4

•9 years ago

14 Replies

Ro antibodies positive.

Hi all, I was told by my specialist nurse I've been tested Ro antibodies positive (which can cause congenital heart block if I have children). Can Ro...

Hi all, I was told by my specialist nurse I've been tested Ro antibodies positiv...

Hidden

•9 years ago

5 Replies

Antibiotics, reaction, lupus?

Had a real strange thing happen.. I had a bladder infection, so GP gave me a drug called Macrobid 100mg twice a day for 5 days...Ive taken this antibiotic...

Had a real strange thing happen.. I had a bladder infection, so GP gave me a dru...

dgleds

•9 years ago

31 Replies

Lupus Fog

Hello all, Hope you are having a good friday! I've started a new job and am just a month in, but recently I;ve started noticing that I'm forgetting many...

Hello all, Hope you are having a good friday! I've started a new job and am ...

Lil-Miss

•9 years ago

13 Replies

Copies of hospital letters?

I signed up to get copies of letters, and I do get a copy of the letter from my consultant to my Gp, but not copies of blood tests and other tests they do on...

I signed up to get copies of letters, and I do get a copy of the letter from my ...

Gymbabe

•9 years ago

7 Replies

small ball-like growth on eye ball

Hi all, I have been left wondering if these new symptoms are related to whatever connective tissue diseases I have (won't find out skin biopsy results until...

Hi all, I have been left wondering if these new symptoms are related to whateve...

Queencara78

•9 years ago

1 Reply

Do I or don't i?

My question is this, I started taking plaquenil a month ago 200mg a day. I have not felt this well for about a year. I have not been diagnosed with anything as...

My question is this, I started taking plaquenil a month ago 200mg a day. I have ...

Valzobel

•9 years ago

7 Replies

We can beat it

3 years ago I went into a coma ..... Lupus had attacked my brain and my spine .... I was asleep for over 3 months .The crash team brought me back twice and my...

3 years ago I went into a coma ..... Lupus had attacked my brain and my spine .....

Lillybo

•9 years ago

8 Replies

Hi everyone

Just posting to ask if anybody else has bad problems with there bones and avascular necrosis. I am seeing 3 different orthopaedic consultants. I was left for...

Just posting to ask if anybody else has bad problems with there bones and avascu...

gazzasoens

•9 years ago

5 Replies

Feeling emotionally numb

Hi, since I started Mycophenalate last yr I've been feeling emotionally numb & don't show any. I don't feel motivated/creative. I had Shingles for a mth last...

Hi, since I started Mycophenalate last yr I've been feeling emotionally numb & d...

magSLE

•9 years ago

12 Replies

Hair loss

Please can anyone on here give me advice on how to stop or reduce hair loss it's so bad lately that my shower keeps blocking up with hair. At the rate it's...

Please can anyone on here give me advice on how to stop or reduce hair loss it's...

Hidden

•9 years ago

9 Replies

Anger after receiving letter from Rhuematologist

I recently had a 2 week trial of 10mg steroids whilst waiting for test results. at the end of the two weeks I went back to see Rhumey, who asked how I had...

I recently had a 2 week trial of 10mg steroids whilst waiting for test results. ...

heather1983

•9 years ago

17 Replies

ADEM with lupus?

Have had MRI results back - ADEM? Anyone had this with lupus before. Seem to get a lot of sinus infections( or one that just doesn't go away). Could this have...

Have had MRI results back - ADEM? Anyone had this with lupus before. Seem to get...

MandyJC

•9 years ago

2 Replies

Gluten, dairy and probiotics

Hi. I wondered if anyone else had had positive (or negative) results with changes of diet and with probiotics. Having done loads of research when my daughter...

Hi. I wondered if anyone else had had positive (or negative) results with change...

yakamalayo

•9 years ago

6 Replies

What could the bad pain in my rib area/under my rib be?

Hi guys I have been having these really bad pains around my front right rib area for about 3-4 months and sometimes it's unbareable. It comes and goes but when...

Hi guys I have been having these really bad pains around my front right rib area...

Eleanorg28

•9 years ago

40 Replies

strange feeling at entrance of ear canal

I don't think this is really lupus related, but thought I'd ask if anyone on here had had a similar sensation and knew what was causing it/ how to treat...

I don't think this is really lupus related, but thought I'd ask if anyone on her...

heather1983

•9 years ago

3 Replies

Posts - LUPUS UK | HealthUnlocked

LUPUS UK

All posts for May 2015

Viral meningitis and Lumbar Punch?

Hydroxy & Skin Rash

familys

Gp problem

Not raynards

Pregabalin Warning

Methotrexate - confusion over when to take it, so took it daily!

hydroxy

Flare with a toddler

Anxiety side effect of sle?

how to survey? how you believe your lupus was started?

Very tired of feeling tired

Rash

need some advice

Can't get Plaquenil Hydroxy chloroquine anymore

Ro antibodies positive.

Antibiotics, reaction, lupus?

Lupus Fog

Copies of hospital letters?

small ball-like growth on eye ball

Do I or don't i?

We can beat it

Hi everyone

Feeling emotionally numb

Hair loss

Anger after receiving letter from Rhuematologist

ADEM with lupus?

Gluten, dairy and probiotics

What could the bad pain in my rib area/under my rib be?

strange feeling at entrance of ear canal

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